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Chronic migraine
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Anyone know about abdominal migraines?
Hey, so a little back story . I've always had tummy issues growing up and headaches that grew into migraines the older I got. I've gone through different drugs before finding one that actually works. However, my mom has the same issues as me , literally every symptom is the same. Recently her doctor
Hey, so a little back story . I've always had tummy issues growing up and headaches that grew into migraines the older I got. I've gone through different drugs before finding one that actually works. However, my mom has the same issues as me , literally every symptom is the same. Recently her doctor
Blackedout
in
National Migraine Centre
3 years ago
Frontline Ibrutinib/Venetoclax Elicits Durable Responses in CLL With Undetectable MRD
[i]
Fixed-duration ibrutinib plus venetoclax produced superior progression-free survival when compared with chlorambucil plus obinutuzumab in the frontline treatment of patients with chronic lymphocytic leukemia, with durable responses observed in those who achieved undetectable minimal residual
[i]
Fixed-duration ibrutinib plus venetoclax produced superior progression-free survival when compared with chlorambucil plus obinutuzumab in the frontline treatment of patients with chronic lymphocytic leukemia, with durable responses observed in those who achieved undetectable minimal residual
lankisterguy
Volunteer
in
CLL Support
3 years ago
Long-Term Data Showcase the Clinical Utility of Fixed-Duration Venetoclax/Obinutuzumab in Treatment-Naïve CLL
[i]
Fixed-duration venetoclax plus obinutuzumab demonstrated prolonged remissions compared with chemoimmunotherapy in elderly patients with previously untreated chronic lymphocytic leukemia and comorbidities.
presented by Othman Al-Sawaf, MD reported July 6, 2021 by Jessica Hergert https
[i]
Fixed-duration venetoclax plus obinutuzumab demonstrated prolonged remissions compared with chemoimmunotherapy in elderly patients with previously untreated chronic lymphocytic leukemia and comorbidities.
presented by Othman Al-Sawaf, MD reported July 6, 2021 by Jessica Hergert https
lankisterguy
Volunteer
in
CLL Support
3 years ago
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Chemical pregnancy but feeling more confused!?
Evening ladies, So Friday and Saturday faint positive tests. Sunday morning lighter, started to get cramps and bleeding and then clots today. Spoke to GP as clinic said can’t help as natural positive. GP said go A&E to be referred to EPU, they did pregnancy test and negative and then did bloods and
Evening ladies, So Friday and Saturday faint positive tests. Sunday morning lighter, started to get cramps and bleeding and then clots today. Spoke to GP as clinic said can’t help as natural positive. GP said go A&E to be referred to EPU, they did pregnancy test and negative and then did bloods and
BECIO
in
Fertility Network UK
3 years ago
5 weeks post FET, good HCG but mega headache
Hi, I’m 5 weeks 2 days with good beta tests however have developed the most cracking headache. I normally get this kind of headache before my period so terrified that something is very wrong. No bleeding and too early for scan which is scheduled in 12 days time.
Hi, I’m 5 weeks 2 days with good beta tests however have developed the most cracking headache. I normally get this kind of headache before my period so terrified that something is very wrong. No bleeding and too early for scan which is scheduled in 12 days time.
Snurf
in
Fertility Network UK
3 years ago
Low beta hcg 100 d14p5dt and spotting - looking for similar stories where this is not ectopic!
I am 14 days post a fresh blastocyst transfer and my hcg is low but rising (36 day 11, 72 day 13, and today 102 😐). I have some very mild occasional cramps and spotting, with some stringy blood stained mucus discharge (hope not TMI!). I assumed when the bleeding started after the initial low beta it
I am 14 days post a fresh blastocyst transfer and my hcg is low but rising (36 day 11, 72 day 13, and today 102 😐). I have some very mild occasional cramps and spotting, with some stringy blood stained mucus discharge (hope not TMI!). I assumed when the bleeding started after the initial low beta it
singleswimmer
in
Fertility Network UK
3 years ago
Doubling of absolute Lymphoctes
It has been 11 months now since I was diagnosed with CLL. Thereafter I have been tracking my WBC and Lymphocytes . The trend curve over a year is in the attached picture. I was also taking green tea extract , curcumin , vitamin C and D since being diagnosed. Until now did not experience any B symptoms
It has been 11 months now since I was diagnosed with CLL. Thereafter I have been tracking my WBC and Lymphocytes . The trend curve over a year is in the attached picture. I was also taking green tea extract , curcumin , vitamin C and D since being diagnosed. Until now did not experience any B symptoms
WilliamTan
in
CLL Support
3 years ago
Pressure
I have been having constant 24/7 pressure in my head on going for 2 1/2 years. Multiple mri’s CT’s and any test you can think of that includes the head including lumbar puncture all tests returned normal and finding nothing. Symptoms include heavy head, dizziness, migraines, nausea. The pressure is all
I have been having constant 24/7 pressure in my head on going for 2 1/2 years. Multiple mri’s CT’s and any test you can think of that includes the head including lumbar puncture all tests returned normal and finding nothing. Symptoms include heavy head, dizziness, migraines, nausea. The pressure is all
Jake230
in
Anxiety Support
3 years ago
Kidney issues post liver transplant
Hi I'm 1 year post liver transplant, but my kidneys seem to be taking a hit. My GFR is reducing at each blood test. It is now 39 and drops by about 5 every time. They've not said if it's now CKD but I'm worried as the internet says 39 is stage 3B. They have reduced my tacrolimus to 1mg twice daily,
Hi I'm 1 year post liver transplant, but my kidneys seem to be taking a hit. My GFR is reducing at each blood test. It is now 39 and drops by about 5 every time. They've not said if it's now CKD but I'm worried as the internet says 39 is stage 3B. They have reduced my tacrolimus to 1mg twice daily,
TBSW
in
British Liver Trust
3 years ago
Possible **sensitive** faint positive
Morning ladies, yesterday I posted after have a really faint positive after leaving the HPT for a while. Today did another test and was a slightly darker line but still faint with First response. I am so shocked and confused. I am 17 days past ovulation and when I wipe light brown on tissue sorry
Morning ladies, yesterday I posted after have a really faint positive after leaving the HPT for a while. Today did another test and was a slightly darker line but still faint with First response. I am so shocked and confused. I am 17 days past ovulation and when I wipe light brown on tissue sorry
BECIO
in
Fertility Network UK
3 years ago
Leukaemia Care Interview
Hello all, I have just finished recording an interview with Leukaemia Care for use in their Spot Leukaemia Early publicity in September. I think it went well and covered my story from pre diagnosis through to where I am now. I spoke about first finding a raised lymph node and the progression of ultra
Hello all, I have just finished recording an interview with Leukaemia Care for use in their Spot Leukaemia Early publicity in September. I think it went well and covered my story from pre diagnosis through to where I am now. I spoke about first finding a raised lymph node and the progression of ultra
kitchengardener2
in
CLL Support
3 years ago
Vagus Nerve Stimulation on Ear with TENS Unit Improves HRV, Sleep, Depression, & More?
I can provide links to studies, but what I'm looking for are any experiences PWP have had with this. https://youtu.be/ZkC9RVFhlX8
I can provide links to studies, but what I'm looking for are any experiences PWP have had with this. https://youtu.be/ZkC9RVFhlX8
JAS9
in
Cure Parkinson's
3 years ago
The Leukemia & Lymphoma Society’s (LLS) Co-Pay Assistance Program assists with out-of-pocket expenses up to $11,000
Co-Pay Assistance Program https://www.lls.org/support-resources/financial-support/co-pay-assistance-program - The Leukemia & Lymphoma Society’s (LLS) Patient Financial Assistance team is dedicated to removing barriers to care by providing financial support to blood cancer patients. Our Co-Pay Assistance
Co-Pay Assistance Program https://www.lls.org/support-resources/financial-support/co-pay-assistance-program - The Leukemia & Lymphoma Society’s (LLS) Patient Financial Assistance team is dedicated to removing barriers to care by providing financial support to blood cancer patients. Our Co-Pay Assistance
lankisterguy
Volunteer
in
CLL Support
3 years ago
Migraine Treatments Amjovy/ Nerve block
Hi, I have a ‘
Chronic
migraine
‘ condition and I’m waiting to try the Amjovy drug and scheduled for a nerve/pain block injections at James Cook. Is there anyone who is on the Amjovy and can share their experiences or anyone who received nerve block injections and can offer advice?
Hi, I have a ‘
Chronic
migraine
‘ condition and I’m waiting to try the Amjovy drug and scheduled for a nerve/pain block injections at James Cook. Is there anyone who is on the Amjovy and can share their experiences or anyone who received nerve block injections and can offer advice?
Jonjo2020
in
Migraine Support
3 years ago
Xylitol for teeth
Whilst Xylitol may be equivalent to Mannitol for increasing butyrate, I would like to commend it for its ability to fight tooth decay. Of course you can chew gum containing Xylitol, but it is not recommended if you have mercury amalgam fillings. Just dissolve half a teaspoon round your mouth after each
Whilst Xylitol may be equivalent to Mannitol for increasing butyrate, I would like to commend it for its ability to fight tooth decay. Of course you can chew gum containing Xylitol, but it is not recommended if you have mercury amalgam fillings. Just dissolve half a teaspoon round your mouth after each
alexask
in
Cure Parkinson's
3 years ago
Has anyone had their first beta/OTD on d8p5dt?
I have had faint positives on FRER for 72h (since PM d5p5dt) that are getting slowly darker and pinker but remaining quite pencil like. Last night I had a faint positive on a clear blue for the first time. But today I’ve done a dumb thing and got my hcg tested, 3 days before OTD 🤦🏻♀️. It’s really
I have had faint positives on FRER for 72h (since PM d5p5dt) that are getting slowly darker and pinker but remaining quite pencil like. Last night I had a faint positive on a clear blue for the first time. But today I’ve done a dumb thing and got my hcg tested, 3 days before OTD 🤦🏻♀️. It’s really
singleswimmer
in
Fertility Network UK
3 years ago
Holistic treatments
Hello is anyone having holistic treatments which have been beneficial? I have had reflexology, gentle massage, acupuncture and cranio sacral therapy and although good at the time, have left me aching and exhausted for at least two days after. Thanks
Hello is anyone having holistic treatments which have been beneficial? I have had reflexology, gentle massage, acupuncture and cranio sacral therapy and although good at the time, have left me aching and exhausted for at least two days after. Thanks
Dream23
in
MPN Voice
3 years ago
Experience with Tacrolimus with or without Azathioprine
Hi all! My drs are suggesting to put me on tacrolimus alongside AZA to help with my joint pain. Has anyone been on tacrolimus? With or without AZA or another immunosuppressant? How is your experience? Anyone have any knowledge/experience of long-term tacrolimus? Also, I got told by the nurse
Hi all! My drs are suggesting to put me on tacrolimus alongside AZA to help with my joint pain. Has anyone been on tacrolimus? With or without AZA or another immunosuppressant? How is your experience? Anyone have any knowledge/experience of long-term tacrolimus? Also, I got told by the nurse
Sandy1212
in
LUPUS UK
3 years ago
Tww for scan
i got 2100+ HCG at 15dp6dt. today is 17dp6dt now booked for another two weeks wait for the scan. I am super nervous. my heartbeat is so fast. all negative thoughts are coming over my mind. I don't know what should I do? This wait becomes very hard for me.
i got 2100+ HCG at 15dp6dt. today is 17dp6dt now booked for another two weeks wait for the scan. I am super nervous. my heartbeat is so fast. all negative thoughts are coming over my mind. I don't know what should I do? This wait becomes very hard for me.
Hiramunir78
in
Fertility Network UK
3 years ago
Has anyone used cordyceps as an adjunctive treatment for kidney disease?
Cordyceps worm mold is widely used in China to treat kidney disease, and some scientific studies indicate that it may reduce creatinine values in patients with chronic kidney disease. I have never found found much personal benefit from it. Conclusions of recent Chinese study: "Current evidence shows
Cordyceps worm mold is widely used in China to treat kidney disease, and some scientific studies indicate that it may reduce creatinine values in patients with chronic kidney disease. I have never found found much personal benefit from it. Conclusions of recent Chinese study: "Current evidence shows
Falkenhayn
in
Kidney Transplant Patient Support
3 years ago
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