Hi
I have not been in a good place so sorry for not posting this earlier.
And socializing is so hard.
My results say
My brain scan was normal apart from a few small areas of hyperintensity, with no inflammatory changes, so no further investigations required.
My whole spine scan shows some wear and tear changes at my cervical spine with some narrowing of the exits for the nerve roots, but no nerve root or spinal cord compression.
The MRI therefore has not identified an alternative structural explanation for my symptoms.
I have been diagnosed with FND.
Neurologist referred me to Rhumatology because I had the positive autoimmune blood test, which has came back as low titre Lupus.
They will repeat the test in 12 weeks because they said sometimes it can be a false positive.
They said I was extremely tender over multiple areas including those of fibromyalgia but found it difficult to assess my lumber spine because of pain provoked.
Said it was very difficult to assess with the multiplicity of symptoms which could be consistent with an underlying connective tissue disorder.
They discharged me but if I develop any more definite features of connective tissue disease they will want to see me again.
Been reffered back to pain clinic, ENT clinic and psychology.
My pip is up for review I asked my Doctor if I should report any of this to DWP because we are supposed to tell them any changes, my Doctor said no.
Which i'm kinda happy about but not happy.
I have now been moved to SSS ADP
I am happy I don't have to tell them anything because the form from them is so different to the DWP PIP form.
All I have to do is tick 1 box to say I am the same as last review.
But I am not happy because,
I live alone and have no friends or family to help me.
I am struggling so much, esp when in a flare.
I have just came out of a flare and it was so bad I have bought a powerchair to help me get around my house when in a flare.
I feel I should be telling DWP about this but that would mean filling out a change form and possibly the big form like the PIP form, which we all know is physically and mentally draining.
ps. I do have a son but it is very complicated.