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Message from the residential home for the elderly.
Hello to my cyber-friends, It has been so long since I have posted that I now have loads and loads to talk about and don’t know where to start. Let’s start with the operation as that may be of interest to anyone who has been offered orthopaedic surgery. The speed and efficiency with which elective
Hello to my cyber-friends, It has been so long since I have posted that I now have loads and loads to talk about and don’t know where to start. Let’s start with the operation as that may be of interest to anyone who has been offered orthopaedic surgery. The speed and efficiency with which elective
Hidden
in
NRAS
12 years ago
Mylofibrosis
Hi everyone. Three weeks ago my husband diagnosed with mylofibrosis after PRV for six years. However his marrow sample was sent to another hospital for checking and we were told yesterday that the other hospital have said it is accellerated PRV so that is his diagnosis. We were told that he is in the
Hi everyone. Three weeks ago my husband diagnosed with mylofibrosis after PRV for six years. However his marrow sample was sent to another hospital for checking and we were told yesterday that the other hospital have said it is accellerated PRV so that is his diagnosis. We were told that he is in the
tissi
in
MPN Voice
12 years ago
MF BMT (SCT) Transplant Survivor
Hi, I was diagnosed with MF in 2010 and had a Stem Cell Transplant in March 2011, I live just outside London. I do buddying for MPDVoice and have just taken one buddy through transplant and have two more heading that way. Thanks to the internet I have MF-BMT friends around the globe at varying stages
Hi, I was diagnosed with MF in 2010 and had a Stem Cell Transplant in March 2011, I live just outside London. I do buddying for MPDVoice and have just taken one buddy through transplant and have two more heading that way. Thanks to the internet I have MF-BMT friends around the globe at varying stages
MFBMT2011
in
MPN Voice
12 years ago
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This might help with hip pain?
I figured out myself that my 18 month down the rabbit hole debilitating hip pain was partly caused by Hughes, and not just the osteoarthritis
bone
spur
.I raised my INR and the pain dimmed, but did not go away entirely.
I figured out myself that my 18 month down the rabbit hole debilitating hip pain was partly caused by Hughes, and not just the osteoarthritis
bone
spur
.I raised my INR and the pain dimmed, but did not go away entirely.
GinaD
in
Hughes Syndrome APS Forum
12 years ago
has anybody had an ankle fusion opp that has not worked?
my opp was in november 2011,i have now had my ct scan back and the fusion has not taken at all,it has even made my bone graft i had 15 years ago dissapear.i am now being told i'm on the waiting list again for another opp..i want and need a second opinion but don't know how to get 1.please help any1 :
my opp was in november 2011,i have now had my ct scan back and the fusion has not taken at all,it has even made my bone graft i had 15 years ago dissapear.i am now being told i'm on the waiting list again for another opp..i want and need a second opinion but don't know how to get 1.please help any1 :
dannyb
in
NRAS
12 years ago
AMN/Mystery disease
I am computer challenged! I am like a cave woman in training in this computer/technological world! FYI, I have, never, ever done a blog, before! I am suffering from AMN, big time, and would love some help!!! I KNOW THAT I COULD BE OF HELP AND YOU COULD BE OF HELP TO ME! I have an amazing story
I am computer challenged! I am like a cave woman in training in this computer/technological world! FYI, I have, never, ever done a blog, before! I am suffering from AMN, big time, and would love some help!!! I KNOW THAT I COULD BE OF HELP AND YOU COULD BE OF HELP TO ME! I have an amazing story
relay
in
AMN EASIER
12 years ago
home neb machine
Hi, I have a friend with a 9 year old with asthma due to XLP damage to his chest and they need to buy a home neb machine for him for when his chest is really bad. Recently he had to go into hospital overnight for saline neb which helped but his parents have never been offered advice re buying a machine
Hi, I have a friend with a 9 year old with asthma due to XLP damage to his chest and they need to buy a home neb machine for him for when his chest is really bad. Recently he had to go into hospital overnight for saline neb which helped but his parents have never been offered advice re buying a machine
Hidden
in
Asthma Community Forum
17 years ago
Bone Marrow Transplants
I know this is off topic, but I think it is something that is really important. Adrian Sudbury started a petition to make it compulsory for kids to learn about bone marrow and plateleys donation. He's trying to get to 10,000 signitures by the 23rd of this month! Give him a hand people! http://petitions.pm.gov.uk
I know this is off topic, but I think it is something that is really important. Adrian Sudbury started a petition to make it compulsory for kids to learn about bone marrow and plateleys donation. He's trying to get to 10,000 signitures by the 23rd of this month! Give him a hand people! http://petitions.pm.gov.uk
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in
Asthma Community Forum
16 years ago
RA and Surgery..
When I was diagnosed with RA I never though for one moment I would have to endure so many operations. I would never have thought of putting the two together, yes I have this awful disease that I didn't know much about. Did I want to know? if I'm honest no I didn't because I never anticipated it would
When I was diagnosed with RA I never though for one moment I would have to endure so many operations. I would never have thought of putting the two together, yes I have this awful disease that I didn't know much about. Did I want to know? if I'm honest no I didn't because I never anticipated it would
Hidden
in
NRAS
13 years ago
Is it life changing?........
Cancer has touched a number of family members throughout my life - not that long at 44, but it really affected me most when my Mother was diagnosed at 50 and died at 51. I must admit, it had a pretty profound affect on me and my family and although it was over 15 years ago it still remains with
Cancer has touched a number of family members throughout my life - not that long at 44, but it really affected me most when my Mother was diagnosed at 50 and died at 51. I must admit, it had a pretty profound affect on me and my family and although it was over 15 years ago it still remains with
PeterThomas
in
Tenovus
13 years ago
Hi.I have had WG for just over 4 years now. I have been on Rhituximab for just
over a year and I have been told that I will probably need to have a bone marrow transplant. Has anyone else needed this procedure for WG. Any information would be greatly appreciated. Thanks.
over a year and I have been told that I will probably need to have a bone marrow transplant. Has anyone else needed this procedure for WG. Any information would be greatly appreciated. Thanks.
jimny
in
Vasculitis UK
13 years ago
Has anyone had a stem cell transplant for their scleroderma?
onthemend
in
Scleroderma & Raynaud's UK (SRUK)
13 years ago
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