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Cognitive behavioural therapy (CBT)
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Ocaliva
Hi everybody, I’ve just been told that I should now start ocaliva aswell as urso I’m so worried about side effects after reading up on it, wondering how many of youse are getting on with it did you have lots of side effects ect!!
Hi everybody, I’ve just been told that I should now start ocaliva aswell as urso I’m so worried about side effects after reading up on it, wondering how many of youse are getting on with it did you have lots of side effects ect!!
Lena2011
in
PBC Foundation
5 months ago
testing protocol on T4 and T3
Hi all. Does anyone have any experience/wisdom re a good time to take T3 pre bloods? I currently take it when I wake up which is between 6.20 and 7.30 and in the afternoon between 3.30 and 4.30. I have a first test since starting combined therapy booked and am wondering when I should take what.
Hi all. Does anyone have any experience/wisdom re a good time to take T3 pre bloods? I currently take it when I wake up which is between 6.20 and 7.30 and in the afternoon between 3.30 and 4.30. I have a first test since starting combined therapy booked and am wondering when I should take what.
Topes009
in
Thyroid UK
8 months ago
Respite recommendations - North Hampshire, UK
Hi everyone, can anyone recommend a hospice or care home that can offer respite care for a CBD patient who is bed bound and requires 24hr care? I am struggling to find somewhere that can accommodate these high care needs for my mum on an ad hoc basis so my dad can have breaks. Respite of periods of a
Hi everyone, can anyone recommend a hospice or care home that can offer respite care for a CBD patient who is bed bound and requires 24hr care? I am struggling to find somewhere that can accommodate these high care needs for my mum on an ad hoc basis so my dad can have breaks. Respite of periods of a
bichonbear1
in
PSP Association
7 months ago
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Proton Beam Therapy
Has anyone had Proton Beam Therapy for their prostate cancer. I have read up on it but would like to know some personal experiences from anyone who has had this treatment. Preferably anyone who had proton beam therapy at Penn Medicine at Lancaster General in Lancaster, Pa. but anyone who has experienced
Has anyone had Proton Beam Therapy for their prostate cancer. I have read up on it but would like to know some personal experiences from anyone who has had this treatment. Preferably anyone who had proton beam therapy at Penn Medicine at Lancaster General in Lancaster, Pa. but anyone who has experienced
woppaginny
in
Advanced Prostate Cancer
8 months ago
Oxygen Therapy
Hi Everyone, A relative, who has MS, has suggested that I try oxygen therapy. It seems to really help them but I wondered if anyone here has had any experience of this and provide a suitable comment. Many thanks!
Hi Everyone, A relative, who has MS, has suggested that I try oxygen therapy. It seems to really help them but I wondered if anyone here has had any experience of this and provide a suitable comment. Many thanks!
RLSofManyYears
in
Restless Legs Syndrome
8 months ago
Just Stares
Good morning, everyone! My husband was diagnosed with CBD in 2018. Since then, as you all know, it has been a long downward slide. He is now bedridden and can barely speak. He is in hospice and has been for over two years. While he does choke, it is not yet out of control. He does have trouble drinking
Good morning, everyone! My husband was diagnosed with CBD in 2018. Since then, as you all know, it has been a long downward slide. He is now bedridden and can barely speak. He is in hospice and has been for over two years. While he does choke, it is not yet out of control. He does have trouble drinking
Indiana-Girl
in
PSP Association
7 months ago
Categorize Differences ?
I have said before, my first neurologist , a world recognized doctor in the field of PD told me 20 years ago that someday what we now know as Parkinson's Disease will be 10 to 15 or more individual diseases that resemble each other but may be treated differently. I keep forgetting this and continue
I have said before, my first neurologist , a world recognized doctor in the field of PD told me 20 years ago that someday what we now know as Parkinson's Disease will be 10 to 15 or more individual diseases that resemble each other but may be treated differently. I keep forgetting this and continue
Gymsack
in
Cure Parkinson's
5 months ago
norethisterone to delay period
hi everyone! does anyone have experience with norethisterone to delay period for holidays ect? I have never used it but i have a holiday coming up that the pain of being on my period would completely ruin. For me, delaying the period pain is a main priority. Any advice or experiences would be really
hi everyone! does anyone have experience with norethisterone to delay period for holidays ect? I have never used it but i have a holiday coming up that the pain of being on my period would completely ruin. For me, delaying the period pain is a main priority. Any advice or experiences would be really
Bk27
in
Endometriosis UK
5 months ago
essential thrombocytosis
Thank you for allowing me to join this group. I was diagnosed with JAK @ and essential thrombocytosis this past August. I have been taking Hydrea 500 mg on MWF I was having no problems with this dosage and my platelets were staying in a good range. This past month I started having trouble with
Thank you for allowing me to join this group. I was diagnosed with JAK @ and essential thrombocytosis this past August. I have been taking Hydrea 500 mg on MWF I was having no problems with this dosage and my platelets were staying in a good range. This past month I started having trouble with
Preacherswife
in
MPN Voice
7 months ago
North of England Endo
Good evening I’m looking for private message replies please on your recommended Endo’s in the North of England. Yorkshire and North East. Not many seem to be listed on Thyroid U.K. list. Someone open to combined therapy. Thank you! Look forward to hearing from you :)
Good evening I’m looking for private message replies please on your recommended Endo’s in the North of England. Yorkshire and North East. Not many seem to be listed on Thyroid U.K. list. Someone open to combined therapy. Thank you! Look forward to hearing from you :)
Bollieforme
in
Thyroid UK
8 months ago
I'm Back....
Hi Everyone, I was on this site several months ago and since then have been in a psychiatric hospital, been seeing a psychiatrist, had EMDR and ketamine treatments, had weekly therapy sessions and am about to try a new therapist, and have tried five different anti-depressants. I'm still struggling
Hi Everyone, I was on this site several months ago and since then have been in a psychiatric hospital, been seeing a psychiatrist, had EMDR and ketamine treatments, had weekly therapy sessions and am about to try a new therapist, and have tried five different anti-depressants. I'm still struggling
Woolybluecurl
in
Anxiety and Depression Support
5 months ago
UPDATE on my dad. A story of hope.❤️ #advancedPC
Hi my dad was diagnosed with advanced prostate cancer in Oct 2021. With Mets to spine, lungs, liver. He is 85. His PSA was 5000. (Today 28 months later his PSA is 0.031 and still dropping) He was told at the time he had 2 months to live. He had spinal surgery the morning after being diagnosed because
Hi my dad was diagnosed with advanced prostate cancer in Oct 2021. With Mets to spine, lungs, liver. He is 85. His PSA was 5000. (Today 28 months later his PSA is 0.031 and still dropping) He was told at the time he had 2 months to live. He had spinal surgery the morning after being diagnosed because
YC22
in
Advanced Prostate Cancer
7 months ago
Let's enjoy some predictions: cell and gene therapy in 2024
because sometimes we must also have some positive but realistic dreams.... https://www.massgeneralbrigham.org/en/about/newsroom/articles/2024-predictions-about-gene-and-cell-therapy
because sometimes we must also have some positive but realistic dreams.... https://www.massgeneralbrigham.org/en/about/newsroom/articles/2024-predictions-about-gene-and-cell-therapy
Maxone73
in
Advanced Prostate Cancer
8 months ago
Prostate Cancer Diet and Re-purposed Meds
I was just reading a post about Jane Mcclelland's protocol regarding her book, "How to starve cancer." She also added a second portion on a book re-released, with a Ferroptosis (death by iron) protocol. I thought the criticism to be amazing. Cancer is a baffling mystery, top scientist and great minds
I was just reading a post about Jane Mcclelland's protocol regarding her book, "How to starve cancer." She also added a second portion on a book re-released, with a Ferroptosis (death by iron) protocol. I thought the criticism to be amazing. Cancer is a baffling mystery, top scientist and great minds
PlantrichyRich
in
Advanced Prostate Cancer
5 months ago
Why should ft4 be at a certain percentage through reference range (mid to upper) when on T4/T3 combination therapy when T4 is inactive?
As per the subject title, if ft4 is inactive, then why do some people on T4/T3 therapy only feel good if their ft4 level is at the mid/upper level despite the fact their ft3 (active form) may be at a optimal level? Or if they are not feeling well, why are they advised to increase their Levo dosage if
As per the subject title, if ft4 is inactive, then why do some people on T4/T3 therapy only feel good if their ft4 level is at the mid/upper level despite the fact their ft3 (active form) may be at a optimal level? Or if they are not feeling well, why are they advised to increase their Levo dosage if
RIGBY1978
in
Thyroid UK
8 months ago
I said the wrong word.
I said CBD symptoms, I meant COPD symptoms
I said CBD symptoms, I meant COPD symptoms
Rkdevo
in
Lung Conditions Community Forum
7 months ago
I have ataxia SCA-7 / 43 rept
2 things you should try, please report. 1 I'm 56, damn old, half dead one can say. I'm still mentally in a very good condition. Physically quite medium. I can walk with my legs slowly with human or sticks support. Anyway, CBD clearly helps me. I been taking various doses weekly for 5-6 years now
2 things you should try, please report. 1 I'm 56, damn old, half dead one can say. I'm still mentally in a very good condition. Physically quite medium. I can walk with my legs slowly with human or sticks support. Anyway, CBD clearly helps me. I been taking various doses weekly for 5-6 years now
Tommi_
in
Ataxia UK
7 months ago
why is everything I do fail bc I have a learning disorder
So growing up I got fairley bullied at picked on in school, online, ect. And have adhd and recently haven’t been taking any meds for it, and am waiting on new meds and treatment transfer for this new therapist place. I’ve been going nuts, the littlest things would just make me mad and tense up and I
So growing up I got fairley bullied at picked on in school, online, ect. And have adhd and recently haven’t been taking any meds for it, and am waiting on new meds and treatment transfer for this new therapist place. I’ve been going nuts, the littlest things would just make me mad and tense up and I
collin_locke
in
CHADD's Adult ADHD Support
5 months ago
I’m not sure ( I’m 19, M ) graduated high school
So growing up I got fairley bullied at picked on in school, online, ect. And have adhd and recently haven’t been taking any meds for it, and am waiting on new meds and treatment transfer for this new therapist place. I’ve been going nuts, the littlest things would just make me mad and tense up and I
So growing up I got fairley bullied at picked on in school, online, ect. And have adhd and recently haven’t been taking any meds for it, and am waiting on new meds and treatment transfer for this new therapist place. I’ve been going nuts, the littlest things would just make me mad and tense up and I
collin_locke
in
Anxiety and Depression Support
5 months ago
BCF after 9 years post proton therapy
My PSA had been increasing slowly since my nadir of .75 in 2017 reaching 1.19 in 2022. Both RO and Uro weren't terribly concerned. I wanted PSMA after 3rd consecutive increase but both recommended a wait and see approach, especially the RO who seems honor bound to wait for 2.0 over nadir. I skipped
My PSA had been increasing slowly since my nadir of .75 in 2017 reaching 1.19 in 2022. Both RO and Uro weren't terribly concerned. I wanted PSMA after 3rd consecutive increase but both recommended a wait and see approach, especially the RO who seems honor bound to wait for 2.0 over nadir. I skipped
hwrjr
in
Prostate Cancer Network
8 months ago
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