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Post FCR treatment 3 months blood test just taken results lower then expected
Hi everyone! I am new to this site. I completed a 6 month cycle of FCR and I am now 3 months post treatment. I have been feeling good but have to make sure I do not over do it. Yesterday I went for my 3 month check up and had blood work. It did not go as well as expected. My white count is 1.3
Hi everyone! I am new to this site. I completed a 6 month cycle of FCR and I am now 3 months post treatment. I have been feeling good but have to make sure I do not over do it. Yesterday I went for my 3 month check up and had blood work. It did not go as well as expected. My white count is 1.3
Lindyver
in
CLL Support
7 years ago
Post-treatment results
My OH had 4 FCR treatments, each one reduced from the previous one because of his reactions (low platelets, fatigue). Last treatment was early August. Subsequent monthly blood tests show haemoglobin and platelet levels continuing to drop (10.3 down this month from 11.6; platelets 49 down from 52).
My OH had 4 FCR treatments, each one reduced from the previous one because of his reactions (low platelets, fatigue). Last treatment was early August. Subsequent monthly blood tests show haemoglobin and platelet levels continuing to drop (10.3 down this month from 11.6; platelets 49 down from 52).
shoppingtrolley
in
CLL Support
7 years ago
My Itchy skin
Hi I have CLL since Feb. 2015 and had 6 cycles of FCR . I was in remission for about a year . Ever since my second treatment of chemo I had all kind of skin issues like really itchy skin easy bruising rash that looks like shingles and ant bites that leaves a scar. Anybody have this symptom I want to
Hi I have CLL since Feb. 2015 and had 6 cycles of FCR . I was in remission for about a year . Ever since my second treatment of chemo I had all kind of skin issues like really itchy skin easy bruising rash that looks like shingles and ant bites that leaves a scar. Anybody have this symptom I want to
uncle2015
in
CLL Support
7 years ago
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Imbruvica withdrawal Waldenstrom’s
Hi. I’m a 48 yr who got Diagnosed with Walden Strom macroglobular anemia last year. Went through 5 cycles of chemo and rituximab. Had serious Allergic reaction’s to the ritux so got started on Imbruvica. I’ve had many side effects so the Dr. and I decided to try coming off to give my body a break. It
Hi. I’m a 48 yr who got Diagnosed with Walden Strom macroglobular anemia last year. Went through 5 cycles of chemo and rituximab. Had serious Allergic reaction’s to the ritux so got started on Imbruvica. I’ve had many side effects so the Dr. and I decided to try coming off to give my body a break. It
Rmendez3
in
CLL Support
7 years ago
FCR after failing B/R?
I am 5 months post treatment with B/R and my ALC is moving up. My oncologist mentioned the possibility of FCR at some point. I am 72 years old and in good health. My question is shouldn't FCR be first line? Would you take FCR or Imbruvica? What are your thoughts? Thank you for your reply. Sue Atlanta
I am 5 months post treatment with B/R and my ALC is moving up. My oncologist mentioned the possibility of FCR at some point. I am 72 years old and in good health. My question is shouldn't FCR be first line? Would you take FCR or Imbruvica? What are your thoughts? Thank you for your reply. Sue Atlanta
SueVG
in
CLL Support
7 years ago
Update
Me7 minutes ago Hope you're all ok, I haven't been on for a while. Been really struggling with my itp. I was on high dose predisolone which made me feel awful and I didn't respond to it, I was then given ivig to buy me some time. Basically it was all going pearshaped !! Anyway I was started on rituximab
Me7 minutes ago Hope you're all ok, I haven't been on for a while. Been really struggling with my itp. I was on high dose predisolone which made me feel awful and I didn't respond to it, I was then given ivig to buy me some time. Basically it was all going pearshaped !! Anyway I was started on rituximab
Olivia2812
in
ITP Support Association
7 years ago
Elevated Lymphocyte Count 4 Months After Bendamustine/Rituxin
Hello Members: In mid-June I finished 6 months of Bendamustine/Rituxin. I saw my onc today and my lymph nodes are elevated (5.7) saw her last month and they were also elevated(5.0) She is suggesting that I may want to have FCR or Imbruvica when I need treatment again. Right now I am on hold until January
Hello Members: In mid-June I finished 6 months of Bendamustine/Rituxin. I saw my onc today and my lymph nodes are elevated (5.7) saw her last month and they were also elevated(5.0) She is suggesting that I may want to have FCR or Imbruvica when I need treatment again. Right now I am on hold until January
SueVG
in
CLL Support
7 years ago
Avacopan trial update.
Just a quick update! I have had the last of my weekly Rituximab infusions.... As I have lost 8kg in 6 weeks I decided I would celebrate with KFC!! I feel pretty well actually although I was informed last week that I need a hearing aid due to hearing loss in my right ear but my hearing wasn't great prior
Just a quick update! I have had the last of my weekly Rituximab infusions.... As I have lost 8kg in 6 weeks I decided I would celebrate with KFC!! I feel pretty well actually although I was informed last week that I need a hearing aid due to hearing loss in my right ear but my hearing wasn't great prior
HFox
in
Vasculitis UK
7 years ago
uti, cough, fever and other virus related symptoms
I was diagnosed Stage 4 SLL in December 2014 and started FCR the following March in 2015. The gap was due to my oncologist suddenly dying. This combo put me in remission for a year and a half. Came back full force (CT scan) in early 2017 and started Imbruvica then nodes went away again. My question:
I was diagnosed Stage 4 SLL in December 2014 and started FCR the following March in 2015. The gap was due to my oncologist suddenly dying. This combo put me in remission for a year and a half. Came back full force (CT scan) in early 2017 and started Imbruvica then nodes went away again. My question:
springie
in
CLL Support
7 years ago
Monthly injections
Hi all, I was recently diagnosed with pernicious anaemia, by my consultant who is treating me for vasculitis. I feel very fortunate that I have this consultant as having one diagnoses is bad enough... But two is just not good. But he is amazing and I'm feeling so much better despite being on loads of
Hi all, I was recently diagnosed with pernicious anaemia, by my consultant who is treating me for vasculitis. I feel very fortunate that I have this consultant as having one diagnoses is bad enough... But two is just not good. But he is amazing and I'm feeling so much better despite being on loads of
HFox
in
Pernicious Anaemia Society
7 years ago
Port installed-Chemo Round1 starts Monday
Opted for the Portacath to receive my chemo (in Canada done via infusion) of FCR. The Port installation was done yesterday morning, so the afternoon was a little uncomfortable but today I am quite fine. I chose the Port after advice from my daughter, sisters and nieces (all nurses) when asking whether
Opted for the Portacath to receive my chemo (in Canada done via infusion) of FCR. The Port installation was done yesterday morning, so the afternoon was a little uncomfortable but today I am quite fine. I chose the Port after advice from my daughter, sisters and nieces (all nurses) when asking whether
Marie-54
in
CLL Support
7 years ago
Belimumab?
HI all, i have been on rituximab for the past 2 years for lupus nephritis, but im still leaking protein. I have seen my rheumatologist today and she is going to see if i can have Belimumab. Ive read about it and there is some really scary side effects! Anyone else have Belimumab, and how do you feel
HI all, i have been on rituximab for the past 2 years for lupus nephritis, but im still leaking protein. I have seen my rheumatologist today and she is going to see if i can have Belimumab. Ive read about it and there is some really scary side effects! Anyone else have Belimumab, and how do you feel
Rach459
in
LUPUS UK
7 years ago
Rituximab
Loads of things have failed, so having my first Rituximab infusion on Thursday, how should I expect to feel in the days following? I'm a big coward! Thanks in advance to the good folks out there.
Loads of things have failed, so having my first Rituximab infusion on Thursday, how should I expect to feel in the days following? I'm a big coward! Thanks in advance to the good folks out there.
Peterborough67
in
NRAS
7 years ago
The Final Countdown
Hi All...tonight I accidentally stumbled onto this group. After reading several posts I didn't discover a post that mirrors my reality. On Labor Day September 2014, I noticed swelling on my chest. The touch was tender. I then made a visit to my primary care doctor. He examined my lumps and asked me
Hi All...tonight I accidentally stumbled onto this group. After reading several posts I didn't discover a post that mirrors my reality. On Labor Day September 2014, I noticed swelling on my chest. The touch was tender. I then made a visit to my primary care doctor. He examined my lumps and asked me
pilantd
in
CLL Support
7 years ago
Recovery time
My OH had his last (of 4) FCR treatments in August. He had not tolerated them well, so each session was less than the last. Haematologist says treatment has been 99% successful, and now just try to get on and live life as normal. He is definitely gaining in energy - back cycling regularly, needing
My OH had his last (of 4) FCR treatments in August. He had not tolerated them well, so each session was less than the last. Haematologist says treatment has been 99% successful, and now just try to get on and live life as normal. He is definitely gaining in energy - back cycling regularly, needing
shoppingtrolley
in
CLL Support
7 years ago
FCR treatment
I've now received treatment, starting Dec 2016 for six rounds of FCR as part in a UK trial. I have been told I am in complete remission, which is great news, and a weight off my mind. I must have been more worried than I was able to admit, as I now feel able to get on with living again. Follow up in
I've now received treatment, starting Dec 2016 for six rounds of FCR as part in a UK trial. I have been told I am in complete remission, which is great news, and a weight off my mind. I must have been more worried than I was able to admit, as I now feel able to get on with living again. Follow up in
Barbarann
in
CLL Support
7 years ago
Facet joint injections and tramadol 🤞🏻🤞🏻
I have been hovering in the background for a few weeks as i have been very tired and sore . I don't think the rituximab has kicked in yet which has not helped and lymph nodes are enlarged again . In the meantime i have been to see the consultant about my bulging discs and he has recommended 4 facet
I have been hovering in the background for a few weeks as i have been very tired and sore . I don't think the rituximab has kicked in yet which has not helped and lymph nodes are enlarged again . In the meantime i have been to see the consultant about my bulging discs and he has recommended 4 facet
weathervane
in
LUPUS UK
7 years ago
Ibrutinib & neuropathy?
My husband has been on ibrutinib for 7 months & it has been working well for him with minor side effects (small rash, some joint pain) until the last month. His white blood count is coming down very slowly - still at about 60. (He is waiting to get a stem cell transplant in January & has had FCR but
My husband has been on ibrutinib for 7 months & it has been working well for him with minor side effects (small rash, some joint pain) until the last month. His white blood count is coming down very slowly - still at about 60. (He is waiting to get a stem cell transplant in January & has had FCR but
Glees
in
CLL Support
7 years ago
Chest pain update
So I posted over a month ago about my chest pain and it still hasn't gone! Have had a hospital admission because my heart rate was so high and blood pressure so low, still have had NO chest x ray as they say my lungs are clear. Consultant said maybe I have inflammation around my lungs or my heart. My
So I posted over a month ago about my chest pain and it still hasn't gone! Have had a hospital admission because my heart rate was so high and blood pressure so low, still have had NO chest x ray as they say my lungs are clear. Consultant said maybe I have inflammation around my lungs or my heart. My
Charlottelauren
in
LUPUS UK
7 years ago
"there has been a further reduction in the presence of the disease and limited evidence of any residual disease"
So said my consultant this week! 6 cycles of FCR totally worth it to get this news. No more blood thinning injections, and he also said that I would not need chemo again but would have Ibrutinib if I needed more treatment in the future. WBC still low so got to be careful, but definitely a good week.
So said my consultant this week! 6 cycles of FCR totally worth it to get this news. No more blood thinning injections, and he also said that I would not need chemo again but would have Ibrutinib if I needed more treatment in the future. WBC still low so got to be careful, but definitely a good week.
MattGGibson
in
CLL Support
7 years ago
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