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Ongoing issues
I had radiotherapy,
chemotherapy
and brachytherapy. I have since had a colonoscopy, bowel biopsies, a SeHCAT scan and EPI test because of terrible bowel issues.
I had radiotherapy,
chemotherapy
and brachytherapy. I have since had a colonoscopy, bowel biopsies, a SeHCAT scan and EPI test because of terrible bowel issues.
Dasch123
in
Pelvic Radiation Disease Association
1 year ago
Elevated Liver Enzymes
Husband on Triplet Therapy Orgovyx, Nubeqa and Docetaxel for Stage IV GL9 with bone mets. First chemo cycle completed. Second chemo was canceled as his ALT numbers were very high (305). AST also elevated at 94. ALP is within normal range. MO is recommending holding off Nubeqa for a week and retest liver
Husband on Triplet Therapy Orgovyx, Nubeqa and Docetaxel for Stage IV GL9 with bone mets. First chemo cycle completed. Second chemo was canceled as his ALT numbers were very high (305). AST also elevated at 94. ALP is within normal range. MO is recommending holding off Nubeqa for a week and retest liver
Cali3
in
Advanced Prostate Cancer
6 months ago
At the crossroads (again)
My profile is up to date, but, briefly, have failed chemo, ADT (am castrate resistant), failed Keytruda and now Pluvicto. Scans yest. & today show progression along with PSA rise. All my mets are in bone. So, my SOC choices are cabazataxel or radium 223. Other options are trial, which are a crapshoot
My profile is up to date, but, briefly, have failed chemo, ADT (am castrate resistant), failed Keytruda and now Pluvicto. Scans yest. & today show progression along with PSA rise. All my mets are in bone. So, my SOC choices are cabazataxel or radium 223. Other options are trial, which are a crapshoot
rsgdmd
in
Advanced Prostate Cancer
6 months ago
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SCT starts next week
Had my last meeting yesterday with consultant and sign all the forms etc. All the organ function tests were ok with no problems and my spleen is only just palpable so no need for anything to be done about that. I am to be admitted on Monday 4th March and have Hickman line put in on Tuesday 5th. Then
Had my last meeting yesterday with consultant and sign all the forms etc. All the organ function tests were ok with no problems and my spleen is only just palpable so no need for anything to be done about that. I am to be admitted on Monday 4th March and have Hickman line put in on Tuesday 5th. Then
Flyingsteamer
in
MPN Voice
6 months ago
Extremely bad acid heartburn
hi, On here about my mum again. She is suffering really bad with acid reflux. She hasn’t had chemo for 4 weeks but they did attempt debulking surgery which didn’t work. So we are not sure if it’s something to do with the blood thinners or she’s worried it is the cancer. has anyone else suffered
hi, On here about my mum again. She is suffering really bad with acid reflux. She hasn’t had chemo for 4 weeks but they did attempt debulking surgery which didn’t work. So we are not sure if it’s something to do with the blood thinners or she’s worried it is the cancer. has anyone else suffered
Holsgram
in
My Ovacome
6 months ago
Niraparib
I was diagnosed with Stage 3c high grade serous ovarian cancer in June 2023 which had spread to omentum and peritoneal lining. I had ascites which was drained twice and have developed a pleural effusion. I had the 3xchemo and debulking surgery then 3 more chemo. Finished treatment on Dec 23. ca-125
I was diagnosed with Stage 3c high grade serous ovarian cancer in June 2023 which had spread to omentum and peritoneal lining. I had ascites which was drained twice and have developed a pleural effusion. I had the 3xchemo and debulking surgery then 3 more chemo. Finished treatment on Dec 23. ca-125
Berryporridgr
in
My Ovacome
6 months ago
Pain Management
Dear All can anyone help. Diagnosed with stage 1V advanced metastatic prostate cancer December 2022. 6 sessions of Chemo, then Firmagon and Nubeqa PSA was 349 now about 1 but has been increasing. Cancer was in most bones but no organs - primarily pelvis and hips - have had radiation treatment but still
Dear All can anyone help. Diagnosed with stage 1V advanced metastatic prostate cancer December 2022. 6 sessions of Chemo, then Firmagon and Nubeqa PSA was 349 now about 1 but has been increasing. Cancer was in most bones but no organs - primarily pelvis and hips - have had radiation treatment but still
Nyon
in
Advanced Prostate Cancer
6 months ago
Have you/your loved one had chemotherapy or radiotherapy treatment?
Help improve treatment and care in the UK by sharing your experiences of Radiotherapy and/or
Chemotherapy
in our Improving Brain Tumour Care Surveys. By taking part you’ll help build a clearer picture of what’s working and what needs to be improved.
Help improve treatment and care in the UK by sharing your experiences of Radiotherapy and/or
Chemotherapy
in our Improving Brain Tumour Care Surveys. By taking part you’ll help build a clearer picture of what’s working and what needs to be improved.
Maddie_TBTC
Administrator
in
Meningioma Support
1 year ago
Have you/your loved one had chemotherapy or radiotherapy treatment?
Help improve treatment and care in the UK by sharing your experiences of Radiotherapy and/or
Chemotherapy
in our Improving Brain Tumour Care Surveys. By taking part you’ll help build a clearer picture of what’s working and what needs to be improved.
Help improve treatment and care in the UK by sharing your experiences of Radiotherapy and/or
Chemotherapy
in our Improving Brain Tumour Care Surveys. By taking part you’ll help build a clearer picture of what’s working and what needs to be improved.
Maddie_TBTC
Administrator
in
The Brain Tumour Charity
1 year ago
Have you/your loved one had chemotherapy or radiotherapy treatment?
Help improve treatment and care in the UK by sharing your experiences of Radiotherapy and/or
Chemotherapy
in our Improving Brain Tumour Care Surveys. By taking part you’ll help build a clearer picture of what’s working and what needs to be improved.
Help improve treatment and care in the UK by sharing your experiences of Radiotherapy and/or
Chemotherapy
in our Improving Brain Tumour Care Surveys. By taking part you’ll help build a clearer picture of what’s working and what needs to be improved.
Maddie_TBTC
Administrator
in
Glioblastoma Support
1 year ago
Have you/your loved one had chemotherapy or radiotherapy treatment?
Help improve treatment and care in the UK by sharing your experiences of Radiotherapy and/or
Chemotherapy
in our Improving Brain Tumour Care Surveys. By taking part you’ll help build a clearer picture of what’s working and what needs to be improved.
Help improve treatment and care in the UK by sharing your experiences of Radiotherapy and/or
Chemotherapy
in our Improving Brain Tumour Care Surveys. By taking part you’ll help build a clearer picture of what’s working and what needs to be improved.
Maddie_TBTC
Administrator
in
Acoustic Neuroma Support
1 year ago
Triplet and now Radiation?
Hi all - just wanting your thoughts on this. In my profile you would see full details but I will summarize here. 50yr old diagnosed Aug 2nd with PCA with spread to L5 and pubic bone. Original PSA was around 9 and put on Casodex for month, then Lupron every 3 months, plus Darolutamide. Just completed
Hi all - just wanting your thoughts on this. In my profile you would see full details but I will summarize here. 50yr old diagnosed Aug 2nd with PCA with spread to L5 and pubic bone. Original PSA was around 9 and put on Casodex for month, then Lupron every 3 months, plus Darolutamide. Just completed
Yzinger
in
Advanced Prostate Cancer
6 months ago
Carboplatin alternatives
I was diagnosed with Primary Peritoneal high grade serous cancer stage 3C in early 2021. I had 6 cycles of Carboplatin and Paclitaxel, radical surgery, two more chemo cycles then Niraparib for just over a year until it stopped working and my CA125 began to rise rapidly. Surgery was considered and
I was diagnosed with Primary Peritoneal high grade serous cancer stage 3C in early 2021. I had 6 cycles of Carboplatin and Paclitaxel, radical surgery, two more chemo cycles then Niraparib for just over a year until it stopped working and my CA125 began to rise rapidly. Surgery was considered and
Alice77
in
My Ovacome
6 months ago
Break from chemo
I had my pre chemo oncologist appointment today. He wants me to take a break from chemo to give my body a a chance to recover and go back to see him in 6 weeks. I’ve had 3 rounds of chemo gem/carbo but missed 2 of gem on its own. Scan showed some reduction and stable disease. But I’ve been admitted to
I had my pre chemo oncologist appointment today. He wants me to take a break from chemo to give my body a a chance to recover and go back to see him in 6 weeks. I’ve had 3 rounds of chemo gem/carbo but missed 2 of gem on its own. Scan showed some reduction and stable disease. But I’ve been admitted to
Purplerose12
in
My Ovacome
6 months ago
Patricia
I am new to the forum, my daughter has been on. I have 6 rounds of chemo and then operation very large, scar but couldn’t take everything, so nothing was taken. I am now going to take chemo tablets only how is this, very upset and in pain from stomach still. Will go for 2nd opinion at some point. Do
I am new to the forum, my daughter has been on. I have 6 rounds of chemo and then operation very large, scar but couldn’t take everything, so nothing was taken. I am now going to take chemo tablets only how is this, very upset and in pain from stomach still. Will go for 2nd opinion at some point. Do
Balliol15
in
My Ovacome
6 months ago
question about going to Mayo
we have an appointment to see Dr Sartor at Mayo but my husband has read Dr Kwon helps refer patients out of the country for Actinium 225. We saw Dr Sartor when he was at Tulane. Will we be able to discuss Atinium w Dr Sartor or should we also try to see Dr Kwon? What’s the appropriate etiquette?
we have an appointment to see Dr Sartor at Mayo but my husband has read Dr Kwon helps refer patients out of the country for Actinium 225. We saw Dr Sartor when he was at Tulane. Will we be able to discuss Atinium w Dr Sartor or should we also try to see Dr Kwon? What’s the appropriate etiquette?
SuppWife
in
Advanced Prostate Cancer
6 months ago
After 2 Nuclear Ligand treatments should I still have severe bone pain in my lower back?
My SO was diagnosed last year with stage 4 Prostate cancer. Although his PSA never went extremely high (8.0) his Gleason scores were two 8's and a 9. The cancer when diagnosed consumed his complete prostate and was found in the vertebras of his neck, shoulder and shoulder socket plus his pelvis and
My SO was diagnosed last year with stage 4 Prostate cancer. Although his PSA never went extremely high (8.0) his Gleason scores were two 8's and a 9. The cancer when diagnosed consumed his complete prostate and was found in the vertebras of his neck, shoulder and shoulder socket plus his pelvis and
chuigk
in
Advanced Prostate Cancer
6 months ago
What exactly does fasting mean?
I understand that fasting for a couple days before chemo and a day after can reduce side effects significantly. But what does fasting mean? Does it mean nothing at all to eat or drink (except water) during those days, or does it mean some kind of limited eating? Thanks.
I understand that fasting for a couple days before chemo and a day after can reduce side effects significantly. But what does fasting mean? Does it mean nothing at all to eat or drink (except water) during those days, or does it mean some kind of limited eating? Thanks.
ImaSurvivor1
in
Fasting and Furious
6 months ago
Silly Questions??
1) Why do some advanced prostate cancer patients get offered "vacations", from ADT and others don't? 2) Why do some advanced prostate cancer patients have NO Chemo, and go directly to ADT + Abiraterone+Prednisone, while others begin treatment with chemo and radiation? What are the deciding criteria
1) Why do some advanced prostate cancer patients get offered "vacations", from ADT and others don't? 2) Why do some advanced prostate cancer patients have NO Chemo, and go directly to ADT + Abiraterone+Prednisone, while others begin treatment with chemo and radiation? What are the deciding criteria
TommyCarz2
in
Advanced Prostate Cancer
6 months ago
Update on Nuclear Scan and where I am at now.
The Operation I don't want is Radical Cystectomy - The alternative is "treatment plans involving
chemotherapy
and radiation therapy after TURBT- A TURBT is a cystoscopy but they take away anything that is there. That is containment not a cure but I would be happy with that.
The Operation I don't want is Radical Cystectomy - The alternative is "treatment plans involving
chemotherapy
and radiation therapy after TURBT- A TURBT is a cystoscopy but they take away anything that is there. That is containment not a cure but I would be happy with that.
Ern007
in
Lung Conditions Community Forum
1 year ago
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