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EBMT Transplant Patient and Family Day
EBMT – European Group for Blood and Marrow Transplantation will be holding a patient and family day on Saturday 6th April 2013 from 9.30 am – 6 pm in The Mermaid Theatre, Puddle Dock, Blackfriars, London, EC4V 3DB, registration fee is £10 per person. What the day is about On the day you will
EBMT – European Group for Blood and Marrow Transplantation will be holding a patient and family day on Saturday 6th April 2013 from 9.30 am – 6 pm in The Mermaid Theatre, Puddle Dock, Blackfriars, London, EC4V 3DB, registration fee is £10 per person. What the day is about On the day you will
Mazcd
MPNVoice
in
MPN Voice
11 years ago
Brilliant News
Hi everyone, I just wanted to update you all about some brilliant news I received on Friday... I was transferred to The Christie a couple of weeks ago once I had finished my IVF treatment with the plan being to have my transplant there and my new consultant did a re test of my bone marrow and it turns
Hi everyone, I just wanted to update you all about some brilliant news I received on Friday... I was transferred to The Christie a couple of weeks ago once I had finished my IVF treatment with the plan being to have my transplant there and my new consultant did a re test of my bone marrow and it turns
Jennie_Barnes
in
MPN Voice
11 years ago
New-latest- updated-exercise-guidelines-for-cancer-survivors
Survivors may soon get their very own exercise prescription, following new guidelines presented today at the American Society of Clinical Oncology's annual meeting. Scientific evidence about cancer and exercise has grown greatly in the past few decades, as has the number of cancer survivors, which has
Survivors may soon get their very own exercise prescription, following new guidelines presented today at the American Society of Clinical Oncology's annual meeting. Scientific evidence about cancer and exercise has grown greatly in the past few decades, as has the number of cancer survivors, which has
Robertlowe
in
The Roy Castle Lung Cancer Foundation
11 years ago
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talking
Well i have had my first chat with a councellor so thought i would share, she was a very nice lady and sadly our chat was very brief but i felt it helped shift some weight as i will put it. Not to confuse this is not the councellor i am scheduled to see in a few weeks this is my sons diabetic physcologist
Well i have had my first chat with a councellor so thought i would share, she was a very nice lady and sadly our chat was very brief but i felt it helped shift some weight as i will put it. Not to confuse this is not the councellor i am scheduled to see in a few weeks this is my sons diabetic physcologist
Hidden
in
Anxiety Support
11 years ago
Has anyone here had bone marrow transplant for lupus?
fragorosvar
in
LUPUS UK
11 years ago
Happy birthday to me
The day after my 51st birthday, I was diagnosed with PD. I received the dx. during my lunch break. My profession is one I loved deeply and felt so proud to be-a Registered Nurse specializing in Oncology/Bone Marrow Transplant. I hadn't been feeling well-tired, anxious-little shaky-my handwriting was
The day after my 51st birthday, I was diagnosed with PD. I received the dx. during my lunch break. My profession is one I loved deeply and felt so proud to be-a Registered Nurse specializing in Oncology/Bone Marrow Transplant. I hadn't been feeling well-tired, anxious-little shaky-my handwriting was
sulka
in
Cure Parkinson's
11 years ago
People experiences.
Sharing your stories does help others, the heterogeneous nature of CLL means we are likely to experience our own version of the disease and will handle it in our own way. But I remember when first reading other's experiences how much these helped me. This year Christmas feels whole for me for the
Sharing your stories does help others, the heterogeneous nature of CLL means we are likely to experience our own version of the disease and will handle it in our own way. But I remember when first reading other's experiences how much these helped me. This year Christmas feels whole for me for the
HAIRBEAR_UK
Administrator
in
CLL Support
11 years ago
So what is a Neutropenic Diet? Why should we follow it post treatment?
For people with severely compromised immune systems, food can be a source of infection when pathogens can enter the body, multiply and cause opportunistic infections. These infections are much more serious for people who have lower-than-normal neutrophil counts, such as people receiving treatment for
For people with severely compromised immune systems, food can be a source of infection when pathogens can enter the body, multiply and cause opportunistic infections. These infections are much more serious for people who have lower-than-normal neutrophil counts, such as people receiving treatment for
Cllcanada
Top Poster CURE Hero
in
CLL Support
11 years ago
Is there anyone who'se had a stem cell transplant prepared to help me?
I'm due to have a stem cell transplant very soon as part of a clinical trial. I've got lots of technical info but I'd like to talk informally about the procedure & living with immuno-suppresents afterwards. Any takers? Talking to a doctor over a cup of tea might help but they're not willing to do so
I'm due to have a stem cell transplant very soon as part of a clinical trial. I've got lots of technical info but I'd like to talk informally about the procedure & living with immuno-suppresents afterwards. Any takers? Talking to a doctor over a cup of tea might help but they're not willing to do so
honeycombe3
in
Cure Parkinson's
11 years ago
Blood
Hello guys an update for u all. As u all know I have been feeling pretty crap for a few months now (since June), after having a number of blood transfusions & 2 bone marrow tests done, I have been given a confirmed diagnosis. I saw the consultant today (along with my hubby), who has confirmed
Hello guys an update for u all. As u all know I have been feeling pretty crap for a few months now (since June), after having a number of blood transfusions & 2 bone marrow tests done, I have been given a confirmed diagnosis. I saw the consultant today (along with my hubby), who has confirmed
alyj
in
LUPUS UK
11 years ago
Another new finding !
Key Player in Parkinson's Disease Neuron Loss Pinpointed ScienceDaily (Oct. 19, 2012) — By reprogramming skin cells from Parkinson's disease patients with a known genetic mutation, researchers at the Salk Institute for Biological jjStudies have identified damage to neural stem cells as a powerful player
Key Player in Parkinson's Disease Neuron Loss Pinpointed ScienceDaily (Oct. 19, 2012) — By reprogramming skin cells from Parkinson's disease patients with a known genetic mutation, researchers at the Salk Institute for Biological jjStudies have identified damage to neural stem cells as a powerful player
Hidden
in
Cure Parkinson's
12 years ago
Message from the residential home for the elderly.
Hello to my cyber-friends, It has been so long since I have posted that I now have loads and loads to talk about and don’t know where to start. Let’s start with the operation as that may be of interest to anyone who has been offered orthopaedic surgery. The speed and efficiency with which elective
Hello to my cyber-friends, It has been so long since I have posted that I now have loads and loads to talk about and don’t know where to start. Let’s start with the operation as that may be of interest to anyone who has been offered orthopaedic surgery. The speed and efficiency with which elective
Hidden
in
NRAS
12 years ago
Mylofibrosis
Hi everyone. Three weeks ago my husband diagnosed with mylofibrosis after PRV for six years. However his marrow sample was sent to another hospital for checking and we were told yesterday that the other hospital have said it is accellerated PRV so that is his diagnosis. We were told that he is in the
Hi everyone. Three weeks ago my husband diagnosed with mylofibrosis after PRV for six years. However his marrow sample was sent to another hospital for checking and we were told yesterday that the other hospital have said it is accellerated PRV so that is his diagnosis. We were told that he is in the
tissi
in
MPN Voice
12 years ago
MF BMT (SCT) Transplant Survivor
Hi, I was diagnosed with MF in 2010 and had a Stem Cell Transplant in March 2011, I live just outside London. I do buddying for MPDVoice and have just taken one buddy through transplant and have two more heading that way. Thanks to the internet I have MF-BMT friends around the globe at varying stages
Hi, I was diagnosed with MF in 2010 and had a Stem Cell Transplant in March 2011, I live just outside London. I do buddying for MPDVoice and have just taken one buddy through transplant and have two more heading that way. Thanks to the internet I have MF-BMT friends around the globe at varying stages
MFBMT2011
in
MPN Voice
12 years ago
This might help with hip pain?
I figured out myself that my 18 month down the rabbit hole debilitating hip pain was partly caused by Hughes, and not just the osteoarthritis
bone
spur
.I raised my INR and the pain dimmed, but did not go away entirely.
I figured out myself that my 18 month down the rabbit hole debilitating hip pain was partly caused by Hughes, and not just the osteoarthritis
bone
spur
.I raised my INR and the pain dimmed, but did not go away entirely.
GinaD
in
Hughes Syndrome APS Forum
12 years ago
AMN/Mystery disease
I am computer challenged! I am like a cave woman in training in this computer/technological world! FYI, I have, never, ever done a blog, before! I am suffering from AMN, big time, and would love some help!!! I KNOW THAT I COULD BE OF HELP AND YOU COULD BE OF HELP TO ME! I have an amazing story
I am computer challenged! I am like a cave woman in training in this computer/technological world! FYI, I have, never, ever done a blog, before! I am suffering from AMN, big time, and would love some help!!! I KNOW THAT I COULD BE OF HELP AND YOU COULD BE OF HELP TO ME! I have an amazing story
relay
in
AMN EASIER
12 years ago
has anybody had an ankle fusion opp that has not worked?
my opp was in november 2011,i have now had my ct scan back and the fusion has not taken at all,it has even made my bone graft i had 15 years ago dissapear.i am now being told i'm on the waiting list again for another opp..i want and need a second opinion but don't know how to get 1.please help any1 :
my opp was in november 2011,i have now had my ct scan back and the fusion has not taken at all,it has even made my bone graft i had 15 years ago dissapear.i am now being told i'm on the waiting list again for another opp..i want and need a second opinion but don't know how to get 1.please help any1 :
dannyb
in
NRAS
12 years ago
Has anyone had a stem cell transplant for their scleroderma?
onthemend
in
Scleroderma & Raynaud's UK (SRUK)
12 years ago
home neb machine
Hi, I have a friend with a 9 year old with asthma due to XLP damage to his chest and they need to buy a home neb machine for him for when his chest is really bad. Recently he had to go into hospital overnight for saline neb which helped but his parents have never been offered advice re buying a machine
Hi, I have a friend with a 9 year old with asthma due to XLP damage to his chest and they need to buy a home neb machine for him for when his chest is really bad. Recently he had to go into hospital overnight for saline neb which helped but his parents have never been offered advice re buying a machine
Hidden
in
Asthma Community Forum
16 years ago
Bone Marrow Transplants
I know this is off topic, but I think it is something that is really important. Adrian Sudbury started a petition to make it compulsory for kids to learn about bone marrow and plateleys donation. He's trying to get to 10,000 signitures by the 23rd of this month! Give him a hand people! http://petitions.pm.gov.uk
I know this is off topic, but I think it is something that is really important. Adrian Sudbury started a petition to make it compulsory for kids to learn about bone marrow and plateleys donation. He's trying to get to 10,000 signitures by the 23rd of this month! Give him a hand people! http://petitions.pm.gov.uk
Hidden
in
Asthma Community Forum
16 years ago
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