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Just took my first Pirtobrutinib pill today
I can’t thank my doctor and Upenn enough for acting so quickly in getting pirto approved by insurance company and getting me co-pay assistance. The drug arrived yesterday and this morning I took my first dose! Just in time because my lymph nodes in my neck and abdomen have gotten so much bigger and
I can’t thank my doctor and Upenn enough for acting so quickly in getting pirto approved by insurance company and getting me co-pay assistance. The drug arrived yesterday and this morning I took my first dose! Just in time because my lymph nodes in my neck and abdomen have gotten so much bigger and
ReneeSusan
in
CLL Support
11 months ago
Update on carbolatin-etoposide
Hope everyone is doing well and enjoying what’s left of the summer sunshine. Just a brief update. My husband whose advanced prostate cancer has now become neuroendocrine has just completed 3 cycles of carbolatin - etoposide for liver mets. He did a Ct scan and we just got the good news that his
Hope everyone is doing well and enjoying what’s left of the summer sunshine. Just a brief update. My husband whose advanced prostate cancer has now become neuroendocrine has just completed 3 cycles of carbolatin - etoposide for liver mets. He did a Ct scan and we just got the good news that his
Believeit
in
Advanced Prostate Cancer
11 months ago
pre-op advice please
I have just been diagnosed with bowel cancel. Small tumour and they don’t believe it has spread. In 4 weeks I will have an operation to remove the tumour and part of the bowel. I would appreciate advice on how to prepare for the operation. What food to eat / avoid. For those that have been through this
I have just been diagnosed with bowel cancel. Small tumour and they don’t believe it has spread. In 4 weeks I will have an operation to remove the tumour and part of the bowel. I would appreciate advice on how to prepare for the operation. What food to eat / avoid. For those that have been through this
Mantras131
in
Colon Cancer Connected
11 months ago
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Hand surgery went well
The scheduler phoned me Monday to offer me an earlier procedure on Tuesday and I jumped at the chance to be the first patient of the day for the hand surgeon! When he's not running late, and is likely at his best. But that meant we had to get up at 4 am! Itold every body that I probably didn't need
The scheduler phoned me Monday to offer me an earlier procedure on Tuesday and I jumped at the chance to be the first patient of the day for the hand surgeon! When he's not running late, and is likely at his best. But that meant we had to get up at 4 am! Itold every body that I probably didn't need
PJBinMI
in
SHARE Metastatic Breast Cancer
11 months ago
ovarian mass
Has anyone had any experience of a complex cyst going away on MRI?
Has anyone had any experience of a complex cyst going away on MRI?
Ova104
in
Endometriosis UK
11 months ago
Diclofenac for neuropathy/HFS caused by Xeloda
hello everyone I suffer from hand and foot syndrome and neuropathy so I have been looking for ways to ease the pain. I have been on Doxil (IV chemo every 4 weeks, Doxorubicin) since June 2023 and the pain has been hard physically and emotionally. Yesterday my oncologist’s nurse practitioner mentioned
hello everyone I suffer from hand and foot syndrome and neuropathy so I have been looking for ways to ease the pain. I have been on Doxil (IV chemo every 4 weeks, Doxorubicin) since June 2023 and the pain has been hard physically and emotionally. Yesterday my oncologist’s nurse practitioner mentioned
Lna21
in
SHARE Metastatic Breast Cancer
11 months ago
Anyone have hypercalcemia?
Hi, All! I've been doing pretty well since my diagnosis and b12 injections for 5 months or so. I still had some lingering symptoms that I felt were not related to pernicious anemia. Anyway, the other day I ended up in the ER with kidney stones and hyponephrosis (urine backing up into kidney, swollen
Hi, All! I've been doing pretty well since my diagnosis and b12 injections for 5 months or so. I still had some lingering symptoms that I felt were not related to pernicious anemia. Anyway, the other day I ended up in the ER with kidney stones and hyponephrosis (urine backing up into kidney, swollen
Iheartb12
in
Pernicious Anaemia Society
11 months ago
Supported by Marian Newman, Chair of The Federation of Nail Professionals
We are delighted to be officially recognised and supported by Nail Expert, Author and Educator, Marian Newman BEM, Chair of @The Federation of Nail Professionals (The FNP). Marian is regarded as one of the top nail practitioners in the world with a formidable reputation for excellence and quality, prompting
We are delighted to be officially recognised and supported by Nail Expert, Author and Educator, Marian Newman BEM, Chair of @The Federation of Nail Professionals (The FNP). Marian is regarded as one of the top nail practitioners in the world with a formidable reputation for excellence and quality, prompting
SkcinHQ
Partner
in
Skin Cancer UK
11 months ago
Chatbots Not Always Reliable for Cancer Treatment Advice - MedPage Today, August 24, 2023.
Seems AI for cancer info and advice might not yet be ready for prime time. For the immediate future, I'd trust something like Cancer Hacker Lab long before a Chatbot for info and guidance on treatment, esp. if it was other than SOC. * * * [i]
Chatbots Not Always Reliable for Cancer Treatment Advice
Seems AI for cancer info and advice might not yet be ready for prime time. For the immediate future, I'd trust something like Cancer Hacker Lab long before a Chatbot for info and guidance on treatment, esp. if it was other than SOC. * * * [i]
Chatbots Not Always Reliable for Cancer Treatment Advice
cujoe
in
Fight Prostate Cancer
11 months ago
PATIENT EXPERIENCE OF ADJUVANT CHEMOTHERAPY AFTER SURGERY
NIVOLUMAB will shortly be assessed by the Scottish Medicine Consortium (SMC) for use in NHS Scotland in combination with platinum-based chemotherapy for the neoadjuvant (treatment given before surgery) for resectable non-small cell lung cancer in adults. We have been invited to provide a Patient Group
NIVOLUMAB will shortly be assessed by the Scottish Medicine Consortium (SMC) for use in NHS Scotland in combination with platinum-based chemotherapy for the neoadjuvant (treatment given before surgery) for resectable non-small cell lung cancer in adults. We have been invited to provide a Patient Group
RoyCastleHelpline
Roy Castle
in
The Roy Castle Lung Cancer Foundation
11 months ago
PATIENT EXPERIENCE OF NIVOLUMAB
NIVOLUMAB will shortly be assessed by the Scottish Medicine Consortium (SMC) for use in NHS Scotland in combination with platinum-based chemotherapy for the neoadjuvant treatment (this is treatment given before surgery) for resectable non-small cell lung cancer in adults. We have been invited to provide
NIVOLUMAB will shortly be assessed by the Scottish Medicine Consortium (SMC) for use in NHS Scotland in combination with platinum-based chemotherapy for the neoadjuvant treatment (this is treatment given before surgery) for resectable non-small cell lung cancer in adults. We have been invited to provide
RoyCastleHelpline
Roy Castle
in
The Roy Castle Lung Cancer Foundation
11 months ago
can rapid growth be malignant
I was diagnosed with AN in left ear 3 years ago. It is not growing but a routine scan a year ago showed another AN on the right side 4mm. I had genetic testing but it is not NF2. A year later it is 9.5mm and I was sent to an oncologist regarding Gamma knife. The oncologist says the growth has been
I was diagnosed with AN in left ear 3 years ago. It is not growing but a routine scan a year ago showed another AN on the right side 4mm. I had genetic testing but it is not NF2. A year later it is 9.5mm and I was sent to an oncologist regarding Gamma knife. The oncologist says the growth has been
Operalovers
in
Acoustic Neuroma Support
11 months ago
Thank you and more questions
First, thank you for those who have commented/offered advice on my prostate cancer treatment questions. Much appreciated as I move forward on this journey. I have recently read about a new tumor focused cancer treatment out of the City of Hope. Experimental, but seems to be able to focus action on
First, thank you for those who have commented/offered advice on my prostate cancer treatment questions. Much appreciated as I move forward on this journey. I have recently read about a new tumor focused cancer treatment out of the City of Hope. Experimental, but seems to be able to focus action on
Scorpio53
in
Prostate Cancer Network
11 months ago
MRI results
had scan on 6th July. after many phone calls and forever listening to messages and options finally found out that my results had been sent to my GP. As I was ordering my repeats on patient access put a note on the bottom asking someone to tell me the outcome, within an hour had a call to say they had
had scan on 6th July. after many phone calls and forever listening to messages and options finally found out that my results had been sent to my GP. As I was ordering my repeats on patient access put a note on the bottom asking someone to tell me the outcome, within an hour had a call to say they had
oap74
in
British Liver Trust
11 months ago
At a crossroads
Greetings All, I have recently been scanned and increased Mets in bones and a new small spot in my liver have been found, eliminating me from my Phase Ib clinical trial that had worked from November 2021. My earlier first line of treatment, Ibrance Fulvestrant failed after about 8 months. I am now
Greetings All, I have recently been scanned and increased Mets in bones and a new small spot in my liver have been found, eliminating me from my Phase Ib clinical trial that had worked from November 2021. My earlier first line of treatment, Ibrance Fulvestrant failed after about 8 months. I am now
Garlicgrower
in
SHARE Metastatic Breast Cancer
1 year ago
Mammograms
diagnosed HGSOC December 2019. BRCA 2 somatic only. Have had standard chemo, debulking + 2 years of Olaparib and doing well to date. My question is around mammograms: what is the usual checks for ladies with OC history? I would imagine it varies widely however my GP stated it would be as normal, i.e
diagnosed HGSOC December 2019. BRCA 2 somatic only. Have had standard chemo, debulking + 2 years of Olaparib and doing well to date. My question is around mammograms: what is the usual checks for ladies with OC history? I would imagine it varies widely however my GP stated it would be as normal, i.e
RoseMS
in
My Ovacome
1 year ago
Continue on Eclipse Trial or not?
After my 3rd LU 177I&T injection my PSA had become nondetectable, and the nuclear bone scans could did not shiw any tumors. Originally had three tumors for spine two very small and one medium. They seem to have disappeared. Given the danger of unnecessary toxins from a fourth injection, the question
After my 3rd LU 177I&T injection my PSA had become nondetectable, and the nuclear bone scans could did not shiw any tumors. Originally had three tumors for spine two very small and one medium. They seem to have disappeared. Given the danger of unnecessary toxins from a fourth injection, the question
SViking
in
Advanced Prostate Cancer
11 months ago
Mrs Alison Joy Bennett bungi 61
I have had 2 colonoscopies 6/7 polyps removed in the space of a month in 2021 polyps where pre-cancerous but not cancer thanks the Doctor/consultant diagnosed Diverticular Disease and IBS given a low fodmap diet shoved out the Hospital and more or less get on with it again reallly bad the start of
I have had 2 colonoscopies 6/7 polyps removed in the space of a month in 2021 polyps where pre-cancerous but not cancer thanks the Doctor/consultant diagnosed Diverticular Disease and IBS given a low fodmap diet shoved out the Hospital and more or less get on with it again reallly bad the start of
bungi1961
in
Bowel Disease Support
11 months ago
Return to driving
I was diagnosed in March 2022 with stage four lung cancer with mets. In April 2022 I was told that I can no longer drive due to mets in my brain. I stopped driving in April 2022. Sold my car etc. However I did not notify DVLA. I spoke to my oncologist in April 2023 and she advised that providing I have
I was diagnosed in March 2022 with stage four lung cancer with mets. In April 2022 I was told that I can no longer drive due to mets in my brain. I stopped driving in April 2022. Sold my car etc. However I did not notify DVLA. I spoke to my oncologist in April 2023 and she advised that providing I have
Gymbuddie
in
The Roy Castle Lung Cancer Foundation
11 months ago
post hysterectomy issues?
I’ve just had a total hysterectomy because I had cancer. The surgeons assistant said there was a LOT of endometriosis stuck to everything. They had never diagnosed this (or indeed a second completely different cancerous tumour on my ovary) so now I’m thinking… what about the endometriosis? Is it all
I’ve just had a total hysterectomy because I had cancer. The surgeons assistant said there was a LOT of endometriosis stuck to everything. They had never diagnosed this (or indeed a second completely different cancerous tumour on my ovary) so now I’m thinking… what about the endometriosis? Is it all
Kazzacupcake
in
Endometriosis UK
11 months ago
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