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Just need some advice on self injecting.
Just need to come up with a safe plan for what to do about my B12 injections. After several years of symptoms like chronic fatigue, brain fog, dizziness, pins and needles, sore lips, dry skin, breathlessness etc I was finally diagnosed with a B12 deficiency in 2011. My B12 level was 154. By this
Just need to come up with a safe plan for what to do about my B12 injections. After several years of symptoms like chronic fatigue, brain fog, dizziness, pins and needles, sore lips, dry skin, breathlessness etc I was finally diagnosed with a B12 deficiency in 2011. My B12 level was 154. By this
Hayley31
in
Pernicious Anaemia Society
3 months ago
HIFU 2023 article does not seem positive
This article from early 2023 does not seem positive on HIFU. https://link.springer.com/article/10.1007/s00345-023-04352-9 I have a friend looking at HIFU in the setting of a clinical trial. He's Gleason 6 with just 1 of 12 portions of his prostate affected. Technically, he could do active surveillance
This article from early 2023 does not seem positive on HIFU. https://link.springer.com/article/10.1007/s00345-023-04352-9 I have a friend looking at HIFU in the setting of a clinical trial. He's Gleason 6 with just 1 of 12 portions of his prostate affected. Technically, he could do active surveillance
A0007720
in
Prostate Cancer Network
6 months ago
Lactose free Levo
Good morning,I'm wondering if anyone has experience of switching to lactose free Levothyroxene and it helping with fatigue specifically? I have always been somewhat dairy/cows milk intolerant. I get all the usual symptoms but over the past few years have discovered what I can manage (butter, hard cheese
Good morning,I'm wondering if anyone has experience of switching to lactose free Levothyroxene and it helping with fatigue specifically? I have always been somewhat dairy/cows milk intolerant. I get all the usual symptoms but over the past few years have discovered what I can manage (butter, hard cheese
Dahliasanddaisies
in
Thyroid UK
3 months ago
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Promising, especially for people with LBD mutation: NEJM Evidence publishes results from Phase I/IIa CYPIDES trial with ODM-208
"In phase I, 20 out of the total 47 patients had AR LBD mutation. In phase IIa, all 45 patients had AR LBD mutation. A decrease in PSA (prostate-specific antigen) levels of 50% or more occurred in 14/19 (73.7%) patients with AR LBD mutation and 2/23 (8.7%) AR-wild-type patients in phase I, and in 24/
"In phase I, 20 out of the total 47 patients had AR LBD mutation. In phase IIa, all 45 patients had AR LBD mutation. A decrease in PSA (prostate-specific antigen) levels of 50% or more occurred in 14/19 (73.7%) patients with AR LBD mutation and 2/23 (8.7%) AR-wild-type patients in phase I, and in 24/
Maxone73
in
Advanced Prostate Cancer
6 months ago
Clinical trial NCT05898399: for BRCA (ATM as well I suppose) mutations
Study of ART6043 in Advanced/Metastatic Solid Tumors Patients This company is also developing an interesting ATR inhibitor for ATM mutations https://classic.clinicaltrials.gov/ct2/show/NCT05898399
Study of ART6043 in Advanced/Metastatic Solid Tumors Patients This company is also developing an interesting ATR inhibitor for ATM mutations https://classic.clinicaltrials.gov/ct2/show/NCT05898399
Maxone73
in
Advanced Prostate Cancer
6 months ago
Cirrhosis & Diverticular disease
I was recently diagnosed with Diverticular disease and Cirrhosis of the liver, after having a Scan and colonoscopy. I was referred to the Gastroenterlogy department at the hospital for triaging and consultation with regard to the cirrhosis, but it looks as if both of those will take months to happen.
I was recently diagnosed with Diverticular disease and Cirrhosis of the liver, after having a Scan and colonoscopy. I was referred to the Gastroenterlogy department at the hospital for triaging and consultation with regard to the cirrhosis, but it looks as if both of those will take months to happen.
onefiveone
in
British Liver Trust
3 months ago
Alk phos on Xeloda
Moms just started her 3 cycle today of xeloda. So she’s been on it 6 weeks. Her T bili is normal her ast and alt are normal . But her Alk phos is up. Her doctor said they would continue to monitor it. Anyone else have this elevate on Xeloda ? Thanks so much!
Moms just started her 3 cycle today of xeloda. So she’s been on it 6 weeks. Her T bili is normal her ast and alt are normal . But her Alk phos is up. Her doctor said they would continue to monitor it. Anyone else have this elevate on Xeloda ? Thanks so much!
Flower1513
in
SHARE Metastatic Breast Cancer
6 months ago
Do the NHS test for active b12 aswell a total b12?
I wonder because my sister was diagnosed with pernicious anemia years ago but now they say her b12 levels are really high normal.
I wonder because my sister was diagnosed with pernicious anemia years ago but now they say her b12 levels are really high normal.
Cesca-K
in
Pernicious Anaemia Society
3 months ago
colonoscopy 💩
I’m due to have a colonoscopy on the 16th which I am not looking forward to as when I had a sigmoidoscopy years ago I was in considerable pain when they used the air. I believe my bowel prep is going to be Picolax any tips on getting it down? I get bad reflux and nausea so praying it’s not going to make
I’m due to have a colonoscopy on the 16th which I am not looking forward to as when I had a sigmoidoscopy years ago I was in considerable pain when they used the air. I believe my bowel prep is going to be Picolax any tips on getting it down? I get bad reflux and nausea so praying it’s not going to make
BasilG
in
IBS Network
3 months ago
Confusing news from oncologist
Hi all, looking for some insight or direction based off of any experiences or similar ones. My dad started chemo in October with a PSA of 126. After 2 rounds of chemo, his PSA rose to 153, we saw some increase in his bone metastasis as according to the scans (posted about this previously). My dad
Hi all, looking for some insight or direction based off of any experiences or similar ones. My dad started chemo in October with a PSA of 126. After 2 rounds of chemo, his PSA rose to 153, we saw some increase in his bone metastasis as according to the scans (posted about this previously). My dad
StayingSTRNG
in
Advanced Prostate Cancer
6 months ago
SBRT #4
Update on yesterday's SBRT #4. The machine that is treating me (Varian Edge) takes two revolutions to administer the fraction. They line you up with lasers and images before, track the fiducials during the rotation (and the machine automatically holds the beam if you and/or your prostate move out of
Update on yesterday's SBRT #4. The machine that is treating me (Varian Edge) takes two revolutions to administer the fraction. They line you up with lasers and images before, track the fiducials during the rotation (and the machine automatically holds the beam if you and/or your prostate move out of
ToolBeltZia
in
Prostate Cancer Network
6 months ago
Cholestyramine
My husband has had explosive diarrhea since mid February. After blood tests, stool samples, colonoscopy, and more stool samples, they are not able to determine what is causing the diarrhea. The doctor has prescribed Cholestyramine. Has anyone had experience with this medication and did it help?
My husband has had explosive diarrhea since mid February. After blood tests, stool samples, colonoscopy, and more stool samples, they are not able to determine what is causing the diarrhea. The doctor has prescribed Cholestyramine. Has anyone had experience with this medication and did it help?
lowraind
in
IBS Network
3 months ago
Stomach pain common with IBS?
Is stomach pain common with IBS?If so, where do you feel the pain? I feel pain right in the center pit of my stomach... sometimes gnawing sensation, sometimes a cramping sensation Do you feel it there in the center pit of your stomach too?
Is stomach pain common with IBS?If so, where do you feel the pain? I feel pain right in the center pit of my stomach... sometimes gnawing sensation, sometimes a cramping sensation Do you feel it there in the center pit of your stomach too?
Catsandsunsets
in
IBS Network
3 months ago
unknown rash
hi everyone! Last week I posted pictures of my son’s face rash asking if it looked like cutaneous lupus. For those who are just reading now, he had this rash for about two months now— started on his ear which was raw red then went away. A few weeks later the rash developed bright red spots on his face
hi everyone! Last week I posted pictures of my son’s face rash asking if it looked like cutaneous lupus. For those who are just reading now, he had this rash for about two months now— started on his ear which was raw red then went away. A few weeks later the rash developed bright red spots on his face
Demaso33
in
LUPUS UK
1 month ago
low serum iron. Normal ferritin
been getting very tired lately. ET (MPL) on pegysus 45ug every 2 weeks. Mentioned fatigue to haematologist and he suggested reducing peg further to 3 weekly. Got the above results after we got home. Also raised CRP but I do have a cold . raised neutrophils and wbc. Haem thought this was good as mounting
been getting very tired lately. ET (MPL) on pegysus 45ug every 2 weeks. Mentioned fatigue to haematologist and he suggested reducing peg further to 3 weekly. Got the above results after we got home. Also raised CRP but I do have a cold . raised neutrophils and wbc. Haem thought this was good as mounting
Sprat19
in
MPN Voice
3 months ago
Iron infusion
I had my first iron infusion yesterday. I will be going back next week for another one. I would appreciate any advice, thoughts or comments. I did mention to the hematologist that I would like to get my iron up to 300 but he said you will not attempt what he called “iron saturation”. His aim is to get
I had my first iron infusion yesterday. I will be going back next week for another one. I would appreciate any advice, thoughts or comments. I did mention to the hematologist that I would like to get my iron up to 300 but he said you will not attempt what he called “iron saturation”. His aim is to get
tagaxel
in
Restless Legs Syndrome
3 months ago
*Long Read Warning* How do you know if you’re getting better mentally?
Just need to vent, if you read this and commented thankyou, it helps getting another perspective on the situation. Male, 20 Parents went through a divorce in 2022 and it was ugly to say the least. (Mom was an alcoholic, dad was a cop and emotionally distant due to his Mexican culture and upbringing
Just need to vent, if you read this and commented thankyou, it helps getting another perspective on the situation. Male, 20 Parents went through a divorce in 2022 and it was ugly to say the least. (Mom was an alcoholic, dad was a cop and emotionally distant due to his Mexican culture and upbringing
Bear2024
in
Above & Beyond
1 month ago
flare up
hi I’ve had diahorria and left side pain and mild nausea for a few days now . Keep thinking it’s better and it’s not ! Self employed but in clients houses so keep cancelling the ones that are home! Now got some appointments coming up some where no loo and feel I need to cancel , Is this a “flare up
hi I’ve had diahorria and left side pain and mild nausea for a few days now . Keep thinking it’s better and it’s not ! Self employed but in clients houses so keep cancelling the ones that are home! Now got some appointments coming up some where no loo and feel I need to cancel , Is this a “flare up
Purplewoman
in
IBS Network
3 months ago
lactose intolerant
i can’t find any chat for this problem when searching so chose this site. i’m lactose intolerant but it doesn’t bother me much. only thing i avoid is normal milk. i have lactose free milk but yesterday finished and i’ve been having normal. i’ve noticed stomach ache bloating. can this be caused by this
i can’t find any chat for this problem when searching so chose this site. i’m lactose intolerant but it doesn’t bother me much. only thing i avoid is normal milk. i have lactose free milk but yesterday finished and i’ve been having normal. i’ve noticed stomach ache bloating. can this be caused by this
Junny123
in
Pain Concern
3 months ago
A plea from your brother
Click here to securely donate in any currency: https://malecare.org/donate Click here to securely donate in any currency:A Plea from Your Brother My prostate cancer diagnosis introduced me to Malecare - with the commanding encouragement of my urologist. My experiences validated the organization's remarkable
Click here to securely donate in any currency: https://malecare.org/donate Click here to securely donate in any currency:A Plea from Your Brother My prostate cancer diagnosis introduced me to Malecare - with the commanding encouragement of my urologist. My experiences validated the organization's remarkable
Darryl
Partner
in
Prostate Cancer Network
6 months ago
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