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Bone Marrow Transplant telephone conference call TODAY September 19, 2018
September Lunch & Learn With The Link: Blood Cancers and the Role of Bone Marrow Transplantation http://www.lls.org/events/blood-cancers-and-the-role-of-bone-marrow-transplantation?src1=22346&src2= This free telephone support program will focus on the role of transplantation in blood cancers, in
September Lunch & Learn With The Link: Blood Cancers and the Role of Bone Marrow Transplantation http://www.lls.org/events/blood-cancers-and-the-role-of-bone-marrow-transplantation?src1=22346&src2= This free telephone support program will focus on the role of transplantation in blood cancers, in
lankisterguy
Volunteer
in
CLL Support
6 years ago
DEATH BY REJECTION
I had a kidney transplant in 2014. I'm suffering with anxiety, depression, and reclusiveness. My life is a mess, and I'm unable to hold down either a job or a relationship. It's pointless being here, and I've had enough. If I was to stop taking my anti rejection medication, how long would it take to
I had a kidney transplant in 2014. I'm suffering with anxiety, depression, and reclusiveness. My life is a mess, and I'm unable to hold down either a job or a relationship. It's pointless being here, and I've had enough. If I was to stop taking my anti rejection medication, how long would it take to
Tony50
in
Kidney Transplant Patient Support
6 years ago
Has anyone actually tried this?
As, some of you, may well know, I am a Middle-aged Fat man who has 'Non-specific ANCA Vasculitis'. Actually about five different, not specifically named, Overlapping 'strains'. I had a Kidney transplant, in July 2013, and now live in Supported Living. My question is this- Does anyone have any experience
As, some of you, may well know, I am a Middle-aged Fat man who has 'Non-specific ANCA Vasculitis'. Actually about five different, not specifically named, Overlapping 'strains'. I had a Kidney transplant, in July 2013, and now live in Supported Living. My question is this- Does anyone have any experience
AndrewT
in
Vasculitis UK
6 years ago
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My mom has had two Liver transplants
My mom has had two liver transplants since Aug last year , first one failed due to bile ducts dying, she was re transplanted in MAR this year, she then had a bile duct leak which led to a collapsed lung and pheumonia and spent nine weeks in ICU, she then started vomiting end of April which is still happenening
My mom has had two liver transplants since Aug last year , first one failed due to bile ducts dying, she was re transplanted in MAR this year, she then had a bile duct leak which led to a collapsed lung and pheumonia and spent nine weeks in ICU, she then started vomiting end of April which is still happenening
Tracey2973
in
British Liver Trust
6 years ago
Partial liver transplant
Has anyone had a discussion with their consultant about partial liver transplant from a living donor? My husband has end stage liver disease and although we have read lots of information on liver transplants I can't see anything specifically about living donors. Any advice would be appreciated.
Has anyone had a discussion with their consultant about partial liver transplant from a living donor? My husband has end stage liver disease and although we have read lots of information on liver transplants I can't see anything specifically about living donors. Any advice would be appreciated.
JDA69
in
British Liver Trust
6 years ago
Facing Dialysis and/or Kidney Transplant
I have a GFR between 28 to 34. My nephrologist advised I should meet with the transplant team at my hospital to be evaluated. Up until now, I haven’t seriously thought I would need a kidney transplant. Now, I am feeling very anxious about the road ahead of me. I am possibly facing dialysis and/or a transplant
I have a GFR between 28 to 34. My nephrologist advised I should meet with the transplant team at my hospital to be evaluated. Up until now, I haven’t seriously thought I would need a kidney transplant. Now, I am feeling very anxious about the road ahead of me. I am possibly facing dialysis and/or a transplant
jesselizzard
in
Kidney Transplant
6 years ago
New Research
This was sent to me by a friend may be of some interest. I saw this on the BBC and thought you should see it: Liver transplants 'may be unnecessary thanks to new drug treatment' - http://www.bbc.co.uk/news/health-45188056
This was sent to me by a friend may be of some interest. I saw this on the BBC and thought you should see it: Liver transplants 'may be unnecessary thanks to new drug treatment' - http://www.bbc.co.uk/news/health-45188056
Barnetaccounts
in
British Liver Trust
6 years ago
An HCV survivor who never had HepC
No never had HCV. I lost my wife Carla DEC 28 2008. Since 2009 a member of Hepatitis C Family and Friends Support Group. Admin for 4 year. This is my life now in honor of my Carla. So often we hear of post treatment health issues, often blamed on the new DAA treatments. I find it dismaying that so many
No never had HCV. I lost my wife Carla DEC 28 2008. Since 2009 a member of Hepatitis C Family and Friends Support Group. Admin for 4 year. This is my life now in honor of my Carla. So often we hear of post treatment health issues, often blamed on the new DAA treatments. I find it dismaying that so many
bbgoode
in
Hepatitis C Support
6 years ago
ONLY 10% of NON-DIALYSIS KIDNEY PATIENTS EVER SEE A DIETITIAN.
This article arrived in my mailbox yesterday but I wasn't able to get to it until today. I thought the information was interesting and decided to share it. It came in as part of a newsletter from the American Association of Kidney Patients www.aakp.org August 1, 2018, Loyola University Health System
This article arrived in my mailbox yesterday but I wasn't able to get to it until today. I thought the information was interesting and decided to share it. It came in as part of a newsletter from the American Association of Kidney Patients www.aakp.org August 1, 2018, Loyola University Health System
Hidden
in
Kidney Disease
6 years ago
The DOOMSDAY CLOCK is running backward
For cirrhosis patients, there has always been a doomsday clock. We all know that there are no treatments and only a transplant can save us. Transplant is on the mind of a lot of us but what do the statistics say? According to the CDC, from 1999 to 2016 over 460,000 people died from cirrhosis. Even today
For cirrhosis patients, there has always been a doomsday clock. We all know that there are no treatments and only a transplant can save us. Transplant is on the mind of a lot of us but what do the statistics say? According to the CDC, from 1999 to 2016 over 460,000 people died from cirrhosis. Even today
nash2
Partner
in
Living with Fatty Liver and NASH
6 years ago
Cannabis Oils - Best Ones for T-Cell Relapse?
I am wondering if anyone can help point me in the right direction, we are at a loss. My father in law has had a relapse of NHL - TCell 2 years after a bone marrow transplant. His level's aren't balancing out enough to move on with any salvage treatment so we have looked into cannabis oils but finding
I am wondering if anyone can help point me in the right direction, we are at a loss. My father in law has had a relapse of NHL - TCell 2 years after a bone marrow transplant. His level's aren't balancing out enough to move on with any salvage treatment so we have looked into cannabis oils but finding
NHL-TCell
in
Non Hodgkin's Lymphoma Friends
6 years ago
Lost
Good evening everyone. Very new to this virtual world of chatting ! Feel odd. Noone to look in the eyes to get comfort from no reassuring hand on mine. It feels so lonely. After almost 10 years feeling poorly and 2 years on the waiting list, i have been blessed with a liver transplant , 16 weeks ago
Good evening everyone. Very new to this virtual world of chatting ! Feel odd. Noone to look in the eyes to get comfort from no reassuring hand on mine. It feels so lonely. After almost 10 years feeling poorly and 2 years on the waiting list, i have been blessed with a liver transplant , 16 weeks ago
Bouboule
in
British Liver Trust
6 years ago
VATS BIOPSY RESULTS FINALLY
Hi, I have posted a few times. I had a VATS lung biopsy and have a general diagnosis FINALLY. They first told me they were almost sure I had constrictive Bronchiolitis (thanks for those that have it who were so kind and helpful). The biopsy showed Cellular Interstitial Pneumonitis and most likely Hypersensitivity
Hi, I have posted a few times. I had a VATS lung biopsy and have a general diagnosis FINALLY. They first told me they were almost sure I had constrictive Bronchiolitis (thanks for those that have it who were so kind and helpful). The biopsy showed Cellular Interstitial Pneumonitis and most likely Hypersensitivity
rottiro1
in
Lung Conditions Community Forum
6 years ago
T Cell treatment
Hi, my good friend, who had bowel cancer ten years ago, was unfortunately diagnosed with ALL about six months ago. He was in remission following chemo, then had stem cell transplant. About a month afterwards things went pear shaped quickly. The leukaemia was back with a vengeance! He is now having T
Hi, my good friend, who had bowel cancer ten years ago, was unfortunately diagnosed with ALL about six months ago. He was in remission following chemo, then had stem cell transplant. About a month afterwards things went pear shaped quickly. The leukaemia was back with a vengeance! He is now having T
Marilyn1959
in
Leukaemia CARE
6 years ago
Transplant games
I would just like to say I've been to the transplant games in Birmingham and had such an amazing time as a volunteer. If you've had a transplant or waiting I can't recommend it enough. Over 720 people took part after receiving a transplant. Just wanted to shout out about it as it doesn't get enough publicity
I would just like to say I've been to the transplant games in Birmingham and had such an amazing time as a volunteer. If you've had a transplant or waiting I can't recommend it enough. Over 720 people took part after receiving a transplant. Just wanted to shout out about it as it doesn't get enough publicity
Charlene_Coxhead
in
Kidney Transplant
6 years ago
Immune suppression mix
Hi I seem to be on a lot of immune suppression. I have SLE & renal transplant. Is anyone else on Prograf (Tacrolimus) Mycophenalate Mofetil & Zentiva (Hydrochloroquine) recently added to the mix by my dermatologist? Just seems an awful lot. I have loads of other types of meds too. I hate to think of
Hi I seem to be on a lot of immune suppression. I have SLE & renal transplant. Is anyone else on Prograf (Tacrolimus) Mycophenalate Mofetil & Zentiva (Hydrochloroquine) recently added to the mix by my dermatologist? Just seems an awful lot. I have loads of other types of meds too. I hate to think of
MandaM
in
LUPUS UK
6 years ago
OPT OUT IS GOING TO HAPPEN IN ENGLAND.
At Last The Government has now Passed the Transplant Clause to "OPT OUT" as from 2020, I couldn't transfer the Post to here, I have been able to The Birmingham Transplant Forum. I & Millions of others Signed The Petition it is now going to be called "Max's Law" after The Little Boy who approached Teresa
At Last The Government has now Passed the Transplant Clause to "OPT OUT" as from 2020, I couldn't transfer the Post to here, I have been able to The Birmingham Transplant Forum. I & Millions of others Signed The Petition it is now going to be called "Max's Law" after The Little Boy who approached Teresa
Hacienda
in
Lung Conditions Community Forum
6 years ago
Auxiliary liver transplant anyone?
Looking for advice and to exchange experiences :)
Looking for advice and to exchange experiences :)
Pizamkazdw
in
Children's Liver Disease Foundation
6 years ago
Kidney transplant
Hi I am 26 a have just received a kidney i am having trouble with my legs they are extreamly painful , stiff and swelling it feels like I'm constantly walking up hill and i cant seem to lift my left leg up very high no matter how hard i try has anyone experienced this and i am also having trouble with
Hi I am 26 a have just received a kidney i am having trouble with my legs they are extreamly painful , stiff and swelling it feels like I'm constantly walking up hill and i cant seem to lift my left leg up very high no matter how hard i try has anyone experienced this and i am also having trouble with
Hidden
in
Vasculitis UK
6 years ago
Recent SLL/CLL Patient Question
Hello. I found out I have SLL/CLL earlier this year at 31. I had Rituxan treatment shortly after since I have neutropenia I can't seem to shake. I will save this for another post. My lymph nodes are visible but not huge yet. Since I have 11q I have read it can become a bulky disease. Not sure if they
Hello. I found out I have SLL/CLL earlier this year at 31. I had Rituxan treatment shortly after since I have neutropenia I can't seem to shake. I will save this for another post. My lymph nodes are visible but not huge yet. Since I have 11q I have read it can become a bulky disease. Not sure if they
DriedSeaweed
in
CLL Support
6 years ago
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