PATIENT EXPERIENCE OF NIVOLUMAB

[RoyCastleHelpline]

NIVOLUMAB will shortly be assessed by the Scottish Medicine Consortium (SMC) for use in NHS Scotland in combination with platinum-based chemotherapy for the neoadjuvant treatment (this is treatment given before surgery) for resectable non-small cell lung cancer in adults.

We have been invited to provide a Patient Group Submission for this medicine, and are therefore trying to gather some patient experience quotes in support for this proposed treatment; it would be helpful to know the following:

What has been your experience with Nivolumab and have you had this along with chemotherapy?

Would you have preferred to have chemotherapy treatment prior to surgery rather than after surgery and if so why?

If you are happy to comment, please get in touch, no personal details are needed, but discussing it with you will help us put together the document on behalf of patients.

Please either comment below, private message or email [e-mail], alternatively, you can phone the Roy Castle Ask the Nurse service on 0800 358 7200

You do not have to live in Scotland to comment, so please do get in touch.

Thank you in advance.

The Roy Castle Support Team

[Florrie63]

I don’t think I had this medication

[RoyCastleHelpline Partner Ask the Nurse Roy Castle in reply to Florrie63]

Hi Florrie63

Thank you for replying, it may be that it was just the chemotherapy that you had; if it was would you be happy to provide some feedback on how you found this treatment after surgery?

Did you feel well on your treatment?

Would you have preferred to have chemotherapy treatment prior to surgery rather than after surgery and if so why?

Any feedback would be greatly appreciated. If preferred you can private message me or email me at [e-mail]

Hope all is going well for you.

The Roy Castle Support Team