Experiences with

Chronic migraine

Hi I have chronic migraine, very sensitive to all medications. Have been offered botox but quite scared as could cause more issues and fibromyalgia pain is through the roof. Have had a bad migraine for 4 days no medication anyone gotvany ideas or been through similar.

Hello, has anyone used the Cefaly device to prevent migraines / treat migraine episodes? Last month I experienced 14, so really want to try and find a way to manage them. Thank you! A bit of history: diagnosed with migraine (with aura) after having my daughter (previously had them when on the combined

On the other hand, being triple-positive at high levels and with bad chronic migraine including stroke-like symptoms makes me feel that I am probably at high risk for a clotting event. I have already been taking low-dose aspirin for years because of higher stroke risk due to migraine with aura.

For the last couple of years along with increased migraine frequency I have bouts of waking, hot, panicky from vivid dreams during the night and beginnings of migraine. Also a lot of facial flushing! 64 yr old female, chronic migraine sufferer.

Hi After countless years with chronic migraine and the failure of every intervention that I’ve had I have now been prescribed Flunarazine and then when it comes available the tablet form of Atogepant.

I have suffered for 15years with migraine which is chronic now. I am due to have Botox injections into my head, I think 34 of them.. I am quite scared about having the treatment and apprehensive but I have read that it is quite successful for a lot of people.

This has happened before and after about 9 months I was back to being a chronic migraine sufferer before then going back on aimovig. My real worry is that she may refuse allowing me to having it prescribed again.

I’ve been cursed with fibromyalgia and chronic migraine. That makes me so depressed and anxious. I’ve lost my friends and I feel like I have no energy for this life anymore. So many years of battling a disease have left me completely burnt out.

I have chronic migraine and struggling to access dental care as dentists are taking a deposit for appointments and when I miss the appointment due to migraine they claim it and request a new one on the next appointment booking. How are people managing this?

Has anyone got any advice on which type of magnesium supplement is best for chronic migraine with aura, the dose and when to take it? Read a few posts, but feel super confused by the options. Thank you!

I am having physio, taking Nortriptyline (against my better judgement as I suffer chronic migraine and part of the reason I had surgery to be able to reduce the drugs!) and I need to give it time apparently. Only able to take paracetamol, heat blanket, tried a warm bath.

Hi there, I have had chronic migraine for the last 13 years but have had them every single day for the last 2 years.

My neurologist said this may be helpful for my chronic migraine. I have a good feeling about starting this medication as my Mum has used it in a different circumstance and she found it very succcesful. Looking for those who have tried Lamotrigine to treat migraine!!

Hi everyone, I was wondering if anybody is struggling (and this for years) with chronic migraine and chronic sore throat/chronic tonsillitis. I have come to think that part of my migraines are caused by an underlying chronic infection. As usual, blood tests are fine.

hi has anyone had Rimegepant for chronic migraine? Could you get it on NHS?And did it help thx

If so, was it helpful for chronic migraine? Many thanks.

But can anyone understand the problem if your new life is daily chronic migraine, which after three years is unrelenting. The neurologist has just told me there’s likely to be no change. He also said they were likely to get worse as the brain shrinks as you get older. I’m late 50’s.

Hello there, I have just had a call from the Vascular Unit in Coventry who want to do an ultrasound test (I had brain MRI, Blood Vessel MRI and Colour Doppler in China and a Rheumatologist and GP who confirmed GCA). The guy on the phone said that the rheumatologist I met on Friday has requested it

I asked my GP to stop treatment with carbamazepine due to increasing side-effects having taken it for over 25 years. I asked to be switched on to a more modern equivalent of carbamazepine. They put me on Levitiracetam, then Brivaracetam which caused me problems. After viewing this video I quickly

I have an appointment with a neurologist next week to discuss advanced migraine prevention treatments on the NHS. I have been offered various treatments and need to choose which one I would prefer to try. I have looked through the information they have given me but would like people's opinions if possible