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Heaven has another angel
I lost my precious bride of 35 years to PSP this morning at 5:14am Eastern Standard Time. She was not in any pain and went very peaceful. My two children were with me by her side. I had taken her to the hospital on Tuesday because of a bad UTI, but they determined she also had aspiration pneumonia
I lost my precious bride of 35 years to PSP this morning at 5:14am Eastern Standard Time. She was not in any pain and went very peaceful. My two children were with me by her side. I had taken her to the hospital on Tuesday because of a bad UTI, but they determined she also had aspiration pneumonia
ketchupman
in
PSP Association
8 years ago
I'm Hoarse.
I'm new here. I am coping with emphasima. My saline nebulizer causes phlegm to collect in my vocal cords making me hoarse. I would like to find a gargle or diet to minimize this. I live in Sunnyvale, California, USA
I'm new here. I am coping with emphasima. My saline nebulizer causes phlegm to collect in my vocal cords making me hoarse. I would like to find a gargle or diet to minimize this. I live in Sunnyvale, California, USA
Harlan
in
Lung Conditions Community Forum
8 years ago
Oxford biosciences
Hi, I've just ordered some methyl cobalamin from Oxford Biosciences and sterile saline from Germany. When I've mixed the two they won't be sterile as I'll have exposed it to the air. Do any of you use this prep and what are your experiences? Also where else can I get methyl from? Ideally I'd like it
Hi, I've just ordered some methyl cobalamin from Oxford Biosciences and sterile saline from Germany. When I've mixed the two they won't be sterile as I'll have exposed it to the air. Do any of you use this prep and what are your experiences? Also where else can I get methyl from? Ideally I'd like it
Withattitude
in
Pernicious Anaemia Society
8 years ago
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IV saline in UK for POTS/OI
Hi I am desperately trying to find a doctor in the UK - NHS or private, who will provide IV saline for severe drug resistant POTS or orthostatic intolerance. I understand and accept the risks or a picc or port but have a very poor quality of life and didn't tolerate fludrocortisone. Can anybody who
Hi I am desperately trying to find a doctor in the UK - NHS or private, who will provide IV saline for severe drug resistant POTS or orthostatic intolerance. I understand and accept the risks or a picc or port but have a very poor quality of life and didn't tolerate fludrocortisone. Can anybody who
bombsh3ll
in
STARS
8 years ago
Saline Plus salt therapy ....
Hi. I am wondering if anyone on here has tried this new salt filter fans . A friend of mines was bought one for her birthday and recommended it to me . I can buy one at a pharmacy for £129 the salt filter needs to be changed every 4 to 6 months costing £39 . It certainly would work out cheaper than going
Hi. I am wondering if anyone on here has tried this new salt filter fans . A friend of mines was bought one for her birthday and recommended it to me . I can buy one at a pharmacy for £129 the salt filter needs to be changed every 4 to 6 months costing £39 . It certainly would work out cheaper than going
Mizzymac
in
Lung Conditions Community Forum
8 years ago
sats help
Hey all i need help sats been 93-94% most of the day chest rattling tried ventolin inhaler and saline neb but still no different just wondering whether i am making a fuss??
Hey all i need help sats been 93-94% most of the day chest rattling tried ventolin inhaler and saline neb but still no different just wondering whether i am making a fuss??
Wheezalungs
in
Asthma Community Forum
8 years ago
My health problems
Hello I've joined today. Have had various lung problems over the years and am on oxygen 24/7. My current problem is blocked nose, I have a prescribed steroid spray Beconase and anti histamine tablets which help a bit, plus a saline spray. Could anyone advise me what to do next? Kathy
Hello I've joined today. Have had various lung problems over the years and am on oxygen 24/7. My current problem is blocked nose, I have a prescribed steroid spray Beconase and anti histamine tablets which help a bit, plus a saline spray. Could anyone advise me what to do next? Kathy
louis2917
in
Lung Conditions Community Forum
8 years ago
CLL and sinus
I am ww stage 0. I have been surrounded be sick people for the last few weeks. My husband, daughter, and sis, all have sinus and respiratory infections and allergies.. I did pretty will warding it off for a while. A few days ago woke up with a plugged up head and a lot of drainage and stuffiness in my
I am ww stage 0. I have been surrounded be sick people for the last few weeks. My husband, daughter, and sis, all have sinus and respiratory infections and allergies.. I did pretty will warding it off for a while. A few days ago woke up with a plugged up head and a lot of drainage and stuffiness in my
meemsdream
in
CLL Support
8 years ago
Thank u
Thank u everyone for ur kind words really helps not well today been docs now for saline nebs as well as the normal , antibiotics and rest and fluid if get any worse call ambulance and no not happy about the operation was really hoping I would be better but now I can hardly walk with out getting breathless
Thank u everyone for ur kind words really helps not well today been docs now for saline nebs as well as the normal , antibiotics and rest and fluid if get any worse call ambulance and no not happy about the operation was really hoping I would be better but now I can hardly walk with out getting breathless
Tracey1972
in
Asthma Community Forum
8 years ago
Bad day
Hi all hope u all doing ok me just got back from the docs Said my chest is gurgling I got to rest for few weeks thinks the asthma and the weather is activating the lungs he has give me some saline to put into my machine to dampen the lungs and some antibiotics to keep up to me if I start them now or
Hi all hope u all doing ok me just got back from the docs Said my chest is gurgling I got to rest for few weeks thinks the asthma and the weather is activating the lungs he has give me some saline to put into my machine to dampen the lungs and some antibiotics to keep up to me if I start them now or
Tracey1972
in
Asthma Community Forum
8 years ago
Eyes as dry as..
Still suffering with my dry eyes, and waiting to get an appointment at the eye hospital. My left eye has been very bad over the weekend, feels like something up under the lid. Using the latest drops have just made it worse. Bought a heated eye mask which didn't help at all. This morning I have gone
Still suffering with my dry eyes, and waiting to get an appointment at the eye hospital. My left eye has been very bad over the weekend, feels like something up under the lid. Using the latest drops have just made it worse. Bought a heated eye mask which didn't help at all. This morning I have gone
creaky
in
LUPUS UK
8 years ago
Frozen shoulder
Has anyone had hydrodilation for frozen shoulder. And did it work.been told saline and steroid injection given at the same time. But I can only have the saline.thanks for any advice
Has anyone had hydrodilation for frozen shoulder. And did it work.been told saline and steroid injection given at the same time. But I can only have the saline.thanks for any advice
Hidden
in
Pain Concern
8 years ago
The placebo and the nocebo effect and the ethics of pacebo use.
[i]'What are placebos?[/i]
[i]It’s important to distinguish between pure and impure placebos. A pure placebo is a straightforwardly fake treatment – a saline injection or a sugar pill, for instance, that is represented as a drug.[/i] [i]An impure placebo is a substance or treatment that does
[i]'What are placebos?[/i]
[i]It’s important to distinguish between pure and impure placebos. A pure placebo is a straightforwardly fake treatment – a saline injection or a sugar pill, for instance, that is represented as a drug.[/i] [i]An impure placebo is a substance or treatment that does
AussieNeil
Partner
in
CLL Support
8 years ago
PART TWO OF MANCHESTER REFERRAL
GP ACTION
REF FOR PHYSIO/OT FOR FYBRO MANAGEMENT
TRIAL OF GABAPENTIN OR PREGABALIN as before
Trial
substitute or pilocarpine
Experiment with
tears
Review ferritin deficient anaemia.
GP ACTION
REF FOR PHYSIO/OT FOR FYBRO MANAGEMENT
TRIAL OF GABAPENTIN OR PREGABALIN as before
Trial
substitute or pilocarpine
Experiment with
tears
Review ferritin deficient anaemia.
Footygirl
in
LUPUS UK
8 years ago
HRS, GI Bleed, SBP (?) HE and Ascites
Hi Guys, Some of you might have seen my other posts - if not then a quick recap: December my father becomes very ill, large tense ascites, Hepatic Encapathology and pre-existing cirrhosis. He quit drinking about 2 years ago. He was admitted to hospital (in December) and was suffering from AKI (Acute
Hi Guys, Some of you might have seen my other posts - if not then a quick recap: December my father becomes very ill, large tense ascites, Hepatic Encapathology and pre-existing cirrhosis. He quit drinking about 2 years ago. He was admitted to hospital (in December) and was suffering from AKI (Acute
JSR2014
in
British Liver Trust
8 years ago
PCD Management Advice
I have 2 children. A girl who just turned 5 and an 18 month old boy with suspected PCD. The consultant is treating them as such. We are trying to get to HSC funding to go to the UK to get tested - living in cork, Ireland. They did the test with the nose brushing on the 2 of them and it came back inconclusive
I have 2 children. A girl who just turned 5 and an 18 month old boy with suspected PCD. The consultant is treating them as such. We are trying to get to HSC funding to go to the UK to get tested - living in cork, Ireland. They did the test with the nose brushing on the 2 of them and it came back inconclusive
Swer
in
PCD Family Support Group (UK)
8 years ago
My experience of daily IV saline
After years of fighting I finally started IV saline for severe POTS/Severe ME 7 months ago. I've blogged about my experience http://blogfullofhope.blogspot.co.uk/2016/02/iv-saline-for-pots-and-severe-me.html
After years of fighting I finally started IV saline for severe POTS/Severe ME 7 months ago. I've blogged about my experience http://blogfullofhope.blogspot.co.uk/2016/02/iv-saline-for-pots-and-severe-me.html
Zestie
in
STARS
8 years ago
Need help
Hi everyone need your help. I was diagnosed with RA in 2013. Have been on steroids, methotrexate (25gm tablets and injections) sulphasaladine, hydroxychloroquine and unable to take any of them. Stopped sulpha saline, methotrexate November had to stop hydroxycholoquine mid December because it damaged
Hi everyone need your help. I was diagnosed with RA in 2013. Have been on steroids, methotrexate (25gm tablets and injections) sulphasaladine, hydroxychloroquine and unable to take any of them. Stopped sulpha saline, methotrexate November had to stop hydroxycholoquine mid December because it damaged
honeybee13
in
Fibromyalgia Action UK
8 years ago
Budenoside nebs..plodding on..
I added more saline solution..and inhaled longer., didn't sting this morning..and it does help me shift that mucus., so the joys of medication.⚗⚗⚗
I added more saline solution..and inhaled longer., didn't sting this morning..and it does help me shift that mucus., so the joys of medication.⚗⚗⚗
Hidden
in
Asthma Community Forum
8 years ago
Slow letters to GPs
It is a good job it is only for eye drops and
artificial
saliva
spray. Heaven help anyone who needs something stronger.
It is a good job it is only for eye drops and
artificial
saliva
spray. Heaven help anyone who needs something stronger.
PaleIndian2
in
Scleroderma & Raynaud's UK (SRUK)
9 years ago
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