Hi all, I have been asked if I would attend a Medical School based in the hospital I attend if it helps the future generation why not.
I was put forward for IVIg treatment in January and I’m still waiting has anyone else had this treatment and if so did it help?
I have Cerebella Atrophy only diagnosed last October after knowing something was wrong and the last couple of days haven’t been good. I could manage to get around indoors unaided but these past couple of days I’ve noticed a big change in my balance and coordination and when I’m out I feel people are looking at me, it’s very upsetting.
My neurologist said it was nothing I’d done ie: lifestyle but something that has been creeping up for years.
Jacqui
Written by
Jacqui-A
To view profiles and participate in discussions please or .
How I know how you feel, I am still embarassed of my condition and too embarassed to use a walking stick. Inside my house I manage very well unaided, if I need I use walls and furniture for support. Outside I hang on to some one, but I feel that people are looking at me and may think I am drunk. I have never drank any alcohol. I have also been asked to be part of a European study. However they only take blood samples and I do various cognitive and equilibrium tests. They have not asked me to take anything. I am coeliac and am not prepared at the moment to take anything. I have been diagnosed with SCA3.
Hmmm, try not to be embarrassed, but I've been there myself and know it's not possible. Sadly, for me, it's only when I was forced to (use a wheelchair) that I opted for one; and, surprise surprise, it was a relief not to be wobbly in public.
Thank you, for your advice. I am not quite ready yet but I will get there, I have no option. I will cross that bridge when I get there, for now I will not worry
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
Husband with cerebella ataxia
Vitamin B12 and Ataxia
The knot in my rope of hope
Tasigna (Nilotinib) as a treatment/cure for SCA?
Does anyone suffer from hand cramps?
