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Any advice re chronic migraines? No drugs help up to now
Had a
chronic
migraine
now for 1 year. Ajovy and botox not helped at all. Currently cut out sugar and alcohol and about to start 30 day strict healthy keto diet.
Had a
chronic
migraine
now for 1 year. Ajovy and botox not helped at all. Currently cut out sugar and alcohol and about to start 30 day strict healthy keto diet.
Francesca21
in
National Migraine Centre
3 years ago
6.3 weeks no symptoms!?!?
Hey lovley ladies xx So I'm 6. 3 weeks pregnant I had my beta HCG on the 23rd it came back as low at 66, did a repeat the nurse said congratulations your beta rose to 227 so a good increase and something to calm the worry for probably an hour before I realised I have the dreaded scan to look forward
Hey lovley ladies xx So I'm 6. 3 weeks pregnant I had my beta HCG on the 23rd it came back as low at 66, did a repeat the nurse said congratulations your beta rose to 227 so a good increase and something to calm the worry for probably an hour before I realised I have the dreaded scan to look forward
Helensafc
in
Fertility Network UK
3 years ago
Sensitive post... BFP finally❤️✌️Allhamdulillah
387.87 beta hcg value at day 12 of FET... Is it a good one? Having bloating and pressure in lower pelvis area.. Constipated🙄
387.87 beta hcg value at day 12 of FET... Is it a good one? Having bloating and pressure in lower pelvis area.. Constipated🙄
Rihab1
in
Fertility Network UK
3 years ago
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HCG at 107 on d9p5dt
Is this good? 2nd blood test on Monday
Is this good? 2nd blood test on Monday
Snurf
in
Fertility Network UK
3 years ago
Nutrition and Cll
I was diagnosed with Cll 3 months ago but my GP doctor suspected it a year ago. I am on W&W. I am wondering if I need to be on any kind of special diet and what supplements to take or not to take? The hematologist asked for a list of prescriptions and supplements I take but did not comment on them.
I was diagnosed with Cll 3 months ago but my GP doctor suspected it a year ago. I am on W&W. I am wondering if I need to be on any kind of special diet and what supplements to take or not to take? The hematologist asked for a list of prescriptions and supplements I take but did not comment on them.
sugar03
in
CLL Support
3 years ago
MBL is now CLL
Hi all, My MBL has progressed to CLL stage 1 after 8 years which I am struggling to come to terms with. I am now 51. Small glands in neck and groin and possibly a slightly enlarged spleen my lymphocytes were around 12-14 For couple of years but shot up to 24 recently. I am getting scams in 3 months.
Hi all, My MBL has progressed to CLL stage 1 after 8 years which I am struggling to come to terms with. I am now 51. Small glands in neck and groin and possibly a slightly enlarged spleen my lymphocytes were around 12-14 For couple of years but shot up to 24 recently. I am getting scams in 3 months.
Billy_Oz
in
CLL Support
3 years ago
8 months
So after 8 months on Ibrutinib my spleen is close to normal size, my blood count is normal, but 1/4 to 1/3 of my lymphocytes are still CLL. Side effects are gone, although I do get the odd day with stiff joints. Great progress, and my life is almost normal again. I didn’t respond to the Covid vaccines
So after 8 months on Ibrutinib my spleen is close to normal size, my blood count is normal, but 1/4 to 1/3 of my lymphocytes are still CLL. Side effects are gone, although I do get the odd day with stiff joints. Great progress, and my life is almost normal again. I didn’t respond to the Covid vaccines
809123
in
CLL Support
3 years ago
Relapsing on Ibrutinib
Hello everyone, as I mention here a few weeks ago, my treatment with Ibrutinib is going to end soon due to (Dr. thinks) a mutation. I am going to see the Oncologist in 2 weeks and I have to make a decision which treatment I want to be put on. There are two options open for me. One is Venetoclax and
Hello everyone, as I mention here a few weeks ago, my treatment with Ibrutinib is going to end soon due to (Dr. thinks) a mutation. I am going to see the Oncologist in 2 weeks and I have to make a decision which treatment I want to be put on. There are two options open for me. One is Venetoclax and
Doremefasol
in
CLL Support
3 years ago
From the CLL14 Study: Venetoclax Plus Obinutuzumab Prolongs Progression Free Survival, Not Overall Survival , in CLL
These results, from the CLL14 study (ClinicalTrials.gov Identifier: NCT02242942), were presented at the European Hematology Association (EHA) 2021 Virtual Congress. Extended follow-up suggests that venetoclax plus obinutuzumab prolongs progression-free survival (PFS), but not overall survival (OS), when
These results, from the CLL14 study (ClinicalTrials.gov Identifier: NCT02242942), were presented at the European Hematology Association (EHA) 2021 Virtual Congress. Extended follow-up suggests that venetoclax plus obinutuzumab prolongs progression-free survival (PFS), but not overall survival (OS), when
Jm954
Administrator
in
CLL Support
3 years ago
STELLAR Trial in the UK for Richter's
Just a reminder that there is a UK trial at 17 centres around the UK for patients who have a Richter's transformation of their CLL. The usual treatment for Richter’s syndrome is R-CHOP. This is a combination of chemotherapy drugs and a targeted drug called rituximab. This treatment can help and cure
Just a reminder that there is a UK trial at 17 centres around the UK for patients who have a Richter's transformation of their CLL. The usual treatment for Richter’s syndrome is R-CHOP. This is a combination of chemotherapy drugs and a targeted drug called rituximab. This treatment can help and cure
Jm954
Administrator
in
CLL Support
3 years ago
PREDNISONE, NK cells, Recurrent Miscarriage - 4th pregnancy and anxiety is through the roof
Hello ladies, those of you who have had NK cells blood test, can you all kindly share what level your nk cell was at? I did the chicago test and my nk cells was 27 vs normal of 10. When i did the test, I had just miscarried for the third time so just wanted them checked. I am now pregnant again (naturally
Hello ladies, those of you who have had NK cells blood test, can you all kindly share what level your nk cell was at? I did the chicago test and my nk cells was 27 vs normal of 10. When i did the test, I had just miscarried for the third time so just wanted them checked. I am now pregnant again (naturally
joey81
in
Fertility Network UK
3 years ago
High HCG reading
Hi lovely Ladies I’ve just received the best news that my 3rd attempt has resulted in a big fat positive test, the thing that I’m worried about is my HCG is over 700 which is very high only 14 days after that little egg was put into me. Have anyone had the same thing happen and everything worked out
Hi lovely Ladies I’ve just received the best news that my 3rd attempt has resulted in a big fat positive test, the thing that I’m worried about is my HCG is over 700 which is very high only 14 days after that little egg was put into me. Have anyone had the same thing happen and everything worked out
GreenAunt3
in
Fertility Network UK
3 years ago
Sunday Lunches
My sister lives abroad and comes over to the UK each year for our summer months. Last year with all that was going on only stayed 4/5wks in case Barbados put the UK on their no entry list etc. I was fine meeting her at our favourite restaurants for Sunday lunch and/or even additional mid week, as
My sister lives abroad and comes over to the UK each year for our summer months. Last year with all that was going on only stayed 4/5wks in case Barbados put the UK on their no entry list etc. I was fine meeting her at our favourite restaurants for Sunday lunch and/or even additional mid week, as
Makingmebetter
in
Lung Conditions Community Forum
3 years ago
BTK inhibitors for the treatment of CLL - the current state of play of 'brutinibs'
In just a short time, in many places, BTK inhibitors (BTKi) have largely replaced chemoimmunotherapy (CIT) for treatment naive CLL patients, while also playing an important role in relapsed/refractory CLL. For a
detailed list of the many BTK inhibitors
in the pipeline, check out @AussieNeil’s
In just a short time, in many places, BTK inhibitors (BTKi) have largely replaced chemoimmunotherapy (CIT) for treatment naive CLL patients, while also playing an important role in relapsed/refractory CLL. For a
detailed list of the many BTK inhibitors
in the pipeline, check out @AussieNeil’s
CLLerinOz
Administrator
in
CLL Support
3 years ago
Peri menopause headaches or migraines every day yes or no?
Headaches every day, paracetamols don’t seem to be working , I’ve been told peri menopause can cause migraines and headaches, has any other lady had this daily headache mainly in the evenings
Headaches every day, paracetamols don’t seem to be working , I’ve been told peri menopause can cause migraines and headaches, has any other lady had this daily headache mainly in the evenings
Dizzypants
in
IBS Network
3 years ago
Medication question
Can anyone tell me what would happen if your LH surge wasn’t suppressed in the short-protocol? I have just found out that I should have taken a medication called Fyremadel alongside 150 Bemfola and I hadn’t been because of miscommunication. Just to add, for anyone who would quite rightly deem me a
Can anyone tell me what would happen if your LH surge wasn’t suppressed in the short-protocol? I have just found out that I should have taken a medication called Fyremadel alongside 150 Bemfola and I hadn’t been because of miscommunication. Just to add, for anyone who would quite rightly deem me a
AJJ123
in
Fertility Network UK
3 years ago
CLL and Night Sweats
I have been on W&W for 1-1/2 years. Lymph % is 69.7, Lymph # 10.26 and WBC at 14.73. Just started having night sweats. What does one do? I am waiting on response from my doc but thought I would get feedback here. Thank you all for caring!
I have been on W&W for 1-1/2 years. Lymph % is 69.7, Lymph # 10.26 and WBC at 14.73. Just started having night sweats. What does one do? I am waiting on response from my doc but thought I would get feedback here. Thank you all for caring!
CBME
in
CLL Support
3 years ago
Could this be it??
Hi guys OMG I just wanted to share my news I recieved today!! LONG POST ALERT So I first got pregnanct with a fresh transfer in march but I had consistent low HCG levels then when it came to all my scans baby was measuring 2 weeks behind each time until I eventually miscarried at 10 weeks. So here
Hi guys OMG I just wanted to share my news I recieved today!! LONG POST ALERT So I first got pregnanct with a fresh transfer in march but I had consistent low HCG levels then when it came to all my scans baby was measuring 2 weeks behind each time until I eventually miscarried at 10 weeks. So here
Helensafc
in
Fertility Network UK
3 years ago
Low HCG
I had 2 day 3 embryo transfer via IcSi on 9th August, testing date was Friday 20th August levels were 35 & was told it’s positive. Repeated bloods on Monday 23rd levels were 41, progesterone & oestrogen had dropped also I have a repeat blood test tomorrow but have been told to except the worst 😭😭😭
I had 2 day 3 embryo transfer via IcSi on 9th August, testing date was Friday 20th August levels were 35 & was told it’s positive. Repeated bloods on Monday 23rd levels were 41, progesterone & oestrogen had dropped also I have a repeat blood test tomorrow but have been told to except the worst 😭😭😭
Jinas
in
Fertility Network UK
3 years ago
Slow rising HCG
I had 2 day 3 embryo transfer via IcSi on 9th August, testing date was Friday 20th August levels were 35 & was told it’s positive. Repeated bloods on Monday 23rd levels were 41, progesterone & oestrogen had dropped also I have a repeat blood test tomorrow but have been told to except the worst 😭😭😭
I had 2 day 3 embryo transfer via IcSi on 9th August, testing date was Friday 20th August levels were 35 & was told it’s positive. Repeated bloods on Monday 23rd levels were 41, progesterone & oestrogen had dropped also I have a repeat blood test tomorrow but have been told to except the worst 😭😭😭
Jinas
in
Fertility Network UK
3 years ago
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