It still feels like an out of body experience. I was on W&W 12 years with no pains/ illnesses, etc. I was fortunate to have my first treatment admitted to hospital for 4 days last week. It was comforting knowing that if anything happened, I was already with medical professionals. My port made the treatment go easily especially since I didn't know I would be on 24/7 IV fluids. My oncologist split the Rituxin the first 2 days. Started at 50 and worked my way up to 150 possibly 200.... can't remember. All went well. Benadryl is my new best friend! I started chemo mainly due to anemia ( no AHIA). I had to get Procrit shot due to hemoglobin dropping a little. Apparently, it is common for the red cells to get suppressed while the white cells are being attacked. No problem with shot. Just for 2 hrs while waiting to be discharged, I got fatigued. It lifted and I went home feeling good.
Complication for me is that I have gastroparesis. I kept up my every 2-3 hour eating schedule. But since I got home, not interested in food. I weighed myself when I got home. Was disappointed I had lost the weight that took me a year to gain and maintain. I am only talking about 4 lbs! Got dx with this crazy digestive disease ( not related to CLL) a year ago. Will hopefully find a food balance going forward.
My WBC went from 225 to 63! Nodes started to shrink. Just felt a little tired first full day home. I have doc appt this morning and look forward to seeing the current blood work. Not looking forward to the N shot. Hopefully no side effects.
Nurse said to keep low profile 5th-10th days after chemo. I will stay home. Fortunately I am retired. I didn't know you could sweat out ur chemo so nurse said to wash my clothes separately from my husband's for the first week. Also she suggested using separate bathrooms in my home. Luckily we have 2. She said again for the first week, if I had to share, flush twice and clean toilet each time! Glad I have 2 cuz I go a lot in a day!!
Grateful I feel ok so far. The next week or so can get bumpy but have heard lots of positive feedback about chemo and not everyone has a bad experience. Keeping my fingers and toes crossed!