Search
Search
About
Log in
Join
Experiences with
Cetuximab
Posts
Communities
2,434 public posts
Filter results
Rituximab on Tuesday 🙄🙄🙄
I have my first ever infusion on Tuesday. Have been off embrel now for 2 weeks. It was starting to lose efficacy but now I’ve not taken at all for 2 weeks I definitely know it was still working. . I’m laid up. ! What would have happened before all these drugs .. how lucky are we??! Have taken
I have my first ever infusion on Tuesday. Have been off embrel now for 2 weeks. It was starting to lose efficacy but now I’ve not taken at all for 2 weeks I definitely know it was still working. . I’m laid up. ! What would have happened before all these drugs .. how lucky are we??! Have taken
Tessthomy
in
NRAS
6 years ago
FCR treatment - anyone else had burning sensation in bowels?
Hi my partner as just started FCR treatment on the 27/07/2018 he was ok till yesterday night he went to toilet several time and complain of a burning sensation in his bowel. Hi this caused by treatment [i] [/i] [i]Title changed for easier search access - Admin[/i]
Hi my partner as just started FCR treatment on the 27/07/2018 he was ok till yesterday night he went to toilet several time and complain of a burning sensation in his bowel. Hi this caused by treatment [i] [/i] [i]Title changed for easier search access - Admin[/i]
Angus1953
in
CLL Support
6 years ago
Biotin while on Ibrutinib and rituximab.
Hi just wondering if anyone on Ibrutinib and rituximab is using increased doses of biotin to help with brittle nails and dry skin? I have just seen my consultant today and was told it was ok but just wondered if anyone out there has any experience they can share? Thanks in advance Ann
Hi just wondering if anyone on Ibrutinib and rituximab is using increased doses of biotin to help with brittle nails and dry skin? I have just seen my consultant today and was told it was ok but just wondered if anyone out there has any experience they can share? Thanks in advance Ann
annmcgowan
in
CLL Support
6 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Rituximab experiences?
I'm still waiting to hear the results of my myositis investigations, but my symptoms continue to worsen. My rheumy was clear that the treatment of choice is iv prednisolone, but he also mentioned rituximab as a possibility. Given my severe problems with steroids, I'd be glad to hear of people's experiences
I'm still waiting to hear the results of my myositis investigations, but my symptoms continue to worsen. My rheumy was clear that the treatment of choice is iv prednisolone, but he also mentioned rituximab as a possibility. Given my severe problems with steroids, I'd be glad to hear of people's experiences
whisperit
in
LUPUS UK
6 years ago
Rituxan / Rituximab -- gastrointestinal side effects or coinciding viral infection?
I was diagnosed with MPA in 2013. I was brought into remission with cyclophosphamide and prednisone but I've been receiving Rituxan infusions bi-annually for the past 2.5 years, as the drug seems to keep systemic issues in check. In late 2016, about 7 days post-infusion, I began to suffer gastrointestinal
I was diagnosed with MPA in 2013. I was brought into remission with cyclophosphamide and prednisone but I've been receiving Rituxan infusions bi-annually for the past 2.5 years, as the drug seems to keep systemic issues in check. In late 2016, about 7 days post-infusion, I began to suffer gastrointestinal
michichgo
in
Vasculitis UK
6 years ago
GPA, Rituximab and chicken pox...
Hi all, I am under treatment for GPA and am on pred (12.5mg) rituximab and various other meds. I was told at the start of my treatment that exposure to chicken pox is bad news. Luckily for me all three of my kids have it in differing stages. Do I need to lookout for anything? Have called my GP and awaiting
Hi all, I am under treatment for GPA and am on pred (12.5mg) rituximab and various other meds. I was told at the start of my treatment that exposure to chicken pox is bad news. Luckily for me all three of my kids have it in differing stages. Do I need to lookout for anything? Have called my GP and awaiting
Wengle82
in
Vasculitis UK
6 years ago
Rituximab and upset tum
Only one infusion so far on Friday last. Terrible diaries. Anyone had this or knows if it eases off
Only one infusion so far on Friday last. Terrible diaries. Anyone had this or knows if it eases off
28maggie11
in
NRAS
6 years ago
Rituximab first infusion
Had first infusion on Friday ......terrible diarhea. Anyone else have this and if so did it calm down
Had first infusion on Friday ......terrible diarhea. Anyone else have this and if so did it calm down
28maggie11
in
NRAS
6 years ago
FCR-12 months on.
Hi All, Hope you are all doing well. Finished 6 cycles of FCR June 2017 and bloods are all great. Am 51 an feel severely fatigued. Is this normal? I have a full time job but struggling to cope Anyone out there experiencing this? Thanks in advance, Robbie
Hi All, Hope you are all doing well. Finished 6 cycles of FCR June 2017 and bloods are all great. Am 51 an feel severely fatigued. Is this normal? I have a full time job but struggling to cope Anyone out there experiencing this? Thanks in advance, Robbie
rsw147
in
CLL Support
6 years ago
Race for life - for all of you
Hi guys! I did the 5k race for life today in Scotland. For all of you. You are all in my heart. My hematologist told me last Thursday I’m getting treatment soon. And that I may only have 20 years if I’m lucky. And that I could die during my soon to come FCR! I choose not to let this drag me down
Hi guys! I did the 5k race for life today in Scotland. For all of you. You are all in my heart. My hematologist told me last Thursday I’m getting treatment soon. And that I may only have 20 years if I’m lucky. And that I could die during my soon to come FCR! I choose not to let this drag me down
Flabal
in
CLL Support
6 years ago
what to take besides prednisone
taking 10mg prednisone now, been on prednisone for 2yrs, doctor wants to get me off prednisone ask me what i thought about cell cept or rituximab, has anyone tried these or know anything about these, also what have people tried besides prednisone and had any luck with
taking 10mg prednisone now, been on prednisone for 2yrs, doctor wants to get me off prednisone ask me what i thought about cell cept or rituximab, has anyone tried these or know anything about these, also what have people tried besides prednisone and had any luck with
Uzziah7
in
PMRGCAuk
6 years ago
thank you
hi , I just wanted to say a very big thank you to all who responded to my post. it has lifted my heart to to hear other peoples stories concerning rituximab, and has calmed me down about facing having it, I really don't have a choice now but to take it regardless of my fears, as I cant stand to be
hi , I just wanted to say a very big thank you to all who responded to my post. it has lifted my heart to to hear other peoples stories concerning rituximab, and has calmed me down about facing having it, I really don't have a choice now but to take it regardless of my fears, as I cant stand to be
astrajewel
in
NRAS
6 years ago
Lupus and hair loss
Hello. I have lupus and it is progressively getting worse. I have now started to lose my hair and this feels like the final kick in the teeth. Is there anything that I can do? Any meds that will help? I am due to have rituximab.
Hello. I have lupus and it is progressively getting worse. I have now started to lose my hair and this feels like the final kick in the teeth. Is there anything that I can do? Any meds that will help? I am due to have rituximab.
estpem
in
LUPUS UK
6 years ago
Neutrophils level
Hi guys my husbands FCR treatment has be postponed the past three week due to him neutrophils levels being low any recommendations as docs saying will come up naturally :(
Hi guys my husbands FCR treatment has be postponed the past three week due to him neutrophils levels being low any recommendations as docs saying will come up naturally :(
Sailormoon11
in
CLL Support
6 years ago
Medical update
Hi all I know some of you have been following my story since being refused treatment with Ibrutinib as NHS England decided not to follow NICE guidelines. I'm currently being reviewed on a 3 weekly basis. I was put on sreriods antivirals and antibiotics to treat the symptoms not the cause. The steroids
Hi all I know some of you have been following my story since being refused treatment with Ibrutinib as NHS England decided not to follow NICE guidelines. I'm currently being reviewed on a 3 weekly basis. I was put on sreriods antivirals and antibiotics to treat the symptoms not the cause. The steroids
Mick491
in
CLL Support
6 years ago
medication r a hell, help
hi everyone, was diagnosed in nov 2016 with R A since then ive been on 4 different medication, none of them have agreed with me and with severe side effects, I am getting worse day by day ,consultant now wants to put me on rituximab but I am scared because of the side effects I have already experienced
hi everyone, was diagnosed in nov 2016 with R A since then ive been on 4 different medication, none of them have agreed with me and with severe side effects, I am getting worse day by day ,consultant now wants to put me on rituximab but I am scared because of the side effects I have already experienced
astrajewel
in
NRAS
6 years ago
Just Finished my First Round FCR!
It still feels like an out of body experience. I was on W&W 12 years with no pains/ illnesses, etc. I was fortunate to have my first treatment admitted to hospital for 4 days last week. It was comforting knowing that if anything happened, I was already with medical professionals. My port made the treatment
It still feels like an out of body experience. I was on W&W 12 years with no pains/ illnesses, etc. I was fortunate to have my first treatment admitted to hospital for 4 days last week. It was comforting knowing that if anything happened, I was already with medical professionals. My port made the treatment
GMa27
in
CLL Support
6 years ago
Frustrated with ITP and not sure be able to keep working as a physical therapist
I have been working as a PT for 20 years and in my mid 50-this was diagnosed with ITP, had multiple Rituximab infusions but still running low 20K (lowest was 14K), had no bleeds but bruised often and now can not work 10 hours days or keep up with physical load of being physical therapist due to fatigue
I have been working as a PT for 20 years and in my mid 50-this was diagnosed with ITP, had multiple Rituximab infusions but still running low 20K (lowest was 14K), had no bleeds but bruised often and now can not work 10 hours days or keep up with physical load of being physical therapist due to fatigue
hannaITP
in
ITP Support Association
6 years ago
Relapsing polychondritis
Hello, everyone. I was diagnosed with MPA ten years ago and have recently had a nasty flare which has been treated with Rituximab but this time does not seem to be working too well. I have had a very inflamed outer ear ( the pinna) which has been itchy and developed nodules along the edge of it. Did
Hello, everyone. I was diagnosed with MPA ten years ago and have recently had a nasty flare which has been treated with Rituximab but this time does not seem to be working too well. I have had a very inflamed outer ear ( the pinna) which has been itchy and developed nodules along the edge of it. Did
trebar
in
Vasculitis UK
6 years ago
Fusion
After five months of no RA meds only a steroid jag to keep me going I am awaiting phone call from nurse to arrange rituximab infusion. Apprehensive as so far I have not tolerated methotrexate or humira. In my system for six months if I have a problem
After five months of no RA meds only a steroid jag to keep me going I am awaiting phone call from nurse to arrange rituximab infusion. Apprehensive as so far I have not tolerated methotrexate or humira. In my system for six months if I have a problem
28maggie11
in
NRAS
6 years ago
1
...
57
58
59
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
CLL Support
988 results
NRAS
553 results
Vasculitis UK
324 results
View top 10 communities
Sort by
Most Relevant
Newest