I have ataxia SCA-7 / 43 rept

[Tommi_]

2 things you should try, please report.

1

I'm 56, damn old, half dead one can say.

I'm still mentally in a very good condition. Physically quite medium. I can walk with my legs slowly with human or sticks support.

Anyway, CBD clearly helps me. I been taking various doses weekly for 5-6 years now. After 2-3 days it helps with balance quite much. I recommend to try, although it's not that cheap, 60-90€/10ml. 20-25% oil is quite ok, not stroger or weaker. The muscle relaxers are not good for me. They cause malfunction and uncertainity of the nerves and muscles.

2

I never tried unfortuately, now it's too late for me

There is a Japanese medicine TRH Analogue Talterin. It was pointed me out by a Finnish neurologist. But at the same time he warned me that it may be difficult to get it touch with the medicine.

If you are young and cabable you may be able to work your way out to get in hold with thia medicine. As far as I understood the medicine is against the hormone wich causes the reduction of the cerebellum of the ataxia patients.

TG

[wobblybee]

There has been a Clinical Trial for Tatirelin….but no results posted

clinicaltrials.gov/search?c...

kedglobal.com/bio-pharma/ne...

[Driven1]

Read abc.net.au/news/science/202...

[Driven1]

Check out ichgcp.net/clinical-trials-...