Experiences with

Breast tumours

Using a low dose of the epigenetic therapy drug decitabine, which is currently used to treat some blood cancers, the researchers significantly suppressed the growth of endocrine resistant breast tumours in mice and increased survival time by 90%.

I have question- I just had CT scan and all my lymph nodes have decreased in size the scan reader said I was responding to treat well ( I’m not currently in treatment) good thing? But my white count has gone from 80k to 130k in 3 months my other markers are no loss of the 11 or 17 or loss of p53 is that

It is now 20 years since my thyroidectomy and loss of one or more parathyroids, requiring me to take meds for my lack of parathyroids. I would like to know what other people take? I am on Alfacalcidol, VitD3, Magnesium for my bones. Any suggestions as I would like to stop taking Alfacalcidol

Hello Everyone Here's to a happier, healthier 2025. May we all rise to meet the challenges we face. 🙏❤️ So I saw the surgeon on Friday, exactly a year since I was diagnosed with breast cancer. The good news is the skin biopsy is clear! We had another long conversation about how to treat my breast

Hi all. New here - I was recently diagnosed with bilateral IDC breast cancer, multiple masses in both. I have to have a dbl mastectomy. I’m in the process of meeting with a plastic surgeon for reconstruction and wondering if anyone has any insight on good questions to ask? Or things to think about I

Hi, I'm Jak2+ with P-Vera and 10+ yrs on Jakafi - basically since it was first approved for PV. My recent labs and BMB results no longer fit neatly with PV and would be consistent with transition to MF: hypocellular marrow, anemia, WBC production abnormalities, increased platelets counts (450-550

I had surgery for breast cancer.hormone positive HER2 negative . I received 8 chemotherapy Tamoxifen and Zoladex . January 2024 I got liver metastases. Ca15-3 markers > 800. I received 8 Docetaxel and I had regression (Ca15-3 is 125). I have been taking Palbociclib + Anastrazole for 2 months. Ca15-3

Hello All Apologies but I've no idea as to whether this post should be in the MBC community where I posted in Oct 2023 re a BBC article on prophylactic anastrazole (Arimidex) -or posting or here. But advice from anywhere is welcome! Short background: I'm 74 and still standing. I was diagnosed with

I have to decide on which Aromatase Inhibitor My Oncologis suggested I try hormone blockers mentioning Anastrozone. I’m interested to know which works best for HGS OC with BRACA 2 on recurrence. I’ve noticed mention of Letrozole on here and would appreciate to hear of symptoms and of course

hi everyone from windy raining SE England! I had my 2nd ct scan and found out the tumours were now so small they are unmeasurable! To say I’m over the moon is an understatement! Only been 6 months on Ibrance And Letrozole with little side effects apart from the obvious fatigue, I can live with that to

So I saw the breast surgeon yesterday along with one of her colleagues. The appointment was to discuss corrective surgery to the breast and the damage done from previous surgery and my reaction to radiotherapy. It's seems the surgical option is a mastectomy or I live with what's happened and carry around

I had a face to face meeting with the Health Board CEO. To start with he quoted the Patient Experience answers to my concerns but I soon stopped that showing photographic evidence that they were lying. As the meeting progressed he became very quiet and obviously shaken. His PA took a lot of notes and

Hi all, I had a bilateral mastectomy 4 years ago and have had a recurrence. I've had surgery to remove the involved lymph nodes, have been on monthly Fulvestrant injections and take Kisqali. I'm going to be starting 6 weeks of radiation by the end of the month and I am totally petrified of it

Hi everyone, I have started taxol three weeks ago. I was supposed to start Avastin at the same time but I had dental work done and it’s on hold until November. I’m stage 4B ovarian and I’m really struggling with the taxol . I’m really weak and fatigued. Anyone any experience of this . thanks xx

Today I found out that I have a second breast cancer. I was diagnosed with MBC in 2019 (ER/PR- Her2+)and recently had a mammogram that showed a tumor. The biopsy results show a second breast cancer(ER/PR+ Her2+). In the next two weeks I have a PET scan and Brain MRI. Is there anyone else out there

Hi- I have been on Tamoxifen for five years- because I had a history of UTIs when I was much younger and was worried about the effects of tamoxifen on bladder and vagina I used local low dose estrogen -Estring or Vagifem depending on what was available - apparently this very localized dose doesn’t affect

I have been on tamoxifen for 7 and a half years now but for some reason for the last 4-5 years I get lots of UTI’s which are unpleasant and painful. My GP and oncologist say it is not related to tamoxifen but I wonder if it is as it blocks the estrogen and decreased estrogen can lead to bladder and

Hello, Just feeling down in the dumps after seeing my oncologist. He has never been positive about my outlook but I was feeling quite positive after responding well to surgery and chemo. But got a reality check now that CA125 has risen to 125. What doctors would you recommend for a second opinion?

Electrolyte’s imbalance role in atrial fibrillation: Pharmacological management https://arrhythmia.biomedcentral.com/articles/10.1186/s42444-022-00065-z and Elimination of cardiac arrhythmias using oral taurine with l-arginine with case histories: Hypothesis for nitric oxide stabilization of the sinus

hello, I’m in the UK. Have been on tamoxifen for 6 years after mastectomy, chemo and radiotherapy. I've still not had my 5th year follow up with the oncologist, when I call them they just say “sorry no capacity”. Anyway long story short i came off tamoxifen about 3 months ago as i didn't want to just