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Hi I'm new to this group low vitamin B9 folate
Hi I'm new to this group I have slightly low vitamin B9 folate I'm told I was looking it up and this group came up. Can anyone tell me what this means as I have long term health problems too many to mention, I suffer with lots of muscle joint pain and fatigue recently suffered a bout of moderate gastritis
Hi I'm new to this group I have slightly low vitamin B9 folate I'm told I was looking it up and this group came up. Can anyone tell me what this means as I have long term health problems too many to mention, I suffer with lots of muscle joint pain and fatigue recently suffered a bout of moderate gastritis
GillyGangGong
in
Pernicious Anaemia Society
7 years ago
Donor identified
It's been a while since my last update but I'm pleased to say that I have a donor lined up for a stem cell transplant. A young man from Germany. I am to stay on Ibruitinin for 6 more months and then good to go.
It's been a while since my last update but I'm pleased to say that I have a donor lined up for a stem cell transplant. A young man from Germany. I am to stay on Ibruitinin for 6 more months and then good to go.
KAS8
in
CLL Support
7 years ago
Phenomenal News
Some of you may have seen my recent post inquiring about full remission. The reason is that I have been in full remission since June 2nd without any of my prior symptoms. I have not had one moment of cog fog, muscle spasm, fatigue, numbness, or loss of balance. I have not: changed my diet, changed my
Some of you may have seen my recent post inquiring about full remission. The reason is that I have been in full remission since June 2nd without any of my prior symptoms. I have not had one moment of cog fog, muscle spasm, fatigue, numbness, or loss of balance. I have not: changed my diet, changed my
Karen-x
in
My MSAA Community
7 years ago
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It's a Nice Day for a White Wedding
Hi Folks , , just a social post to prove that despite my current issues battling my inner GVHD 'friend', there is life after undergoing a Stem cell transplant. My beautiful wife and I attended a Nieces wedding this weekend. It was a casual event as weddings go and very enjoyable. I was keeping everything
Hi Folks , , just a social post to prove that despite my current issues battling my inner GVHD 'friend', there is life after undergoing a Stem cell transplant. My beautiful wife and I attended a Nieces wedding this weekend. It was a casual event as weddings go and very enjoyable. I was keeping everything
JediReject
in
MPN Voice
7 years ago
Friends and Fans from around the World
I Thank all those for the messages of support at times they can make a huge difference. I am back home now just been watching the highlights of the Final day of the Tour I was there but you can't see everything hey. I had a great time and meet some lovely people, our group had no punctures like all the
I Thank all those for the messages of support at times they can make a huge difference. I am back home now just been watching the highlights of the Final day of the Tour I was there but you can't see everything hey. I had a great time and meet some lovely people, our group had no punctures like all the
TheFlyer
in
CLL Support
7 years ago
MPN Voice Patients’ Forum – Birmingham. Friday 6th October 2017, 12.30 – 4 pm, registration and buffet lunch 12 – 12.30 pm
Suite 7, Fazeley Studios, 191 Fazeley Street, Digbeth, Birmingham, B5 5SE
Programme
The programme is yet to be finalized, but will include talks from haematologists, a haematology specialist nurse, and patients, plus breakout groups for each MPN where patients can meet in smaller groups
Suite 7, Fazeley Studios, 191 Fazeley Street, Digbeth, Birmingham, B5 5SE
Programme
The programme is yet to be finalized, but will include talks from haematologists, a haematology specialist nurse, and patients, plus breakout groups for each MPN where patients can meet in smaller groups
Mazcd
MPNVoice
in
MPN Voice
7 years ago
MPN Voice Patients’ Forum – Inverness. Friday 8th September, 10 am - 2 pm, registration 9.30 – 10 am
Eden Court Theatre, Bishops Road, Inverness, IV3 5SA
The forum will be held in The MacLean Room
Programme
The programme is yet to be finalized, but will include talks from haematologists, the haematology nurse specialist from Guy’s Hospital and patients, plus breakout groups for each
Eden Court Theatre, Bishops Road, Inverness, IV3 5SA
The forum will be held in The MacLean Room
Programme
The programme is yet to be finalized, but will include talks from haematologists, the haematology nurse specialist from Guy’s Hospital and patients, plus breakout groups for each
Mazcd
MPNVoice
in
MPN Voice
7 years ago
Stem Cell Transplant Research
Trying to find a way to eliminate the need for bone marrow donors ... http://tinyurl.com/y8rm9p6u
Trying to find a way to eliminate the need for bone marrow donors ... http://tinyurl.com/y8rm9p6u
Shar0n
Volunteer
in
Non Hodgkin's Lymphoma Friends
7 years ago
Question on Complete Stem Cell Transplant
Has anyone out there ever had a complete stem cell transplant? I will be going with my sister in law this coming week to Emory Hospital in Atlanta to find out the details. Would like to hear the good and the bad if you or if you know anyone who has had this done. She has CLL but has the P17 deletion
Has anyone out there ever had a complete stem cell transplant? I will be going with my sister in law this coming week to Emory Hospital in Atlanta to find out the details. Would like to hear the good and the bad if you or if you know anyone who has had this done. She has CLL but has the P17 deletion
evetom
in
CLL Support
7 years ago
Pain in Low Back, Buttocks, Legs, and Feet
The MRI's say I have a little arthritis, moderate L4-5 lateral recess stenosis, maybe a tiny tear there, a
bone
spur
on my tailbone, but nothing that makes them stand back in shock. Boy, if this is moderate, I'd hate to see what severe looks like.
The MRI's say I have a little arthritis, moderate L4-5 lateral recess stenosis, maybe a tiny tear there, a
bone
spur
on my tailbone, but nothing that makes them stand back in shock. Boy, if this is moderate, I'd hate to see what severe looks like.
fazsha
in
Pain Concern
7 years ago
Bone fusion of wrist
Has anyone has op to fuse bones in wrist involving bone graft? Thanks
Has anyone has op to fuse bones in wrist involving bone graft? Thanks
Dossy
in
Pelvic Pain Support Network
7 years ago
Wrist arthritis
Hi. I am new to this community but wonder if anyone can give me advice on the best way to treat pain in my wrist caused by arthritis. I had a giant cell tumor removed from my wrist twice (12 and 10 years ago) and due to the location and size of that, and resulting bone graft, I have marked arthritis
Hi. I am new to this community but wonder if anyone can give me advice on the best way to treat pain in my wrist caused by arthritis. I had a giant cell tumor removed from my wrist twice (12 and 10 years ago) and due to the location and size of that, and resulting bone graft, I have marked arthritis
galewicks
in
Arthritis Action
7 years ago
Bone marrow transplant on the cards
Meeting with a BMT consultant yesterday. Nice chap. Laid it all on the line warts and all. 6-9 months for the Ibutrinin to do it's job then in for BMT. Good news is that I will only be in 4 weeks and can more or less choose when it's best for me to start. Sisters tissue is done, mine is not ready but
Meeting with a BMT consultant yesterday. Nice chap. Laid it all on the line warts and all. 6-9 months for the Ibutrinin to do it's job then in for BMT. Good news is that I will only be in 4 weeks and can more or less choose when it's best for me to start. Sisters tissue is done, mine is not ready but
KAS8
in
CLL Support
7 years ago
WRIST POST-OP
Good morning all, a little update on my surgery. I am now 3 weeks post-op after having half my wrist replaced, tendon repair and small bone graft. I have had the cast changed to a lighter on which will be on for another 4 weeks and then in a splint. It's going to be a long job but hopefully will be
Good morning all, a little update on my surgery. I am now 3 weeks post-op after having half my wrist replaced, tendon repair and small bone graft. I have had the cast changed to a lighter on which will be on for another 4 weeks and then in a splint. It's going to be a long job but hopefully will be
MaryTH
in
NRAS
7 years ago
Once again, sad relapse
Sad news 😢 I was in remission only a few months for systematic NHL in 2015 after 6 rounds of R-EPOCH, then I had a recurrence in my Central nervous system once the NHL had crossed the blood brain barrier. I then had 8 rounds of Methotrexate/Rituxin prior to a stem cell transplant in Nov 2016 (the chemo
Sad news 😢 I was in remission only a few months for systematic NHL in 2015 after 6 rounds of R-EPOCH, then I had a recurrence in my Central nervous system once the NHL had crossed the blood brain barrier. I then had 8 rounds of Methotrexate/Rituxin prior to a stem cell transplant in Nov 2016 (the chemo
Jennchap1
in
Non Hodgkin's Lymphoma Friends
7 years ago
Journey begins
Hello ladies , a few hours since my first appointment with consultant following ultrasound diagnosis of a complex cyst two weeks ago. Surgery in three weeks to remove ovaries and Fallopian tubes he asked me to consent to further surgery when He's already there but warned he may have to go back in
Hello ladies , a few hours since my first appointment with consultant following ultrasound diagnosis of a complex cyst two weeks ago. Surgery in three weeks to remove ovaries and Fallopian tubes he asked me to consent to further surgery when He's already there but warned he may have to go back in
Christie22
in
My Ovacome
7 years ago
First time here
Hi everyone. I really don't know how to start and I honestly feel kind of embarrassed just throwing my business out for the entire world to see but I'm not sure what else to do. I'll keep this short, try to at least. I've been through Hodgkins Lymphoma twice, as recently as last year and beat it again
Hi everyone. I really don't know how to start and I honestly feel kind of embarrassed just throwing my business out for the entire world to see but I'm not sure what else to do. I'll keep this short, try to at least. I've been through Hodgkins Lymphoma twice, as recently as last year and beat it again
AntonioAndEmilio
in
Anxiety and Depression Support
7 years ago
Transplant Patients - SCT/BMT
Have you had or are a candidate for a Stem Cell Transplant or someone who is a caregiver of a SCT patient? If so, there is a fantastic Facebook support group for SCT and BMT patients and their caregivers. If you would like the link, please message me and I would be happy to provide it to you. NOTE:
Have you had or are a candidate for a Stem Cell Transplant or someone who is a caregiver of a SCT patient? If so, there is a fantastic Facebook support group for SCT and BMT patients and their caregivers. If you would like the link, please message me and I would be happy to provide it to you. NOTE:
Tinkerbellcgy
in
Non Hodgkin's Lymphoma Friends
7 years ago
Multiple myeloma
Yo everyone I have mutiple myeloma colapse playing tennis back in may 2016 though I rip tenons and hip joint which they thought had come away from hip joint back wards forwards to doctor s for the pain in my left leg and thigh and hip joint could sleep pain was horrible got diagnosis in Feb 2017 with
Yo everyone I have mutiple myeloma colapse playing tennis back in may 2016 though I rip tenons and hip joint which they thought had come away from hip joint back wards forwards to doctor s for the pain in my left leg and thigh and hip joint could sleep pain was horrible got diagnosis in Feb 2017 with
Yobigfoot247
in
Myeloma UK
7 years ago
Searching for a TKO
I am seeking out others who may have a shared experience as am in a frustrating and nerve wracking place. I was diagnosed in Aug 2016 with DLBC Lymphoma, stage OK ...dr felt so confident that 6 rounds "gold standard treatment with RCHOP" would CURE this. 3 cycles and scan, good progress (original
I am seeking out others who may have a shared experience as am in a frustrating and nerve wracking place. I was diagnosed in Aug 2016 with DLBC Lymphoma, stage OK ...dr felt so confident that 6 rounds "gold standard treatment with RCHOP" would CURE this. 3 cycles and scan, good progress (original
buttrflymeme
in
Non Hodgkin's Lymphoma Friends
7 years ago
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