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Into the Great Unknown
Well, I just wrapped up two years of ADT (Lupron and Xtandi) on top of 36 rounds of radiation, and a RARP. At 57 when diagnosed (PSA 5.2, Gleason 4+3, one affected pelvic lymph node per PSMA PET scan), our plan was to throw the kitchen sink at my PCa and see if we can’t knock it out. Here I am at 59
Well, I just wrapped up two years of ADT (Lupron and Xtandi) on top of 36 rounds of radiation, and a RARP. At 57 when diagnosed (PSA 5.2, Gleason 4+3, one affected pelvic lymph node per PSMA PET scan), our plan was to throw the kitchen sink at my PCa and see if we can’t knock it out. Here I am at 59
aloha_spaceman
in
Advanced Prostate Cancer
4 months ago
Drugs interactions
I am on Lupron as the only current PC treatment. Testosterone is <>1% as of Dec/18. PCP is looking to get me on (very expensive , hard to get) Serostim to help me with HIV/PC wasting SE's Thoughts, please be kind as ADT makes me get upset for nothing. Thank you.
I am on Lupron as the only current PC treatment. Testosterone is <>1% as of Dec/18. PCP is looking to get me on (very expensive , hard to get) Serostim to help me with HIV/PC wasting SE's Thoughts, please be kind as ADT makes me get upset for nothing. Thank you.
Blueribbon63
in
Advanced Prostate Cancer
4 months ago
WORRIED ABOUT REOCCURRENCE???
Worried....
Stopped IMRT 1 year ago and stopped adt (4 mos) 9 months ago...
9/23/23 Blood Test PSA .1 --- PSA FREE undetectable and Testosterone was 98
3/4/24 Blood Test PSA .2 ----Psa Free Undetectable and Testosterone not in yet.
I am concerned about the increase
Worried....
Stopped IMRT 1 year ago and stopped adt (4 mos) 9 months ago...
9/23/23 Blood Test PSA .1 --- PSA FREE undetectable and Testosterone was 98
3/4/24 Blood Test PSA .2 ----Psa Free Undetectable and Testosterone not in yet.
I am concerned about the increase
JWS13
in
Advanced Prostate Cancer
2 months ago
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help - started oestrogel- 4th day - but does it lower thyroid ? My stomach motility stopped again
hi wonderful people I started HRT oestrogel and 4th day and 2 pumps - I have really bad bloating and zero stomach motility - Does it interfere with thyroid t4 or t3 ? I have read it can lower thyroid or block the cell ? When stomaxh motility is so bad I can’t eat properly and weight is low but can
hi wonderful people I started HRT oestrogel and 4th day and 2 pumps - I have really bad bloating and zero stomach motility - Does it interfere with thyroid t4 or t3 ? I have read it can lower thyroid or block the cell ? When stomaxh motility is so bad I can’t eat properly and weight is low but can
Chouchou1234
in
Thyroid UK
4 months ago
PSA after radiation and Hormone therapy prognosis
https://meetings.asco.org/abstracts-presentations/218387 I have be searching for some data on the impact of radiation and short term hormone therapy on Intermediate cancer. If anyone else has some additional data or experiences please post Background. I finishing up 25 doses of radiation to the
https://meetings.asco.org/abstracts-presentations/218387 I have be searching for some data on the impact of radiation and short term hormone therapy on Intermediate cancer. If anyone else has some additional data or experiences please post Background. I finishing up 25 doses of radiation to the
Mgtd
in
Prostate Cancer Network
4 months ago
Hair loss, twitchy toes and Pregablin
Hi all, I am getting super frustrated and depressed: a) I have started losing a lot of hair since taking Pregabalin 200 mg at about 8.00 pm for about 8 mths now. b) I am waking up every night with restless legs ore twitching toes craving sweets. The uncontrollable twitching toes has started since I
Hi all, I am getting super frustrated and depressed: a) I have started losing a lot of hair since taking Pregabalin 200 mg at about 8.00 pm for about 8 mths now. b) I am waking up every night with restless legs ore twitching toes craving sweets. The uncontrollable twitching toes has started since I
Moonwalker1967
in
Restless Legs Syndrome
8 months ago
Triplet Therapy
My husband is going to start triplet therapy starting with a firmagon shot next week followed by chemo. How much is the typical gap between ADT and starting chemo - 2 weeks, 4 weeks ?
My husband is going to start triplet therapy starting with a firmagon shot next week followed by chemo. How much is the typical gap between ADT and starting chemo - 2 weeks, 4 weeks ?
Cali3
in
Advanced Prostate Cancer
4 months ago
‘You will never run again’, he said! Ha!
This mountain plateau-esque image represents 20 minutes of slow (Japanese style slow) jogging. Which feels like a real achievement. I completed C25K about 3 years ago, and a big part of that story was the incredible support of the HU community, and bonding with a few individuals within it. I was never
This mountain plateau-esque image represents 20 minutes of slow (Japanese style slow) jogging. Which feels like a real achievement. I completed C25K about 3 years ago, and a big part of that story was the incredible support of the HU community, and bonding with a few individuals within it. I was never
ktsok
in
Couch to 5K
4 months ago
Criteria for "my ADT has stopped working and we have to move to another"
Hello - So my third post ADT initiation (Lupron+Abi) PSA test is coming up and since it was <.1 six weeks ago, I asked how the criteria of “has stopped working” works -to my Hopkins MO and I got this - “We want to declare a therapy no longer effective when PSA is clearly going up. We look for 0.3
Hello - So my third post ADT initiation (Lupron+Abi) PSA test is coming up and since it was <.1 six weeks ago, I asked how the criteria of “has stopped working” works -to my Hopkins MO and I got this - “We want to declare a therapy no longer effective when PSA is clearly going up. We look for 0.3
jackwfrench
in
Advanced Prostate Cancer
4 months ago
Help, shall I take a break or not
I have stage 4 endometriosis and adenomyosis with bowel and bladder adhesions and cyst's on both ovaries. I've been waiting for four years for my hysterectomy and I still don't have a date. My recent hormone injection appointment was cancelled and I'm wondering whether to take the opportunity to take
I have stage 4 endometriosis and adenomyosis with bowel and bladder adhesions and cyst's on both ovaries. I've been waiting for four years for my hysterectomy and I still don't have a date. My recent hormone injection appointment was cancelled and I'm wondering whether to take the opportunity to take
Em_46
in
Endometriosis UK
4 months ago
Have you had neurosurgery for your brain tumour?
Being told you, or your loved one, needs to have surgery for their brain tumour can be a worrying time, which we know many of our community face. Help us ensure that patients and their loved ones are provided with the best information and care during treatment by sharing you experience through our Improving
Being told you, or your loved one, needs to have surgery for their brain tumour can be a worrying time, which we know many of our community face. Help us ensure that patients and their loved ones are provided with the best information and care during treatment by sharing you experience through our Improving
Zhaleh_TBTC
Administrator
in
The Brain Tumour Charity
9 months ago
Optimum levels for bloodtest
HelloI need to have my thyroid checked soon due to starting HRT what other tests do I need to request to make sure I'm at optimum level with everything? I think ferritin levels, vit d, b12 am I missing anything? Many thanks
HelloI need to have my thyroid checked soon due to starting HRT what other tests do I need to request to make sure I'm at optimum level with everything? I think ferritin levels, vit d, b12 am I missing anything? Many thanks
Sonicfairydust
in
Thyroid UK
4 months ago
Dianogest and sore and painful tongue and throat
Hi Ladies, I started taking dianogest about 8 months ago. Most common side effects only lasted few weeks and went away however, since end of September I am experiencing throat pain which radiate to my ears as well. My GP referred me to ENT clinic and they said it was laryngitis which they said can be
Hi Ladies, I started taking dianogest about 8 months ago. Most common side effects only lasted few weeks and went away however, since end of September I am experiencing throat pain which radiate to my ears as well. My GP referred me to ENT clinic and they said it was laryngitis which they said can be
Ayesfreen
in
Endometriosis UK
4 months ago
hot flushes
I’ve struggled with these for about twenty years and they have diminished over time. However, since going on preds, just over five weeks ago, they have got worse. Nothing like when they were at their worst when I was younger, but boy do they wake me up, when my sleep is pretty poor anyway, since the
I’ve struggled with these for about twenty years and they have diminished over time. However, since going on preds, just over five weeks ago, they have got worse. Nothing like when they were at their worst when I was younger, but boy do they wake me up, when my sleep is pretty poor anyway, since the
Freshairfiend
in
PMRGCAuk
4 months ago
Relative risk for secondary bone marrow cancer within 5 years after initial CLL chemoimmunotherapy treatment (typically BR or FCR)
In countries where targeted therapies ('brutinibs, venetoclax, obinutuzumab/rituximab) are now available, the remaining reason that FCR (Fludarabine+Cyclophosphamide+Rituximab) is still sometimes recommended for the treatment of CLL is that it can be curative* about 55% of the time - but [u]
only[
In countries where targeted therapies ('brutinibs, venetoclax, obinutuzumab/rituximab) are now available, the remaining reason that FCR (Fludarabine+Cyclophosphamide+Rituximab) is still sometimes recommended for the treatment of CLL is that it can be curative* about 55% of the time - but [u]
only[
AussieNeil
Administrator
in
CLL Support
9 months ago
ADT and crying
Does anyone else that has been on ADT drugs for years have trouble with tears or crying for no real reason? I tear up anymore at just the thought of something sad. It’s a major pain in the ass, not to mention embarrassing because I am still employed. Wondering if there is a solution other than stopping
Does anyone else that has been on ADT drugs for years have trouble with tears or crying for no real reason? I tear up anymore at just the thought of something sad. It’s a major pain in the ass, not to mention embarrassing because I am still employed. Wondering if there is a solution other than stopping
joeguy
in
Advanced Prostate Cancer
4 months ago
Still confused about PSA and Testosterone testing
I have been reading posts here for some time and there seems to be a split between those who only get PSA tests each time they go to their doctors and those that get both tests each time. I had a baseline testosterone test before Lupron and before radiation. I am now doing my 6 month follow up and
I have been reading posts here for some time and there seems to be a split between those who only get PSA tests each time they go to their doctors and those that get both tests each time. I had a baseline testosterone test before Lupron and before radiation. I am now doing my 6 month follow up and
Mgtd
in
Advanced Prostate Cancer
4 months ago
First DEXA shows osteopenia - hoping for some advice please
Hello everyone, this is my first post to Bone Health, but I have posted to other Healthunlocked forums recently as I’m trying to work through my various health issues. I’m in the UK and hoping to get some advice from those more experienced than me please. I paid privately for my first DEXA scan in April
Hello everyone, this is my first post to Bone Health, but I have posted to other Healthunlocked forums recently as I’m trying to work through my various health issues. I’m in the UK and hoping to get some advice from those more experienced than me please. I paid privately for my first DEXA scan in April
Bertiepuss
in
Bone Health and Osteoporosis UK
4 months ago
Thanks and hope to all
No questions …just wanted to thank everyone for all your input and support …especially during the holidays. Had my Christmas radiation treatment yesterday and 7 of 15 linac dose today.. Brachytherapy prior with ADT for the last 7 months. Things seem to be going as smoothly as it sometimes does. Appreciate
No questions …just wanted to thank everyone for all your input and support …especially during the holidays. Had my Christmas radiation treatment yesterday and 7 of 15 linac dose today.. Brachytherapy prior with ADT for the last 7 months. Things seem to be going as smoothly as it sometimes does. Appreciate
Yokohama2023
in
Advanced Prostate Cancer
4 months ago
Is nmCRPC potentially curable?
I would appreciate any input on this. I searched the internet and found this article from Fred Saad: Treatment of nonmetastatic castration-resistant prostate cancer: focus on second-generation androgen receptor inhibitors https://www.nature.com/articles/s41391-020-00310-3 I couldn't find anything
I would appreciate any input on this. I searched the internet and found this article from Fred Saad: Treatment of nonmetastatic castration-resistant prostate cancer: focus on second-generation androgen receptor inhibitors https://www.nature.com/articles/s41391-020-00310-3 I couldn't find anything
Seasid
in
Advanced Prostate Cancer
4 months ago
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