Good Evening All
Some of you guys know me but for brevity and basic info, I have RA/SLE/Reynauds/APS/Vasculitis/AnkySpond etc! Multiple ops, fused right foot and all toes K wired, tendons cut, toes shortened and straightened blah. I'm on biologics, Rituximab, and as soon as I get the nod from my consultant after the physical surgery healing (maybe 6 weeks), then I will be having my second lot of infusions. I can't have the infusions now as there is only a 2 month window from having first infusions - that's because surgery (unless emergency) Is not permitted until 4 months after infusions.
Now it's hand surgery time - they have been bad for many years but now losing function of right hand due to fixed 4th finger at 90deg and crossovers.
Anyhoo, I'm due to have major surgery on my right hand (dominant) on 23March - right ring finger PIP joint fusion, probably in 30 or 40 deg of flexion, extensor tendon realignment and soft tissue reconstruction of the middle, ring and little fingers over the dorsal metacarpal heads, and a flexor tenodesis of the right little finger PIP joint.
I'm trying to get everything sorted out now as I know there is going to be plaster time, splint time and 6 months intensive hand therapy... so just wondering if anyone has had similar procedures all at the same time, and how you got on with your recovery. I have been warned of the pain and that my hand will be completely unrecognisable due to swelling; the two hand surgeons who are doing this and the plastic surgeon have made it very clear how complex the surgery will be, hence 2 surgeons.
I will have someone with me for 5 days post-op, after that, I'm pretty much on my own and not too sure how I'm going to be able to do things, though I'm researching this to get tips on how to do manage every day tasks. I'm very used to ops and had 6 ops on both feet, lost count of the number of other ops, but not having a working dominant hand is a very different challenge and my left hand is very weak.
I have a great OT who I'm hoping will be able to home visit and have asked for an IV drip holder so I can keep my arm raised as I know my shoulder will not be able to compensate for the plaster up to my elbow, and will likely flare; I have a biobidet (thankfully) and am considering all the things I know I simply won't be able to do. I'm agoraphobic so don't leave my house except hospital appts or family visits and though I abhor asking for help, I will on this occasion and hope the district nurse and possibly hand therapist will be able to come out as and when it's necessary.
So, if anyone can tell me their story and how they managed, I would very much appreciate it.
Photo attached...'scuse the mud on hand, recently moved house and have had to get some of the garden sorted before surgery. Ha, try putting a glove on with a fixed 4th finger!