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Myelofibrosis- GVHD graft, versus, host, disease.
Hi, thanks for accepting me onto your site. My name is Gary, I am 64 years old and was diagnosed with Myelofibrosis in July, 2024. It all started when I began to feel lethargic and very tired, I had no inspiration to do anything. I was a taxi driver and was only managing to work one or two days a week
Hi, thanks for accepting me onto your site. My name is Gary, I am 64 years old and was diagnosed with Myelofibrosis in July, 2024. It all started when I began to feel lethargic and very tired, I had no inspiration to do anything. I was a taxi driver and was only managing to work one or two days a week
FreemanSaviors
in
MPN Voice
25 days ago
Myelofibrosis - GVHD - graft, versus, host, disease
Hi, thanks for accepting me onto the site. My name is Gary, I am 64 years old and was diagnosed with Myelofibrosis in July, 2024. It all started when I began to feel lethargic and very tired, I had no inspiration to do anything. I was a taxi driver and was only managing to work one or two days a week
Hi, thanks for accepting me onto the site. My name is Gary, I am 64 years old and was diagnosed with Myelofibrosis in July, 2024. It all started when I began to feel lethargic and very tired, I had no inspiration to do anything. I was a taxi driver and was only managing to work one or two days a week
FreemanSaviors
in
MPN Voice
25 days ago
Prolia
I have just received an email from my GP who has arranged for a F2F appointment to see me beginning January to discuss me starting to take Prolia. My last Dexascan in 2021 did show that I have osteoporosis, and I did take Alendronic Acid for the first two years of having Polymyalgia. Since then I have
I have just received an email from my GP who has arranged for a F2F appointment to see me beginning January to discuss me starting to take Prolia. My last Dexascan in 2021 did show that I have osteoporosis, and I did take Alendronic Acid for the first two years of having Polymyalgia. Since then I have
Purplegloss
in
PMRGCAuk
7 months ago
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Best genetic mutation test?
My husband’s RO ordered the Invitae genetic saliva test, and we’ve received results showing he does not have genetic mutations on the genes they tested (84 genes I think). The problem is I don’t see some important mutations on their test, such as CDK12 or others. What is the “best” or most comprehensive
My husband’s RO ordered the Invitae genetic saliva test, and we’ve received results showing he does not have genetic mutations on the genes they tested (84 genes I think). The problem is I don’t see some important mutations on their test, such as CDK12 or others. What is the “best” or most comprehensive
Adendino
in
Advanced Prostate Cancer
9 months ago
Continued Journey
I will be starting the prep for my Bone Marrow Transplant (June 27) Friday. I have 5 days of chemo starting Friday this week, with a rest day before the BMT. Apprehension has been growing in me but it is balanced by others that have successfully made this journey. Also, my Drs. And team give an
I will be starting the prep for my Bone Marrow Transplant (June 27) Friday. I have 5 days of chemo starting Friday this week, with a rest day before the BMT. Apprehension has been growing in me but it is balanced by others that have successfully made this journey. Also, my Drs. And team give an
FiArt12X
in
CLL Support
29 days ago
Curcumin Interactions with Abiraterone
Curcumin has so many good benefits that would help to cope with ADT side effects. Does Curcumin interefers with ADT (Lupron+Zytiga)? Does anyone taking Curcumin while on Hormone Therapy? Please, share the information. Thank you.
Curcumin has so many good benefits that would help to cope with ADT side effects. Does Curcumin interefers with ADT (Lupron+Zytiga)? Does anyone taking Curcumin while on Hormone Therapy? Please, share the information. Thank you.
FightCancer101
in
Advanced Prostate Cancer
8 months ago
UPSET WITH MYSELF
I wanted to go to a Small Group at my church tonight, as time got near, I had a meltdown and didn’t make it out the door. I just don’t know what I am going to do about this agoraphobia! It’s so frustrating! I have been watching my church on-line for months now because I can’t seem to be able to face
I wanted to go to a Small Group at my church tonight, as time got near, I had a meltdown and didn’t make it out the door. I just don’t know what I am going to do about this agoraphobia! It’s so frustrating! I have been watching my church on-line for months now because I can’t seem to be able to face
Littlebit2cute
in
Anxiety and Depression Support
5 months ago
Precancerous polyps removed, new symptoms 8 years later
So 8 years ago I had a colonoscopy due to severe constipation, a backup in my bowels, mucus and slight bleeding. They removed seven polyps, four of which were pre-cancerous, the largest polyp being 7 mm. They told me to be checked again in 4 years which I was, and it came back clear. Lately, I'd say
So 8 years ago I had a colonoscopy due to severe constipation, a backup in my bowels, mucus and slight bleeding. They removed seven polyps, four of which were pre-cancerous, the largest polyp being 7 mm. They told me to be checked again in 4 years which I was, and it came back clear. Lately, I'd say
Incogkneetoe
in
Colon Cancer Connected
7 months ago
Vitamin B12 (hydroxocobalamin, cyanocobalamin): advise patients with known cobalt allergy to be vigilant for sensitivity reactions
A somewhat lacklustre MHRA warning: [i]
Vitamin B12 (hydroxocobalamin, cyanocobalamin): advise patients with known cobalt allergy to be vigilant for sensitivity reactions
[/i] [i][/i] [i]The medicines used to treat vitamin B12 deficiency (hydroxocobalamin, cyanocobalamin) contain cobalt. There
A somewhat lacklustre MHRA warning: [i]
Vitamin B12 (hydroxocobalamin, cyanocobalamin): advise patients with known cobalt allergy to be vigilant for sensitivity reactions
[/i] [i][/i] [i]The medicines used to treat vitamin B12 deficiency (hydroxocobalamin, cyanocobalamin) contain cobalt. There
helvella
in
Pernicious Anaemia Society
7 months ago
Any advice for gastro symptoms which respond to steroids, but no diagnosis? Does normal colonoscopy cover the small bowel?
hi all, I hope it's ok to post here - I don't have a diagnosis of crohn's or colitis but am looking for information. I'm diagnosed coeliac (6+ years ago) and autoimmune hypothyroid, with ongoing and increasing gastro symptoms - the main problem being that I feel extremely unwell like I've got flu
hi all, I hope it's ok to post here - I don't have a diagnosis of crohn's or colitis but am looking for information. I'm diagnosed coeliac (6+ years ago) and autoimmune hypothyroid, with ongoing and increasing gastro symptoms - the main problem being that I feel extremely unwell like I've got flu
Megaloo
in
Crohn's and Colitis Support
7 months ago
LOADED BOWEL
September I had a bowel impaction and after various doses of laxido and other laxitives plus three trips to A&E still not sorted! Blood test CT scan showed nothing amiss just loaded bowel .I have continued with a maintenace dose of laxido and senna which makes me go most days but still feel like there
September I had a bowel impaction and after various doses of laxido and other laxitives plus three trips to A&E still not sorted! Blood test CT scan showed nothing amiss just loaded bowel .I have continued with a maintenace dose of laxido and senna which makes me go most days but still feel like there
Shopnow1
in
IBS Network
7 months ago
Constipation post lap!
Hello ladies. I am 3 days post my surgery in which they took out my left ovary and excised all the endo they coud find. Now i am not in a lot of pain but i cannot poo, it is killing me. It is already the fourth day i haven't empty my bowels and i feel i need to go but when i am there i cannot push it
Hello ladies. I am 3 days post my surgery in which they took out my left ovary and excised all the endo they coud find. Now i am not in a lot of pain but i cannot poo, it is killing me. It is already the fourth day i haven't empty my bowels and i feel i need to go but when i am there i cannot push it
Pisi
in
Endometriosis UK
7 months ago
pain in my lower pelvic area.
I suffer from pain in my lower pelvic area sometimes at the front and sides as it tends to move about,it mainly happens after I've been lying down, i also suffer from constipation,I've had a ct scan, endoscopy and gastrostomy all came back clear,I am at a loss what to do next.
I suffer from pain in my lower pelvic area sometimes at the front and sides as it tends to move about,it mainly happens after I've been lying down, i also suffer from constipation,I've had a ct scan, endoscopy and gastrostomy all came back clear,I am at a loss what to do next.
Lawnmow
in
Pelvic Pain Support Network
7 months ago
SCT journey update No.3
Hi all, just to give you an update on my journey towards my *Allogenic Stem cell transplant, my transplant team @ Addenbrookes Hospital are working towards me starting chemotherapy at the end of July with the transplant taking place approx one week later at start of August. I have one more appointment
Hi all, just to give you an update on my journey towards my *Allogenic Stem cell transplant, my transplant team @ Addenbrookes Hospital are working towards me starting chemotherapy at the end of July with the transplant taking place approx one week later at start of August. I have one more appointment
LFCLove
in
MPN Voice
1 month ago
Cyproterone and Blood Pressure
I am currently on LHRH hormone therapy in preparation for radiotherapy followed by HDR brachytherapy for my locally advanced PCa, T3a Gleason 8, no visible mets fortunately. I have been suffering from quite unpleasant hot flushes which have shown no signs of going away. I discussed this with my consultant
I am currently on LHRH hormone therapy in preparation for radiotherapy followed by HDR brachytherapy for my locally advanced PCa, T3a Gleason 8, no visible mets fortunately. I have been suffering from quite unpleasant hot flushes which have shown no signs of going away. I discussed this with my consultant
tunybgur
in
Advanced Prostate Cancer
7 months ago
sciatic pain
I’ve recently been diagnosed with Adenomyosis and suffer daily with pelvic pain and like a sciatic pain in my back and down my legs. Has anyone else had this, I’m not sure if the two are related. I also have diverticulosis so falling apart at the seems. 🤯
I’ve recently been diagnosed with Adenomyosis and suffer daily with pelvic pain and like a sciatic pain in my back and down my legs. Has anyone else had this, I’m not sure if the two are related. I also have diverticulosis so falling apart at the seems. 🤯
Racergirl9
in
Endometriosis UK
7 months ago
Borderline TSH during cancer treatment
Hi folks! Haven't been on here for some time but in the interim I have been treated for Chronic Myeloid Leukaemia. Had chemo in September last year which was successful (minus a few hiccups like fungal pneumonia that put me in ICU!) and currently on home oral chemo, antifungals and antibiotics daily
Hi folks! Haven't been on here for some time but in the interim I have been treated for Chronic Myeloid Leukaemia. Had chemo in September last year which was successful (minus a few hiccups like fungal pneumonia that put me in ICU!) and currently on home oral chemo, antifungals and antibiotics daily
spongecat
in
Thyroid UK
1 month ago
Mum 86 treatment??
Hi my mum was diagnosed in August with lung cancer from fluid taken from around her lungs.She has had various scans/MRIs ane they have said all other areas are clear.She has had 3 biopsy the last under general aneasetic, where they also inserted a drainage tube for plural effusion to allow the fluid
Hi my mum was diagnosed in August with lung cancer from fluid taken from around her lungs.She has had various scans/MRIs ane they have said all other areas are clear.She has had 3 biopsy the last under general aneasetic, where they also inserted a drainage tube for plural effusion to allow the fluid
Hidden
in
The Roy Castle Lung Cancer Foundation
9 months ago
Post-prostatectomy cancer status + treatment
Where we are in the story so far ... * 46 yo, diagnosed with prostate cancer April 2023 * MRIs were negative, ultimately diagnosed via biopsy * Gleason 3+4, last PSA 6.3, 6 cores with 3+3, 2 cores were 3+4 * PSMA PET Scan prior to surgery was clean * Had RALP procedure on September 26, 3 weeks ago
Where we are in the story so far ... * 46 yo, diagnosed with prostate cancer April 2023 * MRIs were negative, ultimately diagnosed via biopsy * Gleason 3+4, last PSA 6.3, 6 cores with 3+3, 2 cores were 3+4 * PSMA PET Scan prior to surgery was clean * Had RALP procedure on September 26, 3 weeks ago
MakeItRainbows
in
Prostate Cancer Network
9 months ago
Concerned, nervous…
where do I begin…aside from apologizing in advance for this photo.. just showing only a little bit of what I’ve been experiencing this past year. well I’m currently writing this on 12/16/2023. I am getting a colonoscopy/endoscopy done on 12/18/2023. I SUCK at writing, but I don’t honestly have anyone
where do I begin…aside from apologizing in advance for this photo.. just showing only a little bit of what I’ve been experiencing this past year. well I’m currently writing this on 12/16/2023. I am getting a colonoscopy/endoscopy done on 12/18/2023. I SUCK at writing, but I don’t honestly have anyone
HersheyDropz
in
Colon Cancer Connected
7 months ago
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