Experiences with

Breast tumours

Using a low dose of the epigenetic therapy drug decitabine, which is currently used to treat some blood cancers, the researchers significantly suppressed the growth of endocrine resistant breast tumours in mice and increased survival time by 90%.

Hi, I have been recently diagnosed with Stage 3 invasive duct breast cancer that has spread to my lymph nodes. Currently, it is only on my left breast, but after my MRI, they found 2 areas on my right breast that will be biopsied next week. We know that the left side will be a mastectomy but are waiting

Hi all, I had my primary, stage 2 diagnosis in 2010, reoccurence mbc March 2022, several tumours in my right lung. Following failure on ribociclib, i was moved to Ibrance, faslo and letrozole in sept 22, stable since, ca153 marker in normal range. My question here is for folks who may be able to

Hi, I am so wondering if someone received Topotecan as a treatment 3x 21 days.I have ovarian cancer plus pleural effusion and lymph nodes metastasis .

After a series of mammograms and an ultrasound last year, I had two biopsies on January 9th. I found out the next day one of the sites was positive for DCIS, Stage zero, Grade 3. hormone stuff was all negative. I am scheduled for a lumpectomy on 2/13 and my surgeon said I should expect radiation following

Hi! I want to share what I found very helpful to lessen skin irritation during radiation treatments. I'm not getting any compensation for this recommendation, just trying to helpful share information that is not widely known in the US. I recently completed 30 radiation treatments and my skin, which

Hello members, I was diagnosed with cll 7 years ago, bloods are stable and no treatment needed so far. I was diagnosed with breast cancer in October 2024 and had a lumpectomy and sentinel lymph nodes removed. Thankfully the margins were clear around the removed tumour and no cancer detected in the lymph

Hi I have Atrial Fibrillation due to having a very low heart rate from time to time which caused me to feel I was passing out I had a Pacemaker fitted last June which ensures my heart rate stays above 60 bpm. Earlier today I had a mammogram done as routine and about an hour ago felt I was going to pass

I had hormone positive BC and was on AI’s for 10 months. I’m now 39. Before surgery and chemo I did a couple rounds and preserved embryos with my partner. I had my last injection in July and since then it’s been a nightmare. You have to have a 3 month wash out (technically 4). During that time I meet

I've been in "watch and wait" for 4 years, and still remain asymptomatic, although my hemoglobin and platelets have gotten quite low. My hematologist is recommending a bone biopsy to "see how my CLL is advancing". I know that a biopsy is necessary when a decision is made to start treatment, but nothing

I have question- I just had CT scan and all my lymph nodes have decreased in size the scan reader said I was responding to treat well ( I’m not currently in treatment) good thing? But my white count has gone from 80k to 130k in 3 months my other markers are no loss of the 11 or 17 or loss of p53 is that

It is now 20 years since my thyroidectomy and loss of one or more parathyroids, requiring me to take meds for my lack of parathyroids. I would like to know what other people take? I am on Alfacalcidol, VitD3, Magnesium for my bones. Any suggestions as I would like to stop taking Alfacalcidol

Hello Everyone Here's to a happier, healthier 2025. May we all rise to meet the challenges we face. 🙏❤️ So I saw the surgeon on Friday, exactly a year since I was diagnosed with breast cancer. The good news is the skin biopsy is clear! We had another long conversation about how to treat my breast

Hi all. New here - I was recently diagnosed with bilateral IDC breast cancer, multiple masses in both. I have to have a dbl mastectomy. I’m in the process of meeting with a plastic surgeon for reconstruction and wondering if anyone has any insight on good questions to ask? Or things to think about I

Hi, I'm Jak2+ with P-Vera and 10+ yrs on Jakafi - basically since it was first approved for PV. My recent labs and BMB results no longer fit neatly with PV and would be consistent with transition to MF: hypocellular marrow, anemia, WBC production abnormalities, increased platelets counts (450-550

I had surgery for breast cancer.hormone positive HER2 negative . I received 8 chemotherapy Tamoxifen and Zoladex . January 2024 I got liver metastases. Ca15-3 markers > 800. I received 8 Docetaxel and I had regression (Ca15-3 is 125). I have been taking Palbociclib + Anastrazole for 2 months. Ca15-3

Hello All Apologies but I've no idea as to whether this post should be in the MBC community where I posted in Oct 2023 re a BBC article on prophylactic anastrazole (Arimidex) -or posting or here. But advice from anywhere is welcome! Short background: I'm 74 and still standing. I was diagnosed with

I have to decide on which Aromatase Inhibitor My Oncologis suggested I try hormone blockers mentioning Anastrozone. I’m interested to know which works best for HGS OC with BRACA 2 on recurrence. I’ve noticed mention of Letrozole on here and would appreciate to hear of symptoms and of course

hi everyone from windy raining SE England! I had my 2nd ct scan and found out the tumours were now so small they are unmeasurable! To say I’m over the moon is an understatement! Only been 6 months on Ibrance And Letrozole with little side effects apart from the obvious fatigue, I can live with that to

So I saw the breast surgeon yesterday along with one of her colleagues. The appointment was to discuss corrective surgery to the breast and the damage done from previous surgery and my reaction to radiotherapy. It's seems the surgical option is a mastectomy or I live with what's happened and carry around