Thought it was time I should give update on my surgery since I had great support and advice from everyone on this site when I posted in May 2018 when I had first recurrence in para aortic lymph node.
Turns out surgery was not possible laparoscopically - the tumour was in a pretty dangerous spot - right next to the aortic vein. Because of this I was referred to the liver transplant surgeons who work expertly around complex areas. I was petrified (understatement), but in the best of hands. It took until July 2018 before surgery actually happened. I am now 6wks post surgery and feeling not too bad considering I have another major 20cms abdominal scar.
Had oncology meeting last week and we decided no chemo since there was nothing else visible during surgery (surgeon said he had a really good look). It's a bit of a grey area on whether starting chemo early is any more beneficial at this stage. Oncologist thinks it is better to avoid chemo until when - or as I say "if" it is needed in the future. However, she wanted me to think about it and if it's my decision to have chemo then that's what they'll do. My CA125 is 12 - which I was pretty chuffed about. But ... been down this road before. I just hope if there are some microscopic c.cells lurking about they've gone into hibernation .... for a very, very long time! So I'm going on observation and will have next appt in November to check CA125.
The oncologist tells me its quite rare to have just one lymph node involved. I know some of you have had recurrence in para aortic LNs - has anyone else had it in just one node? Or has anyone else just had surgery with no treatment after?
Many thanks .... cheers, Ruth