Hi
I have CLL since Feb. 2015 and had 6 cycles of FCR . I was in remission for about
a year . Ever since my second treatment of chemo I had all kind of skin issues
like really itchy skin easy bruising rash that looks like shingles and ant bites that
leaves a scar. Anybody have this symptom I want to know what your doing for It.
I finished FCR in August and have had itchy skin since cycle 2. I have an itchy scalp, ears, neck, back and chest. My oncologist prescribed a strong antihistamine to take once a day and another one 4 times a day or as needed. I have 3mth post treatment appointment 14/11 and will say these don’t work and hopefully try something else. I use Aveena shampoo which soothes my scalp, moisturise with E45 and if I rub too much and my skin goes really hot I treat with Savlon antiseptic cream. Unfortunately I don’t think there is anything we can do about it but good luck.
I had the same problem , my doctor prescribed antihistamines
lotions . Then the second visit to my dermatologist she notice it became infected so prescribed antibiotics couple days later the itch stopped and the rash started to clear .
hi i have been w w for about three years and twice i have had itcy skin. daft thing first time i thought id got like you bugs of some knd. treadedwhole house with stem n powder turned otut it was cll. i started vegs only dietno sweets no alch and some vitd. anf fine for a six month but got internal ache which i thought was pancreas or spleen. pain awY now dont know what it was. then itch again so this time it was mild n lasted only two month. then have had a pain around left chezt area. which was told not heart. so i think these thing just go with cll and i do loads keep fit drink alkaline water n eat fruit increase greens n that seems to have sorted it. counts went down and sweats gone. good luck worked for me colin
I had the same skin issues before and after chemo. My dermatologist diagnosed me with shingles, prescribed a spray and anti virus meds. The spray worked well to get rid of the pain. Still get itchy red bumps around my armpits and in back of my shoulders.
I have had a rash on my legs, arms and torso (mostly small light red dots connected in a web pattern –most days no itch or discomfort) since 2006 before my CLL diagnosis in 2008.
Each of the 4 times I was treated for my CLL it got visibly worse, but Ibrutinib made it much worse- angry red & itchy.
When I paused Ibrutinib my skin was back to normal (my own normal light red dots) in 2 weeks, and restarting Ibrutinib after 4 weeks made it angry red quickly.
Over the years I've had many biopsies; dermatologists and pathologists postulated Psoriasis, Eczema, drug reactions, and more recently CTCL or Mycosis Fungoides.
The common result from expert pathologists that ran flow cytometry on the biopsy, was finding many T-cells and CLL cells in a specific layer of my skin. But the puzzle is why they are there.
My most successful treatment was Photo therapy (lightbox treatment with UVB rays 3X per week- similar to a stand up tanning bed, but with medical precision on light frequency and duration).
In winter - dry cold weather, if it becomes itchy and bothersome, I use Triamcinolone Acetonide (prescription steroid cream) for 2-3 days then switch to a good moisturizer like CeraVe until the rash is well controlled.
The most recent diagnosis by a research pathologist eliminated CTCL and its cousins, but attributed it to T-cell Dyscrasia.
ncbi.nlm.nih.gov/pubmed/176...
Len
Whats CLL??
Not sure what you are experiencing but A good anti-itch lotion is Sarna. It is over the counter. But 1st I recommend you see a dermatologist. Hope you feel better soon. Best wishes. Carole in U.S.
The results of my skin problems 
Update on my skin rash 
ITCHY EYES SORES ON MY FACE.
Itchy itchy — looking for solutions 
Acalabrutinib and Skin Cancers
