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5 public communities
AMN EASIER
1,313 members
AMN Easier was set up to help men and women who have adrenomyeloneuropathy (AMN) - to help make this disease a bit easier to live with. AMN EASIER provides information and support by (1) providing answers to health questions from other AMN patients with experience of the disease; (2) showing what other AMN patients are doing and thinking; (3) describing ideas and possibilities for therapies that could help
IBS Network
47,601 members
The IBS Network is the national charity that helps people with Irritable Bowel Syndrome (IBS) and has provided support to those with the condition and to healthcare professionals for over 25 years. Funding for the charity is received from a number of sources, including: annual memberships, an online shop for purchasing the ‘Can’t Wait’ card, Radar keys and other useful aids, in addition to income from legacies.
Cholesterol Support
9,589 members
A new peer support community for people with high cholesterol (e.g. familial hypercholesterolaemia and hyperlipidaemia). Join to share your experiences, ask questions and connect with others going through the same challenge.
Oesophageal & Gastric Cancer
6,129 members
For more than three decades, the OPA has fought against oesophageal and gastric cancers, raising awareness, supporting patients, caregivers and their families. Whether you are in the early stages or further along in your journey, the OPA is dedicated to offering support and guidance. We have prepared medically approved booklets and fact sheets all free of charge about the problems these types of cancer can generate, the pains that can be suffered and the effects on the digestive system that can be experienced. Informal meetings for patients and carers are regularly held at regional centres around the UK. OPA have introduced Zoom meetings with a Patient Buddy, please contact us if you would like further details. Call the cancer support helpline on 0121 704 9860 or email enquiries@opa.org.uk and we will be happy to arrange this for you. Instructions for Zoom - https://www.opa.org.uk/edit/files/zoom_instructions_v1.pdf Don't forget our very informative website www.opa.org.uk where you can obtain details of all meetings, useful resource and much much more. If you prefer to chat, our helpline number is 0121 704 9860 or you can email us at enquiries@opa.org.uk
Macular Society
5,123 members
Macular disease is the biggest cause of sight loss in the UK, with around 300 people diagnosed every day. The Macular Society is the only charity in the UK determined to beat the fear and isolation of macular disease with world class research, and the best advice and support. Our research programme is focused on finding new treatments and a cure to Beat Macular Disease forever. To support people affected by macular disease now, the Macular Society provides a range of support, information and services. If you see someone with a "Helping Hand" badge by their name, this member has been recognized as someone who regularly contributes to the forum and helps others, this could be through sharing their own experiences with Macular conditions, giving some advice or ideas, or by signposting members to maybe call us directly to get more specific advice.