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Third FCR dose
After the third dose of the treatment, I think my body got over the treatment more quickly. I felt very nauseous for 5 days, but then much better and more like myself. Has anyone else felt the same? Maybe my body is better at dealing with the chemo now? Still neutrophenic after the treatment though
After the third dose of the treatment, I think my body got over the treatment more quickly. I felt very nauseous for 5 days, but then much better and more like myself. Has anyone else felt the same? Maybe my body is better at dealing with the chemo now? Still neutrophenic after the treatment though
Mandy56
in
CLL Support
6 years ago
Lupus Nephritis
Hi Hoping for some advise... I was diagnosed with SLE and Lupus Nephritis in Feb. I've started on 60mg steroids and MMf straight away, last month I had Rituximab but my Nephrologist has said that early signs are it may not have put the Nephritis into remmission.. Can anyone tell me about their experience
Hi Hoping for some advise... I was diagnosed with SLE and Lupus Nephritis in Feb. I've started on 60mg steroids and MMf straight away, last month I had Rituximab but my Nephrologist has said that early signs are it may not have put the Nephritis into remmission.. Can anyone tell me about their experience
MOOG144
in
LUPUS UK
6 years ago
Update on results
Good morning everyone, I have just been diagnosed with a rare form of lymphoma called nodal marginal zoneB-cell. I have been losing weight for over a year, told loads of doctors about it, had tons of blood tests and still doctors missed it. My rheumy doc said all my bloods were ok but then my gp noticed
Good morning everyone, I have just been diagnosed with a rare form of lymphoma called nodal marginal zoneB-cell. I have been losing weight for over a year, told loads of doctors about it, had tons of blood tests and still doctors missed it. My rheumy doc said all my bloods were ok but then my gp noticed
Lizard28
in
LUPUS UK
6 years ago
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Treated with Venetoclax with rituximab for relapsed or refractory CLL then Bloodwise need help for the NICE appraisal on 22 Jun.
There is a health technology appraisal request that Bloodwise need help with. The request is for a NICE appraisal of venetoclax in combination with rituximab for treating relapsed or refractory CLL. Ideally, we are looking for someone who has had the treatment. However if you haven’t, but still have
There is a health technology appraisal request that Bloodwise need help with. The request is for a NICE appraisal of venetoclax in combination with rituximab for treating relapsed or refractory CLL. Ideally, we are looking for someone who has had the treatment. However if you haven’t, but still have
Myrddin
in
CLL Support
6 years ago
Does NHS in UK cover WG for students of other countries?
Dear Friends, I am Nagesh, from Bangalore, India. My son Nischal, now 23years was diagnosed with ‘Wegener’s granulomatosis’ when he was 13 years old. Now he is on maintenance dose of Rituximab 500mg once in six months and prednesoline 5mg daily. He has completed is undergraduate course in Bangalore,
Dear Friends, I am Nagesh, from Bangalore, India. My son Nischal, now 23years was diagnosed with ‘Wegener’s granulomatosis’ when he was 13 years old. Now he is on maintenance dose of Rituximab 500mg once in six months and prednesoline 5mg daily. He has completed is undergraduate course in Bangalore,
nagesh
in
Vasculitis UK
6 years ago
Any suggestions
I have just returned from hosp with the news that treatment should begin. I have two choices the conventional fcr treatment or the Flair trial which may still mean fcr if that’s what the computer recommends has anyone any thoughts or advice, Thank you
I have just returned from hosp with the news that treatment should begin. I have two choices the conventional fcr treatment or the Flair trial which may still mean fcr if that’s what the computer recommends has anyone any thoughts or advice, Thank you
dandelup
in
CLL Support
6 years ago
Cold medication
Hi guys my hubby currently having FCR for CLL he seems to be taking the cold does anyone know what cold medication he could take if any ???
Hi guys my hubby currently having FCR for CLL he seems to be taking the cold does anyone know what cold medication he could take if any ???
Sailormoon11
in
CLL Support
6 years ago
Rituximab
Hi All, Another question. You may need to read my previous post to understand this one. My wife is going into to hospital on Wednesday for an overnight stay to have this put into her via IV. Her platelet count keeps dropping and she had a platelet transfusion last week and they were at 127 then 1
Hi All, Another question. You may need to read my previous post to understand this one. My wife is going into to hospital on Wednesday for an overnight stay to have this put into her via IV. Her platelet count keeps dropping and she had a platelet transfusion last week and they were at 127 then 1
Connorscotland
in
Hughes Syndrome APS Forum
6 years ago
Lymphocyte count post FCR
Three years ago my husband had FCR which was very effective and he became MRD- (ie complete remission). Everything has been going very well and he is feeling much healthier than he had done for years before FCR (he had 2 years in W&W but had clearly had CLL for years before diagnosis). Straight after
Three years ago my husband had FCR which was very effective and he became MRD- (ie complete remission). Everything has been going very well and he is feeling much healthier than he had done for years before FCR (he had 2 years in W&W but had clearly had CLL for years before diagnosis). Straight after
Fowey2009
in
CLL Support
6 years ago
My wife and APS - Looking for help
Good Evening All My wife is 28 and was diagnosed with APS and low platelets at week 13 in her pregancy at week 19 (20wk scan) we found out our Baby Summer never had a heartbeat, my wife had to give birth etc etc At week 13 she started on a aspirin and a 60mg of Clexine injection a day. Everything was
Good Evening All My wife is 28 and was diagnosed with APS and low platelets at week 13 in her pregancy at week 19 (20wk scan) we found out our Baby Summer never had a heartbeat, my wife had to give birth etc etc At week 13 she started on a aspirin and a 60mg of Clexine injection a day. Everything was
Connorscotland
in
Hughes Syndrome APS Forum
6 years ago
FDA Approves Venetoclax (VENCLEXTA) For CLL or SLL with or without 17p deletion, who have received at least one prior therapy
FDA Approves Venetoclax (VENCLEXTA) For Chronic Lymphocytic Leukemia or Small Lymphocytic Leukemia http://support.lymphoma.org/site/MessageViewer?em_id=2683.0&dlv_id=5995 On June 8, 2018, the U.S. Food and Drug Administration (FDA) approved the use of venetoclax (VENCLEXTA) for the treatment of
FDA Approves Venetoclax (VENCLEXTA) For Chronic Lymphocytic Leukemia or Small Lymphocytic Leukemia http://support.lymphoma.org/site/MessageViewer?em_id=2683.0&dlv_id=5995 On June 8, 2018, the U.S. Food and Drug Administration (FDA) approved the use of venetoclax (VENCLEXTA) for the treatment of
lankisterguy
Volunteer
in
CLL Support
6 years ago
unmutated cll patient treatment with fcr
hi there. i would like pls to know if unmutated cll patients as i am have complete remision for several years after FCR treatment or they all relaps after 2 to 3 years .fish test necative to 17p deletion. [i]Image of overall survival comparison with FC and FCR for IGHV mutated and unmutated added by
hi there. i would like pls to know if unmutated cll patients as i am have complete remision for several years after FCR treatment or they all relaps after 2 to 3 years .fish test necative to 17p deletion. [i]Image of overall survival comparison with FC and FCR for IGHV mutated and unmutated added by
Neoklis
in
CLL Support
6 years ago
Rituximab after first infusion
Had first infusion three weeks ago.. was due second but had food poisoning. My query is feel shaky and tired. Is this a side effect and if so will it ease of
Had first infusion three weeks ago.. was due second but had food poisoning. My query is feel shaky and tired. Is this a side effect and if so will it ease of
28maggie11
in
NRAS
6 years ago
Rituximab or Mycophenolate
Hi All, Do any of you have experience of Rituximab? I've found out today that my lupus/cerebral vasculitis is active again and they're looking to put me on Mycophenolate (again) or Rituximab. Seeing the Consultant again on Tuesday and it would be good to get the advice of lupies using Rituximab. I know
Hi All, Do any of you have experience of Rituximab? I've found out today that my lupus/cerebral vasculitis is active again and they're looking to put me on Mycophenolate (again) or Rituximab. Seeing the Consultant again on Tuesday and it would be good to get the advice of lupies using Rituximab. I know
Lorska1
in
LUPUS UK
6 years ago
Upto date Rituximab infusion experience
Well hello folks. As a few know I had my first Rituximab infusion.. it was due Tuesday but I got there and they tell me I need to have recent blood work done .. so had to postpone to today. (Groan). Let that be a warning .. make sure you get everything up to date before! So I’m 5 hours in. All ok
Well hello folks. As a few know I had my first Rituximab infusion.. it was due Tuesday but I got there and they tell me I need to have recent blood work done .. so had to postpone to today. (Groan). Let that be a warning .. make sure you get everything up to date before! So I’m 5 hours in. All ok
Tessthomy
in
NRAS
6 years ago
Start FCR next week advice please
Hi All! Im 40 was diagnosed with CLL 3 and half years ago.. Starting FCR next week, any words of advice would be much appreciated! I plan to work during treatment,really do hope its not wishful thinking and I can do it need the money. I know everyone is different, is there anyone out there that pulled
Hi All! Im 40 was diagnosed with CLL 3 and half years ago.. Starting FCR next week, any words of advice would be much appreciated! I plan to work during treatment,really do hope its not wishful thinking and I can do it need the money. I know everyone is different, is there anyone out there that pulled
Shirty78
in
CLL Support
6 years ago
A little news to share ....
Two years ago today I began FCR. It was a challenge at times and it was this group that dragged me through it ...sometimes kicking and screaming! Today I've been busy at work, booked a holiday and feel very grateful for the poison that , so far so good, did a decent job. My life was turned upside down
Two years ago today I began FCR. It was a challenge at times and it was this group that dragged me through it ...sometimes kicking and screaming! Today I've been busy at work, booked a holiday and feel very grateful for the poison that , so far so good, did a decent job. My life was turned upside down
Bethan49
in
CLL Support
6 years ago
ASH 2017: Dr. Richard Furman on the importance of MCL-1 in CLL (chronic lymphocytic leukemia)
Just watched a video on MCL-1 and thought our group might be interested (if not already aware!). From the CLL Society website: As good as venetoclax is as a single agent, there are now many studies that show even more remarkable responses occur when it is used in combination with ibrutinib or rituximab
Just watched a video on MCL-1 and thought our group might be interested (if not already aware!). From the CLL Society website: As good as venetoclax is as a single agent, there are now many studies that show even more remarkable responses occur when it is used in combination with ibrutinib or rituximab
hsouter
in
CLL Support
6 years ago
CLL: FLAIR Trial site list and update to design
In response to an email, I received the following reply from the organisers of FLAIR with permission to share this in the online patient forums. I will include the full text below which ends with a list of the hospitals where FLAIR is currently running. But first a few bullet points from me * We now
In response to an email, I received the following reply from the organisers of FLAIR with permission to share this in the online patient forums. I will include the full text below which ends with a list of the hospitals where FLAIR is currently running. But first a few bullet points from me * We now
AdrianUK
in
Leukaemia Support
6 years ago
F.C.R.
How long after each treatment do you feel reasonable?
How long after each treatment do you feel reasonable?
Bamboon62
in
CLL Support
6 years ago
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