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results of inspire study
INSPIRE (Investigating Neuropsychiatric Symptom Prevalence and Impact in Rheumatology patient Experiences) research I took part in this study and they have published the results which may be of interest- it was looking at the hidden mental health symptoms of people with
autoimmune
diseases
, so cognitive
INSPIRE (Investigating Neuropsychiatric Symptom Prevalence and Impact in Rheumatology patient Experiences) research I took part in this study and they have published the results which may be of interest- it was looking at the hidden mental health symptoms of people with
autoimmune
diseases
, so cognitive
Tbrz
in
Vasculitis UK
10 months ago
Webinar on financial planning with lupus
Monday 20th November at 5:30pm we are hosting a webinar with specialist financial planners from the Stonewood Group. They will talk through some information, and you will have the opportunity to ask them questions. The topics discussed will come directly from what people highlighted was important in
Monday 20th November at 5:30pm we are hosting a webinar with specialist financial planners from the Stonewood Group. They will talk through some information, and you will have the opportunity to ask them questions. The topics discussed will come directly from what people highlighted was important in
Debbie_kinsey
Administrator
in
LUPUS UK
7 months ago
Rash on Feet
hello everyone, I recently just joined after discovering this. For the last few days I’ve been suffering burning on the top of my feet as well as swelling in my feet and ankles. I’ve been diagnosed with Lupus earlier this year as well as raynauds and sjogrens. I’m starting to get concerned with my current
hello everyone, I recently just joined after discovering this. For the last few days I’ve been suffering burning on the top of my feet as well as swelling in my feet and ankles. I’ve been diagnosed with Lupus earlier this year as well as raynauds and sjogrens. I’m starting to get concerned with my current
Hidden
in
LUPUS UK
7 months ago
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Advice
I'm seeing a neurologist for balance problems and occasional slurring of words. I was diagnosed with Pernicious Anaemia (currently on B12 injections) in July this year and have had vitiligo for over 20 years. One of the blood test done was for TPO antibodies with were 78 which apparently had been
I'm seeing a neurologist for balance problems and occasional slurring of words. I was diagnosed with Pernicious Anaemia (currently on B12 injections) in July this year and have had vitiligo for over 20 years. One of the blood test done was for TPO antibodies with were 78 which apparently had been
Mark2027
in
Thyroid UK
7 months ago
ANY MALES WITH LUPUS/SLE, SJOGREN'S OR UNDIFFERENTIATED CONNECTIVE TISSUE DISEASE?
There was a great response to the invite for interviewees for zoom or email interviews for the Swansea University Medical School diagnostic journeys study; and the interviews have been incredibly helpful. We are not too far off the total number of interviewees we need at this stage. But have had very
There was a great response to the invite for interviewees for zoom or email interviews for the Swansea University Medical School diagnostic journeys study; and the interviews have been incredibly helpful. We are not too far off the total number of interviewees we need at this stage. But have had very
RupertW-SUMS
in
LUPUS UK
7 months ago
Lupus information and stories
https://lupusnewstoday.com/category/news/ This link works I hope. If you are not aware of it, it could be helpful and real time stories of people with lupus.
https://lupusnewstoday.com/category/news/ This link works I hope. If you are not aware of it, it could be helpful and real time stories of people with lupus.
MrsMarigold
in
LUPUS UK
7 months ago
What is the best app for lupus diet.
I’m struggling with my weight and what to avoid .
I’m struggling with my weight and what to avoid .
Gabriel8
in
LUPUS UK
7 months ago
Do anyone have a movement disorder?
I haven't got lupus but have aps and from what I've been told you can have a movement disorder with lupus. I have involuntary movements from what looks like I'm being electrocuted (like whole body spasms that bring my whole body in) tics, left side facial spasms (also tongue) and hand movements. It's
I haven't got lupus but have aps and from what I've been told you can have a movement disorder with lupus. I have involuntary movements from what looks like I'm being electrocuted (like whole body spasms that bring my whole body in) tics, left side facial spasms (also tongue) and hand movements. It's
Charts
in
LUPUS UK
7 months ago
Advice please 😌
Hi everybody, It’s nice to meet you all! So I’m sure you have loads of people posting on here about their frustrations with the NHS/GPs etc. therefore I won’t bore you with all of the details. My journey began in Dec 22 with what I thought was a bout of viral infection-induced joint pain in my hands
Hi everybody, It’s nice to meet you all! So I’m sure you have loads of people posting on here about their frustrations with the NHS/GPs etc. therefore I won’t bore you with all of the details. My journey began in Dec 22 with what I thought was a bout of viral infection-induced joint pain in my hands
Rocinante_89
in
LUPUS UK
7 months ago
updated Sjögren’s leaflet
https://sjogrensresearch-ireland.eu/wp-content/uploads/2022/09/Sjogrens-information-leaflet_2023-1.pdf Might be of interest!
https://sjogrensresearch-ireland.eu/wp-content/uploads/2022/09/Sjogrens-information-leaflet_2023-1.pdf Might be of interest!
weathervane
in
LUPUS UK
7 months ago
when to test child for CD?
Those of you with CD diagnosed in adulthood but with children - is there any evidence to suggest it’s beneficial to limit gluten in the diet? A fellow coeliac recently told me age 4 is when to get tested but he couldn’t recall where he got that info from. My daughter has no obvious signs and we haven
Those of you with CD diagnosed in adulthood but with children - is there any evidence to suggest it’s beneficial to limit gluten in the diet? A fellow coeliac recently told me age 4 is when to get tested but he couldn’t recall where he got that info from. My daughter has no obvious signs and we haven
Anj1a
in
Gluten Free Guerrillas
7 months ago
Hello - I'm a new member
Hello, I've just joined today and wanted to say hello. I was diagnosed with Rheumatoid Arthritis around 26 years ago, and it's been quite a journey. I've been on numerous treatments over the years, and had several surgeries. Fortunately, I've managed to keep working - although it's becoming more
Hello, I've just joined today and wanted to say hello. I was diagnosed with Rheumatoid Arthritis around 26 years ago, and it's been quite a journey. I've been on numerous treatments over the years, and had several surgeries. Fortunately, I've managed to keep working - although it's becoming more
WendyB123
in
NRAS
7 months ago
Just joined
Hi everyone, just want to say hello and am pleased that I am now part of this online community. I've had Rheumatoid Arthritis for over 30 years now and it's good to be able to hear from others in the same situation .
Hi everyone, just want to say hello and am pleased that I am now part of this online community. I've had Rheumatoid Arthritis for over 30 years now and it's good to be able to hear from others in the same situation .
AcerGirl
in
NRAS
7 months ago
Stating and underactive thyroid
Hi I suffer with underactive thyroid and fibromalarga reciently I got put on stating for high colesteral after 3 day I stopped them my muscles felt like I'd been hit buy a bus i
Hi I suffer with underactive thyroid and fibromalarga reciently I got put on stating for high colesteral after 3 day I stopped them my muscles felt like I'd been hit buy a bus i
shazzafloyd
in
Thyroid UK
7 months ago
Functional autoantibodies, a new paradigm in autoimmunity?
I came across a reference to "functional autoantibodies" in
autoimmune
diseases
, and started going down rabbit holes on the web to see if I could find out more. I came across this paper which mentioned hypothyroidism and hyperthyroidism in the abstract.
I came across a reference to "functional autoantibodies" in
autoimmune
diseases
, and started going down rabbit holes on the web to see if I could find out more. I came across this paper which mentioned hypothyroidism and hyperthyroidism in the abstract.
humanbean
in
Thyroid UK
1 year ago
Study to help patients manage their underactive thyroid
Just saw this and thought both that it is interesting it is being done. And, secondly, wondered if any would be willing to take part. I've scan read the information about the study and it appears that there is no geographical limit (please reply to let me know if I am wrong!) - just that you need to
Just saw this and thought both that it is interesting it is being done. And, secondly, wondered if any would be willing to take part. I've scan read the information about the study and it appears that there is no geographical limit (please reply to let me know if I am wrong!) - just that you need to
helvella
Thyroid UK
in
Thyroid UK
7 months ago
North Wales Lupus Group - Get together - 12th November 1.30pm!
Come join the North Wales Lupus Group on Sunday 12th November from 1:30 until 3:30pm, at Betty’s Café, Penmaenmawr, LL34 6AA. A great opportunity to meet others with lupus or an associated condition. Everyone welcome! Refreshments included! If you would like to join or for more information, please
Come join the North Wales Lupus Group on Sunday 12th November from 1:30 until 3:30pm, at Betty’s Café, Penmaenmawr, LL34 6AA. A great opportunity to meet others with lupus or an associated condition. Everyone welcome! Refreshments included! If you would like to join or for more information, please
michaellasmith
Administrator
in
LUPUS UK
7 months ago
Tingly Legs
Been on 25mg levothyroxine for about 18 months due to Tsh being 3.0 and GP wanted it under 2.0 as trying to conceive. Never noticed any side affects. For about 4 weeks now I've had a tingling feeling in legs and feet and one hand which is carpal tunnel like. Bloods fine, b12 satisfactory and tsh is 1.9
Been on 25mg levothyroxine for about 18 months due to Tsh being 3.0 and GP wanted it under 2.0 as trying to conceive. Never noticed any side affects. For about 4 weeks now I've had a tingling feeling in legs and feet and one hand which is carpal tunnel like. Bloods fine, b12 satisfactory and tsh is 1.9
Bristolgal8
in
Thyroid UK
7 months ago
Thyroid results
Hi I've struggled years with an underactive thyroid I have just received latest results wondered if anyone can help
Hi I've struggled years with an underactive thyroid I have just received latest results wondered if anyone can help
Rockingdog54
in
Thyroid UK
7 months ago
New to all this.
Im a 47yr old male and have recently been having blood tests after displaying all the standard underactive thyroid symptoms including huge fatigue. After being put on 25mg levothyroxine (to get me started on medication), the most recent tests showed a TSH of 3.6 (coming down from 6.2 on previous test
Im a 47yr old male and have recently been having blood tests after displaying all the standard underactive thyroid symptoms including huge fatigue. After being put on 25mg levothyroxine (to get me started on medication), the most recent tests showed a TSH of 3.6 (coming down from 6.2 on previous test
BiffAHiram
in
Thyroid UK
7 months ago
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