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Ceftazidime intravenous infusion
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WHAT A DAY!
When I reached the QE yesterday after a horrible journey through 6 large roadworks, Selly Oak one large building site my anxiety levels were sky high. I always ask to be put on my consultant’s pile because registrars have no idea about me and are always shocked when they compare the person who walks
When I reached the QE yesterday after a horrible journey through 6 large roadworks, Selly Oak one large building site my anxiety levels were sky high. I always ask to be put on my consultant’s pile because registrars have no idea about me and are always shocked when they compare the person who walks
Hidden
in
Lung Conditions Community Forum
5 years ago
Just arrived!
I was diagnosed with CLL in 2008, at the age of 57. After 2 years of watch-and-wait I was referred to King’s College Hospital in London and had FCminiR chemo (Arctic Trial) over a 9 month period. I was able to work full time until the end of 2013, and have taught short courses on and off since then.
I was diagnosed with CLL in 2008, at the age of 57. After 2 years of watch-and-wait I was referred to King’s College Hospital in London and had FCminiR chemo (Arctic Trial) over a 9 month period. I was able to work full time until the end of 2013, and have taught short courses on and off since then.
Salvoboy
in
CLL Support
5 years ago
Problems with Neulasta after IVIG and in Ibrutinib
Neutrophils dropped over the last couple of months while on IBN so my doctors gave me a shot of Neulasta. I have ended up with weeks or achy bones, problems breathing, enhanced neuropathy and mouth sores, which are like blood blisters. My experience is that I have had lots of side effects from every
Neutrophils dropped over the last couple of months while on IBN so my doctors gave me a shot of Neulasta. I have ended up with weeks or achy bones, problems breathing, enhanced neuropathy and mouth sores, which are like blood blisters. My experience is that I have had lots of side effects from every
KevinCLLITP
in
CLL Support
5 years ago
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B12 deficiency not treated
I am new to this website and do not know if I have PA? Went to see Gp in June 2019 as feeling worn out,dizzy spells and generally feeling unwell. (taking into account I have a failed spinal fusion back syndrome and Fibromyalgia). First time I had B12 checked and it showed 79 - told I would need 6 injections
I am new to this website and do not know if I have PA? Went to see Gp in June 2019 as feeling worn out,dizzy spells and generally feeling unwell. (taking into account I have a failed spinal fusion back syndrome and Fibromyalgia). First time I had B12 checked and it showed 79 - told I would need 6 injections
djtw
in
Pernicious Anaemia Society
5 years ago
Suspected PMR
I’ve had 4 spinal fusions but over the last 18 months I’ve been suffering with severe cramp and pain in my neck shoulders and hips I was tested for rheumatoid arthritis 18 months ago but only inflammation came up and liver abnormalities..I was recently referred to see a vascular specialist who has
I’ve had 4 spinal fusions but over the last 18 months I’ve been suffering with severe cramp and pain in my neck shoulders and hips I was tested for rheumatoid arthritis 18 months ago but only inflammation came up and liver abnormalities..I was recently referred to see a vascular specialist who has
pold68
in
PMRGCAuk
5 years ago
First Post
Hi there. Just an introductory post. My name's Connor, I have FA, and I'm 24. I was diagnosed when I was 9, had spinal fusion surgery at 12/13, I started using a walking frame at 17, and went into a wheelchair at 20. I have a degree in accountancy, I don't work but I've done a bit volunteering. Now a
Hi there. Just an introductory post. My name's Connor, I have FA, and I'm 24. I was diagnosed when I was 9, had spinal fusion surgery at 12/13, I started using a walking frame at 17, and went into a wheelchair at 20. I have a degree in accountancy, I don't work but I've done a bit volunteering. Now a
Lisbon67
in
Ataxia UK
5 years ago
NEW CONSULTANT
My husband had his appointment with his new consultant on Friday and is still in remission, but felt he should see an Immunologist as he had a number of infections lasting 4months. Today my husband has received a letter from him stating that he has done a referral in view he is pan-hypoglobulinemic.
My husband had his appointment with his new consultant on Friday and is still in remission, but felt he should see an Immunologist as he had a number of infections lasting 4months. Today my husband has received a letter from him stating that he has done a referral in view he is pan-hypoglobulinemic.
very
in
CLL Support
5 years ago
Lupus and Fibromalgyia
Hi all I'm super new to this site. I was diagnosed 3 years ago and it's been downhill ever since. I'm now seeing a psychiatrist for my mental health and he suggested I go back to my rheumatologist and ask to be rechecked. He thinks I may have something else either Lupus or something else. I do contract
Hi all I'm super new to this site. I was diagnosed 3 years ago and it's been downhill ever since. I'm now seeing a psychiatrist for my mental health and he suggested I go back to my rheumatologist and ask to be rechecked. He thinks I may have something else either Lupus or something else. I do contract
Soniaarora
in
Fibromyalgia Action UK
5 years ago
CAPS or Primary APS with Alveolar Hemorrhage
Anyone have CAPS or Primary APS with Alveolar Hemorrhage? Looking for treatment options .... we have done Plasmapheresis, Rituxan, Steroids, Plaquenil, Azathioprine and the Rheumy is now talking of doing IVIG if tomorrows blood work doesn't show an improvement in platelets. Anyone have any experience
Anyone have CAPS or Primary APS with Alveolar Hemorrhage? Looking for treatment options .... we have done Plasmapheresis, Rituxan, Steroids, Plaquenil, Azathioprine and the Rheumy is now talking of doing IVIG if tomorrows blood work doesn't show an improvement in platelets. Anyone have any experience
kiminabmw
in
Hughes Syndrome APS Forum
5 years ago
Pain 10 years after a spinal fusion L5/S1
Hi All, Has anyone suffered an overwhelming increase in back pain following a spinal fusion? I had mine 10 years ago now and although not 100%....had been doing alright in my retirement. I had been a nurse for 40 years and although I tried couldn’t return to work comfortably, so decided to take early
Hi All, Has anyone suffered an overwhelming increase in back pain following a spinal fusion? I had mine 10 years ago now and although not 100%....had been doing alright in my retirement. I had been a nurse for 40 years and although I tried couldn’t return to work comfortably, so decided to take early
RedfoxMorse
in
Pain Concern
5 years ago
Immune Function Improvements
Here are 3 separate videos from Patient Power by respected CLL experts explaining different aspects of our Immune Systems and what can be done to affect or cope with the problems that CLL may cause. - https://www.patientpower.info/video/can-ivig-improve-immune-function?autoplay=1 Can IVIG Improve Immune
Here are 3 separate videos from Patient Power by respected CLL experts explaining different aspects of our Immune Systems and what can be done to affect or cope with the problems that CLL may cause. - https://www.patientpower.info/video/can-ivig-improve-immune-function?autoplay=1 Can IVIG Improve Immune
lankisterguy
Volunteer
in
CLL Support
5 years ago
Anti-Purkinge
For five days last week I had IVIg treatment I have to have blood test in August to see if it worked on Anti-Purkinge and if so the treatment will be repeated. I have Cerebella Atrophy associated with Anti-Purkinge it will take 4-6weeks to work. Has anyone else undergone this treatment and if so was
For five days last week I had IVIg treatment I have to have blood test in August to see if it worked on Anti-Purkinge and if so the treatment will be repeated. I have Cerebella Atrophy associated with Anti-Purkinge it will take 4-6weeks to work. Has anyone else undergone this treatment and if so was
Jacqui-A
in
Ataxia UK
5 years ago
COCO, RAIN CLOUDS AND POKÉMON HUNTING
Dear Friends, I wanted to write something a few days ago after our mutual beloved friend Barnclown (Coco) had spine surgery - to say she had come through it, bantered in a Fentanyl induced cloud with one of the surgeons, and then faced the long nights post surgery on a trauma ward. She is home now and
Dear Friends, I wanted to write something a few days ago after our mutual beloved friend Barnclown (Coco) had spine surgery - to say she had come through it, bantered in a Fentanyl induced cloud with one of the surgeons, and then faced the long nights post surgery on a trauma ward. She is home now and
lupusinflight
in
LUPUS UK
5 years ago
Balance and Unsteadiness. Floaty. Help?
I had meningitis 6 months ago from IVIG medication. LP they thought it may have been viral but then later called it asceptic. I initially developed tremors, and my trunk/head kept swaying. Light flashes and falling. Those went away but now... The proprioception on my right body feels off. I'm unsteady
I had meningitis 6 months ago from IVIG medication. LP they thought it may have been viral but then later called it asceptic. I initially developed tremors, and my trunk/head kept swaying. Light flashes and falling. Those went away but now... The proprioception on my right body feels off. I'm unsteady
David_101
in
Meningitis Now
5 years ago
No Diagnosis
My friend has had symptoms of PSP for at least a year - falling backwards, gaze issues, incontinence, speech, etc. Neurologists have tried plasma exchange, ivig, and given all MRI's CT scans etc. No one seems to be motioning in the direction of PSP other than the first neurologist who asked for second
My friend has had symptoms of PSP for at least a year - falling backwards, gaze issues, incontinence, speech, etc. Neurologists have tried plasma exchange, ivig, and given all MRI's CT scans etc. No one seems to be motioning in the direction of PSP other than the first neurologist who asked for second
Mybeautifulfriend
in
PSP Association
5 years ago
IVIG?
There is a nationwide shortage here for IVIG. I was receiving it every month for at least 1 year. It was helping. USA here. How is it going in UK?
There is a nationwide shortage here for IVIG. I was receiving it every month for at least 1 year. It was helping. USA here. How is it going in UK?
nanno
in
LUPUS UK
5 years ago
Students
Hi all, I have been asked if I would attend a Medical School based in the hospital I attend if it helps the future generation why not. I was put forward for IVIg treatment in January and I’m still waiting has anyone else had this treatment and if so did it help? I have Cerebella Atrophy only diagnosed
Hi all, I have been asked if I would attend a Medical School based in the hospital I attend if it helps the future generation why not. I was put forward for IVIg treatment in January and I’m still waiting has anyone else had this treatment and if so did it help? I have Cerebella Atrophy only diagnosed
Jacqui-A
in
Ataxia UK
5 years ago
Unexplained Chest Pains/Palpitations
I started having tachycardia 4 years ago. My heart rate would go up into the 170s. I've had several ECGs, blood work, CT Scan of the heart, stress test, holter monitor, Ziopatch and echo. Everything came back normal. I have been put on propranolol, metoprolol, and now Bisoprolol 2.5 mg once daily since
I started having tachycardia 4 years ago. My heart rate would go up into the 170s. I've had several ECGs, blood work, CT Scan of the heart, stress test, holter monitor, Ziopatch and echo. Everything came back normal. I have been put on propranolol, metoprolol, and now Bisoprolol 2.5 mg once daily since
PeachyPie99
in
Anxiety Support
5 years ago
IVIG Anyone?
Hello, Has anyone had any success with ivig? I have polymyositis and was just in hospital for around a week for respiratory failure type 2, and was given 3 x 500ml of steroids, then 3 days of ivig. My oxygen was down to 70% sometimes, but mostly in the 80s. My lung function s not good, from 100% in January
Hello, Has anyone had any success with ivig? I have polymyositis and was just in hospital for around a week for respiratory failure type 2, and was given 3 x 500ml of steroids, then 3 days of ivig. My oxygen was down to 70% sometimes, but mostly in the 80s. My lung function s not good, from 100% in January
ClareR12345
in
Myositis UK
5 years ago
Lumbar spinal stenosis with PSP?
My husband also was diagnosed with severe lumbar spinal stenosis and it was recommended he have spinal fusion. We are not going to do that at this point. Can't imagine adding that on top of everything else. The rehab would be nearly impossible. Someone else on this site (I can't find the post now) said
My husband also was diagnosed with severe lumbar spinal stenosis and it was recommended he have spinal fusion. We are not going to do that at this point. Can't imagine adding that on top of everything else. The rehab would be nearly impossible. Someone else on this site (I can't find the post now) said
journeyofjoy
in
PSP Association
5 years ago
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