I got good news today 4 months post CAR-T when I saw Dr. Kipps.
Hgb is over 14 so back to normal. That means the iron that I am taking is working and that my bone marrow is healthy. My ALC (absolute lymphocyte count) was 1.0, and that means are likely no B cells in my peripheral blood which is good news. Probably means that the CAR-T cells are still around patrolling. The rest of the blood count is good. Waiting for the deep testing (flow cytometry) to make sure there is no cancer. If that is negative, then a bone marrow biopsy will be scheduled to see if I am still MRD- (no cancer cells) there too.
We are all in this together.