Hi,
Sorry to hear you are going through this. I don't have any answers other than saying for me once I got rid of the virus or whatever triggered the ITP and got my immune system balanced I improved dramatically.
My story. The ITP was triggered by a bad virus or parasites that I caught in March 2017 in Costa Rica. Once I got help from a homeopathic doctor to balance my immune system and rid my body of virus and parasites caught in Costa Rica, I have been stable since October 2017.
Before that, from May 2017 till Oct 2017 the virus/parasites triggered my immune system to attack my platelets every 2 weeks and bottom out to 1,000-7,000 count. This went on for 5 months of rollercoaster platelet counts of 1,000 to over a million(after Nplate) Every two weeks I was on IVIG and DEX bursts; it was a horrible cycle.
I am around 160,000 to 190,000 platelet count for a while now and have had no IVIG or dex since 10/17. I was diagnosed with ITP 2 weeks after my return to Colorado from Costa Rica. My platelets went as low as 1,000-7,000 during those horrible 2 week cycles of IVIG/dex bursts.
I want to share what I am taking and doing
Western Medicine: 25mg of Promacta three times a week.
Eastern Homopathics: Immunosupport-2 caps every day, Adrenal Support - 2 caps every day, skateliver oil (increases platelet production)- 2 caps every day,
and an antivirus homeopathic 1 dropper 2Xd, and immuno stabilizer homeopathic 1 dropper 2Xd.
The homeopathic doctor instructed me to quit gluten 100% in October which I did. And to have dairy only 2Xweek. He said goat cheese whenever is fine.
I also try really hard to keep my stress level down.
I am not saying I am fine and over ITP but I am cautiously optimistic that I can stay stable.
I must say the Western doctors thought I was crazy to pursue other options but I knew their bandaid method was lacking.
My hope is this is helpful for you.
Good Luck!