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Help I don’t understand
So for the last 4 months I’ve been having pain in my muscles and head as well as tingling and a burning sensation. Also extreme fatigue and a red rash on my cheeks and trouble swallowing.My doctor gave me prednisone to treat because crp and esr were high. She also started me on plaquenil. Now before
So for the last 4 months I’ve been having pain in my muscles and head as well as tingling and a burning sensation. Also extreme fatigue and a red rash on my cheeks and trouble swallowing.My doctor gave me prednisone to treat because crp and esr were high. She also started me on plaquenil. Now before
Jadaboo4
in
LUPUS UK
4 months ago
super high gastrin level
hi there - I just got diagnosed with pernicious anemia, autoimmune gastritis, and Barrett’s esophagus 3 months ago. My gastrin in sept was 200, in Dec it was 1000, and now in March it is 2500. It’s escalated so quickly and my doctor just ordered a scan for neuroendocrine tumors. I’m freaking out —
hi there - I just got diagnosed with pernicious anemia, autoimmune gastritis, and Barrett’s esophagus 3 months ago. My gastrin in sept was 200, in Dec it was 1000, and now in March it is 2500. It’s escalated so quickly and my doctor just ordered a scan for neuroendocrine tumors. I’m freaking out —
Lhood08
in
Pernicious Anaemia Society
5 months ago
Repeat Lutetium/ Pluvicto treatment
Hello all, I am just curious if anyone has experience doing additional lutetium treatments. I did three lutetium treatments from September 2021 to January 2022. My Denver oncologist is concerned about bone marrow toxicity , but he does not have enough experience with this treatment to say for sure.
Hello all, I am just curious if anyone has experience doing additional lutetium treatments. I did three lutetium treatments from September 2021 to January 2022. My Denver oncologist is concerned about bone marrow toxicity , but he does not have enough experience with this treatment to say for sure.
Eugmn
in
Advanced Prostate Cancer
6 months ago
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Are Lymph nodes a filter?
Do lymph nodes simply act as a temporary filter to prevent cancer from spreading too far? I was curious about this because I have 4th stage prostate cancer, and my Lymph had swelled to the size of a golfball. When I took the ADT, my PSA went from 1000, down to 6, and all evidence of cancer disappeared
Do lymph nodes simply act as a temporary filter to prevent cancer from spreading too far? I was curious about this because I have 4th stage prostate cancer, and my Lymph had swelled to the size of a golfball. When I took the ADT, my PSA went from 1000, down to 6, and all evidence of cancer disappeared
Aldo62
in
Advanced Prostate Cancer
7 months ago
Actinic Keratosis
Good morning from the US of A, Yesterday I received notification from a scalp biopsy I had done last week that the sore on the top of my head is Actinic Keratosis. In researching it I found it is due to ultra violet ray exposure and it is pre cancerous. I mentioned to the Dermatologist that I have been
Good morning from the US of A, Yesterday I received notification from a scalp biopsy I had done last week that the sore on the top of my head is Actinic Keratosis. In researching it I found it is due to ultra violet ray exposure and it is pre cancerous. I mentioned to the Dermatologist that I have been
mbr8076
in
MPN Voice
5 months ago
XTX-301: immunotherapy for cold tumors
It's being developed also for prostate cancer even if the article does not mention it: https://www.globenewswire.com/news-release/2024/01/08/2805332/0/en/Xilio-Therapeutics-Highlights-Recent-Advances-Across-Clinical-Pipeline-and-Encouraging-Preliminary-Phase-1-Safety-Data-for-XTX301-a-Tumor-Activated-IL
It's being developed also for prostate cancer even if the article does not mention it: https://www.globenewswire.com/news-release/2024/01/08/2805332/0/en/Xilio-Therapeutics-Highlights-Recent-Advances-Across-Clinical-Pipeline-and-Encouraging-Preliminary-Phase-1-Safety-Data-for-XTX301-a-Tumor-Activated-IL
Maxone73
in
Advanced Prostate Cancer
7 months ago
Getting tested after taking any supplements...
Hi there, I found this information after worrying that I have lost my mind due to GP responses, on top of all of my very B12 like symptoms, Inc. Neurological. How I felt was gradual at first and more like fatigue and gastic upsets, intermittent mild tingling, over the last few years, but last year my
Hi there, I found this information after worrying that I have lost my mind due to GP responses, on top of all of my very B12 like symptoms, Inc. Neurological. How I felt was gradual at first and more like fatigue and gastic upsets, intermittent mild tingling, over the last few years, but last year my
Suffering_sunny
in
Pernicious Anaemia Society
5 months ago
Age and timing for Triplet therapy?
I am age 81, active and neither fit nor frail, radiated in 2021 without hormone therapy. Radiated again in 2023 for a pelvic node. In December the PSA rose to 3.78 and a PSMA-PET scan showed cancer growing in prostate, shrinking in pelvic node, and spread to one abdominal node. I started ADT with
I am age 81, active and neither fit nor frail, radiated in 2021 without hormone therapy. Radiated again in 2023 for a pelvic node. In December the PSA rose to 3.78 and a PSMA-PET scan showed cancer growing in prostate, shrinking in pelvic node, and spread to one abdominal node. I started ADT with
vintage42
in
Advanced Prostate Cancer
7 months ago
vitamin deficiencies
I had most of my sigmoid removed because of diverticulitis five years ago. My question is my surgeon said that it should not affect my vitamin or mineral intake because the sigmoid doesn’t involve that. Got on finding that it most certainly does I get a B12 injection because I’m a vegetarian so that
I had most of my sigmoid removed because of diverticulitis five years ago. My question is my surgeon said that it should not affect my vitamin or mineral intake because the sigmoid doesn’t involve that. Got on finding that it most certainly does I get a B12 injection because I’m a vegetarian so that
Gardeningbuff
in
Bowel Disease Support
5 months ago
Low B12 levels
it’s not an area I know much about with a B12 level of 433 (187-833) would I qualify for B12 injections?
it’s not an area I know much about with a B12 level of 433 (187-833) would I qualify for B12 injections?
Bollieforme
in
Thyroid UK
5 months ago
still confused about my iron results
I’ve now redone my iron panel with medichecks and have similar results to last time. I can’t work out why my ferritin continues to drop. And what I can do about it as I know I need higher ferritin levels for optimum thyroid hormone function. …………………………… Ferritin……….Iron……….. Trans. Sat………..TIBC……….
I’ve now redone my iron panel with medichecks and have similar results to last time. I can’t work out why my ferritin continues to drop. And what I can do about it as I know I need higher ferritin levels for optimum thyroid hormone function. …………………………… Ferritin……….Iron……….. Trans. Sat………..TIBC……….
Mazes
in
Thyroid UK
5 months ago
Mr Geoff Lloyd
Diagnosed in 2010 with advanced PC. Prostatectomy in 2011 followed by the "all clear". PSA refused to disappear and so RT followed. PSA still present and PC nodules found in my lung in 2021. I then had a 6 session course of chemotherapy and have been on Abiaterone and Demoxosone drugs ever since.Nodules
Diagnosed in 2010 with advanced PC. Prostatectomy in 2011 followed by the "all clear". PSA refused to disappear and so RT followed. PSA still present and PC nodules found in my lung in 2021. I then had a 6 session course of chemotherapy and have been on Abiaterone and Demoxosone drugs ever since.Nodules
Churchman123
in
Advanced Prostate Cancer
7 months ago
My decision on Radiotherapy -v- Prostatectomy
I hope this story might be useful to others. I'm based in the UK and had a PSA of 12.7 from a test in June 2023. That led to an MRI in August with a PI-RADS of 5 with irregularity on the front of the prostate. I eventually had a biopsy at the end of September after 3 cancellations (this was through the
I hope this story might be useful to others. I'm based in the UK and had a PSA of 12.7 from a test in June 2023. That led to an MRI in August with a PI-RADS of 5 with irregularity on the front of the prostate. I eventually had a biopsy at the end of September after 3 cancellations (this was through the
MarkS
in
Prostate Cancer Network
7 months ago
lobular
hi ladies. Well after 6 years on faslodex and ibrance they found cancer in my stomach lining and ascites. Is anyone dealing with this I am so nervous and scared. They want to put me in a new drug. Thanks so much. Marianne
hi ladies. Well after 6 years on faslodex and ibrance they found cancer in my stomach lining and ascites. Is anyone dealing with this I am so nervous and scared. They want to put me in a new drug. Thanks so much. Marianne
marianne88
in
SHARE Metastatic Breast Cancer
7 months ago
PSA Risen in Last 6 months
Have been on here a week ago, explaining that my husband (who was diagnosed 10years ago) has now been diagnosed with Gastroporesis, so not eating much due to constant nausea and vomiting. We are due to see his Urologist in 2 weeks time, so had the dreaded PSA blood test. It had been almost undetectable
Have been on here a week ago, explaining that my husband (who was diagnosed 10years ago) has now been diagnosed with Gastroporesis, so not eating much due to constant nausea and vomiting. We are due to see his Urologist in 2 weeks time, so had the dreaded PSA blood test. It had been almost undetectable
Hidden
in
Advanced Prostate Cancer
7 months ago
ET: Changing from HU to Jakafi or an Interferon treatment
Hello everyone, I'd be really grateful for any guidance / advice on the following: ET / JAK2 were diagnosed 10 years ago following a stroke (fortunately without serious consequences) and I was put on HU plus Aspirin. Amazingly I had no side-effects (apart from a 'rash' on my lower legs after about
Hello everyone, I'd be really grateful for any guidance / advice on the following: ET / JAK2 were diagnosed 10 years ago following a stroke (fortunately without serious consequences) and I was put on HU plus Aspirin. Amazingly I had no side-effects (apart from a 'rash' on my lower legs after about
Bodensee
in
MPN Voice
7 months ago
Scared and Frustrated
The beginning of February i thought i had the beginnings of maybe a stomach bug. Bloating, gas, sudden urge and need to use the bathroom.... only nothing would come, just mucus and very very small amounts if unformed fluff. This continued till I noticed i hadn't had a real movement for nearly two weeks
The beginning of February i thought i had the beginnings of maybe a stomach bug. Bloating, gas, sudden urge and need to use the bathroom.... only nothing would come, just mucus and very very small amounts if unformed fluff. This continued till I noticed i hadn't had a real movement for nearly two weeks
Tummytroubles1
in
Colon Cancer Connected
5 months ago
does having endo mean I am at high risk for ovarian cancer?
hi! I an 26 and I have recently been diagnosed with moderate endometriosis. I am having a hard time coming to terms with it all and I consulted dr Google. I came across studies that show endo is a precursor to ovarian cancer and increases risk. I already have health anxiety however now I have gotten
hi! I an 26 and I have recently been diagnosed with moderate endometriosis. I am having a hard time coming to terms with it all and I consulted dr Google. I came across studies that show endo is a precursor to ovarian cancer and increases risk. I already have health anxiety however now I have gotten
JS1001
in
Endometriosis UK
7 months ago
delayed reconstruction
I had a subdural haemorrhage in may 2023 removing most of the right side of my scull even encroached my forehead that’s some 10 months ago now. I was supposed to receive reconstructive surgery and have titanium implant to protect the sensitive area where my skin is my only protection to my brain. That
I had a subdural haemorrhage in may 2023 removing most of the right side of my scull even encroached my forehead that’s some 10 months ago now. I was supposed to receive reconstructive surgery and have titanium implant to protect the sensitive area where my skin is my only protection to my brain. That
Jodieb73
in
Headway
7 months ago
Genetic Testing?
Does anyone have an experience to share about getting genetic testing done on your biopsy samples? I'm interested in three tests: (1) a DECIPHER test, (2) a full gene sequencing of tumor DNA and RNA (e.g., at Claris Labs), and (3) the Artera AI analysis of digitized pathology slides. Also, if anyone
Does anyone have an experience to share about getting genetic testing done on your biopsy samples? I'm interested in three tests: (1) a DECIPHER test, (2) a full gene sequencing of tumor DNA and RNA (e.g., at Claris Labs), and (3) the Artera AI analysis of digitized pathology slides. Also, if anyone
janebob99
in
Prostate Cancer Network
7 months ago
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