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Some CLL clinical trials insist that patients have multiple CT scans. Every test should have a reason.
Special Article: The Cumulative Risk of Multiple CT Scans on Blood Cancer Patients Enrolled in Clinical Trials by Board member Bob Levis. Some CLL clinical trials insist that patients have multiple CT scans. Every test should have a reason. Patients should ask questions! https://cllsociety.org/2021/09
Special Article: The Cumulative Risk of Multiple CT Scans on Blood Cancer Patients Enrolled in Clinical Trials by Board member Bob Levis. Some CLL clinical trials insist that patients have multiple CT scans. Every test should have a reason. Patients should ask questions! https://cllsociety.org/2021/09
bkoffman
CLL CURE Hero
in
CLL Support
3 years ago
CLL Society Webinar The Right Tests at the Right Time for CLL. Tests to guide treatment in all phases of CLL have never been better!
Coming this Friday October 15th: The Right Tests at the Right Time! Testing to guide treatment in all phases of CLL has never been better! Hear the stunning first-hand accounts of CLL patients Tammi Garrett and David Klausmeyer, whose treatment regimens were radically changed by critical testing, echoing
Coming this Friday October 15th: The Right Tests at the Right Time! Testing to guide treatment in all phases of CLL has never been better! Hear the stunning first-hand accounts of CLL patients Tammi Garrett and David Klausmeyer, whose treatment regimens were radically changed by critical testing, echoing
bkoffman
CLL CURE Hero
in
CLL Support
3 years ago
Richter transformation of CLL: a British Society for Haematology Good Practice Paper
This best practice paper, written by some of the best and most respected CLL experts in the UK and published on 4th October 2021 following a review of all the evidence and clinical trials available, should form the basis for the treatment of Richter's Syndrome in hospitals in the UK. Details here:
This best practice paper, written by some of the best and most respected CLL experts in the UK and published on 4th October 2021 following a review of all the evidence and clinical trials available, should form the basis for the treatment of Richter's Syndrome in hospitals in the UK. Details here:
Jm954
Administrator
in
CLL Support
3 years ago
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Has anyone tried oxymorphone?
Hi, has anyone here tried oxymorphone for RLS? oxymorphone is similar to oxycodone but with much less sleeping difficulties in comparison with oxycodone. I have been doing extensive research for an opioid which exerts less sleeping difficulties because the oxycodone I am taking gives me severe insomnia
Hi, has anyone here tried oxymorphone for RLS? oxymorphone is similar to oxycodone but with much less sleeping difficulties in comparison with oxycodone. I have been doing extensive research for an opioid which exerts less sleeping difficulties because the oxycodone I am taking gives me severe insomnia
halperinchen
in
Restless Legs Syndrome
3 years ago
***UPDATE***confirmed miscarriage at 21dpo
Today I had my Hcg done. It came back at a "wonderful" number of 3,4 iu/l from 130iu/l which was exactly 7 days ago. I found out it didn't had a chance in the first place. It failed to implant further, so my Hcg levels didn't even doubled in the first 48 hours. I'm still bleeding after about 36 hours
Today I had my Hcg done. It came back at a "wonderful" number of 3,4 iu/l from 130iu/l which was exactly 7 days ago. I found out it didn't had a chance in the first place. It failed to implant further, so my Hcg levels didn't even doubled in the first 48 hours. I'm still bleeding after about 36 hours
Hidden
in
Fertility Network UK
2 years ago
Inhixa pregnant 5 weeks 4 days and bleeding
First time posting on here.. looking for some sort of miracle …. 4 ivf cycles, 5 th transfer 24/11/21 BFP… so so strong in fact ( where the control line is faint)… yesterday 19 days post transfer I had a sudden painless gush of fresh red bleeding which soaked through all my clothes (sorry TMI) which
First time posting on here.. looking for some sort of miracle …. 4 ivf cycles, 5 th transfer 24/11/21 BFP… so so strong in fact ( where the control line is faint)… yesterday 19 days post transfer I had a sudden painless gush of fresh red bleeding which soaked through all my clothes (sorry TMI) which
Hopeful2021
in
Fertility Network UK
2 years ago
Lymph node biopsy results
Hello everyone, just a quick update- my husband finally went for results of lymph node biopsy and thank goodness no mutations. We’re now trying to decide whether to have ibrutinab or ventoclax treatment. Best wishes to everyone Lesley 😊
Hello everyone, just a quick update- my husband finally went for results of lymph node biopsy and thank goodness no mutations. We’re now trying to decide whether to have ibrutinab or ventoclax treatment. Best wishes to everyone Lesley 😊
Lesley3
in
CLL Support
3 years ago
***Sensitive*** BFP that ended in miscarriage
After 2 IVF rounds. One failed and one that ended in 2 frozen embryos. We found out on Tuesday through a beta Hcg that I'm pregnant. Results coming with a hcg of 130 iu/l. My clinic wanted to see anything above 50iu/l. On Wednesday did a digital test that showed 2-3 meaning 4-5 weeks. Just on track,
After 2 IVF rounds. One failed and one that ended in 2 frozen embryos. We found out on Tuesday through a beta Hcg that I'm pregnant. Results coming with a hcg of 130 iu/l. My clinic wanted to see anything above 50iu/l. On Wednesday did a digital test that showed 2-3 meaning 4-5 weeks. Just on track,
Hidden
in
Fertility Network UK
2 years ago
Pregnancy updates
me and my husband planning for a baby for a year. i had last month miscarriage that was a chemical pregnancy. i missed my periods this month from 11 Dec i went for HCG Beta level the result is <2* now my body is doing discharge with watery and brownish color. can anyone tell me if it's a miscarriage
me and my husband planning for a baby for a year. i had last month miscarriage that was a chemical pregnancy. i missed my periods this month from 11 Dec i went for HCG Beta level the result is <2* now my body is doing discharge with watery and brownish color. can anyone tell me if it's a miscarriage
AnuBari
in
Pregnancy and Parenting Support
2 years ago
Pregnancy updates
me and my husband planning for a baby for a year. i had last month miscarriage that was a chemical pregnancy. i missed my periods this month from 11 Dec i went for HCG Beta level the result is <2* now my body is doing discharge with watery and brownish color. can anyone tell me if it's a miscarriage
me and my husband planning for a baby for a year. i had last month miscarriage that was a chemical pregnancy. i missed my periods this month from 11 Dec i went for HCG Beta level the result is <2* now my body is doing discharge with watery and brownish color. can anyone tell me if it's a miscarriage
AnuBari
in
Pregnancy and Parenting Support
2 years ago
CoQ10 / Ubiquinol : In this post I will be compiling information about CoQ10 & Ubiquinol
Added 9/4/2021
In rats study conducted in Sweden , Aug 6, 2021
"Neuroprotective effects of Coenzyme Q10 in Parkinson's model via a novel Q10/miR - 149-5p/MMPs pathway https://pubmed.ncbi.nlm.nih.gov/34357552/
Summary & Opinion:
Rat model that I believe was injected. miR-149-5p was used
Added 9/4/2021
In rats study conducted in Sweden , Aug 6, 2021
"Neuroprotective effects of Coenzyme Q10 in Parkinson's model via a novel Q10/miR - 149-5p/MMPs pathway https://pubmed.ncbi.nlm.nih.gov/34357552/
Summary & Opinion:
Rat model that I believe was injected. miR-149-5p was used
Hidden
in
Cure Parkinson's
3 years ago
Bleeding 5 weeks 3 days pregnant - help.
Last week we got our BFP and my wife’s hcg had a strong number, second hcg check also great number, and yesterday had another one (also great) and we had our 5 week scan where the doctor said he saw the yolk sack and the gestational sack and everything looked great. Today my wife started spotting some
Last week we got our BFP and my wife’s hcg had a strong number, second hcg check also great number, and yesterday had another one (also great) and we had our 5 week scan where the doctor said he saw the yolk sack and the gestational sack and everything looked great. Today my wife started spotting some
GBB87
in
Fertility Network UK
2 years ago
Bispecific Antibodies and CLL
Last year Dr Brian Koffman https://healthunlocked.com/user/bkoffman wrote a succinct piece Bispecific Antibodies: what are they and are they the future of treatment for CLL (chronic lymphocytic leukemia)? https://cllsociety.org/2020/06/bispecific-antibodies-what-are-they-and-are-they-the-future-of-treatment-for-cll-chronic-lymphocytic-leukemia
Last year Dr Brian Koffman https://healthunlocked.com/user/bkoffman wrote a succinct piece Bispecific Antibodies: what are they and are they the future of treatment for CLL (chronic lymphocytic leukemia)? https://cllsociety.org/2020/06/bispecific-antibodies-what-are-they-and-are-they-the-future-of-treatment-for-cll-chronic-lymphocytic-leukemia
bennevisplace
in
CLL Support
3 years ago
Expert Perspective on Key Trial Updates in Treatment of CLL: What You Need to Know From ASCO/EHA/ICML 2021
17th Sept 21 [i]"George Follows, a UK CLL expert, provides his thoughts on updated data from key studies in chronic lymphocytic leukemia (CLL) that were presented at the 2021 meetings of the American Society of Clinical Oncology (ASCO), European Hematology Association (EHA), and International Conference
17th Sept 21 [i]"George Follows, a UK CLL expert, provides his thoughts on updated data from key studies in chronic lymphocytic leukemia (CLL) that were presented at the 2021 meetings of the American Society of Clinical Oncology (ASCO), European Hematology Association (EHA), and International Conference
Jm954
Administrator
in
CLL Support
3 years ago
Preventative medication
Good afternoon hope you are all well. I’m after some advice I get severe migraines occasionally a few times a month,I wake upto a really bad headache which gets more severe usually over the left area of my face,I have been to my GP numerous times for medication when these attacks happen. My problem is
Good afternoon hope you are all well. I’m after some advice I get severe migraines occasionally a few times a month,I wake upto a really bad headache which gets more severe usually over the left area of my face,I have been to my GP numerous times for medication when these attacks happen. My problem is
Lynne75
in
National Migraine Centre
3 years ago
HCG levels
Hi everyone! My HCG levels are 196 U/l on 9dp5dt. Is this a good number? I have been reading your posts for few years now but never posted myself. I started my fertility journey in 2018. I am single so it was with a donor sperm. It is only after the first IUI that I learned my uterine lining is
Hi everyone! My HCG levels are 196 U/l on 9dp5dt. Is this a good number? I have been reading your posts for few years now but never posted myself. I started my fertility journey in 2018. I am single so it was with a donor sperm. It is only after the first IUI that I learned my uterine lining is
Shireen1
in
Fertility Network UK
2 years ago
Horizant for RLS
Does anyone here have experience of taking Horizant for RLS? After taking oxycodone 5 mg for many years, I have developed serious insomnia, therefore I'd like to switch to non-opioid to relieve my RLS symptoms. I'd like to know if anyone here have tried Horizant and if it is effective to relieve RLS
Does anyone here have experience of taking Horizant for RLS? After taking oxycodone 5 mg for many years, I have developed serious insomnia, therefore I'd like to switch to non-opioid to relieve my RLS symptoms. I'd like to know if anyone here have tried Horizant and if it is effective to relieve RLS
halperinchen
in
Restless Legs Syndrome
3 years ago
Is there withdrawal from stopping ibrutinib?
Dr wanted me off ibrutinib for a couple months before possibly starting alacabrutinib. Having terrible headaches, nausea and achy legs etc. since stopping. Is this normal? How long will it last?
Dr wanted me off ibrutinib for a couple months before possibly starting alacabrutinib. Having terrible headaches, nausea and achy legs etc. since stopping. Is this normal? How long will it last?
Imbub
in
CLL Support
3 years ago
Cold and Severe Cough in Early Pregnancy
Hi guys, so we are very happy, albeit still very cautious, that last week after our 4th IVF cycle we got a BFP and 4 days later the HCG was multiplying appropriately. We have a scan scheduled for this Friday, hoping and praying everything is ok and continues to progress. However, my wife has caught
Hi guys, so we are very happy, albeit still very cautious, that last week after our 4th IVF cycle we got a BFP and 4 days later the HCG was multiplying appropriately. We have a scan scheduled for this Friday, hoping and praying everything is ok and continues to progress. However, my wife has caught
GBB87
in
Fertility Network UK
2 years ago
And just like that it's over
:( statement says it all. This is the furthest I've gotten with all my 8 pregnancies I got to see a scan on Friday and a gestational Sak was there our 5dt was Doing amazing hcg doubling nicely hcg on Sunday was 4975. And just as you start to let your guard down, and enjoy the morning sickness boom you
:( statement says it all. This is the furthest I've gotten with all my 8 pregnancies I got to see a scan on Friday and a gestational Sak was there our 5dt was Doing amazing hcg doubling nicely hcg on Sunday was 4975. And just as you start to let your guard down, and enjoy the morning sickness boom you
Kieneyl
in
Fertility Network UK
2 years ago
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