I have said before, my first neurologist , a world recognized doctor in the field of PD told me 20 years ago that someday what we now know as Parkinson's Disease will be 10 to 15 or more individual diseases that resemble each other but may be treated differently. I keep forgetting this and continue to be disappointed every time I try the latest big thing that others are claiming has brought them relief.
I continue to wonder if we can ever find cause or cure , until we identify the many individual characteristics of each disease and also the individual characteristics of the Patient .
What we can do here to help the world understand and beat P D is limited, but I think that this may be one of the worlds bigger forums and collection of people with Parkinson's (PWP) . The genetics company you23and me had a good idea. They took a swab from several thousand PWP and then we completed online questionnaires that identified all our personal characteristics (ear wax wet or dry, hair color ect.) and if any ancestor had PD. Then they mapped our personal human genome from the swab and tried to spot a commonality . They did not ask us what PD symptums we had or try to identify smaller PD similarity groups. They also did not find any new genetic links other than confirming LARK.
This is the age of specialization . That means that every bit of new knowledge is no longer distributed to every one or even searched for by all. The day of one Engineer inventing and designing a novel bridge (The Brooklyn Bridge) and building it and the foundry to produce the cast beams and the rivets and building the casson to build the submerged concrete support is long gone . Now two people may graduate with a Bachelor of Science in Structural Engineering and become a P ENG but after 20 years of experience and upgrading each in a different aspect they are worlds apart and even that much different again to the engineers that graduated with a degree in chemistry or mechanical or manufacturing engineering, and so it is in medicine . BUT amazing things happen when people from different fields work on a common project.
This place has a huge resource of information on real life PD and is motivated. Imagine if we identified all of our personal symptoms , age etc and what meds are working and what meds can not be tolerated using online questionnaires and we put an AI bot on it and some experts from different fields and ............. imagine.
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Gymsack
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As a person with Hashimoto's and REM Sleep Behavior Disorder, I think one clear line we might draw to separate causes and maybe separate treatments is between those with Hashimoto's and those that do not have Hashimoto's.
I think having Hashimoto's makes it more likely the condition is autoimmune at its root.
I have a high school degree (and until recently thought I needed to capitalize High School) so take my thoughts for what they are worth.
I'm all for doing anything that will shed more light on PD and how to handle it.
My experience over the past 32 years has been that doing FAST WALKING every second day has done me the world of good, How many other PD patients have survived for 32 years without medication?
I know this is not popular with Medics and the drugs industry but their goals are differnt to ours. We want to live as normal livfe
Hi Gymsak. This is my second try. The first disappeared.
PD affects the subconscious area of the brain. We are all able to consciously perform all our movements, thereby negating the effects of PD. You may think that is impossible, but it isn't. I have had PD for 32 years now and nobody would ever know I had PD. That was not from taking medication or doing exercise!
It was achieved by taking conscious control of my movements!
Yes you are correct that one can take control of the muscles and direct them to do things that would be done by part of the unconscious brain . My brother could barely walk and was always on the edge of falling. In his youth he had been a very good bowler and had many bowling trophies because he had practised for many hours like a professional piano player must do .
We would go bowling and he would shuffle over to the ball return and all hunched over pick up a ball. The instant he had a ball in his hands he would become a gracefull balarina , poetry in motion and every muscle in his body was reacting in a graceful delivery that ended with a strike every time. But as soon as he had released the ball he went back to his afflicted condition. I used to fast walk but I would be moving along quite nicely walking differently each step coming automatically and then a fire truck would go past and I was left watching the fire truck continue down the road while I stood there with my mouth open and frozen to the spot. If I had not brought a wheeled walker with me I was in big trouble. My brother would not use a wheeled walker, he went to visit his daughter at Christmas and fell , hit is head and died. He was not a good candidate for fast walking.
The point is some can and some can not and my theory is that we should be able to predict what various groups of people with "Parkinson's " with similar characteristics can do and which therapy (s) can help them. You have assumed that everyone with PD is the same as you and all they need do is walk like you, but that is not the case not the case at all.
"If you are unable to maintain your concentration then there is nothing I can suggest to help you...."
Maybe I need drugs. I have two MINOR signs of PD: tremor and constipation, but I've seen that there are things the brain can do to help me. If only I could concentrate long enough? 30 years ago my wife developed cancer. Her oncologist sent both of us to a stress reduction clinic. This was mostly about meditation. Meditation can sorta 'streamline' the brain's response to stimuli. How that can help tremors, I dunno.
I believe PD is an autoimmune condition. That means the body is attacking its own proteins. Allergies are similar in that the immune system is reacting to something that's not dangerous.
AHT is an old remedy that is coming back into use in canines. Dogs with allergies is an old problem. In the past the only remedy was steroids. Steroids led to secondary problems such as Cushing's Disease. And ultimately the steroids uit working.
AHT is a simple procedure. For a large dog I draw 5cc of blood. And right away inject that blood into a muscle. The body treats that blood as a foreign invader. It mobilizes the immune system to attack and destroy the blood. I don't know why it helps allergies but it does. MS is an autoimmune disease similar to PD. I have MS and I treat myself by injecting 10cc of blood into my thighs. I've been doing this monthly for 30 years. AHT is still used to treat MS.
I googled AHT at the MS website and got nothing anywhere that explains what AHT is . I believe that the World Health Organization agrees with your conviction that PD is an autoimmune disease. They said that if a disease is not contagious or hereditary or the result of the lack of something in diet than it is an autoimmune disease . That is a lot of Autoimmune , maybe we should be shutting off the immune system.
aht autohemotherapy dr maura AHT is an old treatment, These days when I search for AHT I get messages with ozone. Ozone is also an older remedy for autoimmune conditions. Not as old as AHT but maybe more effective. AHT involves taking an amount of blood from the vein and and reinjecting that blood into muscle. Ozone takes similar volumes and adds ozone gas to the blood. Then reinjects the 'ozonated' blood back into the body. Ozone is toxic if inhaled. But by adding ozone to blood the blood is 'reduced' and no longer toxic. But the reduced form can cure disease. An oxidant is a chemical that can donate O+ ions to the body. An antioxidant is a chemical like Vitamin C. Ozone is an oxidant. Inhale it and it burns your lungs. Inhale the reduced form and it can heal things like bacterial infections. Oxidation/Reduction is the basis for ozone treatment. Connecting autoimmune disease to ozone treatment gets Murky. But it's all about the plusses and minuses of chemicals in the body. Dr Shallenberger has written books about ozone and its effects on the body. He says ozone is O3. Oxygen in the body is O2. The extra O makes it O3 but it can be donated to other parts of the body.
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Promising results with electromagnetic therapy (reported long ago)
Want to help with Parkinson's research and have your DNA tested?
Dr Espay - The missing ingredient for successful disease modification in PD - Recording available
Just a thought. Could Parkinson's just be a natural part of the ageing process?
It's life
