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Orthostatic hypotension
I am trying to deal with being dizzy and sometimes fainting. I am transitioning from Sinemet to mucuna . My dosage was 7 1/2 pills a day. 1 extended at night and 1 amantadine in the morning and 1 at night I have increased my water intake and taking essential oils to increase my blood pressure. My neurologist
I am trying to deal with being dizzy and sometimes fainting. I am transitioning from Sinemet to mucuna . My dosage was 7 1/2 pills a day. 1 extended at night and 1 amantadine in the morning and 1 at night I have increased my water intake and taking essential oils to increase my blood pressure. My neurologist
Bowling55
in
Cure Parkinson's
4 years ago
Worried Son
I'd like to know if other members have had B12 injections taken away from them by their GP? My Mum was diagnosed with Pernicious Anemia over 20 years ago and was told that she will need B12 injections for the rest of her life by the Consultant in Haematology. Last year, her GP took them away from her
I'd like to know if other members have had B12 injections taken away from them by their GP? My Mum was diagnosed with Pernicious Anemia over 20 years ago and was told that she will need B12 injections for the rest of her life by the Consultant in Haematology. Last year, her GP took them away from her
IPM1970
in
Pernicious Anaemia Society
4 years ago
Pernicious anemia symptoms returned after loading dose of B12!
Hi Everyone, My last loading dose injection of B12 was on 10th June after testing (twice) for a positive intrinsic factor, and slowly my symptoms have return. This weekend I feel awful, with xtreme tiredness, lack of energy, feeling faint, headaches and tinnitus. Please can anyone recommend anything
Hi Everyone, My last loading dose injection of B12 was on 10th June after testing (twice) for a positive intrinsic factor, and slowly my symptoms have return. This weekend I feel awful, with xtreme tiredness, lack of energy, feeling faint, headaches and tinnitus. Please can anyone recommend anything
Iheart_TS
in
Pernicious Anaemia Society
4 years ago
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Anemia - Does anyone have anemia/ low: wbc, rbc, hemoglobin, hemocrit and cobalt? &/or high B12 levels? If so, how do you resolved this?
Anemia - Does anyone have anemia/ low: wbc, rbc, hemoglobin, hemocrit and cobalt? &/or high B12 levels? If so, how do you resolve this? I just got back my blood and hair sample results and it's an amazing packet of info but one things I delved into was the relationship of B12 and cobalt. My cobalt
Anemia - Does anyone have anemia/ low: wbc, rbc, hemoglobin, hemocrit and cobalt? &/or high B12 levels? If so, how do you resolve this? I just got back my blood and hair sample results and it's an amazing packet of info but one things I delved into was the relationship of B12 and cobalt. My cobalt
GeorgeGlass
in
Advanced Prostate Cancer
4 years ago
Please keep cool and hydrated to avoid a worse risk of clotting.
Hello, just a gentle reminder to keep cool and hydrated in the current UK heat wave, or any location, tepid baths are better than hot baths for keeping cool in this sort of heat, as if totally cold, you body races to warm up again, I have a cool one with a few drops of lavender before bed, (Be careful
Hello, just a gentle reminder to keep cool and hydrated in the current UK heat wave, or any location, tepid baths are better than hot baths for keeping cool in this sort of heat, as if totally cold, you body races to warm up again, I have a cool one with a few drops of lavender before bed, (Be careful
MaryF
Administrator
in
Hughes Syndrome APS Forum
4 years ago
Intrinsic results back
Hi all.I just got my intrinsic factor test results back. Antibodies 3.47 AU/ml^2 (range 1.2-1.53) Positive. Any tips on what to do next appreciated. I’ve got my endo appointment on the 08/July for the Addisons diagnosis So obviously I’ll need to update him on this result. I’m back to self injecting
Hi all.I just got my intrinsic factor test results back. Antibodies 3.47 AU/ml^2 (range 1.2-1.53) Positive. Any tips on what to do next appreciated. I’ve got my endo appointment on the 08/July for the Addisons diagnosis So obviously I’ll need to update him on this result. I’m back to self injecting
Hidden
in
Pernicious Anaemia Society
4 years ago
Nash diet (instruction)
How much refined fish oil you should take per day ? I currently taking 1 tablespoon per day of my oil. Question is my The Carlson fish oil serving size is 1 teaspoon contains EPA 800, and DHA 500, and OMEGA-3 is 1600 mg I think i ‘m taking it so much.please help.
How much refined fish oil you should take per day ? I currently taking 1 tablespoon per day of my oil. Question is my The Carlson fish oil serving size is 1 teaspoon contains EPA 800, and DHA 500, and OMEGA-3 is 1600 mg I think i ‘m taking it so much.please help.
CompletelytrustingJ
in
Living with Fatty Liver and NASH
4 years ago
Foul mood this morning -spotting when already had a period endo crap
So yesterday I was feeling more positive but today I’ve got up to some light bleeding I’ve never bled in between my period unless on the pill I feel angry and frustrated because I’ve done everything in my power to manage this condition I’m now doing
castor
oil
packs at least 3 times a week I’m on the
So yesterday I was feeling more positive but today I’ve got up to some light bleeding I’ve never bled in between my period unless on the pill I feel angry and frustrated because I’ve done everything in my power to manage this condition I’m now doing
castor
oil
packs at least 3 times a week I’m on the
Afrohair
in
Endometriosis UK
4 years ago
Essential oils
Studies have shown that using essential oils may improve sleep, enhance mood, and help with depression. Two of the best are bergamot and wild ginger. Bergamot is known for being both uplifting and calming. This acts as a hormone balancer and antidepressant. It also has sedative effects, making it an
Studies have shown that using essential oils may improve sleep, enhance mood, and help with depression. Two of the best are bergamot and wild ginger. Bergamot is known for being both uplifting and calming. This acts as a hormone balancer and antidepressant. It also has sedative effects, making it an
Survivor4Ever
in
Anxiety and Depression Support
4 years ago
Possible B12 deficiency, looking for recommended test list before B12 shot
I ran across someone posting on Reddit who has symptoms that might be from B12 deficiency... tingling, fatigue, etc. He's vegan, his serum B12 tested high, but he's taking daily B12 supplements so his serum test might not be accurate. I recommended trying a B12 shot to see if it helped, but then I
I ran across someone posting on Reddit who has symptoms that might be from B12 deficiency... tingling, fatigue, etc. He's vegan, his serum B12 tested high, but he's taking daily B12 supplements so his serum test might not be accurate. I recommended trying a B12 shot to see if it helped, but then I
genesurf
in
Pernicious Anaemia Society
4 years ago
Private Intrinsic Factor Testing recommendations
Could anyone recommend a company for IFAB testing please? I've been looking all day, I can only find Medichecks.
Could anyone recommend a company for IFAB testing please? I've been looking all day, I can only find Medichecks.
Bunny12345678
in
Pernicious Anaemia Society
4 years ago
How to manage MDD and get out of Survival Mode?
I deal with MDD, and other stuff, but MDD is the main thing I am solving right now. I am trying to get out of survival mode. Like a ton of other people I lost my job due to COVID. I will be financially okay for a few months, maybe more with unemployment. I do not like where I live and feel unsafe. I
I deal with MDD, and other stuff, but MDD is the main thing I am solving right now. I am trying to get out of survival mode. Like a ton of other people I lost my job due to COVID. I will be financially okay for a few months, maybe more with unemployment. I do not like where I live and feel unsafe. I
Derpy_716
in
Anxiety and Depression Support
4 years ago
Stomach acid and PPI's
Hi I've, like everyone else with PA, have intrinsic auto antibodies, I've also gastric reflux, a hiatus hernia and chronic gastritis/duodenitis (had more than one gastroscopy done which showed it). I'm being treated with Lanzoprasole, on the orders of my gastroenterologist, for excess stomach acid
Hi I've, like everyone else with PA, have intrinsic auto antibodies, I've also gastric reflux, a hiatus hernia and chronic gastritis/duodenitis (had more than one gastroscopy done which showed it). I'm being treated with Lanzoprasole, on the orders of my gastroenterologist, for excess stomach acid
Dewy9698
in
Pernicious Anaemia Society
4 years ago
Supplement Advice
I know there’s been a few posts already about this so apologies for me asking but just want some advice specifically for my situation. I’m 37 had 6 failed IUIs in 2019 and was about to start round 1 of IVF when lockdown kicked in. I have underactive thyroid so take thyroxine & I have low ovarian reserve
I know there’s been a few posts already about this so apologies for me asking but just want some advice specifically for my situation. I’m 37 had 6 failed IUIs in 2019 and was about to start round 1 of IVF when lockdown kicked in. I have underactive thyroid so take thyroxine & I have low ovarian reserve
Rainbowdreams82
in
Fertility Network UK
4 years ago
has anyone had the latest Anti-VEGF brolucizumab),?
Hi All I was wondering if any of the clinics are using the new drug as I believe it has a long duration between injections after the initial 3 loading ones of up up t 12 weeks. It has. Been passed by the FDA I believe. Wishing everyone well Ann
Hi All I was wondering if any of the clinics are using the new drug as I believe it has a long duration between injections after the initial 3 loading ones of up up t 12 weeks. It has. Been passed by the FDA I believe. Wishing everyone well Ann
Annsandra13
in
Macular Society
4 years ago
Too much b12
Hi All I am a vegetarian/vegan and became b12 deficient around 7 years ago which, in my opinion, was caused by lack of b12 in my diet and my doctor putting me on omaprezole. I have received injections up until April 8 when my surgery cancelled injections and put me on 50 ml tablets twice daily. The only
Hi All I am a vegetarian/vegan and became b12 deficient around 7 years ago which, in my opinion, was caused by lack of b12 in my diet and my doctor putting me on omaprezole. I have received injections up until April 8 when my surgery cancelled injections and put me on 50 ml tablets twice daily. The only
Alfabeta
in
Pernicious Anaemia Society
4 years ago
Hands getting worse
Hi, I’m still not diagnosed for sure but am having problems with hands on & off now for weeks. Bad day today, knuckles throbbing & tingling, wrists hurt. All joints in hands feel like seizing up, body stiff as well after rest. Does this sound like RA? Rheumatoid Factor 55, ultrasound, bloods normal.
Hi, I’m still not diagnosed for sure but am having problems with hands on & off now for weeks. Bad day today, knuckles throbbing & tingling, wrists hurt. All joints in hands feel like seizing up, body stiff as well after rest. Does this sound like RA? Rheumatoid Factor 55, ultrasound, bloods normal.
Sunnyseas
in
NRAS
4 years ago
Positive intrinsic factor
Hi everyone, I’m a newbie here! The doctor have confirmed my intrinsic factor is positive and therefore, I will need b12 injections for the rest of my life. This is not a complete shock, but I was wondering if so could do anything else to ease my symptoms, or recommend anything that will be useful
Hi everyone, I’m a newbie here! The doctor have confirmed my intrinsic factor is positive and therefore, I will need b12 injections for the rest of my life. This is not a complete shock, but I was wondering if so could do anything else to ease my symptoms, or recommend anything that will be useful
Iheart_TS
in
Pernicious Anaemia Society
4 years ago
Does PA get worse in time?
Hi Folks Just a question of interest really. I have autoimmune thyroid disease (underactive). Back in summer 2018 I had borderline low active b12 (34 range 25.1-165) and symptoms, but tested negative for intrinsic factor antibodies (I know this is a test with a high possibility of a false negative).
Hi Folks Just a question of interest really. I have autoimmune thyroid disease (underactive). Back in summer 2018 I had borderline low active b12 (34 range 25.1-165) and symptoms, but tested negative for intrinsic factor antibodies (I know this is a test with a high possibility of a false negative).
Laundretta
in
Pernicious Anaemia Society
4 years ago
Peppermint
Hi, I want to check whether peppermint oil is good for IBS like rubbing to the tummy and peppermint tea will be good to soothe IBS as well. Does anyone here had experience with peppermint itself with IBS??
Hi, I want to check whether peppermint oil is good for IBS like rubbing to the tummy and peppermint tea will be good to soothe IBS as well. Does anyone here had experience with peppermint itself with IBS??
mondlee6248
in
IBS Network
4 years ago
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