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Finishing Olaparib
I'm 2 yrs NED and have been taking Olaparib for that time. Oncologist now finishing me as he says that it will have longer term effects on bone marrow. BRCA negative but tumour positive for mutation. But I read on this feed that some of you have been taking it for longer. I don't want to stay on a drug
I'm 2 yrs NED and have been taking Olaparib for that time. Oncologist now finishing me as he says that it will have longer term effects on bone marrow. BRCA negative but tumour positive for mutation. But I read on this feed that some of you have been taking it for longer. I don't want to stay on a drug
suzannebirch
in
My Ovacome
8 months ago
thrush in mouth
I have had antibiotics lately and have thrush in my mouth. I have been prescribed Nystan to take 4 times a day. The nurse /practioner said also rinse my mouth after using my steroid inhaler.The problem is do I rinse and spit or rinse and swallow? Swallowing is so much easier
I have had antibiotics lately and have thrush in my mouth. I have been prescribed Nystan to take 4 times a day. The nurse /practioner said also rinse my mouth after using my steroid inhaler.The problem is do I rinse and spit or rinse and swallow? Swallowing is so much easier
Karate-Kid1
in
Lung Conditions Community Forum
19 days ago
Anxiety
Good evening all, last week I faced panic attack, after anytime In my mind thinking my heart is palpitations and there is something worng with my heart after that I went gp for consult and I shared him everything , after gp told me you have anxiety and he suggested me cipralex medicine, I want knows
Good evening all, last week I faced panic attack, after anytime In my mind thinking my heart is palpitations and there is something worng with my heart after that I went gp for consult and I shared him everything , after gp told me you have anxiety and he suggested me cipralex medicine, I want knows
Rajlover
in
Anxiety and Depression Support
20 days ago
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Recently started Acalabrutinib
Hi everyone, My father has recently started Acalabrutinib 5 days ago. He was diagnosed with CLL in 2007 and has received FCR (twice) and Benda-Ritux once. His CLL only went into partial remission on benda-ritux and has come back after one year since his last cycle of BR. I am worried regarding the
Hi everyone, My father has recently started Acalabrutinib 5 days ago. He was diagnosed with CLL in 2007 and has received FCR (twice) and Benda-Ritux once. His CLL only went into partial remission on benda-ritux and has come back after one year since his last cycle of BR. I am worried regarding the
Healthgiddy
in
CLL Support
21 days ago
Buprenorphine and Nausea
Basically I successfully use buprenorphine (0.4mg/da) to block RLS but the resultant nausea is a serious well known side affect. I have been well guided by many on this site as to how to combat the nausea and have tried many of the suggested solutions except for me the last resort medical cannabis.
Basically I successfully use buprenorphine (0.4mg/da) to block RLS but the resultant nausea is a serious well known side affect. I have been well guided by many on this site as to how to combat the nausea and have tried many of the suggested solutions except for me the last resort medical cannabis.
davchar23
in
Restless Legs Syndrome
21 days ago
Rapid responses to recent BMJ article
Thanks to Retteacherand LadyBothwellfor mentioning this article. I wondered if people had seen the rapid responses to the article. BMJ Vitamin B12 article Vitamin B12 BMJ 2023;383:e071725 https://www.bmj.com/content/383/bmj-2022-071725 Rapid Responses to above article https://www.bmj.com/content
Thanks to Retteacherand LadyBothwellfor mentioning this article. I wondered if people had seen the rapid responses to the article. BMJ Vitamin B12 article Vitamin B12 BMJ 2023;383:e071725 https://www.bmj.com/content/383/bmj-2022-071725 Rapid Responses to above article https://www.bmj.com/content
Sleepybunny
in
Pernicious Anaemia Society
5 months ago
THC/ Cannabis having Curative Effects for PC???
Ran across this study: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7503992/ But is there any proof that THC helps to cure PC or lower PSA? I believe it’s used for pain relief, but are its benefits been proven beyond that? Thank you very much.
Ran across this study: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7503992/ But is there any proof that THC helps to cure PC or lower PSA? I believe it’s used for pain relief, but are its benefits been proven beyond that? Thank you very much.
Cactus297
in
Advanced Prostate Cancer
8 months ago
clavicle/collar bone swelling - YouTube Vid
hi there, A few of us have been talking about swelling in the pits of the collar bone. Instagram must’ve been listening 👂🏼 as this expert popped up in my feed. apparently this area is called the terminus, left and right so different jobs. I’ve watched this YouTube and immediately had gunk running
hi there, A few of us have been talking about swelling in the pits of the collar bone. Instagram must’ve been listening 👂🏼 as this expert popped up in my feed. apparently this area is called the terminus, left and right so different jobs. I’ve watched this YouTube and immediately had gunk running
Regenallotment
in
Thyroid UK
26 days ago
Can’t cope anymore
To make a long story short, im having panic attacks because me and my gf broke up recently and we both agreed to stay friends bc we are attached, but i feel so hurt and scared of messing things up moving forward. On top of my normal mental health which was already doing poor, i don’t know what to do
To make a long story short, im having panic attacks because me and my gf broke up recently and we both agreed to stay friends bc we are attached, but i feel so hurt and scared of messing things up moving forward. On top of my normal mental health which was already doing poor, i don’t know what to do
catbones0421
in
Anxiety and Depression Support
26 days ago
Prevention and early detection saves lives!
‼ PREVENTION AND EARLY DETECTION SAVES LIVES! 🧡 The Skcin app provides you with all the guidance, advice and self-management tools you need to help you reduce your risk of skin cancer, check your skin for the early warning signs and confidently take action with concerns. The app is FREE to install
‼ PREVENTION AND EARLY DETECTION SAVES LIVES! 🧡 The Skcin app provides you with all the guidance, advice and self-management tools you need to help you reduce your risk of skin cancer, check your skin for the early warning signs and confidently take action with concerns. The app is FREE to install
SkcinHQ
Partner
in
Skin Cancer UK
8 months ago
Iron could help B12 levels
Hi everyone, I’ve never post before… but I came across some useful information that could help you all. In my own personal experience I developed a b12 deficiency for no particular reason, I’ve been tested for pernicious anemia and that came back negative, I put it down to a mixture of a restricted
Hi everyone, I’ve never post before… but I came across some useful information that could help you all. In my own personal experience I developed a b12 deficiency for no particular reason, I’ve been tested for pernicious anemia and that came back negative, I put it down to a mixture of a restricted
MarvelDC
in
Pernicious Anaemia Society
5 months ago
Can high B12 levels actually turn out to be B12 deficiency.
Hi M54 Have recently got bloods back from medichecks was an advanced thyroid test. Have basically suffered from an under active thyroid for over 4 years, symptoms including fatigue, depression, insomnia and always feeling cold. However recently have suffered from memory and concentration problems
Hi M54 Have recently got bloods back from medichecks was an advanced thyroid test. Have basically suffered from an under active thyroid for over 4 years, symptoms including fatigue, depression, insomnia and always feeling cold. However recently have suffered from memory and concentration problems
gerrycrilley1
in
Pernicious Anaemia Society
5 months ago
2nd Liver Biopsy result
My 2nd liver biopsy states I have advanced bridging fibrosis with a score of 4/6. Which I think means F3. My previous fibroscan was F2 (9.2kpa). I'm not seeing my consultant for 13 weeks. I know I'm not supposed to post test results but I would love to hear from anyone at F3 & how they are coping with
My 2nd liver biopsy states I have advanced bridging fibrosis with a score of 4/6. Which I think means F3. My previous fibroscan was F2 (9.2kpa). I'm not seeing my consultant for 13 weeks. I know I'm not supposed to post test results but I would love to hear from anyone at F3 & how they are coping with
Bigbluemonkey
in
British Liver Trust
29 days ago
Follow up on new bone met
Follow up; starting 2 weeks of radiation therapy on the new bone met, It is one centimeter and not causing any pain yet so treating it and a small area around it on femur in case of micro mets. Radiation Oncologist said that SBRT is an option but harder to get approved and best used to direct only
Follow up; starting 2 weeks of radiation therapy on the new bone met, It is one centimeter and not causing any pain yet so treating it and a small area around it on femur in case of micro mets. Radiation Oncologist said that SBRT is an option but harder to get approved and best used to direct only
Trissh
in
SHARE Metastatic Breast Cancer
8 months ago
Vagus nerve stimulation'
I've posted here a few times to discuss gut health for those of you suffering from PA who also have gut issues. In my quest to find some relief from visceral hypersensitivity and massive intolerances (leading to malabsorption) I began acupuncture treatment this year. I am very lucky to have an anethesist
I've posted here a few times to discuss gut health for those of you suffering from PA who also have gut issues. In my quest to find some relief from visceral hypersensitivity and massive intolerances (leading to malabsorption) I began acupuncture treatment this year. I am very lucky to have an anethesist
expatkerry
in
Pernicious Anaemia Society
5 months ago
Rib pain after breathing test
On 22nd I took respiratory test. Ribs in area of LUNG SURGERY in 2019 are very painful upon effort; front, side, and back. I'm taking tylenol and rubbing creams with little improvement. Any one experience this after test?
On 22nd I took respiratory test. Ribs in area of LUNG SURGERY in 2019 are very painful upon effort; front, side, and back. I'm taking tylenol and rubbing creams with little improvement. Any one experience this after test?
Lyubov
in
Lung Conditions Community Forum
1 month ago
Non small cell carcinoma in lung.
I have recently been diagnosed with non small cell carcinoma of the lung by the Royal Brompton. They sent a letter to my GP requesting an urgent 2 week referral to local oncology, GP surgery said they hadn't received the part of the letter asking for the referral. I emailed them a copy as they requested
I have recently been diagnosed with non small cell carcinoma of the lung by the Royal Brompton. They sent a letter to my GP requesting an urgent 2 week referral to local oncology, GP surgery said they hadn't received the part of the letter asking for the referral. I emailed them a copy as they requested
jacic64
in
The Roy Castle Lung Cancer Foundation
8 months ago
nephrectomy
I have to have a nephrectomy because I have a tumor on my kidney and cyst I have polycythameia Vera anyone had this surgery with polycythameia
I have to have a nephrectomy because I have a tumor on my kidney and cyst I have polycythameia Vera anyone had this surgery with polycythameia
Sickey
in
MPN Voice
8 months ago
Having panic attacks almost daily
why is this happening ! I’ve had Panic attacks in the past but nothing like this! It’s been a week and I wake up with Hot flashes and Then Boom panic attack! I’ve been to the ER got EKG ECG you name it! Everything BACK NORMAL including my blood work! What’s wrong with me?!?!
why is this happening ! I’ve had Panic attacks in the past but nothing like this! It’s been a week and I wake up with Hot flashes and Then Boom panic attack! I’ve been to the ER got EKG ECG you name it! Everything BACK NORMAL including my blood work! What’s wrong with me?!?!
Mindfulnessxo
in
Anxiety and Depression Support
1 month ago
uMRD 6
I have been living for the one year point on V plus O to get the clonal sequence uMRD6 bone marrow test done so I could decide if I wanted to continue with a Venetaclax. Technically, I consider myself partially treated rather than relapsed or refractory, because I only received three of the six cycles
I have been living for the one year point on V plus O to get the clonal sequence uMRD6 bone marrow test done so I could decide if I wanted to continue with a Venetaclax. Technically, I consider myself partially treated rather than relapsed or refractory, because I only received three of the six cycles
skipro
in
CLL Support
1 month ago
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