Experiences with

Autologous stem cell transplant

My mother had a kidney failure she's on stage 4, her GFR was 17% on December 2020, now its increased to 25% (UP & DOWN) she was prepared for kidney transplant (I am the donor) , but now the doctor postponed transplant until it goes down (below 20%), does she really need to do the transplant now or she

This is for information only. There are many people out there who may have a weakened or lowered immune system due to several reasons including a liver transplant and who might be struggling with concerns over whether a covid vaccine is safe to have or not. There is a presentation being given on the

Hi everyone, it’s been a very long time since I’ve posted anything on this forum. Hope you’re all as well as you can possibly be, if not I hope you feel better soon. I have a question for you all and although it’s through the possible worst pandemic this country has been through, I would like to ask

Hi everyone. I have painful , numb feet due to PN for about a year. Did not improve during dialysis and now that I recently had a kidney transplant I am hoping there may be some change? Treating it with pregabalin for the pain. Has anybody else had the same and found any improvement?

Our daughter will have another operation to attempt to try and clear her Jaundice next week. She had a Kasia on Dec' 14th (born 14/10/20). They will give her a DISDA scan tomorrow (17/02/20) and hopefully try and establish the location of the problem that is still preventing her Jaundice from clearing

I'm new to this site. I'm a 74 year old man living in York, UK. My Fitbit gives me a score of 42 which is supposed to be excellent for my age. Not long ago I had a proper VO2 max test where I rode an exercise bike with a mask on and they measured my respiratory gases. I was given a score of 13. This

Well, mates...I made it for three years with the bladder neoplasia in check, and undergoing BCG vaccine every few months. Remember I could now go on the lung transplant list having been cancer free for three years. Well Thursday’s cystoscopy put an end to that (although my oncologist argues this type

Hi my brother has been on a ventilator for 5 days with covid, he is currently on 100% oxygen, he has type 1 diabetes and has a kidney transplant, feel like my world has fallen apart and helpless as I can’t be there with him,. Would appreciate any words of encouragement. Thankyou

National Donate Life! I was 49 when I got my GIFT OF LIFE - my kidney transplant! It was 1999 , 21+ years ago. I had strep throat as a child and would up in kidney failure some 30 years later. I have friends that complain about their wrinkles and their grey hair and I thank GOD for every wrinkle

Good morning all, I have been listed on the Lung Transplant List for over 2 1/2 years now. They noticed I had the start of osteoporosis when I was listed which they put down to years of taking prednisolone. I have recently had a CT scan and it showed up some spinal fusions? Has anyone been taken off

Hi all! I'm writing because my husband has been referred for a transplant. He is 54 years old and is in end stage and on home dialysis since December 8th 2020. I 'm very nervous with the transplant process, we haven't been contacted yet to go for evaluation but any advice and how the process works will

In what may be the first study of its kind, Johns Hopkins Medicine researchers have documented the reaction of nearly 200 solid organ transplant recipients to their first vaccine inoculation against SARS-CoV-2, the virus that causes COVID-19. The findings, they say, provide evidence that both the Moderna

Hi everyone! I had my quarterly Nephrology appointment today. I am a kidney transplant recipient from 1999 - ya, 21+ years ago. There were a lot of questions and discussions on this site about the COVID vaccine and should you get it or not. My nephrologist has a friend who is also a nephrologist

Hi everyone. I'm posting for my partner. He had a successful kidney transplant about 6 years ago. He takes immunosuppresants (Azathioprine) and has been offered a vaccine. Have anyone you post kidney transplantees that take immunosuppresants had the vaccine? If so, which one have you had? Were you

Has anybody done only water fasting for over 24 hours after kidney transplant? I had done 7-8 days of only water fasting prior to KT and now have been doing IF of 20/4. I’m also a vegan of 16 years. Is long period of fasting on water safe for renal transplant recipients on immunosuppressive meds? Thx

Hello , has anyone been denied a kidney transplant because they were underweight ? Thanks!

I took my brother to his hepatology appt this morning (he has hepatopulmonary syndrome as a result of his liver disease). The registrar was great and gave us an overview of all the LT considerations and my brother stared at the floor quite disinterested-he won’t read up on it and would rather not know

Hi all I’m new here but wondered if anyone has had a liver transplant that had complications and ended up with partial amputations?? Thanks Liz x

I was actually feeling more like my true self and confident that I was recovering nicely from the transplant surgery, then the covid hit and I have been a prisoner in my own house. The only social activity I have is going for labs and doctor appointments. I miss all the things I used to do: going

Hello I don't post much on here I've had my call for the vaccine tomorrow bit of a shock as I didn't expect it so soon I'm 66 had a liver transplant 4 years this April other wise in good health I still work as a tree surgeon I did phone my transplant centre but couldn't speak to anyone probably too busy