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Hi everyone I've recently been prescribed this medication due to severe constipation as a side effect of chemotherapy and all the associated drugs that go with it. I already suffer with chronic constipation so I take prucalopride , which now isn't effective alone š my question is how many sachets do
Hi everyone I've recently been prescribed this medication due to severe constipation as a side effect of chemotherapy and all the associated drugs that go with it. I already suffer with chronic constipation so I take prucalopride , which now isn't effective alone š my question is how many sachets do
Kazzacrazy
in
IBS Network
6 months ago
Xtandi (enzalutimide) SEs Part 2
Since I've increased my Xtandi from 80 mg to 160 mg, I am now experiencing a bad case of the jimmy legs (restless legs) at night. I take my Xtandi around 8 pm. I still work full time and I've read that taking it at night helps avoid the fatigue during the day. So far that seems to be the case with
Since I've increased my Xtandi from 80 mg to 160 mg, I am now experiencing a bad case of the jimmy legs (restless legs) at night. I take my Xtandi around 8 pm. I still work full time and I've read that taking it at night helps avoid the fatigue during the day. So far that seems to be the case with
MoonRocket
in
Advanced Prostate Cancer
3 months ago
5yo Withholding, Soiling, Disimpaction, Soiling Again
Hi, wondering if anyone has had a similar experience. My now 5 year old girl has had problems with withholding and soiling since potty training. Weāve had support from the Gp, health visitor, school nurse and ERIC helpline. Since starting school in September the soiling had become worse, so we
Hi, wondering if anyone has had a similar experience. My now 5 year old girl has had problems with withholding and soiling since potty training. Weāve had support from the Gp, health visitor, school nurse and ERIC helpline. Since starting school in September the soiling had become worse, so we
RubyBeach
in
ERIC
4 months ago
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Feeling low. Wind out of my sails
Update - Saw doc this morning and I was hoping that the Enhertu would be working after the 4th cycle, but markers went up +289. Now I am at 2130 (15.3) and the general tumor markers are up almost 4 pts to 56. He said I could do another round of Enhertu and I just said, look, just over a year now and
Update - Saw doc this morning and I was hoping that the Enhertu would be working after the 4th cycle, but markers went up +289. Now I am at 2130 (15.3) and the general tumor markers are up almost 4 pts to 56. He said I could do another round of Enhertu and I just said, look, just over a year now and
Hopeful4Cure
in
SHARE Metastatic Breast Cancer
7 months ago
best treatment after Xeloda?
I was diagnosed with MBC in Feb 2022 with bone mets. I am HER2 low ER positive. I have been on kisquali, Ibrance, Faslodex, and lastly 4 rounds of Xeloda. Nothing seems to stop my progression, Kisquali sent my liver enzymes sky high. Ibrance/Faslodex progression was slow and markers rose. Xeloda
I was diagnosed with MBC in Feb 2022 with bone mets. I am HER2 low ER positive. I have been on kisquali, Ibrance, Faslodex, and lastly 4 rounds of Xeloda. Nothing seems to stop my progression, Kisquali sent my liver enzymes sky high. Ibrance/Faslodex progression was slow and markers rose. Xeloda
Breege_M
in
SHARE Metastatic Breast Cancer
7 months ago
Nearly 14 years on - time has flown.
On Friday 16th April 2010 I joined the Pernicious Anaemia Society and posted the following: āI was diagnosed with PA back in 1972 consequent upon having had surgery for a peptic ulcer in April 1959 at the tender age of 17. In those days I was not many years from having to be put on a diet of raw liver
On Friday 16th April 2010 I joined the Pernicious Anaemia Society and posted the following: āI was diagnosed with PA back in 1972 consequent upon having had surgery for a peptic ulcer in April 1959 at the tender age of 17. In those days I was not many years from having to be put on a diet of raw liver
clivealive
Forum Support
in
Pernicious Anaemia Society
4 months ago
Death of Dr. Joseph Chandy
Very sad news of the death of Dr. Chandy, who was a hero for his B12 deficient patients . He wrote , with Hugo Minney , a great book āVitamin B12 deficiency in clinical practiceā. ( Doctor , you gave me my life back) He stood up to the medical authorities in order to treat his B12 deficient patients
Very sad news of the death of Dr. Chandy, who was a hero for his B12 deficient patients . He wrote , with Hugo Minney , a great book āVitamin B12 deficiency in clinical practiceā. ( Doctor , you gave me my life back) He stood up to the medical authorities in order to treat his B12 deficient patients
wedgewood
in
Pernicious Anaemia Society
4 months ago
There is still HOPE
It has been a long time since I posted. First, I want say that I am an 11 year survivor having been diagnosed with Stage 3c ovarian cancer. Iāve had multiple recurrences and I am currently dealing with my seventh. I remember frantically looking for survival stories just to see how much time I had after
It has been a long time since I posted. First, I want say that I am an 11 year survivor having been diagnosed with Stage 3c ovarian cancer. Iāve had multiple recurrences and I am currently dealing with my seventh. I remember frantically looking for survival stories just to see how much time I had after
yo207
in
My Ovacome
7 months ago
Is this a lupus rash
Hey everyone.I'll try and keep this short. Ive been diagnosed with fibromyalgia, pernicious anemia, lots of back disc issues, an exploratory lap for endometriosis which came back clear, my thyroid labs are poor but in range so not medicated but I am positive for tpa antibodies. I have had a positive
Hey everyone.I'll try and keep this short. Ive been diagnosed with fibromyalgia, pernicious anemia, lots of back disc issues, an exploratory lap for endometriosis which came back clear, my thyroid labs are poor but in range so not medicated but I am positive for tpa antibodies. I have had a positive
Peppermints
in
LUPUS UK
3 months ago
How effective is fenofibrate for itch?
My doctor suggested a few different drugs, like rifampricin, naltrexone, and fenofibrate for my itch. He prescribed fenofibrate as he thinks it works best. Does anyone here take it and if so, has it helped? I'm worried about the warnings it comes with about severe liver damage.
My doctor suggested a few different drugs, like rifampricin, naltrexone, and fenofibrate for my itch. He prescribed fenofibrate as he thinks it works best. Does anyone here take it and if so, has it helped? I'm worried about the warnings it comes with about severe liver damage.
Carly92
in
PBC Foundation
4 months ago
Weight, bloating, and itchy arms
After a long, tortuous fight to get diagnosed and treated with/for hypothyroidism, which was achieved almost entirely with the help and info from this forum, I think that my meds are now very close to perfect and my blood test results are continuing to improve. So thank you again to everyone. But I
After a long, tortuous fight to get diagnosed and treated with/for hypothyroidism, which was achieved almost entirely with the help and info from this forum, I think that my meds are now very close to perfect and my blood test results are continuing to improve. So thank you again to everyone. But I
noquitter
in
Thyroid UK
4 months ago
Octasa and Diarrhea
Hi there, I have diagnosed UC, on last day of an 8 week course of steroids which stopped all my symptoms (bloody lose stool).I am also on day 10 of 6 x 800 mg Octasa. In the last 48 hours started getting diarrhea and fatigue and mild stomach cramps. 6 x loose/watery stools a day. Is this a normal side
Hi there, I have diagnosed UC, on last day of an 8 week course of steroids which stopped all my symptoms (bloody lose stool).I am also on day 10 of 6 x 800 mg Octasa. In the last 48 hours started getting diarrhea and fatigue and mild stomach cramps. 6 x loose/watery stools a day. Is this a normal side
Sma4fh
in
Crohn's and Colitis Support
4 months ago
How long for ANA/ENA results?
I've had quite a few symptoms of what my GP suspects might be a CTD, spanning back about 10 years but lots more cropping up more recently. She's requested (I think) an ANA test and I understand from googling that if the ANA is positive it then gets sent for ENA testing as well? I'm not sure what the
I've had quite a few symptoms of what my GP suspects might be a CTD, spanning back about 10 years but lots more cropping up more recently. She's requested (I think) an ANA test and I understand from googling that if the ANA is positive it then gets sent for ENA testing as well? I'm not sure what the
Helzipop
in
LUPUS UK
3 months ago
Tirosint
I am unable to take tablet form levothyroxine, I have a gene issue with metabolising some medications. I have started liquid thyroxine but I think the ingredients are affecting my stomach and I have been told to stop taking this to see if it is the cause. I see that Tirosint is quite pure but not sure
I am unable to take tablet form levothyroxine, I have a gene issue with metabolising some medications. I have started liquid thyroxine but I think the ingredients are affecting my stomach and I have been told to stop taking this to see if it is the cause. I see that Tirosint is quite pure but not sure
Da52
in
Thyroid UK
4 months ago
Latest results.
Hi all. I wonder if you could share your thoughts on my latest results. My levothyroxine has been increased from 50 to 75mg. I have had a very sore mouth and tongue for over 12 months and was hoping if my B12 levels increased and my levothyroxine was working well, it would go. It hasnāt. My B12
Hi all. I wonder if you could share your thoughts on my latest results. My levothyroxine has been increased from 50 to 75mg. I have had a very sore mouth and tongue for over 12 months and was hoping if my B12 levels increased and my levothyroxine was working well, it would go. It hasnāt. My B12
Kebabalon
in
Thyroid UK
4 months ago
What should I do next?
I was diagnosed 7 yrs ago with stage 2 fallopian tube cancer. Had hysterectomy, 15 chemos of carbo taxol, 5 blood transfusions. 2 years later it came back, did carbo doxil avastin had a lot if side effects. When covid hit, tried lymparza but didn't work. Cancer spread to colon. Went back to carbo
I was diagnosed 7 yrs ago with stage 2 fallopian tube cancer. Had hysterectomy, 15 chemos of carbo taxol, 5 blood transfusions. 2 years later it came back, did carbo doxil avastin had a lot if side effects. When covid hit, tried lymparza but didn't work. Cancer spread to colon. Went back to carbo
Mardes
in
SHARE Ovarian Cancer Support
7 months ago
chances of it being colon cancer
hi I am a 35 year old female and generally very healthy. the last 2 days I have noticed some bright red blood on the outside of my stool, not a lot just a couple of small specks. It is not mixed in with the stool and the stool is normal consistency amd colour. I am not suffering from abdominal pain
hi I am a 35 year old female and generally very healthy. the last 2 days I have noticed some bright red blood on the outside of my stool, not a lot just a couple of small specks. It is not mixed in with the stool and the stool is normal consistency amd colour. I am not suffering from abdominal pain
Glouise1234
in
Colon Cancer Connected
4 months ago
Swollen Stomach IBS_C
Hi everyone. Ive had gut problems for years. Diarrhoea mostly. My stomach has been swollen for a few months now with difficulty having a normal BM. Its usually sludge like...sorry about the description. A colonoscopy 2 years ago showed dilated colon and the gastro Dr said I have IBS _C . He said
Hi everyone. Ive had gut problems for years. Diarrhoea mostly. My stomach has been swollen for a few months now with difficulty having a normal BM. Its usually sludge like...sorry about the description. A colonoscopy 2 years ago showed dilated colon and the gastro Dr said I have IBS _C . He said
granny34
in
IBS Network
4 months ago
Post COVID UC flare - Mezavant probs
Hi I'm new, feeling a bit scared as it's Christmas time and my gastro not back til 8 January. I had COVID mid November, very nauseous and some diahhrea and very soft sticky stool. Mild proctosigmoiditis (low down UC) for 30 years. Been off meds for 20 years until now. Following COVID my bowel symptoms
Hi I'm new, feeling a bit scared as it's Christmas time and my gastro not back til 8 January. I had COVID mid November, very nauseous and some diahhrea and very soft sticky stool. Mild proctosigmoiditis (low down UC) for 30 years. Been off meds for 20 years until now. Following COVID my bowel symptoms
Bunnygirl1
in
Crohn's and Colitis Support
4 months ago
Taking hours to fall asleep
Gabapentin has controlled my RLS for last year or so. I only take 600 mg at bedtime for last 3/4 months now. I have recently started having difficulty falling asleep (no RLS, just wide awake for 3/4 hours). I thought about asking for a sleep aid from GP but didn't want to take anything that would aggrevate
Gabapentin has controlled my RLS for last year or so. I only take 600 mg at bedtime for last 3/4 months now. I have recently started having difficulty falling asleep (no RLS, just wide awake for 3/4 hours). I thought about asking for a sleep aid from GP but didn't want to take anything that would aggrevate
Opie__
in
Restless Legs Syndrome
3 months ago
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