PATIENT EXPERIENCE OF ADJUVANT CHEMOTHERAPY AFTER SURGERY

[RoyCastleHelpline]

NIVOLUMAB will shortly be assessed by the Scottish Medicine Consortium (SMC) for use in NHS Scotland in combination with platinum-based chemotherapy for the neoadjuvant (treatment given before surgery) for resectable non-small cell lung cancer in adults.

We have been invited to provide a Patient Group Submission for this medicine, and are therefore trying to gather some patient experience quotes in support for this proposed treatment; it would be helpful to know the following:

What was your experience of adjuvant chemotherapy after surgery?

Would you have preferred to have had this before surgery and why?

What difference would having adjuvant chemotherapy given before surgery be for you?

If you are happy to comment, please get in touch, no personal details are needed, but discussing it with you will help us put together the document on behalf of patients.

Please either comment below, private message or email [e-mail], alternatively, you can phone the Roy Castle Ask the Nurse service on 0800 358 7200

You do not have to live in Scotland to comment, so please do get in touch.

Thank you in advance

The Roy Castle Support Team

[Carolineminiaturist]

Hi I had a Lobectomy 11 weeks ago and am day 3 Chemo. For me this was the better way round. They couldn't biopsy before surgery but found Metastatic in 2 lymphs after. If they hadn't I would not have needed Chemo. Also if I had Chemo first I don't think I would have had the strength, physically or mentally to get over the surgery for ages. We will see hw ye Chemo goes. Feeling pretty rubbish today.

[RoyCastleHelpline Partner Ask the Nurse Roy Castle in reply to Carolineminiaturist]

Hi Carolineminiaturist

Thank you for the valuable feedback and experience you have had so far. Sorry to hear that you are feeling not too great at present and hope this will pass soon for you.

If you are interested or feel up to it, we run online support groups through zoom and you can view these and register for them through this link: roycastle.org/help-and-supp...

Alternatively you can email our coordinator at [e-mail]

You may or may not have our information booklet on chemotherapy, and you are welcome to download it from this link:roycastle.org/app/uploads/2...

If you have any new or worsening symptoms do contact your 24 hour chemotherapy team.

If there is anything you would like to discuss you can call ask the nurse on 0800 358 7200 Monday to Thursday 0900-1700 and Friday 0900-1600, alternatively you can email us at [e-mail]

Wishing you all the very best.

The Roy Castle Support Team