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Bone marrow transplant
Hi all I have just started on blood transfusion and likely to have to have them every four/five weeks. It has also been suggested that I may be eligible for a bone marrow transplant. Does anyone have any thoughts on bone marrow transplants that they could share with me. TIA
Hi all I have just started on blood transfusion and likely to have to have them every four/five weeks. It has also been suggested that I may be eligible for a bone marrow transplant. Does anyone have any thoughts on bone marrow transplants that they could share with me. TIA
dave117
in
MPN Voice
7 years ago
multiple myeloma on pancreatic and pelvic as extramedullary plasmacytoma
Our Mayo Clinic psychiatrist mentioned most cancer patients have the treatment of maintenance chemotherapy in remission after five years, then these patients are able to finish the treatment in full recovery. Is it true to multiple myeloma on pancreatic and pelvic (extramedullary plasmacytoma)?
Our Mayo Clinic psychiatrist mentioned most cancer patients have the treatment of maintenance chemotherapy in remission after five years, then these patients are able to finish the treatment in full recovery. Is it true to multiple myeloma on pancreatic and pelvic (extramedullary plasmacytoma)?
chen5631867
in
Myeloma America Support
7 years ago
Bone marrow transplant for Behcet's
I'd have to be much further along than I am to consider this, but this is amazing: "Complete resolution... complete remission." https://academic.oup.com/rheumatology/article/53/6/1136/1826109/Bone-marrow-transplantation-for-Behcet-s-disease-a
I'd have to be much further along than I am to consider this, but this is amazing: "Complete resolution... complete remission." https://academic.oup.com/rheumatology/article/53/6/1136/1826109/Bone-marrow-transplantation-for-Behcet-s-disease-a
julietoo
in
Behçet's UK
7 years ago
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Bone Marrow Transplant, Sickle Cell in Bermuda
The October-December edition of African Sickle Cell News & World Report deals principally with Bone Marrow Transplant for SCD. 3 families on the African continent share stories of their road to a successful transplant. With so few having SCD in Bermuda (just 88), exactly what does the Bermuda SC Association
The October-December edition of African Sickle Cell News & World Report deals principally with Bone Marrow Transplant for SCD. 3 families on the African continent share stories of their road to a successful transplant. With so few having SCD in Bermuda (just 88), exactly what does the Bermuda SC Association
sicklecellnews
in
Sickle Cell Society
7 years ago
Long term treatment for 11q
As some may know, I am 25 years old diagnosed with CLL 11q deletion. One of my recent consultants has been Dr. Aman at the James Center who works under Dr. Byrd. We had a phone call and he told me, as I've come to expect, that he would treat me with the next 50 years in mind vs. A traditional CLL patient
As some may know, I am 25 years old diagnosed with CLL 11q deletion. One of my recent consultants has been Dr. Aman at the James Center who works under Dr. Byrd. We had a phone call and he told me, as I've come to expect, that he would treat me with the next 50 years in mind vs. A traditional CLL patient
Cpt_N
in
CLL Support
7 years ago
GVHD after a stem cell transplant
I had a stem cell transplant from a non-related donor almost four months ago and got graft versus host disease a couple of weeks or so later. It isn't getting any better despite several months of steroids and being on a trial of rixulitimab (spelling alert). It's in my liver and causing a spotty rash
I had a stem cell transplant from a non-related donor almost four months ago and got graft versus host disease a couple of weeks or so later. It isn't getting any better despite several months of steroids and being on a trial of rixulitimab (spelling alert). It's in my liver and causing a spotty rash
Christian057
in
CLL Support
7 years ago
Ibrutinib & neuropathy?
My husband has been on ibrutinib for 7 months & it has been working well for him with minor side effects (small rash, some joint pain) until the last month. His white blood count is coming down very slowly - still at about 60. (He is waiting to get a stem cell transplant in January & has had FCR but
My husband has been on ibrutinib for 7 months & it has been working well for him with minor side effects (small rash, some joint pain) until the last month. His white blood count is coming down very slowly - still at about 60. (He is waiting to get a stem cell transplant in January & has had FCR but
Glees
in
CLL Support
7 years ago
Stem Cell Transplant research
Graft-versus-host disease successfully prevented : https://www.sciencedaily.com/releases/2017/04/170418094535.htm
Graft-versus-host disease successfully prevented : https://www.sciencedaily.com/releases/2017/04/170418094535.htm
Shar0n
Volunteer
in
Non Hodgkin's Lymphoma Friends
7 years ago
surgery
I have sickle cell anemia homozygous and it is killing me I wish to undergo a bone marrow transplant surgery but as you my know it very expensive thus I am writing to ask is there an organizations that would fund my surgery . please enlighten me .
I have sickle cell anemia homozygous and it is killing me I wish to undergo a bone marrow transplant surgery but as you my know it very expensive thus I am writing to ask is there an organizations that would fund my surgery . please enlighten me .
Hidden
in
Sickle Cell Society
7 years ago
Update to Specialist 1st visit
Hi everyone, Thank you for the support and information shared to my original post. As promised, I’m sharing what was explained to me by my referring hematologist regarding the letter sent her by the specialist. This is my experience and I want to be careful to not alarm any other forum members. This
Hi everyone, Thank you for the support and information shared to my original post. As promised, I’m sharing what was explained to me by my referring hematologist regarding the letter sent her by the specialist. This is my experience and I want to be careful to not alarm any other forum members. This
Cmg5935
in
MPN Voice
7 years ago
Myleofibrosis and acute myeloid leukaemia
I am 47 and have no family able to give me bone marrow for a transplant, has anybody got any advice about treatmen or even prognosis. All I can find on the net is your gonna die, so am desperate for some proper sensible advice. I was only told 3 days ago, but told I would need 2 weeks of chemo and a
I am 47 and have no family able to give me bone marrow for a transplant, has anybody got any advice about treatmen or even prognosis. All I can find on the net is your gonna die, so am desperate for some proper sensible advice. I was only told 3 days ago, but told I would need 2 weeks of chemo and a
Paul278mc
in
MPN Voice
7 years ago
Ibrutinib doing its job well
It's been a couple of months since I last posted and all is going well. WBC is coming down nicely and platelets, haemoglobin etc all in the healthy range. Joint pain is less often and I know that it will pass within a couple of days. Picking up on my exercise walking a local reservoir at pace (7.5k
It's been a couple of months since I last posted and all is going well. WBC is coming down nicely and platelets, haemoglobin etc all in the healthy range. Joint pain is less often and I know that it will pass within a couple of days. Picking up on my exercise walking a local reservoir at pace (7.5k
KAS8
in
CLL Support
7 years ago
Stem cell treatment
Hi all just had a quick question if anyone has had a stem cell transplant ( I think that's what it's called) have you had any success what was ur experience?? Any information would really be appreciated Thank you all
Hi all just had a quick question if anyone has had a stem cell transplant ( I think that's what it's called) have you had any success what was ur experience?? Any information would really be appreciated Thank you all
Kc_1411
in
Scleroderma & Raynaud's UK (SRUK)
7 years ago
Stem cell transplant research
Eliminating the need for bone marrow donors http://tinyurl.com/yc3vb5d4
Eliminating the need for bone marrow donors http://tinyurl.com/yc3vb5d4
Shar0n
Volunteer
in
Non Hodgkin's Lymphoma Friends
7 years ago
Spinal Fusion
Hello I'm about to have a spinal fusion and was wondering if any other sclerry peeps have had the same and if your sclerry kicked off afterwards. I'm having a bone graft from my left hip and am worried it may weaken it as its the first of three. 😟
Hello I'm about to have a spinal fusion and was wondering if any other sclerry peeps have had the same and if your sclerry kicked off afterwards. I'm having a bone graft from my left hip and am worried it may weaken it as its the first of three. 😟
PickledGinger
in
Scleroderma & Raynaud's UK (SRUK)
7 years ago
Come along to our Young people versus blood cancer day on the 23rd September 2017 in London , book your free place now.
Free place , register now , this day is for nurses in the morning but also patients and carers in the afternoon . Lots of talks on fertility , getting back to work, stem cell transplantation and much more. http://www.leukaemiacare.org.uk/patient-and-carer-conferences
Free place , register now , this day is for nurses in the morning but also patients and carers in the afternoon . Lots of talks on fertility , getting back to work, stem cell transplantation and much more. http://www.leukaemiacare.org.uk/patient-and-carer-conferences
Esther07
in
Leukaemia Support
7 years ago
*FREE INFORMATION DAY*Come along to our Young People Versus Blood Cancer Day Trekstock & Leukaemia CARE
Book your free place today , the afternoon session is for patients and carers and hosted jointly by Trekstok & Leukaemia CARE in London on the 23rd September. https://www.eventbrite.co.uk/e/young-people-against-blood-cancer-information-day-tickets-32880028049?aff=WebsiteText Talks on fertility, stem
Book your free place today , the afternoon session is for patients and carers and hosted jointly by Trekstok & Leukaemia CARE in London on the 23rd September. https://www.eventbrite.co.uk/e/young-people-against-blood-cancer-information-day-tickets-32880028049?aff=WebsiteText Talks on fertility, stem
Esther07
in
Leukaemia Support
7 years ago
To many emails !!
I'm sorry but can people please stop sending me emails, I don't mean to be mean but I have received so many I cannot cope and my stress levels are going through the roof, Ive had Hypothyroidism for twenty years plus and am on NDT, I also am Type 1Diabetic I also have a Neurological disorder Dystonia
I'm sorry but can people please stop sending me emails, I don't mean to be mean but I have received so many I cannot cope and my stress levels are going through the roof, Ive had Hypothyroidism for twenty years plus and am on NDT, I also am Type 1Diabetic I also have a Neurological disorder Dystonia
Jeni-M
in
Thyroid UK
7 years ago
STIFF PERSON SYNDROME( a rare disease where your muscles go stiff, with ongoing spasms in any and all muscles) GAD65
I was diagnosed with SPS in 2013, although at that stage my neurologist was of the opinion that I had the syndrome for at least 5 years before being diagnosed. I am on high dosages of mood depressants, morphine etc . Not many has this disease, and I have been trying to get into a clinical trial for stem
I was diagnosed with SPS in 2013, although at that stage my neurologist was of the opinion that I had the syndrome for at least 5 years before being diagnosed. I am on high dosages of mood depressants, morphine etc . Not many has this disease, and I have been trying to get into a clinical trial for stem
carin02011966
in
Lung Conditions Community Forum
7 years ago
18 year old Son Diagnosed with ALD
My son was just recently diagnosed with ALD and will be getting a Bone Marrow transplant soon. We are all very scared and lost right now and if you have any advice we would love to hear it.
My son was just recently diagnosed with ALD and will be getting a Bone Marrow transplant soon. We are all very scared and lost right now and if you have any advice we would love to hear it.
ballml
in
Leukodystrophy Support
7 years ago
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