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Introducing Myself
Hi, My name is Kim Marrelli. I was diagnosed with Myeloma 4 years ago. I am considered high risk with t(4:14) (MMSET/FGFR/IGH). To be honest, I only partially understand what all that means. In the past, I have been teated with Revlimid, Velcade, Kyprolis, Pomalyst and the ever popular, Dexamethasone
Hi, My name is Kim Marrelli. I was diagnosed with Myeloma 4 years ago. I am considered high risk with t(4:14) (MMSET/FGFR/IGH). To be honest, I only partially understand what all that means. In the past, I have been teated with Revlimid, Velcade, Kyprolis, Pomalyst and the ever popular, Dexamethasone
KimMarr
in
Myeloma America Support
10 years ago
Benefits
My husband had a letter from the DWP today to say that his DLA is being stopped as he currently doesn't score a high enough mark on their points system for PIP. Along with losing DLA, he also has to send back his Blue Badge. FYI: My husband was diagnosed with Multiple Myeloma (blood cancer) in August
My husband had a letter from the DWP today to say that his DLA is being stopped as he currently doesn't score a high enough mark on their points system for PIP. Along with losing DLA, he also has to send back his Blue Badge. FYI: My husband was diagnosed with Multiple Myeloma (blood cancer) in August
Amanda1234
in
PMRGCAuk
10 years ago
Rapid Generation of Virus-Specific T Cells Helps Fight Off Infection in Immunocompromised Patients
The lengthy, complex, and costly process required to produce target specific T-Cells to fight cancers and viruses is a huge barrier that needs to be overcome if this technique is ever going to be more than a laboratory curiosity that benefits only a select few patients. Despite this, researchers continue
The lengthy, complex, and costly process required to produce target specific T-Cells to fight cancers and viruses is a huge barrier that needs to be overcome if this technique is ever going to be more than a laboratory curiosity that benefits only a select few patients. Despite this, researchers continue
AussieNeil
Partner
in
CLL Support
10 years ago
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Bone Spur
Was just wondering if anyone has developed a
bone
spur
? I have one on the top of my foot - not a common place apparently! Was in excrutiating pain on that part of my foot, on and off, for quite some time, inhibited my walking, this was before the
bone
spur
appeared.
Was just wondering if anyone has developed a
bone
spur
? I have one on the top of my foot - not a common place apparently! Was in excrutiating pain on that part of my foot, on and off, for quite some time, inhibited my walking, this was before the
bone
spur
appeared.
korkykat
in
Thyroid UK
10 years ago
Bone marrow transplant with MF
I have been recently diagnosed with MF and am in the initial phase (being treated with PEGASYS). In your recent MF leaflet the article appears to indicated that a bone marrow transplant is a 'last resort' ('not commonly recommended'.... advanced disease). My hermatologist here in France appears to want
I have been recently diagnosed with MF and am in the initial phase (being treated with PEGASYS). In your recent MF leaflet the article appears to indicated that a bone marrow transplant is a 'last resort' ('not commonly recommended'.... advanced disease). My hermatologist here in France appears to want
crapaud
in
MPN Voice
10 years ago
GvHD of the lungs
Hi all I am new to this site. I am not posting about myself but about my 32 year old brother. 9 years ago he had a stem cell transplant to treat leukaemia (I was his donor), which has been in remission ever since. We have been lucky enough to have 9 good years during which time he has worked full time
Hi all I am new to this site. I am not posting about myself but about my 32 year old brother. 9 years ago he had a stem cell transplant to treat leukaemia (I was his donor), which has been in remission ever since. We have been lucky enough to have 9 good years during which time he has worked full time
elliemh
in
Lung Conditions Community Forum
10 years ago
Another Front Against Leukemia: Using Stem Cells to Make Bone Marrow Transplants Low-Risk
Another Israeli biotech firm (well, I guess that Karyopharm Therapeutics--the developer of KPT-330 being tested against Richter's--is only half-Israeli) is working on using stem cells to make bone marrow transplants extremely tolerable. It is an interesting technology. An article is here: http://israel21c.org
Another Israeli biotech firm (well, I guess that Karyopharm Therapeutics--the developer of KPT-330 being tested against Richter's--is only half-Israeli) is working on using stem cells to make bone marrow transplants extremely tolerable. It is an interesting technology. An article is here: http://israel21c.org
zevkalman
in
CLL Support
10 years ago
Has any one been told to prepare themselves for the possibility of a bone marrow transplant. I've had ET for 14years taking Hydrox in variou
Doses over the years. Told I had changed to MF only in November last year that was such a shock.Taken of Hydrox completely 4 weeks ago only take asprin at the moment. Due to anaemia sweats &fatigue & an enlarged spleen..its all happened so quickly. I feel they sew the seed to make you think talk to your
Doses over the years. Told I had changed to MF only in November last year that was such a shock.Taken of Hydrox completely 4 weeks ago only take asprin at the moment. Due to anaemia sweats &fatigue & an enlarged spleen..its all happened so quickly. I feel they sew the seed to make you think talk to your
softail
in
MPN Voice
10 years ago
Misleading headlines - "Breakthrough cure" for MS
New results from stem cell transplantation research in mice have been published today, leading to misleading articles in a number of newspapers about what this could mean for people with MS. "Could stem cells help people paralysed by MS? Scientists reveal they are 'astonished' by landmark study" -
New results from stem cell transplantation research in mice have been published today, leading to misleading articles in a number of newspapers about what this could mean for people with MS. "Could stem cells help people paralysed by MS? Scientists reveal they are 'astonished' by landmark study" -
Sorrel_MS_Society
MS Society
in
Healthy Evidence
10 years ago
Bone marrow transplant
Hi. So I saw Dr Lachmann this week and he announces that my MRI shows a growing lesion on my brain, and that this means I may start getting ALD on top of my AMN. The only way to stop this is to do a bone marrow transplant, which is very very scary. Anyone has experience of this situation? And has anyone
Hi. So I saw Dr Lachmann this week and he announces that my MRI shows a growing lesion on my brain, and that this means I may start getting ALD on top of my AMN. The only way to stop this is to do a bone marrow transplant, which is very very scary. Anyone has experience of this situation? And has anyone
Nicolas
in
AMN EASIER
10 years ago
I am feeling worried about the possibility of having a bone marrow transplant with my sister as donor.
I have read all the hospital pamphlets and a transplant seems like a very difficult process with many long term side effects. One pamphlet said 'you will feel ill for a year after the bone marrow transplant and may never fully regain your health'. Another said it may cause cataracts a couple of years
I have read all the hospital pamphlets and a transplant seems like a very difficult process with many long term side effects. One pamphlet said 'you will feel ill for a year after the bone marrow transplant and may never fully regain your health'. Another said it may cause cataracts a couple of years
splashsplash
in
CLL Support
11 years ago
Bone marrow transplant
Hi All I know its a long shot but have any of you ever heard of someone having a bone marrow transplant for severe vasculitis. I know there has been for WG and Bechets but it is minimal. I would ideally like to get a personal perspective. Thank you Sarah
Hi All I know its a long shot but have any of you ever heard of someone having a bone marrow transplant for severe vasculitis. I know there has been for WG and Bechets but it is minimal. I would ideally like to get a personal perspective. Thank you Sarah
Sarahjh2004
in
Vasculitis UK
11 years ago
Ednama
Has anyone had a successful stem cell transplant for myleodisplasia. Husband going for his initial consultation tomorrow and all we can read is negatives. Thanks
Has anyone had a successful stem cell transplant for myleodisplasia. Husband going for his initial consultation tomorrow and all we can read is negatives. Thanks
Ednama
in
MPN Voice
11 years ago
i underwent second-line chemotherapy and bone marrow transplant last month. what can i do to improve my skin? it's become very dry and dull.
sumegha
in
Cancer Patients Aid Association India
11 years ago
What is Immune System
What is Immune System The immune system is a network of cells, tissues, and organs that work together to defend the body against attacks by “foreign” invaders. These are primarily microbes—tiny organisms such as bacteria, parasites, and fungi that can cause infections. Viruses also cause infections,
What is Immune System The immune system is a network of cells, tissues, and organs that work together to defend the body against attacks by “foreign” invaders. These are primarily microbes—tiny organisms such as bacteria, parasites, and fungi that can cause infections. Viruses also cause infections,
Hidden
in
Diabetes India
11 years ago
Adrenomyeloneuropathy - does anyone have any info of specialists in the north west of the uk??
my brother-inlaw has Adrenomyeloneuropathy and the doctors around here are not really treating him very well with this as we know his cousin who lives along way from us has this condition and he gets better treatment. we have read up on him being able to have bone marrow transplant and when my husband
my brother-inlaw has Adrenomyeloneuropathy and the doctors around here are not really treating him very well with this as we know his cousin who lives along way from us has this condition and he gets better treatment. we have read up on him being able to have bone marrow transplant and when my husband
vicarl
in
AMN EASIER
11 years ago
Inspiration x
Hi all, Just thought Id check in to say hi and ask how we all are? Im having a few days off from sailing ( imaginary ship of progress) to do my cbt homework. Not a lot to report, still having my niggles to do with health x but i need to feel these things to make progress, if that makes sense
Hi all, Just thought Id check in to say hi and ask how we all are? Im having a few days off from sailing ( imaginary ship of progress) to do my cbt homework. Not a lot to report, still having my niggles to do with health x but i need to feel these things to make progress, if that makes sense
Hidden
in
Anxiety Support
11 years ago
Research: Gathering ethnicity statistics
To help us support research into ALD and AMN better, we've started to compile statistics on the different ethnicities and demographics of patients and families affected by the ALD gene. Ethnicity and demographic statistics are also fundamental in supporting families requiring a Bone Marrow Transplant
To help us support research into ALD and AMN better, we've started to compile statistics on the different ethnicities and demographics of patients and families affected by the ALD gene. Ethnicity and demographic statistics are also fundamental in supporting families requiring a Bone Marrow Transplant
Hidden
Partner
in
Leukodystrophy Support
11 years ago
Participation in clinical trials.
On July 3rd I attended a meeting jointly organised by a number of PD support organisations which was a truly memorable experience! It focussed on clinical trials from the perspectives of PwP (especially those with experience of trials), carers/ their families & medical professionals. The event was
On July 3rd I attended a meeting jointly organised by a number of PD support organisations which was a truly memorable experience! It focussed on clinical trials from the perspectives of PwP (especially those with experience of trials), carers/ their families & medical professionals. The event was
honeycombe3
in
Cure Parkinson's
11 years ago
Complications After Kidney Transplant
After kidney transplant, the patient is very prone to infection. Three contributive factors are as following. First, the major surgery on blood vessel and urinary system temporarily decrease patient immune ability. Secondly, for kidney failure patients, their absolute immunity is low then normal person
After kidney transplant, the patient is very prone to infection. Three contributive factors are as following. First, the major surgery on blood vessel and urinary system temporarily decrease patient immune ability. Secondly, for kidney failure patients, their absolute immunity is low then normal person
Hidden
in
Early CKD Support
11 years ago
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