12 weeks PO - dragging/shooting/deep period like pain

[Pollyanne515]

Morning All,I had a total hysterectomy with BSO 12 weeks ago and still getting pain. (Surgery for severe Endo, fibroids, cysts) Surgeon happy that surgery was a success from his point of view and my suffering is now nerve/musculosceletal he has therefore washed his hands. I am having physio, taking Nortriptyline (against my better judgement as I suffer chronic migraine and part of the reason I had surgery to be able to reduce the drugs!) and I need to give it time apparently. Only able to take paracetamol, heat blanket, tried a warm bath. Resting as can't do much else 😞

I am unable to walk very far, still not driving and extremely fed up. Pain is constant, and I had such high hopes to be feeling "better" after surgery.

Sorry, as I don't know what I'm really asking for? Maybe a nugget if advice/hope or experience PLEASE?

[Aarwin]

Hi Pollyanne515,I had the same surgery as you for the same reasons . I had my surgery five months ago. Im still healing and have pain in the abdominal area . Nerves and healing. My physio told me everyone heals differently and it can take up to a year. I'm still off work just now. It's a tough recovery and journey . Just know it's early days and you got to listen to your body . In time your pain will ease off as time goes on. The physio exercises still kill me and I have to balance what I'm doing on a daily basis.

I have lidocaine patches for my abdominal area. They are great ! Much better than triptyline tablets they just didn't agree with me. I was a zombie .

Sending you love and healing 🙏

[Pollyanne515 in reply to Aarwin]

Thank you so much for replying, I really appreciate the support.So currently they have me on nortriptyline 10mg at night and all else I can take is paracetamol, and neither seem to be touching the sides. I have pushed for a face to face appointment at GP surgery next week to see if there is anything different they can offer me. Years and years of pain, and still here we are 😞

Nortriptyline stops me from being able to take my migraine meds (which no one told me about, I googled it!) so I need to come off if it. Just feels ALWAYS, like to have to do what you are told or they wash their hands

[Aarwin in reply to Pollyanne515]

Yes Pollyanna I know what you mean . You feel after the operation your just left and your own . Your own GP doesn't have that much endometriosis/surgery aftercare knowledge. I'm wondering if you can ask for the lidocaine patches . I got them for after my surgery .I still use them . Ask for them see how you get on.

I know years of hell and pain. Keep strong I totally get how your feeling. Three months isn't long after surgery your still healing . It was a major operation you had. I am still very impatient about my healing . You just want to feel normal again.

Let me know how you get on and if you need to talk .

X

[Pollyanne515 in reply to Aarwin]

Thank you, I will go armed asking about the patches, hadn't even realised they were a thing. Hope you soon start improving more, it truly is soul destroying. I'm not driving, only working part time from my sofa at home as I'm self employed, no joy, no idea if HRT is right either.....life is passing by 😞

[Aarwin]

Yeah the patches are very good. Actually amazing ! It is soul destroying after all the pain before . Keep your chin up 💪 we got this . I couldn't get hrt until start of October there . The physio said this makes a difference to recovery ,pain healing etc. I started Estrogel two pumps . I honestly can't say it's helped my sleeping ,flushes,lizard skin and panic attacks. It's made a massive difference. The surgeon didn't want me on it straight away after op as I was so inflamed before op etc.

It's a rollercoaster ride. I'm so glad I found this forum though. Great to chat and get advice .

Things will get better once you get patches and hrt you be on the road again. I'm hoping to return to work next week . Dreading it .

[Pollyanne515 in reply to Aarwin]

Good luck, keep me posted how you get on

[Pollyanne515 in reply to Aarwin]

Where do you apply your patches? Wonder if I can buy over the counter and give them a whirl

[Aarwin]

I apply them on my abdomen next to the incisions . I'm not sure if you can buy them over the counter. I got them on prescription after op. They really are great. Let me know how you get on