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myelofibrosis and interferon
Hi everybody, my name is Lee and I was diagnosed with ET (MPL EXON10) in Nov 2019. I progressed to Myelofibrosis in March 2021. I was put onto Interferon Pegasys June 2022 to slow down platelets which reached a high of 776. White blood count had reached 22. I had very mild side effects which only lasted
Hi everybody, my name is Lee and I was diagnosed with ET (MPL EXON10) in Nov 2019. I progressed to Myelofibrosis in March 2021. I was put onto Interferon Pegasys June 2022 to slow down platelets which reached a high of 776. White blood count had reached 22. I had very mild side effects which only lasted
Pragmaticone
in
MPN Voice
1 year ago
How long can a human life live with unmanaged pain
Pretty morbid , i know , for my first post. I guess I never realized such a group existed, yet, i have a profile. Sometime ago im sure i created a profile but if you ask me today if I remember, my answer would be i must have if it says so. It was so easy to make light and be optimistic about how my
Pretty morbid , i know , for my first post. I guess I never realized such a group existed, yet, i have a profile. Sometime ago im sure i created a profile but if you ask me today if I remember, my answer would be i must have if it says so. It was so easy to make light and be optimistic about how my
Mommamoon
in
My MSAA Community
1 year ago
Water or how much water on Gazyva?
Skyshack and I got into a discussion about how much water are you to drink when on V+O. I decided to send out my general findings and see if anyone has additional info. I was [u]
unable
[/u] to find definitive instructions for water and Gazyva. An AI search on Microsoft first took me to drug
Skyshack and I got into a discussion about how much water are you to drink when on V+O. I decided to send out my general findings and see if anyone has additional info. I was [u]
unable
[/u] to find definitive instructions for water and Gazyva. An AI search on Microsoft first took me to drug
Rico49
in
CLL Support
1 year ago
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Deferasirax and Ibrutinib
Hi, my ferritin is 900, which is due to repeated blood transfusions , The oncologist has prescribed me Deferasirax 180 mg per day. On the other hand, my ibrutinib is 140 mg due to the take of voriconazole. Is it necessary to change the dose of ibrutinib to take Deferasirax?
Hi, my ferritin is 900, which is due to repeated blood transfusions , The oncologist has prescribed me Deferasirax 180 mg per day. On the other hand, my ibrutinib is 140 mg due to the take of voriconazole. Is it necessary to change the dose of ibrutinib to take Deferasirax?
ava1967ir
in
CLL Support
1 year ago
hypoxic, advice please completely overwhelmed.
to cut story short I have been reading and reading so much on here and need to ask for advice or suggestions. my father went in for a optional procedure to relieve nerve pressure in arm - spinal surgery. During this an accident occurred and an artery nicked where he bleed out and needed massive blood
to cut story short I have been reading and reading so much on here and need to ask for advice or suggestions. my father went in for a optional procedure to relieve nerve pressure in arm - spinal surgery. During this an accident occurred and an artery nicked where he bleed out and needed massive blood
Alwayshopefullove
in
Headway
1 year ago
I wish my future in laws would accept me..
To explain what I mean I have to give a bit of a backstory so you can understand why my future in laws feel this way. So I’m going to be honest about it when me & my fiancé started dating at first his family did really like me. They have said they felt that I was a good woman who’s independent single
To explain what I mean I have to give a bit of a backstory so you can understand why my future in laws feel this way. So I’m going to be honest about it when me & my fiancé started dating at first his family did really like me. They have said they felt that I was a good woman who’s independent single
Screambaby
in
Anxiety and Depression Support
1 year ago
Thyroid perioxidase antibody 932 iu/ml
Levothyroxine increased up to 200mcg daily to see if it brough down the TSH right through the pain and burning has continued with the same vigour now in Feb 23 TSH .04 and I have needed my 1st ever
blood
transfusion
as HB level just 7 and Ferritin 2. Platelets at 652.
Levothyroxine increased up to 200mcg daily to see if it brough down the TSH right through the pain and burning has continued with the same vigour now in Feb 23 TSH .04 and I have needed my 1st ever
blood
transfusion
as HB level just 7 and Ferritin 2. Platelets at 652.
rillo1472
in
Thyroid UK
1 year ago
Unbearable pain
transfusion
as my hemoglobin dropped from 129 to 71 .
transfusion
as my hemoglobin dropped from 129 to 71 .
Sammy2005
in
Pelvic Pain Support Network
1 year ago
Anaemia
My oncologist told me she’d probably think about a
blood
transfusion
if my haemoglobin count, got any lower. But of course she’s a researcher not a doctor and I don’t know if I even thought to ask her what I should be doing to treat the anaemia. I’ve been eating, dried apricots. Lots of fruit.
My oncologist told me she’d probably think about a
blood
transfusion
if my haemoglobin count, got any lower. But of course she’s a researcher not a doctor and I don’t know if I even thought to ask her what I should be doing to treat the anaemia. I’ve been eating, dried apricots. Lots of fruit.
Timtam56
in
SHARE Metastatic Breast Cancer
9 months ago
Finally some progress
Those who followed our Journey, know this is such a painful process of grief. Two weeks ago, the hospital wrote it would not change the factual information in my wife's chart. In her chart it had been written she had Biopys proven Nash Cirrhosis, which led doctors looking at ultrasounds that said
Those who followed our Journey, know this is such a painful process of grief. Two weeks ago, the hospital wrote it would not change the factual information in my wife's chart. In her chart it had been written she had Biopys proven Nash Cirrhosis, which led doctors looking at ultrasounds that said
Wolivere
in
British Liver Trust
11 months ago
COVID-19 immune cell vaccine eases SLE symptoms in girl: Report
She experienced nose bleeding that led to administration of a
blood
transfusion
. She also received intravenous steroids followed by intravenous immunoglobulin, an approach meant to block self-reactive antibodies in the blood. However, her symptoms persisted.
She experienced nose bleeding that led to administration of a
blood
transfusion
. She also received intravenous steroids followed by intravenous immunoglobulin, an approach meant to block self-reactive antibodies in the blood. However, her symptoms persisted.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
11 months ago
My beloved father and best friend has passed away, he will always be my hero.
My wonderful father Albert Moser passed away May 20, 2023. The last few months have been incredibly hard. After his 4th dose of chemo in February, he had a big bleed from a tumor in his bladder which almost killed him. After a 10 day hospital stay with 12 transfusions and nephrostomy tubes inserted he
My wonderful father Albert Moser passed away May 20, 2023. The last few months have been incredibly hard. After his 4th dose of chemo in February, he had a big bleed from a tumor in his bladder which almost killed him. After a 10 day hospital stay with 12 transfusions and nephrostomy tubes inserted he
fmoser
in
Advanced Prostate Cancer
1 year ago
MS and Iron deficiency anemia
I was given a
blood
transfusion
and intravenous iron. I had an upper and lower gi which was normal. The combination of MS and anemia has zapped the life out of me. Doctors don’t look at the whole person.
I was given a
blood
transfusion
and intravenous iron. I had an upper and lower gi which was normal. The combination of MS and anemia has zapped the life out of me. Doctors don’t look at the whole person.
SaraSmile2021
in
My MSAA Community
2 years ago
the curse of lifelong RLS…
I have had RLS for 33 years, I am 63 now with two grown up daughters. My symptoms first presented when I was pregnant, they were annoying but relatively intermittent and manageable - this is how it continued for many years with symptoms presenting during the night. I coped without medication, massaging
I have had RLS for 33 years, I am 63 now with two grown up daughters. My symptoms first presented when I was pregnant, they were annoying but relatively intermittent and manageable - this is how it continued for many years with symptoms presenting during the night. I coped without medication, massaging
soundofmetal
in
Restless Legs Syndrome
1 year ago
Any experiences with D negative blood type?
I’ve recently got my blood results back from first midwife apt (I’m 10 weeks +2 now) and have received a letter saying I need extra tests and that I might need a
transfusion
/ injection if my baby is D positive as my
blood
will be attacking my baby’s red blood cells!
I’ve recently got my blood results back from first midwife apt (I’m 10 weeks +2 now) and have received a letter saying I need extra tests and that I might need a
transfusion
/ injection if my baby is D positive as my
blood
will be attacking my baby’s red blood cells!
Mlove12
in
Pregnancy and Parenting Support
1 year ago
MRI Results
Hi I have not been in a good place so sorry for not posting this earlier. And socializing is so hard. My results say My brain scan was normal apart from a few small areas of hyperintensity, with no inflammatory changes, so no further investigations required. My whole spine scan shows some wear
Hi I have not been in a good place so sorry for not posting this earlier. And socializing is so hard. My results say My brain scan was normal apart from a few small areas of hyperintensity, with no inflammatory changes, so no further investigations required. My whole spine scan shows some wear
saxcat
in
Fibromyalgia Action UK
2 hours ago
Latest Results
Hi everyone, My first post here. I’d be interested in opinions on my most recent Medichecks results. Levels have been a little erratic in the last couple of years with the smallest possible dose changes (+/- 25mcg per week). I also have IBS. I’ve been in the hypothyroid game a long time so I’m very
Hi everyone, My first post here. I’d be interested in opinions on my most recent Medichecks results. Levels have been a little erratic in the last couple of years with the smallest possible dose changes (+/- 25mcg per week). I also have IBS. I’ve been in the hypothyroid game a long time so I’m very
WildSilence
in
Thyroid UK
5 hours ago
Folic acid = tummyache!
Hi all, I am meant to take one 5mg tablet of folic acid with each injection, that's every 2/3 days. These were keeping my levels high but the tablets give me stomach ache and discomfort, so I switched to daily liquid drops (methylayted) of 400 micrograms per recommend dose. This also seemed to work although
Hi all, I am meant to take one 5mg tablet of folic acid with each injection, that's every 2/3 days. These were keeping my levels high but the tablets give me stomach ache and discomfort, so I switched to daily liquid drops (methylayted) of 400 micrograms per recommend dose. This also seemed to work although
Myoldcat
in
Pernicious Anaemia Society
7 hours ago
Any experience with Roderick Lane? Please PM me. Thank you
Hello, like others who have posted similar requests on here before, I am considering a consultation with Roderick Lane. There do not seem to be any reviews of him and I am wary of seeing any practitioners without a recommendation due to previous experience. I am currently on T4 and T3 and adrenal cortex
Hello, like others who have posted similar requests on here before, I am considering a consultation with Roderick Lane. There do not seem to be any reviews of him and I am wary of seeing any practitioners without a recommendation due to previous experience. I am currently on T4 and T3 and adrenal cortex
Dollyrocker000
in
Thyroid UK
8 hours ago
High FSH
Hi everyone I was devastated yesterday when I found out through my blood test that my FSH levels are too high (19.8) to do my ivf round. I had a medicated cycle previously that only resulted in one egg (unfortunately this egg turned into a blastocyst but didn’t stay when implanted) this 2nd round was
Hi everyone I was devastated yesterday when I found out through my blood test that my FSH levels are too high (19.8) to do my ivf round. I had a medicated cycle previously that only resulted in one egg (unfortunately this egg turned into a blastocyst but didn’t stay when implanted) this 2nd round was
Sunrise127
in
Fertility Network UK
10 hours ago
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