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Autologous stem cell transplant
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Kidney Transplant Issues
I am excited to join this community where us kidney transplant recipients are able to discuss the problems and frustrations that we encountered. I believe the dialysis doctors nor any doctors (at least in my experience) do not help you to cope with the trauma which we go thru. Currently, I am working
I am excited to join this community where us kidney transplant recipients are able to discuss the problems and frustrations that we encountered. I believe the dialysis doctors nor any doctors (at least in my experience) do not help you to cope with the trauma which we go thru. Currently, I am working
RUKIDNEYME
in
Power2Save Transplant Community
6 years ago
Poor liver function 20%. Man aged 88.
Hi all I am on here as I had a liver transplant in June 17 and all is fine, I’m glad to say. However, I live in France and my Dad is in the Uk. He has a lovely lady who cares for him. He recently had painful legs which was identified as gout. Now, however his legs are severely swollen and painful and
Hi all I am on here as I had a liver transplant in June 17 and all is fine, I’m glad to say. However, I live in France and my Dad is in the Uk. He has a lovely lady who cares for him. He recently had painful legs which was identified as gout. Now, however his legs are severely swollen and painful and
Isabelle2
in
British Liver Trust
6 years ago
Lupus Flare after 15 years of remission
Hi, so I was diagnosed with sle when I was 8, and its has now been about 22 years. Lupus first attacked my kidneys very early and I recieved a kidney transplant at 20. Since then I've been ok as far as my lupus goes but since last year I've been experiencing what I think are lupus flares but it's been
Hi, so I was diagnosed with sle when I was 8, and its has now been about 22 years. Lupus first attacked my kidneys very early and I recieved a kidney transplant at 20. Since then I've been ok as far as my lupus goes but since last year I've been experiencing what I think are lupus flares but it's been
Kay2006
in
LUPUS UK
6 years ago
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wrong diagnosis... Thanx for that!
Id been tested all my life to see if I may carry in my genes, a rare incurable, blood disorder that,when mum was told she had it over 50 years ago, there was no treatment at all, she got by largly due to her being a hard working dedicated mum to 6 boys. later in life this disease reared its head and
Id been tested all my life to see if I may carry in my genes, a rare incurable, blood disorder that,when mum was told she had it over 50 years ago, there was no treatment at all, she got by largly due to her being a hard working dedicated mum to 6 boys. later in life this disease reared its head and
Phillipaussie
in
HFI Connect - Hepatitis
6 years ago
Managing the Complications of Chronic Lymphocytic Leukemia (CLL) Online Program by The CancerCare Education Department (USA)
We appreciate your participation in Managing the Complications of Chronic Lymphocytic Leukemia (CLL), which took place on May 17. We hope you found this workshop informative and look forward to your feedback. If you were not able to attend this workshop, it is available on telephone replay 24 hours a
We appreciate your participation in Managing the Complications of Chronic Lymphocytic Leukemia (CLL), which took place on May 17. We hope you found this workshop informative and look forward to your feedback. If you were not able to attend this workshop, it is available on telephone replay 24 hours a
lankisterguy
Volunteer
in
CLL Support
6 years ago
Male hypo's support and advice
Hello everyone. I'm 41 male in the United States. I had aplastic anemia and a follow-up bone marrow transplant in 1998. The complications are GVH of the gut, low thyroid, and skin vitiligo. 200 mcg levo. Blood tests in April are the following Vit D 25, D3 19mg/dl Vit D D2 6mg D 25mg Folate 7.8 ng/ml
Hello everyone. I'm 41 male in the United States. I had aplastic anemia and a follow-up bone marrow transplant in 1998. The complications are GVH of the gut, low thyroid, and skin vitiligo. 200 mcg levo. Blood tests in April are the following Vit D 25, D3 19mg/dl Vit D D2 6mg D 25mg Folate 7.8 ng/ml
Jeffreyt
in
Thyroid UK
6 years ago
Recipes and diet plan
What to avoid and what’s good to eat when u are getting ready and waiting for a healthy liver . My father is waiting for a liver transplant and he need to be on a very strict diet . Can anyone plz help with any do’s and don’t
What to avoid and what’s good to eat when u are getting ready and waiting for a healthy liver . My father is waiting for a liver transplant and he need to be on a very strict diet . Can anyone plz help with any do’s and don’t
Soso444
in
British Liver Trust
6 years ago
Potential Prograf Shortage?
There is an article in the Business & Money section of today's Sunday telegraph about pharmacies having trouble in supplying some key medicines. The article comments specifically on Epipen, but also "specific treatments for a host of serious conditions". This concerns me as having had a liver transplant
There is an article in the Business & Money section of today's Sunday telegraph about pharmacies having trouble in supplying some key medicines. The article comments specifically on Epipen, but also "specific treatments for a host of serious conditions". This concerns me as having had a liver transplant
PeterP54
in
British Liver Trust
6 years ago
Diet
Hello I am the daughter to a man that has the liver disease he was a drinker and did drugs and it’s been 10 years that we know he has a liver disease and dr just say take pills and keep ur diet he has stop drinking and doing drugs since he found out and now it’s been 10 years and he is in pain goes to
Hello I am the daughter to a man that has the liver disease he was a drinker and did drugs and it’s been 10 years that we know he has a liver disease and dr just say take pills and keep ur diet he has stop drinking and doing drugs since he found out and now it’s been 10 years and he is in pain goes to
Soso444
in
British Liver Trust
6 years ago
Parvovirus
Hi Ive had my 3rd kidney transplant for nearly 2 and half years been feeling very tired etc. I have now been told i have got parvovirus has anyone else had this just wondered how long it lasts Thanks
Hi Ive had my 3rd kidney transplant for nearly 2 and half years been feeling very tired etc. I have now been told i have got parvovirus has anyone else had this just wondered how long it lasts Thanks
manbreak
in
Kidney Transplant Patient Support
6 years ago
New to running
Hi I'm Colin I'm getting myself fit & trying to lose more weight following a kidney transplant in April 2017. I started the couch25k 4 weeks ago on the treadmill. I'm hoping to get plenty of info from here
Hi I'm Colin I'm getting myself fit & trying to lose more weight following a kidney transplant in April 2017. I started the couch25k 4 weeks ago on the treadmill. I'm hoping to get plenty of info from here
Hidden
in
Couch to 5K
6 years ago
Micus
Hi hope you’re all trying to enjoy the sunshine, I was diagnosed 10 years ago with Copd and managed it quiet we’ll until developing liver problems which resulted in a successful liver transplant However, I am be devilled with a very productive cough which produces large quantities of phlegm which
Hi hope you’re all trying to enjoy the sunshine, I was diagnosed 10 years ago with Copd and managed it quiet we’ll until developing liver problems which resulted in a successful liver transplant However, I am be devilled with a very productive cough which produces large quantities of phlegm which
Dencos102
in
COPD Friends
6 years ago
PBC foundation about cirrhosis, same experiences?
I found this information about cirrhosis in the leaflet 'living with PBC' from the PBC foundation. If you have cirrhosis, do you agree with the vision showed below? Is the cirrhotic stage indeed just of 'relatively minor importance'? In my last appointment my hepatologist told me that my cirrhotic liver
I found this information about cirrhosis in the leaflet 'living with PBC' from the PBC foundation. If you have cirrhosis, do you agree with the vision showed below? Is the cirrhotic stage indeed just of 'relatively minor importance'? In my last appointment my hepatologist told me that my cirrhotic liver
Suzie38
in
PBC Foundation
6 years ago
My mum, my best friend
Hi all. My gf found this site for me & im grateful she did. I’m at a bit of a loss. I’m frightened,overwhelmed with so much information (some conflicting). My mum has decompensated liver disease. Autoimmune. She has Ascites which is drained about once a fortnight. We have just completed assessments
Hi all. My gf found this site for me & im grateful she did. I’m at a bit of a loss. I’m frightened,overwhelmed with so much information (some conflicting). My mum has decompensated liver disease. Autoimmune. She has Ascites which is drained about once a fortnight. We have just completed assessments
Mare-M
in
British Liver Trust
6 years ago
Thoughts on CLL treatment and watch and wait
I’d be really interested in other people’s thought processes about this. I’m not a haematologist, and this is all in the realm of theory and so may not stand up to clinical trials or the real world. I guess in a way I’m trying to synthesize a philosophy of treatment. 1. Why do we watch and wait? As
I’d be really interested in other people’s thought processes about this. I’m not a haematologist, and this is all in the realm of theory and so may not stand up to clinical trials or the real world. I guess in a way I’m trying to synthesize a philosophy of treatment. 1. Why do we watch and wait? As
AdrianUK
in
CLL Support
6 years ago
Hello from North Carolina USA
This is not my first rodeo with cancer and treatment – over twenty two years ago I was diagnosed with stage 3B breast cancer and spent a good year in treatment – outpatient chemotherapy, two surgeries,
autologous
stem cell
transplant
, radiation and more surgeries.
This is not my first rodeo with cancer and treatment – over twenty two years ago I was diagnosed with stage 3B breast cancer and spent a good year in treatment – outpatient chemotherapy, two surgeries,
autologous
stem cell
transplant
, radiation and more surgeries.
PamelaNC
in
MPN Voice
6 years ago
10 months post transplant recipient...side effects
Hi all, I'm 10 months post kidney transplant. Most of the past 10 months have been pretty good. No issues with my kidney which is great! However, my side effects lately have been getting more and more intense around peak time. I get a burning pain in my chest and lower rib cage, I do have some tremors
Hi all, I'm 10 months post kidney transplant. Most of the past 10 months have been pretty good. No issues with my kidney which is great! However, my side effects lately have been getting more and more intense around peak time. I get a burning pain in my chest and lower rib cage, I do have some tremors
Jenny0604
in
Kidney Transplant
6 years ago
So many questions
I have so many questions to ask but my doctor doesn't have a few hours to answer them all. For instance why aren't people told that their kidney function is in decline by their doctor until they start getting symptoms or get to stage 3. This seems cruel and wrong to me? Why is your creatinine level
I have so many questions to ask but my doctor doesn't have a few hours to answer them all. For instance why aren't people told that their kidney function is in decline by their doctor until they start getting symptoms or get to stage 3. This seems cruel and wrong to me? Why is your creatinine level
Angie2020
in
Early CKD Support
6 years ago
Liver Functions Test Are Out Of Range
Hi Everyone My daughter is 16 years old and was diagnosed with Biliary Atresia as a baby unfortunately the Kasai Portoenterostomy was unsuccessful and she had a liver transplant at the Birmingham Children's Hospital in year 2004. She has been very well however, recently her liver function test have
Hi Everyone My daughter is 16 years old and was diagnosed with Biliary Atresia as a baby unfortunately the Kasai Portoenterostomy was unsuccessful and she had a liver transplant at the Birmingham Children's Hospital in year 2004. She has been very well however, recently her liver function test have
Passion123456
in
Children's Liver Disease Foundation
6 years ago
Here it is. Times piece today on CLL and access to drugs. Skip dumb comments....
The Times chief reporter, Sean O’Neill, is writing about his leukaemia for the first time to highlight the unfair NHS policy on who can be offered life-saving drugs We had spent a glorious August day high in the Picos mountains in northern Spain, whizzing by cable car to the 1,800m peak of Fuenta De
The Times chief reporter, Sean O’Neill, is writing about his leukaemia for the first time to highlight the unfair NHS policy on who can be offered life-saving drugs We had spent a glorious August day high in the Picos mountains in northern Spain, whizzing by cable car to the 1,800m peak of Fuenta De
romarin
in
CLL Support
6 years ago
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