Search
Search
About
Log in
Join
Experiences with
Bone spur
Posts
Communities
9 public communities
Guy Francis Bone Cancer Research Fund
94 members
Bone Cancer is Britain’s Number 1 Teenage Cancer. Guy’s Fund raises money for vital research, promotes awareness and campaigns for patients’ rights. Alarmingly, Bone Cancer is Britain’s Number 1 Teenage Cancer. The Guy Francis Bone Cancer Research Fund raises money for vital research, promotes awareness and education, advocates a “Patient Voice” and also campaigns for patients’ rights including important welfare reform for young people undergoing long term treatment programmes which may result in permanent physical disability.
Osteoporosis Support
4,270 members
A US based peer support community engaging, educating, and empowering people to build and keep strong bones for a long and independent life. Offering discussions and support for people to prevent bone loss, osteoporosis and fractures.
Bone Health and Osteoporosis UK
5,590 members
This community is a welcoming and safe space for you to share your experiences, and we hope you’ll connect and find support with other people in a similar situation. Find our community guidelines here: https://healthunlocked.com/bonehealth/posts/150617024/b-community-guidelines-for-bone-health-and-osteoporosis-uk-b [b]Royal Osteoporosis Society[/b] We’re the Royal Osteoporosis Society – the UK’s largest national charity dedicated to improving bone health and beating osteoporosis. And we’re here for everyone living with osteoporosis or supporting someone. We equip people with practical information and support to take action on their bone health. • Visit our website https://theros.org.uk/, we have lots of fact sheets and booklets available to download and print, covering everything from general bone health, diagnosing osteoporosis and fragility fractures, osteoporosis drug treatments and living with spinal fractures. • What is Osteoporosis? Find our more through our information film https://youtu.be/DNExgVo8zsc?si=ArZ--vxYx6I_IclG • Join our membership - By becoming a Member of the ROS you can access exclusive benefits including your free book: All About Osteoporosis, Osteoporosis News magazines, a monthly member e-newsletter and so much more! The Royal Osteoporosis Society is a UK based organisation, and all of the content, information and support available here is based on UK treatments and care. If you’re from another country you may wish to look at these organisations: https://www.osteoporosis.foundation/our-network/the-committees#committee-of-national-societies [b]Connect with us! [/b] Join our mailing list - https://theros.org.uk/ros-news-sign-up/ You tube - https://www.youtube.com/c/osteoporosissociety Facebook -https://www.facebook.com/RoyalOsteoSoc Instagram - https://www.instagram.com/royalosteosoc/ X - https://twitter.com/royalosteosoc
Myeloma UK
313 members
The aim of this community is to provide a supportive, informative and friendly community for people affected by myeloma. Myeloma UK is the only organisation in the UK focused exclusively on myeloma, a bone marrow cancer for which there is no currently no cure. You can also call our Myeloma Infoline on 0800 980 3332 (UK) from 9-5, Monday-Friday to speak to one of our Myeloma Information Specialists. We hope you feel welcomed, supported and able to ask questions in our community and do visit our website for more information, resources and support.
Stanmore Young Spine Group
188 members
The Royal National Orthopaedic Hospital NHS Trust (RNOH) is the largest orthopaedic hospital in the UK, and is regarded as a leader in the field of orthopaedics both in the UK and world-wide. The RNOH provides a comprehensive range of neuro-musculoskeletal health care, ranging from acute spinal injury or complex bone tumour to orthopaedic medicine and specialist rehabilitation for chronic back pain sufferers. This broad range of services is unique within the NHS. As a national centre of excellence, the RNOH treats patients from across the country, many of whom have been referred by other hospital consultants for second opinions or for treatment of complex or rare conditions.
Living with Sickle Cell Disease
492 members
Living with Sickle Cell Disease is a community dedicated to supporting individuals affected by sickle cell disease; whether you've been diagnosed with sickle cell disease, living with sickle cell trait or supporting a loved one. In this peer community, you can discuss, share stories, and receive support from others dealing with these conditions.
Lymphoma Canada
763 members
Lymphoma affects many people, from patients, family and caregivers, to medical professionals and researchers. Lymphoma Canada connects and empowers this community. Together we are promoting early detection, finding new and better treatments, helping patients access those treatments, learning lymphoma's causes and finding a cure.
Sickle Cell Society
2,000 members
The Sickle Cell Society is Britain’s only national charity for sickle cell disorders, an inherited haemoglobin disorder. The Sickle Cell Society was founded in 1979 by a group of patients, parents and health professionals who shared concerns about the lack of understanding of sickle cell disorders and the inadequacies of treatment. We aim to raise awareness of sickle cell disorders, push for improvements to treatment and provide advice, information and support to the sickle cell community. This community connects people living with or affected by sickle cell in the UK.
Leukaemia CARE
1,277 members
This community brings together patients, carers, advocates and health professionals to share knowledge, experience and guidance to aid each other to cope with a blood cancer diagnosis. Leukaemia Care are committed to making sure that patients, their loved ones and their friends have the right information, support and advice at the point of diagnosis and beyond. Leukaemia Care supports this community with a range of support services to patients and their carers including: a Nurse-led helpline, nurse advisers available every weekday to answer you questions, nationwide support groups, patient and carer conferences, one-to-one Buddy Support, an extensive website, blood cancer information in PDF and booklets, campaigning and advocacy.