Hi everyone!! I was born with truncus arteriosus type 1 and I've had 4 open heart surgeries. My last open heart surgery was in 2005, I had two that year due to endocarditis. I had an aortic aneurysm and my aortic valve was replaced with a titanium st judes valve. Replaced again a few months later due to endocarditis.
I've been taking Coumadin and now warfarin for 18 years. I found out Sept 19 I am due for my 5th open heart surgery but this time it will be for my pulmonary valve that was replaced with a conduit donor valve. I will either have it replaced or ballooned out. January 8th I meet when a new doctor I've never seen before, adult congenital heart disease doctor.
Thank you!
Written by
MsHealthNut
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Thank you so much! I see the same cardiologist I've seen since I was an infant, and I'm very thankful for that! My mistake was not seeing a GP regularly, lots of missed things that could have been monitored having a congenital heart disease like I do.
My condition Aoric Stenosis was only diagnosed after a heart attack. Also a bicuspid live tissue valve replacement when critical. Unfortunately our son , undiagnosed, passed away 4years ago but he had also a few unrelated conditions. These events make you appreciate just being alive! I wish you well.
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