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My Recovery so far post Stem cell Transplant
Sorry I've been absent for so long, my stem cell transplant journey has been a difficult one to be honest and only now do I feel able to be able to tell the story so far. Thank you to everyone who kindly messaged me to see how I was and apologies for asking so long to respond. I really appreciated
Sorry I've been absent for so long, my stem cell transplant journey has been a difficult one to be honest and only now do I feel able to be able to tell the story so far. Thank you to everyone who kindly messaged me to see how I was and apologies for asking so long to respond. I really appreciated
Jm954
Administrator
in
CLL Support
10 months ago
Quadruple heart bypass
Any one else struggling with fatigue & breathlessness 2 years after operation ?
Any one else struggling with fatigue & breathlessness 2 years after operation ?
Hambo58
in
British Heart Foundation
8 months ago
Permanent AF how do you manage?
Hi everyone , I had AF for about six years I was diagnosed after I was fond to have a leaky heart valve,I could manage my AF while I was only getting episodes say once a month but then once a week but for the last week I’m having them every day ,not sure how to cope ,perhaps some of you lovely people
Hi everyone , I had AF for about six years I was diagnosed after I was fond to have a leaky heart valve,I could manage my AF while I was only getting episodes say once a month but then once a week but for the last week I’m having them every day ,not sure how to cope ,perhaps some of you lovely people
Fattypatty
in
AF Association
5 months ago
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Have I Really Got Heart Insufficiency?
I detest the the Heart Failure as it does not truly describe the condition and needs changing but I doubt the professionals can be bothered. As many of you will know I have serious issues my right foot/lower leg (in fact my only foot). Spending most of my time in a wheelchair I tend to develop a fair
I detest the the Heart Failure as it does not truly describe the condition and needs changing but I doubt the professionals can be bothered. As many of you will know I have serious issues my right foot/lower leg (in fact my only foot). Spending most of my time in a wheelchair I tend to develop a fair
MichaelJH
Heart Star
in
British Heart Foundation
8 months ago
Can azathioprine cause chest pains?
Hi, I have been on azathioprine tablets mostly 75mg to 100mg for my Lupus for approximately 20 years. Have been experiencing chest pains on my left side especially after excretion. I had various tests and scans but they are all negative. I had Covid last September and had to stop taking the azathioprine
Hi, I have been on azathioprine tablets mostly 75mg to 100mg for my Lupus for approximately 20 years. Have been experiencing chest pains on my left side especially after excretion. I had various tests and scans but they are all negative. I had Covid last September and had to stop taking the azathioprine
JanJan63
in
LUPUS UK
5 months ago
Interesting to know...
If you had the idea that AF is reserved for us, humans, you were wrong. It is kinda catching, lol, so our pets can also have AF problems. Here a passage from an article, talking about AF in cats and dogs and the interdependence of heart size and the probability to have AF (allegedly, larger hearts (sportsmen
If you had the idea that AF is reserved for us, humans, you were wrong. It is kinda catching, lol, so our pets can also have AF problems. Here a passage from an article, talking about AF in cats and dogs and the interdependence of heart size and the probability to have AF (allegedly, larger hearts (sportsmen
Hidden
in
AF Association
8 months ago
Advice regarding setting of expectations ahead of cardiology appointment would be appreciated.
AF since March 23. Currently only really experiencing breathlessness on inclines. No experience of HR over 100 (as far as I know). Devices confirm persistent AF since March. Echo revealed a few mild heart failure issues and recommended cardiology review, which is due in a couple of weeks. My question
AF since March 23. Currently only really experiencing breathlessness on inclines. No experience of HR over 100 (as far as I know). Devices confirm persistent AF since March. Echo revealed a few mild heart failure issues and recommended cardiology review, which is due in a couple of weeks. My question
Hallane
in
AF Association
8 months ago
Eight measures that can slow ageing by up to six years - healthy sleep and regular exercise may slow pace of body’s biological ageing
The Guardian : https://www.theguardian.com/science/2023/nov/06/scientists-name-eight-measures-that-can-slow-ageing-by-up-to-six-years Scientists name eight measures that can slow ageing by up to six years Measures including healthy sleep and regular exercise may slow pace of body’s biological ageing
The Guardian : https://www.theguardian.com/science/2023/nov/06/scientists-name-eight-measures-that-can-slow-ageing-by-up-to-six-years Scientists name eight measures that can slow ageing by up to six years Measures including healthy sleep and regular exercise may slow pace of body’s biological ageing
lankisterguy
Volunteer
in
CLL Support
8 months ago
AF no longer a problem?
My first episode of AF was in 2014. The ambulance crew came to my house and clearly recorded atrial fibrillation which was confirmed after I was taken to hospital. The Cardiologist/Electrophysiologist put me on Apixaban. I was discharged a year later from his care. A year later I had a short hospital
My first episode of AF was in 2014. The ambulance crew came to my house and clearly recorded atrial fibrillation which was confirmed after I was taken to hospital. The Cardiologist/Electrophysiologist put me on Apixaban. I was discharged a year later from his care. A year later I had a short hospital
Bridges4
in
AF Association
8 months ago
Regular alternate irregular heartbeats, .75 sec then 1 sec continuous- is this AF or some variation?
Noticed this morning when getting ready for a group bike ride, that I had an arrhythmia - I was slightly breathless as I rushed around getting my kit together. As always, a quick check of the pulse shows my pulse is fast and irregular. Whip out the 1 lead Kardia and first off it says possible AF @ HR
Noticed this morning when getting ready for a group bike ride, that I had an arrhythmia - I was slightly breathless as I rushed around getting my kit together. As always, a quick check of the pulse shows my pulse is fast and irregular. Whip out the 1 lead Kardia and first off it says possible AF @ HR
Speed
in
AF Association
8 months ago
My Mom needs heart surgery & I'm a terrified, 47 yr old baby
I feel so selfish. My MOM is the one who needs her aortic valve replaced, not me. But here I am, terrified of the upcoming surgery. Terrified of how terrified I'll be. Why can't I reframe my thinking? Why can't I look at this as this will save her?! Quick background: I'm 47, female, never married, no
I feel so selfish. My MOM is the one who needs her aortic valve replaced, not me. But here I am, terrified of the upcoming surgery. Terrified of how terrified I'll be. Why can't I reframe my thinking? Why can't I look at this as this will save her?! Quick background: I'm 47, female, never married, no
Figgins42
in
Anxiety and Depression Support
8 months ago
Anyone had a coronary sinus reducer?
I haven't been on here in a long while. My medical history is pretty complex, I'm seen locally at the Bristol Heart Institute but also under the care of the Cardio-oncology team at the Royal Brompton which a forum member told me about years ago thankfully. Basically my bone marrow transplant and other
I haven't been on here in a long while. My medical history is pretty complex, I'm seen locally at the Bristol Heart Institute but also under the care of the Cardio-oncology team at the Royal Brompton which a forum member told me about years ago thankfully. Basically my bone marrow transplant and other
SomersetJo
in
British Heart Foundation
10 months ago
Tapentadol
On 8th August this year, 2023, I had open heart surgery for the third time to replace my mitral valve. It was a tricky operation because of all the old scarring and I was worried I wouldn't make it, but I did. It worked really well and for two days I was riding high! However, on the third morning I
On 8th August this year, 2023, I had open heart surgery for the third time to replace my mitral valve. It was a tricky operation because of all the old scarring and I was worried I wouldn't make it, but I did. It worked really well and for two days I was riding high! However, on the third morning I
Nickibmibile
in
Anxiety and Depression Support
8 months ago
medication after open heart surgery
is there anyone on this site who has had a heart valve replacement and is now using biologic meds to control their ra? If so, I’d love to hear your experience. I was born with a bicuspid aortic valve which needed replacing in June (an event hastened by a toxic reaction to leflunomide). I’ve had an Inspiris
is there anyone on this site who has had a heart valve replacement and is now using biologic meds to control their ra? If so, I’d love to hear your experience. I was born with a bicuspid aortic valve which needed replacing in June (an event hastened by a toxic reaction to leflunomide). I’ve had an Inspiris
Emye343
in
NRAS
8 months ago
Hospital Query
Hello all, I’m awaiting heart surgery to repair a leaky mitral valve (mitral valve regurgitation) at the Freeman Hospital in Newcastle upon Tyne, UK. I’d be interested and grateful to hear from anyone who has had this type of heart surgery at the Freeman Hospital. Please don’t give details such as
Hello all, I’m awaiting heart surgery to repair a leaky mitral valve (mitral valve regurgitation) at the Freeman Hospital in Newcastle upon Tyne, UK. I’d be interested and grateful to hear from anyone who has had this type of heart surgery at the Freeman Hospital. Please don’t give details such as
Reggaelover
in
British Heart Foundation
8 months ago
Metoprolol as rate reducer with no affect on rhythm....
So after my last Holter showed 8500 episodes of SVT (Atrial Tachycardia) in 14 days, with a 19% burden of Atrial Ectopy and 11% burden of tachycardia, my EP recommended an echo (which was normal, thankfully), starting Metoprolol, and Eliquis, while I wait for another ablation. I have tried, and failed
So after my last Holter showed 8500 episodes of SVT (Atrial Tachycardia) in 14 days, with a 19% burden of Atrial Ectopy and 11% burden of tachycardia, my EP recommended an echo (which was normal, thankfully), starting Metoprolol, and Eliquis, while I wait for another ablation. I have tried, and failed
MeganMN
in
AF Association
8 months ago
Quivering sensations
I hope you are all wellMy question : Has anyone experienced episodic "quivering" sensations that are very brief, 10 seconds or so? I've had something similar before, several years ago and wore a Zio patch for 2 weeks but never picked up any A-fib only PACs and PVCs. I am now 67 year old dx with paroxsymal
I hope you are all wellMy question : Has anyone experienced episodic "quivering" sensations that are very brief, 10 seconds or so? I've had something similar before, several years ago and wore a Zio patch for 2 weeks but never picked up any A-fib only PACs and PVCs. I am now 67 year old dx with paroxsymal
Aegean56
in
AF Association
8 months ago
Atrial myxoma
Hello, I’m 47 & a couple of days ago I was screened to check for dilated cardiomyopathy, which my mother has. It was discovered I have Atrial myxoma & need urgent open heart surgery to remove it. I’m in shock & so scared & wandered if anyone has had this surgery & how it was for you?
Hello, I’m 47 & a couple of days ago I was screened to check for dilated cardiomyopathy, which my mother has. It was discovered I have Atrial myxoma & need urgent open heart surgery to remove it. I’m in shock & so scared & wandered if anyone has had this surgery & how it was for you?
Leggyem
in
British Heart Foundation
8 months ago
INR control
Hi don't know if this is of any interest to anyone ,but my INR has always been impossible to stabilize My heamatologist suggested taking a small dose of vitamin K and increasing the warfarin dose I didn't do this as don't want to be taking any more supplements, So I decided to massively increase my intake
Hi don't know if this is of any interest to anyone ,but my INR has always been impossible to stabilize My heamatologist suggested taking a small dose of vitamin K and increasing the warfarin dose I didn't do this as don't want to be taking any more supplements, So I decided to massively increase my intake
mully
in
Hughes Syndrome APS Forum
5 months ago
Negative effects from heart surgery 7 months on.
Hello. As anyone had negative effects following mitral valve repair? even years down the line? Surgeon repaired my leaky valve in April and I felt amazing once healed around July time. Now fast forward a few months and i feel worse than I did before she repaired my valve. Health / fitness has declined
Hello. As anyone had negative effects following mitral valve repair? even years down the line? Surgeon repaired my leaky valve in April and I felt amazing once healed around July time. Now fast forward a few months and i feel worse than I did before she repaired my valve. Health / fitness has declined
Heart4life1988
in
British Heart Foundation
8 months ago
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