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CLL Educational Webinar
This educational webinar will give an overview of how CLL is treated today and the significance of ’hot topics’ and key treatment development advances published and discussed at 2022 international hematology conferences. What is new and what does this mean for patients? We will be joined by: Prof Paolo
This educational webinar will give an overview of how CLL is treated today and the significance of ’hot topics’ and key treatment development advances published and discussed at 2022 international hematology conferences. What is new and what does this mean for patients? We will be joined by: Prof Paolo
Irishcll
in
CLL Support
1 year ago
Constant pressure left side and nose
Can that be a
chronic
migraine
? It never goes away. Does anyone else experience this?
Can that be a
chronic
migraine
? It never goes away. Does anyone else experience this?
Fairfax1968
in
National Migraine Centre
2 years ago
7dp5dt - progesterone levels have gone down?! And BFN...
Hello everyone,So I've been testing early since my FET (I know, but I've had 4 BFPs on prior transfers from as early as 3dpt and by 5dpt it'salways been very obvious) and apart from some misguided excitement over indent lines and faulty tests, it's been pretty clear that I'm out. I also just got my HCG
Hello everyone,So I've been testing early since my FET (I know, but I've had 4 BFPs on prior transfers from as early as 3dpt and by 5dpt it'salways been very obvious) and apart from some misguided excitement over indent lines and faulty tests, it's been pretty clear that I'm out. I also just got my HCG
MrsOrangejuice
in
Fertility Network UK
1 year ago
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Patient Empowerment Network New CLL Content March 2023
Dr. Michael Choi explains CLL patient trial opportunities and provides key questions to ask about clinical trial participation View Now >> https://powerfulpatients.org/2022/12/07/hesitant-to-participate-in-a-cll-clinical-trial-what-you-should-know/ - Developing CLL Research and Treatment News
Dr. Michael Choi explains CLL patient trial opportunities and provides key questions to ask about clinical trial participation View Now >> https://powerfulpatients.org/2022/12/07/hesitant-to-participate-in-a-cll-clinical-trial-what-you-should-know/ - Developing CLL Research and Treatment News
lankisterguy
Volunteer
in
CLL Support
1 year ago
hcg only rising by 20% each time
Hi all, I’m in beta hell right now 😭. 1st beta (7dp6dt) 73.95 2nd beta (10dp6dt) 94.45 3rd beta (13dp6dt) 144.6 anyone have anything similar? Should I just call it quits?
Hi all, I’m in beta hell right now 😭. 1st beta (7dp6dt) 73.95 2nd beta (10dp6dt) 94.45 3rd beta (13dp6dt) 144.6 anyone have anything similar? Should I just call it quits?
Gigigigo
in
Fertility Network UK
1 year ago
Relapse/Refractory CLL
Hi All, At my last appointment w/CLL specialist, in December, he noted that my CLL appears to be becoming active again and I'll likely need treatment again this year. :( Instead of the usual 6-months, he set our next appointment for 3-months, which is coming up this week. So, of course, I've been
Hi All, At my last appointment w/CLL specialist, in December, he noted that my CLL appears to be becoming active again and I'll likely need treatment again this year. :( Instead of the usual 6-months, he set our next appointment for 3-months, which is coming up this week. So, of course, I've been
TeamDirtyBoots
in
CLL Support
1 year ago
FRERs out of stock UK - alternatives?
Hi everyone - having always used FRERs to test and found them reliable, I can't find them in stock online and when I went to Boots their shelves were very sparse of everything but own brand and CBD. The double packs seem have gone completely and the singles now have a very long wait and also quite expensive
Hi everyone - having always used FRERs to test and found them reliable, I can't find them in stock online and when I went to Boots their shelves were very sparse of everything but own brand and CBD. The double packs seem have gone completely and the singles now have a very long wait and also quite expensive
MrsOrangejuice
in
Fertility Network UK
1 year ago
PLEASE REPLY IF YOU ARE A NON TREMOR DOMINANT PARKISON'S PATIENT WHO HAD DEEP BRAIN STIMULATION DONE.
MY QUESTIONS ARE : DID YOU HAVE BALANCE AND GAIT PROBLEMS BEFORE HAVING DBS SURGERY? iF YES,DID DBS HELP WITH IMPROVING YOUR GAIIT AND BALANCE? 2)WHAT ARE THE BENEFITS THAT YOU GAIN FROM DBS? 3) WHEN WAS YOU DBS DONE? 4) WILL YOU DO IT AGAI N?
MY QUESTIONS ARE : DID YOU HAVE BALANCE AND GAIT PROBLEMS BEFORE HAVING DBS SURGERY? iF YES,DID DBS HELP WITH IMPROVING YOUR GAIIT AND BALANCE? 2)WHAT ARE THE BENEFITS THAT YOU GAIN FROM DBS? 3) WHEN WAS YOU DBS DONE? 4) WILL YOU DO IT AGAI N?
OREOLU
in
Cure Parkinson's
2 years ago
Thyroid dysfunction and its role in renal problems
This interesting paper links renal problems to thyroid dysfunction. -->
Thyroid Dysfunction and Renal Function: A Crucial Relationship to Recognize
February 2023
Cureus 15(2):e35242 DOI: 10.7759/cureus.35242
Rania Naguib, Eman Elkemary
[b
This interesting paper links renal problems to thyroid dysfunction. -->
Thyroid Dysfunction and Renal Function: A Crucial Relationship to Recognize
February 2023
Cureus 15(2):e35242 DOI: 10.7759/cureus.35242
Rania Naguib, Eman Elkemary
[b
diogenes
in
Thyroid UK
1 year ago
Progesterone levels?
Hey everyone - I think I’m out (just waiting on results of confirmatory blood hcg test before stopping my meds). However while still on them I got my progesterone checked at a private lab in Antrim. It’s coming up at 20.6 nmol/l - anyone who’s has theirs checked during tww, what did your doctor say the
Hey everyone - I think I’m out (just waiting on results of confirmatory blood hcg test before stopping my meds). However while still on them I got my progesterone checked at a private lab in Antrim. It’s coming up at 20.6 nmol/l - anyone who’s has theirs checked during tww, what did your doctor say the
ForABabyPanda
in
Fertility Network UK
1 year ago
Surrogate is 9 weeks pregnant but measured 2 days behind at 7 week scan... should I be worried?
Hi everyone, so after 15 failed embryo transfers in my own body, we moved onto surrogacy. By some miracle our surrogate fell pregnant on our 16th transfer but her FIRST. Hcg numbers were great and she has been suffering every day with morning sickness, which obviously I wouldn't wish on anyone but it
Hi everyone, so after 15 failed embryo transfers in my own body, we moved onto surrogacy. By some miracle our surrogate fell pregnant on our 16th transfer but her FIRST. Hcg numbers were great and she has been suffering every day with morning sickness, which obviously I wouldn't wish on anyone but it
Kimbob82
in
Fertility Network UK - Pregnancy Support
1 year ago
Tension headache
Hopefully someone can help, on 5th August while on holiday I started with a migraine the next day it was worse so got tablets from greek doc which helped a little. Flew the next day and felt not too bad then it came back 10fold. Doctor sent me to hospital for CT scan which didn't get done as they said
Hopefully someone can help, on 5th August while on holiday I started with a migraine the next day it was worse so got tablets from greek doc which helped a little. Flew the next day and felt not too bad then it came back 10fold. Doctor sent me to hospital for CT scan which didn't get done as they said
Furbabymum23
in
Anxiety Support
2 years ago
School experiences of teenagers living with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Another interesting dissertation: Lewis, M. L. (2022). A narrative inquiry into the school experiences of teenagers living with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)(Doctoral dissertation, University of Bristol). https://research-information.bris.ac.uk/ws/portalfiles/portal/
Another interesting dissertation: Lewis, M. L. (2022). A narrative inquiry into the school experiences of teenagers living with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)(Doctoral dissertation, University of Bristol). https://research-information.bris.ac.uk/ws/portalfiles/portal/
theia
in
Myalgic Encephalomyelitis Community
1 year ago
Wind-eze problems
Hi all Hope you all had a good pain and sprout free Christmas Reading some feeds today I see there is a problem with Wind-eze supply, a couple of weeks ago a GP recommended an over the counter/ shop floor product called COLPERMIN IBS RELIEF it’s basically Peppermint oil capsules, I’ve tried it a couple
Hi all Hope you all had a good pain and sprout free Christmas Reading some feeds today I see there is a problem with Wind-eze supply, a couple of weeks ago a GP recommended an over the counter/ shop floor product called COLPERMIN IBS RELIEF it’s basically Peppermint oil capsules, I’ve tried it a couple
Jaluga
in
IBS Network
2 years ago
topiramate migraine prevention
hi I’ve just started taking topiramate to hopefully prevent migraine after trying many others, having awful side effects and continuing to rely on triptans. Feeling a bit weird after just the first topiramate hoping it settles quickly. Anyone else got experience of topiramate for migraine? Thanks
hi I’ve just started taking topiramate to hopefully prevent migraine after trying many others, having awful side effects and continuing to rely on triptans. Feeling a bit weird after just the first topiramate hoping it settles quickly. Anyone else got experience of topiramate for migraine? Thanks
Discodog
in
National Migraine Centre
2 years ago
9dp5dt lack of line progression
I'm 9dp5dt and although today's test isn't morning urine, my day 5 and 7 positives were afternoons too. Is this going to be a chemical? 😩 the only hope I have at the moment is that the day 9 is a little bit darker than day 7. I have my hcg bloods tomorrow so I'll find out the numbers but has anyone
I'm 9dp5dt and although today's test isn't morning urine, my day 5 and 7 positives were afternoons too. Is this going to be a chemical? 😩 the only hope I have at the moment is that the day 9 is a little bit darker than day 7. I have my hcg bloods tomorrow so I'll find out the numbers but has anyone
Chipchaps
in
Fertility Network UK
1 year ago
2 month continuous migraine
Is it within normal for a
chronic
migraine
sufferer to have continuous symptoms for over 2 months? Aside from the headaches, dizziness etc, the most difficult symptom is being woken every night with severe nausea. I have preventative meds.
Is it within normal for a
chronic
migraine
sufferer to have continuous symptoms for over 2 months? Aside from the headaches, dizziness etc, the most difficult symptom is being woken every night with severe nausea. I have preventative meds.
Button2
in
National Migraine Centre
2 years ago
not pregnant
hi has anyone have high hcg in blood, but not pregnant?
hi has anyone have high hcg in blood, but not pregnant?
Hidden
in
British Liver Trust
1 year ago
HCG/ progesterone levels
Hi all, I am 13dp5dt and had 2 Betas so far. First was 183 HCG and 117 progesterone. Todays was 484 HCG but 98.3 progesterone. I know I’m probably worrying over nothing as my clinic seem happy with these results but once again looking for reassurance that these numbers are ok? I’m having my third (and
Hi all, I am 13dp5dt and had 2 Betas so far. First was 183 HCG and 117 progesterone. Todays was 484 HCG but 98.3 progesterone. I know I’m probably worrying over nothing as my clinic seem happy with these results but once again looking for reassurance that these numbers are ok? I’m having my third (and
Rocky888
in
Fertility Network UK
1 year ago
9dp5dt - negative
Tested this morning on and a stark negative on 2 tests (both 20ml hcg sensitivity) Are we out? OTD is the 10th but doesn't look like anyones had any success this late on Feeling deflated - no fertility issues, cycle all went smoothly - uterus lining was above 10 - really unsure how to feel.
Tested this morning on and a stark negative on 2 tests (both 20ml hcg sensitivity) Are we out? OTD is the 10th but doesn't look like anyones had any success this late on Feeling deflated - no fertility issues, cycle all went smoothly - uterus lining was above 10 - really unsure how to feel.
Tryingforbabynow
in
Fertility Network UK
1 year ago
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