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Hello! My name is AR57 & I became a "Pensioner" this September just gone!! :) I have had Rheumatoid Arthritis since 2001 & I had been stable with it for a good few years until quite recently, but it has now started to give a few wobbles again!! :( It will be good to talk with others who may have similar
Hello! My name is AR57 & I became a "Pensioner" this September just gone!! :) I have had Rheumatoid Arthritis since 2001 & I had been stable with it for a good few years until quite recently, but it has now started to give a few wobbles again!! :( It will be good to talk with others who may have similar
Ghost87
in
NRAS
7 months ago
Musselburgh Coffee and Chat meeting - 2nd December!
Join the Musselburgh Lupus Group for our next Coffee and Chat meeting on Saturday 2nd December, from 10am until 12pm. Meeting at Brunton Hall Bistro, Brunton Hall, Ladywell Way, Musselburgh, EH21 6AF. This is a great way to connect with others affected by lupus, learn more about lupus and share your
Join the Musselburgh Lupus Group for our next Coffee and Chat meeting on Saturday 2nd December, from 10am until 12pm. Meeting at Brunton Hall Bistro, Brunton Hall, Ladywell Way, Musselburgh, EH21 6AF. This is a great way to connect with others affected by lupus, learn more about lupus and share your
michaellasmith
Administrator
in
LUPUS UK
7 months ago
Gabapentin for lupus pain
Hi, does anyone take gabapentin for lupus pain? Wanting some advice on how or if this has helped you, thank you.
Hi, does anyone take gabapentin for lupus pain? Wanting some advice on how or if this has helped you, thank you.
BonnyB
in
LUPUS UK
7 months ago
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Help understanding my blood test results.
Hi M54 Have been diagnosed with underactive thyroid for about 4 years now. Symptoms were fatigue, insomnia, depression,feeling cold all the time.However lately have been experiencing memory and concentration problems. Have an appointment with an Endo on the 30th of this month what should I raise with
Hi M54 Have been diagnosed with underactive thyroid for about 4 years now. Symptoms were fatigue, insomnia, depression,feeling cold all the time.However lately have been experiencing memory and concentration problems. Have an appointment with an Endo on the 30th of this month what should I raise with
gerrycrilley1
in
Thyroid UK
7 months ago
NASH & yellow diarrhea
Hi, I was diagnosed with NASH about 2 years ago.. I lost around 4 stone and my diet was a lot better, liver enzymes were in normal range. I then started on leflunomide for my rheumatoid arthritis around a month ago, and my ALT shot up to 100. I've been stopped the drug for about 2 weeks now but since
Hi, I was diagnosed with NASH about 2 years ago.. I lost around 4 stone and my diet was a lot better, liver enzymes were in normal range. I then started on leflunomide for my rheumatoid arthritis around a month ago, and my ALT shot up to 100. I've been stopped the drug for about 2 weeks now but since
Natbat87
in
British Liver Trust
7 months ago
Atypical Pernicious Anaemia
Hi All, If you have any spare time...I found some interesting articles when I searched online for "atypical pernicious anaemia".
Hi All, If you have any spare time...I found some interesting articles when I searched online for "atypical pernicious anaemia".
Sleepybunny
in
Pernicious Anaemia Society
7 months ago
Rheaumatiod athritis
Diagnosed with rheaumatiod arthritis last March, still don't know much about it as I have had a lot going on, wondering if rheaumatiod arthritis ever goes into remission
Diagnosed with rheaumatiod arthritis last March, still don't know much about it as I have had a lot going on, wondering if rheaumatiod arthritis ever goes into remission
Alice70
in
NRAS
7 months ago
cardiac thyroidology in the Uk?
Hello everyone I am new here. I am a super complex patient with couple of cardiac conditions incl. POTS dysautonomia and when i was living abroad was given T3 in small doses that helped me a bit as they said i had an underactive thyroid and a genetic tyoe of anaemia. I am in the Uk now an ddo not have
Hello everyone I am new here. I am a super complex patient with couple of cardiac conditions incl. POTS dysautonomia and when i was living abroad was given T3 in small doses that helped me a bit as they said i had an underactive thyroid and a genetic tyoe of anaemia. I am in the Uk now an ddo not have
Potsiegal
in
Thyroid UK
7 months ago
Flu and Covid vaccine
I was diagnosed with lupus in March this year. I dont know if I should take the flu and covid vaccine. I am scared it will make my lupus worse. Has anyone here take the vaccine?
I was diagnosed with lupus in March this year. I dont know if I should take the flu and covid vaccine. I am scared it will make my lupus worse. Has anyone here take the vaccine?
kali9
in
LUPUS UK
7 months ago
change of meds
Been having a bad year. Ive been unwell since July and was eventually hospitalised with double pneumonia in September. My rheumatologist treated me for a lupus flare as I had been in a similar situation years previous when first diagnosed with lupus. The dose of steroids did the trick and I was sent
Been having a bad year. Ive been unwell since July and was eventually hospitalised with double pneumonia in September. My rheumatologist treated me for a lupus flare as I had been in a similar situation years previous when first diagnosed with lupus. The dose of steroids did the trick and I was sent
mitty
in
LUPUS UK
7 months ago
Ferritin levels
I have collected my blood test results and am looking for information before my g.p. follow up appointment tomorrow.I am under the impression that ferritin levels should be "optimum" in order for my B12 injections to work for pernicious anaemia. Although I've been told all of my blood results are "normal
I have collected my blood test results and am looking for information before my g.p. follow up appointment tomorrow.I am under the impression that ferritin levels should be "optimum" in order for my B12 injections to work for pernicious anaemia. Although I've been told all of my blood results are "normal
Suesue246
in
Pernicious Anaemia Society
7 months ago
New PAS blog posts
Hi, I noticed that there were recent blog posts on PAS (Pernicious Anaemia Society) website. From 8th Nov 2023 is "The Patient Experience in Diagnosis and Treatment of Autoimmune Gastritis and Pernicious Anaemia" https://pernicious-anaemia-society.org/blog/the-patient-experience-in-diagnosis-and-treatment-of-autoimmune-gastritis-and-pernicious-anaemia
Hi, I noticed that there were recent blog posts on PAS (Pernicious Anaemia Society) website. From 8th Nov 2023 is "The Patient Experience in Diagnosis and Treatment of Autoimmune Gastritis and Pernicious Anaemia" https://pernicious-anaemia-society.org/blog/the-patient-experience-in-diagnosis-and-treatment-of-autoimmune-gastritis-and-pernicious-anaemia
Sleepybunny
in
Pernicious Anaemia Society
7 months ago
Sources and experiences of LDN
Hi again, Just one more sourcing question - does anyone have any recommendations of UK sources of low dose naltrexone? I would also love to hear of anyone's experiences of taking LDN. I have hashimoto's underactive thyroid and am also trying to conceive and have read that it could be v beneficial
Hi again, Just one more sourcing question - does anyone have any recommendations of UK sources of low dose naltrexone? I would also love to hear of anyone's experiences of taking LDN. I have hashimoto's underactive thyroid and am also trying to conceive and have read that it could be v beneficial
Becsf
in
Thyroid UK
7 months ago
Swollen knees
I have inflammatory arthritis, Osteo arthritis, Sjogrens and now have been diagnosed with FND . I also have/ had Polymyalgia . I had a hip replacement in 2017 and at that time I was suffering with painful knees. I have been on various medications and am on Imraldi and Methotrexate. I
I have inflammatory arthritis, Osteo arthritis, Sjogrens and now have been diagnosed with FND . I also have/ had Polymyalgia . I had a hip replacement in 2017 and at that time I was suffering with painful knees. I have been on various medications and am on Imraldi and Methotrexate. I
Bailybiscuit
in
NRAS
7 months ago
York Lupus Group Coffee and Chat meeting - 9th December at 11.30
Come join the York Lupus Group for our next Coffee and Chat meeting on the 9th December, 11.30 until 1.30 at Sledmere House Cafe, Sledmere, Driffield, Yorkshire, YO25 3XG. This is a great opportunity to meet others with lupus or associated conditions, friends and family also welcome! For more information
Come join the York Lupus Group for our next Coffee and Chat meeting on the 9th December, 11.30 until 1.30 at Sledmere House Cafe, Sledmere, Driffield, Yorkshire, YO25 3XG. This is a great opportunity to meet others with lupus or associated conditions, friends and family also welcome! For more information
michaellasmith
Administrator
in
LUPUS UK
7 months ago
Polymyalgia and Rheumatoid arthritis
I was diagnosed with PMR in June 2014. Over a period of about 7 years I managed to come off prednisone but after a time the PMR returned. Since 2022 I have managed to get down to 7mg daily and then have a flare. Back to 10 down to 8 and another flare. I live in France and it seems PMR is not as common
I was diagnosed with PMR in June 2014. Over a period of about 7 years I managed to come off prednisone but after a time the PMR returned. Since 2022 I have managed to get down to 7mg daily and then have a flare. Back to 10 down to 8 and another flare. I live in France and it seems PMR is not as common
Deemar
in
PMRGCAuk
7 months ago
Folic Acid does not cause PA
I saw this article with responses about the consumption of folic acid. What do people think about the responses? Especially the one who says that there shouldn't be a limit to the amount of folic acid taken. https://www.bmj.com/content/329/7479/1376/rapid-responses I have been taking 5mg folic acid
I saw this article with responses about the consumption of folic acid. What do people think about the responses? Especially the one who says that there shouldn't be a limit to the amount of folic acid taken. https://www.bmj.com/content/329/7479/1376/rapid-responses I have been taking 5mg folic acid
MEguy
in
Thyroid UK
7 months ago
So girding my loins, GP's in morning,
So have an appointment with GP at 11 am tomorrow. Now this was supposed to be about pain/discomfort ? RA. Of course they are bit sneaky and lots of other tests were included, but we aren't daft are we, we check first. So Thyroid bloods , TSH 0.01 (0.27-4.20) FT4 21.6 (12-22) as usual no FT3
So have an appointment with GP at 11 am tomorrow. Now this was supposed to be about pain/discomfort ? RA. Of course they are bit sneaky and lots of other tests were included, but we aren't daft are we, we check first. So Thyroid bloods , TSH 0.01 (0.27-4.20) FT4 21.6 (12-22) as usual no FT3
Polo22
in
Thyroid UK
7 months ago
HRT and Lupus
I’m 44 and have just been diagnosed with lupus and sjogrens in the last couple of months- there’s an awful lot to Learn. My GP thought my joint pain and anxiety was perimenopause related, and I was prescribed Evorel patches but after a month the pain was increasing rather than decreasing and autoimmune
I’m 44 and have just been diagnosed with lupus and sjogrens in the last couple of months- there’s an awful lot to Learn. My GP thought my joint pain and anxiety was perimenopause related, and I was prescribed Evorel patches but after a month the pain was increasing rather than decreasing and autoimmune
RachelMaryS
in
LUPUS UK
7 months ago
Blood test help required
Hi all! Please could anyone advise me on my blood tests which were done as my hair is shedding like crazy. I have an underactive thyroid and about 8 weeks ago my GP increased my thyroxine to 200mcg as my TSH was 6 (she didn’t test anything else). Since the shedding has continued and I feel really tired
Hi all! Please could anyone advise me on my blood tests which were done as my hair is shedding like crazy. I have an underactive thyroid and about 8 weeks ago my GP increased my thyroxine to 200mcg as my TSH was 6 (she didn’t test anything else). Since the shedding has continued and I feel really tired
happykath
in
Thyroid UK
7 months ago
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