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FCR Domperidone
Hi everyone. I am having my first lot of FCR and this is the first day at home with all my tablets! So many! Can I ask those of you that were given domperidone for sickness if you took them when you didn’t feel sick or just when you did? It says I can have 3 per day. I don’t feel sick yet. Thank you.
Hi everyone. I am having my first lot of FCR and this is the first day at home with all my tablets! So many! Can I ask those of you that were given domperidone for sickness if you took them when you didn’t feel sick or just when you did? It says I can have 3 per day. I don’t feel sick yet. Thank you.
Cindy1462
in
CLL Support
7 years ago
Steroids Damage
Hi all Sincere apologies for not posting or replying for a while. I've been in and out of hospital and attending numerous appointments over the past few months. I thought the Rituximab infusion had caused me serious damage however it is looking more likely the damage has been caused by steroids. I
Hi all Sincere apologies for not posting or replying for a while. I've been in and out of hospital and attending numerous appointments over the past few months. I thought the Rituximab infusion had caused me serious damage however it is looking more likely the damage has been caused by steroids. I
LSurtees
in
LUPUS UK
7 years ago
Avacopan Trial
Just thought I would give an update... Today I have started on the Avacopan trial. I have had rituximab which I have to have every Thursday for 4 weeks, and then I am either taking Avacopan or Prednisolone. I don't know which!!
Just thought I would give an update... Today I have started on the Avacopan trial. I have had rituximab which I have to have every Thursday for 4 weeks, and then I am either taking Avacopan or Prednisolone. I don't know which!!
HFox
in
Vasculitis UK
7 years ago
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Rituximab vs abatacept-- After Enbrel fails
I (and my rheumatologist) suspect that Enbrel has stopped working for me. She suggested changing to rituximab or abatacept. Anyone here have experience with this change? Did you have good results?
I (and my rheumatologist) suspect that Enbrel has stopped working for me. She suggested changing to rituximab or abatacept. Anyone here have experience with this change? Did you have good results?
shareasmile
in
NRAS
7 years ago
Rituximab vs abatacept-- any thoughts?
I end my rheumatologist suspect that Enbrel has stopped working for me. She suggested changing to rituximab or abatacept. Anyone here have experience with this change? Did you have good results?
I end my rheumatologist suspect that Enbrel has stopped working for me. She suggested changing to rituximab or abatacept. Anyone here have experience with this change? Did you have good results?
shareasmile
in
LUPUS UK
7 years ago
Nearing treatment?
Hello! I just had my 3 monthly visit with my haemotologist. My lymphocytes have jumped from 10 to 27. My glands are feeling bigger ...especially under my armpits. Hemoglobin and platelets all still in normal range and I actually feel good. My haemotologist says he will confer with his colleagues and
Hello! I just had my 3 monthly visit with my haemotologist. My lymphocytes have jumped from 10 to 27. My glands are feeling bigger ...especially under my armpits. Hemoglobin and platelets all still in normal range and I actually feel good. My haemotologist says he will confer with his colleagues and
DebLeeCox
in
CLL Support
7 years ago
Metojet dosage
I'm haven't been on the forum for a long time. I've been so busy settling into my new home and supporting two terminally-ill friends. My RA has been very mercurial throughout all this, with pain and fatigue competing for top billing. I've been on Methojet 25 mg, but am also still on Prednisilone
I'm haven't been on the forum for a long time. I've been so busy settling into my new home and supporting two terminally-ill friends. My RA has been very mercurial throughout all this, with pain and fatigue competing for top billing. I've been on Methojet 25 mg, but am also still on Prednisilone
Jora
in
NRAS
7 years ago
Hi everyone,
My name is Sarah my lovely 61 year old dad is going for his first FCR treatment for CLL on Monday am. I thought I'd write to see if any one had any recommendations on someone receiving their first FCR treatment - and although it's highly individual anything we should expect. I have prepared a chemo
My name is Sarah my lovely 61 year old dad is going for his first FCR treatment for CLL on Monday am. I thought I'd write to see if any one had any recommendations on someone receiving their first FCR treatment - and although it's highly individual anything we should expect. I have prepared a chemo
Whitehouse_77
in
CLL Support
7 years ago
Rituximab
Hi there eveyone I wonder if anybody can help. I have CTD & RA and have been on Hydroxy since 2004 with various other medications such as Methotrexate (too may bad side effects), Azathioprine & Lefludomide which didn't have any affect at all. I am on long term steroids at the moment because nothing
Hi there eveyone I wonder if anybody can help. I have CTD & RA and have been on Hydroxy since 2004 with various other medications such as Methotrexate (too may bad side effects), Azathioprine & Lefludomide which didn't have any affect at all. I am on long term steroids at the moment because nothing
Bakbre
in
LUPUS UK
7 years ago
Questions about stopping Imbruvica due to infection
Hi, my husband is a stage 4, SLL/CLL survivor, he was first diagnosed as a healthy 49 year old man and after 6 months completed 6 grueling rounds of FCR which gave him a fantastic and healthy 10 years with no detectable cancer. About a year ago after struggling with a 6 month respiratory infections
Hi, my husband is a stage 4, SLL/CLL survivor, he was first diagnosed as a healthy 49 year old man and after 6 months completed 6 grueling rounds of FCR which gave him a fantastic and healthy 10 years with no detectable cancer. About a year ago after struggling with a 6 month respiratory infections
bellasmom
in
CLL Support
7 years ago
Advice on Rituximab Infusions?
Hello Been a while since I posted but would be really grateful for some advice from anyone who has experienced rituximab infusions. I am due to have 4 over 4 weeks soon after many frustrating delays, cancelled appointments, lost letters between consultants etc and during these delays have started my
Hello Been a while since I posted but would be really grateful for some advice from anyone who has experienced rituximab infusions. I am due to have 4 over 4 weeks soon after many frustrating delays, cancelled appointments, lost letters between consultants etc and during these delays have started my
Galaxy2
in
Vasculitis UK
7 years ago
Stay positive x
Hi I had itp years ago and after so long thought I was home and dry. It has returned however, I'm trying to be positive. I have debilitating fibromyalgia which is making it a struggle. My antibodies are on a mission destroying my platelets . Predisolone no good, ivig no good , platelets at 9 .so starting
Hi I had itp years ago and after so long thought I was home and dry. It has returned however, I'm trying to be positive. I have debilitating fibromyalgia which is making it a struggle. My antibodies are on a mission destroying my platelets . Predisolone no good, ivig no good , platelets at 9 .so starting
Olivia2812
in
ITP Support Association
7 years ago
Reaction to FCR or Medicine.
I had my first cycle of FCR in August. I had an allergy to something. Most likely the bactrim (sulfur) and was hospitalized twice. I also had a severe rash that covered my entire body except for my face (thank god!). My Oncologist has decided to put off any further treatments at this time. My WBC
I had my first cycle of FCR in August. I had an allergy to something. Most likely the bactrim (sulfur) and was hospitalized twice. I also had a severe rash that covered my entire body except for my face (thank god!). My Oncologist has decided to put off any further treatments at this time. My WBC
Jemisavs5
in
CLL Support
7 years ago
Eltrombopag (responses in children ITP)
My 4 year old daughter had been taking eltrombopag since March. Prior to this she tried rituximab and prednisone with no success. Platelets had always been single figures since diagnosis in march 2015 (count was 12-16 with prednisone). Her platelet count has slowly increase over the months with her
My 4 year old daughter had been taking eltrombopag since March. Prior to this she tried rituximab and prednisone with no success. Platelets had always been single figures since diagnosis in march 2015 (count was 12-16 with prednisone). Her platelet count has slowly increase over the months with her
TayahC
in
ITP Support Association
7 years ago
Batty night🦇
Well , we spent last night organising my youngest son as he is off to uni in holland today , he on an early flight so we all went to bed early as im on second rituximab infusion today. The house alarm went off at 3.34 so i went down with my other son , looked around saw nothing. I went into the garage
Well , we spent last night organising my youngest son as he is off to uni in holland today , he on an early flight so we all went to bed early as im on second rituximab infusion today. The house alarm went off at 3.34 so i went down with my other son , looked around saw nothing. I went into the garage
weathervane
in
LUPUS UK
7 years ago
Itp verses sle
I have primary sle and secondary Itp, recently my sle had been in remission but my Itp had been uncontrollable I have tried every treatment medication, rituximab nothing works and my body now rejects prednisalone, so I have to have ivig, I had my last one last week and my platelets are up to 93 which
I have primary sle and secondary Itp, recently my sle had been in remission but my Itp had been uncontrollable I have tried every treatment medication, rituximab nothing works and my body now rejects prednisalone, so I have to have ivig, I had my last one last week and my platelets are up to 93 which
Manclady61
in
LUPUS UK
7 years ago
How Can I Help My Partner With Lupus? + Rituximab
Hello, guys. My boyfriend (29 years) was diagnosed with Lupus more than one year ago. Week ago, we were told that pills are not heplful for him and that it is necessary to try Rituximab. So another roller coaster. I found so many helpful information here, but I still have two questions: 1. What side
Hello, guys. My boyfriend (29 years) was diagnosed with Lupus more than one year ago. Week ago, we were told that pills are not heplful for him and that it is necessary to try Rituximab. So another roller coaster. I found so many helpful information here, but I still have two questions: 1. What side
DankaCi
in
LUPUS UK
7 years ago
Aciclovir
Hi all During my FCR treatment I've had itching in my scalp, neck, back and chest. It did subside a lot over the last few weeks but now this week it's come back with a vengeance! I had a new prescription last Tuesday for Aciclovir and it wasn't until today I noticed I had 200mgs instead of the usual
Hi all During my FCR treatment I've had itching in my scalp, neck, back and chest. It did subside a lot over the last few weeks but now this week it's come back with a vengeance! I had a new prescription last Tuesday for Aciclovir and it wasn't until today I noticed I had 200mgs instead of the usual
sallyplest
in
CLL Support
7 years ago
ANCA-positive and MPO - OR???
I am new here and sorry for my English I am from Denmark. This month one year ago my husband get ill. He had it like af flu for perhaps almost two weeks and went to the doctor. She found out that his CRP was 165 and sent him to hospital. After five weeks they at last found out that he was ANCA-P positive
I am new here and sorry for my English I am from Denmark. This month one year ago my husband get ill. He had it like af flu for perhaps almost two weeks and went to the doctor. She found out that his CRP was 165 and sent him to hospital. After five weeks they at last found out that he was ANCA-P positive
Lima51
in
Vasculitis UK
7 years ago
UPDATE ON: Help! 31yr old newly diagnosed CLL.
UPDATE: hi everyone.... Just wanted to post an update on my brother and say thank you to everyone for all the info.... Really helped us have intelligent and productive conversations with our new doctor at Yale today. We saw the new doc. He was amazing. We spent 2+hrs explaining everything anyone ever
UPDATE: hi everyone.... Just wanted to post an update on my brother and say thank you to everyone for all the info.... Really helped us have intelligent and productive conversations with our new doctor at Yale today. We saw the new doc. He was amazing. We spent 2+hrs explaining everything anyone ever
Jade263
in
CLL Support
7 years ago
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