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Surgery etc.
Hi All, I was diagnosed with Stage 4 OC in May 2023 with the cancer migrated into my colon. I had been feeling unwell for 6 months and was assured by my doctor in February that it was acid reflux. This was despite my mentioning I have gynaecological issues in the family. The symptoms were bizarre
Hi All, I was diagnosed with Stage 4 OC in May 2023 with the cancer migrated into my colon. I had been feeling unwell for 6 months and was assured by my doctor in February that it was acid reflux. This was despite my mentioning I have gynaecological issues in the family. The symptoms were bizarre
Leopard2018
in
My Ovacome
6 months ago
Chemo in Tablet Form
Morning everyone I was diagnosed with high grade serous ovarian cancer in 2020. I have gone through all the various chemo treatments available (pacitaxol, carboplatin, Caelyx, Gemcitabine, Niraparib and a trial. I was hoping to go on another trial but due to plural effusion, collapsed lung etc unfortunately
Morning everyone I was diagnosed with high grade serous ovarian cancer in 2020. I have gone through all the various chemo treatments available (pacitaxol, carboplatin, Caelyx, Gemcitabine, Niraparib and a trial. I was hoping to go on another trial but due to plural effusion, collapsed lung etc unfortunately
Flute_7
in
My Ovacome
6 months ago
Questions After SBRT Treatment
Hello Everyone, MO told me to do Pluvicto After SBRT Treatment 2nd MO told me to do Chemo after the SBRT Treatment, so I am glad I did not go to the third MO, lol. What's the best thing to do after SBRT? My choice is PROVENGE. It also looks tricky to convince MO.
Hello Everyone, MO told me to do Pluvicto After SBRT Treatment 2nd MO told me to do Chemo after the SBRT Treatment, so I am glad I did not go to the third MO, lol. What's the best thing to do after SBRT? My choice is PROVENGE. It also looks tricky to convince MO.
God_Loves_Me
in
Advanced Prostate Cancer
6 months ago
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hello, My mum sent me this information with the hopes that I can find support and information as I’m starting out my journey. I had been having irregular periods and lower back pain for a few months. I would take medication and just push on. In December, I had such severe pain I called my husband
hello, My mum sent me this information with the hopes that I can find support and information as I’m starting out my journey. I had been having irregular periods and lower back pain for a few months. I would take medication and just push on. In December, I had such severe pain I called my husband
Trixie-boo
in
My Ovacome
6 months ago
Compression fracture on T 10
My recent Whole body scan and CT scan for PCa ( diagnosed in 2016 with T3N0M1, after which I had radiation,
chemotherapy
and have been on hormone therapy since), showed a compression fracture on my T10 where I had SBRT radiation 2 years ago.
My recent Whole body scan and CT scan for PCa ( diagnosed in 2016 with T3N0M1, after which I had radiation,
chemotherapy
and have been on hormone therapy since), showed a compression fracture on my T10 where I had SBRT radiation 2 years ago.
Brightman
in
Advanced Prostate Cancer
1 year ago
Scan shows spreading despite chemo but surgery going ahead..confused 🤔
Hello alI I have stage 4 clear cell carcinoma, had a scan this week and got the results today. My gynae nurse said she could only tell me what was written on a scrap bit of paper which left me with more questions than answers (not impressed with this). I will call again next week but meantime wondered
Hello alI I have stage 4 clear cell carcinoma, had a scan this week and got the results today. My gynae nurse said she could only tell me what was written on a scrap bit of paper which left me with more questions than answers (not impressed with this). I will call again next week but meantime wondered
Kazzh
in
My Ovacome
6 months ago
confused
Hi ladies So….. I had my scan results from 23rd December yesterday . I was told by Onc nurse that the cancer was stable ( it is inoperable) My CA125 at diagnosis back in March 23 was 9000 but during chemo treatment there was a steady decline and prior to the scan it stood at 2000. I don’t understand
Hi ladies So….. I had my scan results from 23rd December yesterday . I was told by Onc nurse that the cancer was stable ( it is inoperable) My CA125 at diagnosis back in March 23 was 9000 but during chemo treatment there was a steady decline and prior to the scan it stood at 2000. I don’t understand
Beaver54
in
My Ovacome
6 months ago
“Look up”
Awe, what a view while out on my snowshoes tonight. Made me think about the theme to look up to notice things like Gods beautiful creations Mindfulness All the good things in our lives Hope made possible by all the newer treatments Hope for better things to come And To the things we
Awe, what a view while out on my snowshoes tonight. Made me think about the theme to look up to notice things like Gods beautiful creations Mindfulness All the good things in our lives Hope made possible by all the newer treatments Hope for better things to come And To the things we
skipro
in
CLL Support
6 months ago
Eyes and Chemotherapy
Hi All, After reading Polly PV post regarding her Eye issues, I have decided to write my issues! I started out with ET five years ago some 3 months later MF was diagnosed.. I am JAK2 with ASXL1 drivers etc, I started on HU and it brought Platelets down eventually. Three (3) years ago I started
Hi All, After reading Polly PV post regarding her Eye issues, I have decided to write my issues! I started out with ET five years ago some 3 months later MF was diagnosed.. I am JAK2 with ASXL1 drivers etc, I started on HU and it brought Platelets down eventually. Three (3) years ago I started
pontygirl
in
MPN Voice
1 year ago
Fear of Cancer Recurrence
Hello, I am currently suffer from extreme health anxiety over the fear that my skin cancer will reoccur. I have had three small spots of skin cancer removed in the last year and at 45 I’m terrified that I won’t live much longer. None of them have been melanoma, so that is a little good news. And
Hello, I am currently suffer from extreme health anxiety over the fear that my skin cancer will reoccur. I have had three small spots of skin cancer removed in the last year and at 45 I’m terrified that I won’t live much longer. None of them have been melanoma, so that is a little good news. And
OCDneedshelp
in
Anxiety and Depression Support
6 months ago
Any insight into # platinum chemo cycles?
So I'm about to start cisplatinum + etoposide chemo cycles on wed. next week for NECP/SCCP. The first irritant I have of which I'm sure will not be the only one is: I have no idea what the treatment plan is, I don't know how many cycles I'm scheduled for and what the treatment goal is. Researching
So I'm about to start cisplatinum + etoposide chemo cycles on wed. next week for NECP/SCCP. The first irritant I have of which I'm sure will not be the only one is: I have no idea what the treatment plan is, I don't know how many cycles I'm scheduled for and what the treatment goal is. Researching
skiingfiend
in
Advanced Prostate Cancer
6 months ago
Anemia
I've been dealing with anemia since I was on Xeloda which stopped working. The next chemo my onc tried was the worst and I spent most of January sitting in a chair, because all the side effects made my anemia a lot worse. I stopped the last chemo, but I'm still dealing with the anemia. Has anyone
I've been dealing with anemia since I was on Xeloda which stopped working. The next chemo my onc tried was the worst and I spent most of January sitting in a chair, because all the side effects made my anemia a lot worse. I stopped the last chemo, but I'm still dealing with the anemia. Has anyone
Antares12
in
SHARE Metastatic Breast Cancer
6 months ago
2 months on Olaparib and my CA125 has risen
I started taking Olaparib about 2 months ago. The first month was pretty rough but the second month much better. When I started Olaparib, my CA-125 was 19 about 5 weeks after my 6 rounds of chemo after being in remission for about 6 years. I responded really well to the chemo (I am BRAC2) and I was
I started taking Olaparib about 2 months ago. The first month was pretty rough but the second month much better. When I started Olaparib, my CA-125 was 19 about 5 weeks after my 6 rounds of chemo after being in remission for about 6 years. I responded really well to the chemo (I am BRAC2) and I was
Chanterelle
in
My Ovacome
6 months ago
Xeloda Anxiety
I was supposed to begin Xeloda today. For some reason, I am paranoid. First, I'm thinking my dose is too high. I weigh 168 pounds, 5’4” and my team has me scheduled to take 2000 mg twice a day. I think that’s a lot. Anyone else similar in size to me taking this high of a dose? Am I just paranoid. I
I was supposed to begin Xeloda today. For some reason, I am paranoid. First, I'm thinking my dose is too high. I weigh 168 pounds, 5’4” and my team has me scheduled to take 2000 mg twice a day. I think that’s a lot. Anyone else similar in size to me taking this high of a dose? Am I just paranoid. I
CTGirl1962
in
SHARE Metastatic Breast Cancer
6 months ago
Feel so ill with 3rd chemo round 😫
I am feeling really sorry for myself I'm going to be honest, this is so tough. 3rd round was 6 days ago, and I don't know what to do with myself. I feel low & tearful. I don't know what to eat or drink, go from hot to freezing cold & every part of me hurts. Just want to feel better 🙏
I am feeling really sorry for myself I'm going to be honest, this is so tough. 3rd round was 6 days ago, and I don't know what to do with myself. I feel low & tearful. I don't know what to eat or drink, go from hot to freezing cold & every part of me hurts. Just want to feel better 🙏
Kazzh
in
My Ovacome
6 months ago
Need your advice please
For the last 60 years I have been a vigilant weight watcher, daily exerciser and have watched my calorie intake. When I commenced treatment for my Essential Thrombocytosis in January 2021, my weight was 53.5kg. Three years later this has ballooned to 60.3kg, despite my efforts to control any
For the last 60 years I have been a vigilant weight watcher, daily exerciser and have watched my calorie intake. When I commenced treatment for my Essential Thrombocytosis in January 2021, my weight was 53.5kg. Three years later this has ballooned to 60.3kg, despite my efforts to control any
Goosebumps52
in
MPN Voice
6 months ago
90 Days to live - Day 82 - Feb 20, 2024
So on Tuesday Feb 13, 2024 my MO gave me 90 days to live if I didn't start chemo immediately. https://healthunlocked.com/advanced-prostate-cancer/posts/150538937/things-have-taken-a-turn-for-the-worse I thought I'd chronicle what 90 days to live looks like, how do I spend my time, how do I feel. My
So on Tuesday Feb 13, 2024 my MO gave me 90 days to live if I didn't start chemo immediately. https://healthunlocked.com/advanced-prostate-cancer/posts/150538937/things-have-taken-a-turn-for-the-worse I thought I'd chronicle what 90 days to live looks like, how do I spend my time, how do I feel. My
skiingfiend
in
Advanced Prostate Cancer
6 months ago
PSA not dropping with cabazitaxel
See my profile for history. Have had 8 good years after Docitaxal, Lupron and 4 years of Zytiga. But mets's started up again in May, 2023. PSA went up to 36. Took 5 rounds of Docitaxal but not working. PSA 46 in December. MO prognosis is 1-1.5 yrs. Switched to cabazitaxel but after 3 rounds PSA is now
See my profile for history. Have had 8 good years after Docitaxal, Lupron and 4 years of Zytiga. But mets's started up again in May, 2023. PSA went up to 36. Took 5 rounds of Docitaxal but not working. PSA 46 in December. MO prognosis is 1-1.5 yrs. Switched to cabazitaxel but after 3 rounds PSA is now
westjl2
in
Advanced Prostate Cancer
6 months ago
Diagnosed almost 3 years ago
I am a 70 year old diagnosed in 8/21 with G9 on biopsy with initial imaging negative for metastatic disease. Underwent RP in 10/21 with seminal vesicle involvement. A few sampled nodes were negative. 5 months after surgery PSA climbed to 0.39 from 0.016 in first post op test. PSMA PET revealed a solitary
I am a 70 year old diagnosed in 8/21 with G9 on biopsy with initial imaging negative for metastatic disease. Underwent RP in 10/21 with seminal vesicle involvement. A few sampled nodes were negative. 5 months after surgery PSA climbed to 0.39 from 0.016 in first post op test. PSMA PET revealed a solitary
Retireddoc
in
Advanced Prostate Cancer
6 months ago
Struggling with antibiotics on chemo
Hi all, following chemo last week I then started with cellulitis infection in my leg. I began taking co-amoxiclav antibiotics but found i couldn’t take them orally due to sickness. On Saturday ended up in a &e having injectable antibiotics. They sent me home with the same pills and told me to take
Hi all, following chemo last week I then started with cellulitis infection in my leg. I began taking co-amoxiclav antibiotics but found i couldn’t take them orally due to sickness. On Saturday ended up in a &e having injectable antibiotics. They sent me home with the same pills and told me to take
Lyndy
in
My Ovacome
6 months ago
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