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Autologous stem cell transplant
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TIPS offered as alternative to transplant
After waiting over 9 months for Liver Transplant assessment I'm offered a TIPS by the transplant team. They say they are not ruling out transplant in the future but that a TIPS can improve my quality of life (Acities fills me up every week and I have a drain once a month) but Ive yet to find out the
After waiting over 9 months for Liver Transplant assessment I'm offered a TIPS by the transplant team. They say they are not ruling out transplant in the future but that a TIPS can improve my quality of life (Acities fills me up every week and I have a drain once a month) but Ive yet to find out the
hawksey
in
British Liver Trust
6 years ago
Surgery May Send Me to the Back of the Queue.
The Transurethral Urinary Bladder Tumor Resection I had last Wednesday may impede my standing for a lung transplant. The pulmonologist upon learning of this diagnosis said in order to be on the donor waiting list, you have to be cancer free for at least two years. However, the urologist said the tumors
The Transurethral Urinary Bladder Tumor Resection I had last Wednesday may impede my standing for a lung transplant. The pulmonologist upon learning of this diagnosis said in order to be on the donor waiting list, you have to be cancer free for at least two years. However, the urologist said the tumors
Sharp5Flat13
in
Lung Conditions Community Forum
6 years ago
cll w/ a twist - Stem cell
okay - been awhile - 8 years of cll without any great remission so i went to MSK since i hear good things. right off the bat they did a genetic test and found i have a mutated tp53 gene which basically keeps the medicine from working. I'm on venetoclax w/ rhituxin and have my levels good for first time
okay - been awhile - 8 years of cll without any great remission so i went to MSK since i hear good things. right off the bat they did a genetic test and found i have a mutated tp53 gene which basically keeps the medicine from working. I'm on venetoclax w/ rhituxin and have my levels good for first time
chemosuxs
in
CLL Support
6 years ago
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post liver op.
I am nearly 5 weeks post op liver transplant and I wondered how long the initial pain goes on from the operation incision? I am still having to take quite strong pain killers at regular intervals and I wanted to know if this is quite normal? Other than that I am feeling fine, a bit tired but a lot of
I am nearly 5 weeks post op liver transplant and I wondered how long the initial pain goes on from the operation incision? I am still having to take quite strong pain killers at regular intervals and I wanted to know if this is quite normal? Other than that I am feeling fine, a bit tired but a lot of
alfredthegreat
in
British Liver Trust
6 years ago
13 months post-transplant and quality of life
Hello. I had my liver transplant on the 15th August 2017 and have recovered pretty well so far. My operation had several problems including my kidneys failing, 2 seizures and internal bleeding. I seem to be suffering from a little brain fog, anxiety and a fair bit of low mood which I presume is the Ciclosporin
Hello. I had my liver transplant on the 15th August 2017 and have recovered pretty well so far. My operation had several problems including my kidneys failing, 2 seizures and internal bleeding. I seem to be suffering from a little brain fog, anxiety and a fair bit of low mood which I presume is the Ciclosporin
AndyEssex
in
British Liver Trust
6 years ago
SICKLE CELL NEWS WEEK
SICKLECELLNEWSWEEK The playful young boy never had a crisis until the family moved to Canada! http://bit.ly/2PYoM2n The Bako Youth Development Foundation has conducted over one million Hb verification tests in Nigeria http://bit.ly/2Pm19Ur Aiden’s sickle cell was worsening … until his concerned
SICKLECELLNEWSWEEK The playful young boy never had a crisis until the family moved to Canada! http://bit.ly/2PYoM2n The Bako Youth Development Foundation has conducted over one million Hb verification tests in Nigeria http://bit.ly/2Pm19Ur Aiden’s sickle cell was worsening … until his concerned
sicklecellnews
in
Sickle Cell Society
6 years ago
Love your liver roadshow
Hi everyone, I live in Ireland but I am considering travelling to the north of England next week to the love your liver roadshow to have a fibroscan done. I have real concerns even though my blood work has always been within the normal range. I will be requesting an ultrasound through my GP when I see
Hi everyone, I live in Ireland but I am considering travelling to the north of England next week to the love your liver roadshow to have a fibroscan done. I have real concerns even though my blood work has always been within the normal range. I will be requesting an ultrasound through my GP when I see
Liberty82
in
British Liver Trust
6 years ago
Inadvertently joined weight loss
Hi I inadvertently joined the weight loss part of this site - it defauled to this part of the site when i did a search for posts. I dint need weight loss info as all the new tablets im having post liver transplant seem to be losing weight forme 😀. I cant find how to undo! Anyone please?
Hi I inadvertently joined the weight loss part of this site - it defauled to this part of the site when i did a search for posts. I dint need weight loss info as all the new tablets im having post liver transplant seem to be losing weight forme 😀. I cant find how to undo! Anyone please?
Hidden
in
Weight Loss Support
6 years ago
Kidney transplant for a 1 year old
I am new to this so I don't know much about it. I am researching kidney transplant for a 1 year old O Positive blood
I am new to this so I don't know much about it. I am researching kidney transplant for a 1 year old O Positive blood
dhebert76
in
Kidney Transplant
6 years ago
I'm new here! This is my Story...
Good evening all, My name is Claire and I am 22 years old. Last week I was diagnosed with Idiopathic Myelofibrosis. I am Jak 2 negative. Ever since I was 16 my platelets were increasing at an alarming rate and just now did my doctor figure out why. I had my first ever bone marrow biopsy done just last
Good evening all, My name is Claire and I am 22 years old. Last week I was diagnosed with Idiopathic Myelofibrosis. I am Jak 2 negative. Ever since I was 16 my platelets were increasing at an alarming rate and just now did my doctor figure out why. I had my first ever bone marrow biopsy done just last
Actuallyclaire
in
MPN Voice
6 years ago
Hip pain
So Ryan has been through the loop.. about every 30 days since August 23rd when we learned of his brain tumor something new has popped up.. the lung tumor that is 4.7cm and now left hip pain to the point where he can’t walk. Where did this come from? Is this a sign the cancer has spread to his bones?
So Ryan has been through the loop.. about every 30 days since August 23rd when we learned of his brain tumor something new has popped up.. the lung tumor that is 4.7cm and now left hip pain to the point where he can’t walk. Where did this come from? Is this a sign the cancer has spread to his bones?
kellyOd
in
Melanoma Caregivers
6 years ago
Is depression normal for kidney transplant?
Hi, I just found out yesterday that I have to get a kidney transplant and I've been really depressed and have cried a few times. My question is...am I overreacting? I feel like I am but I can't help it. Is it just that I'm in shock maybe? Were any of you depressed when you found out? I guess I'm just
Hi, I just found out yesterday that I have to get a kidney transplant and I've been really depressed and have cried a few times. My question is...am I overreacting? I feel like I am but I can't help it. Is it just that I'm in shock maybe? Were any of you depressed when you found out? I guess I'm just
Mindy73
in
Kidney Transplant
6 years ago
Need help
Hello, my dad is not a uk resident and he need a liver transplant, where should we go first and what to do? Thank you
Hello, my dad is not a uk resident and he need a liver transplant, where should we go first and what to do? Thank you
Dianamd91
in
British Liver Trust
6 years ago
HEALING FOR SICKLE CELL DISEASE
Our hospital heals and eliminat all chronic Sickle Cell Disease in 3 to 4 weeks with no threat, surgery or bone marrow transplants involved. We adopt the most simple, safe, fast and successful genius method to heal all SCD. Find us in google: Supreme Sickle Cell Hospital Nigeria
Our hospital heals and eliminat all chronic Sickle Cell Disease in 3 to 4 weeks with no threat, surgery or bone marrow transplants involved. We adopt the most simple, safe, fast and successful genius method to heal all SCD. Find us in google: Supreme Sickle Cell Hospital Nigeria
sepremesicklecell
in
Sickle Cell Society
6 years ago
CMV infection in liver transplant patients
Hello all, I hope you are doing well. I am 5.5 months post transplant and have D+R- CMV (so I got CMV with my dear liver). I have been taking Valganciclovir for prevention for more than 3 months and have recently stopped advised by my doctor. Within one week of stopping, I have developed a cold sore
Hello all, I hope you are doing well. I am 5.5 months post transplant and have D+R- CMV (so I got CMV with my dear liver). I have been taking Valganciclovir for prevention for more than 3 months and have recently stopped advised by my doctor. Within one week of stopping, I have developed a cold sore
Pizamkazdw
in
British Liver Trust
6 years ago
Graduation run!
So at 56 having never considered myself to be a runner I decided to have a go at C25K and today I ran the whole 5K (took me 43 mins though - I am SLOW) Am feeling very proud of myself and thankful to my donor and their family ( I have had a liver transplant for an autoimmune condition) without them
So at 56 having never considered myself to be a runner I decided to have a go at C25K and today I ran the whole 5K (took me 43 mins though - I am SLOW) Am feeling very proud of myself and thankful to my donor and their family ( I have had a liver transplant for an autoimmune condition) without them
busylady
Graduate
in
Couch to 5K
6 years ago
ASK IT...GET AN OPINION! What is one question you have been thinking on and need some suggestions?
Like last week--I am going to be the first ASK IT... I often wonder where I should go to find an answer to helping with the issues I face in being a caregiver to my adult son who received his first kidney transplant nearly three years ago? ANSWER: One great source along the way has been the NKF Cares
Like last week--I am going to be the first ASK IT... I often wonder where I should go to find an answer to helping with the issues I face in being a caregiver to my adult son who received his first kidney transplant nearly three years ago? ANSWER: One great source along the way has been the NKF Cares
Bobbiereed
NKF Ambassador
in
Kidney Transplant
6 years ago
Introduction
Hi everyone! My daughter had Wilm's Tumor at 13 months and then was diagnosed with kidney disease a year later. She had a kidney transplant, receiving her dad's kidney at age 11. She is now 18 years old and just started her freshman year of college.
Hi everyone! My daughter had Wilm's Tumor at 13 months and then was diagnosed with kidney disease a year later. She had a kidney transplant, receiving her dad's kidney at age 11. She is now 18 years old and just started her freshman year of college.
KidneyKommando
NKF Ambassador
in
Parents of Children with Kidney Disease
6 years ago
Seriously questioning my doctor, need your advice!
I am at stage 4 GFR 23, Type 1 diabetic for 43 years. I had one nephrologist and was not happy with my care. I dropped him and was referred to my current doctor two years ago. My ckd was caused by immunosuppressive drugs when i had a pancreas transplant. I was told by many doctors that nothing could
I am at stage 4 GFR 23, Type 1 diabetic for 43 years. I had one nephrologist and was not happy with my care. I dropped him and was referred to my current doctor two years ago. My ckd was caused by immunosuppressive drugs when i had a pancreas transplant. I was told by many doctors that nothing could
Lgriffis
in
Early CKD Support
6 years ago
High ALP levels post transplant - help any advice?
My husband had his liver transplant in November 2017 and has quite a few ups and downs since resulting in admission last month for a week for various tests. The report says concern about high ALP levels and the need for further bone investigations. His ALP is normally 120-150. In hospital it was 220
My husband had his liver transplant in November 2017 and has quite a few ups and downs since resulting in admission last month for a week for various tests. The report says concern about high ALP levels and the need for further bone investigations. His ALP is normally 120-150. In hospital it was 220
Kimlescam
in
British Liver Trust
6 years ago
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